KIDNEY FOR EMMETT |
KIDNEY FOR GLORIA
https://www.facebook.com/Find-A-Kidney-For-Gloria-564016173756409/ Will you help me? My blood type is B+ and I am listed at Albany Medical Center Transplant Center. Dear Donor: I cared for so many people over the years as a nurse and now it is time for me to tend to my illness which is chronic kidney disease (CKD). All the encouraging words I uttered to others as they tried to get well, I am whispering to myself like, “you will be fine in time;” “don’t worry, everything is going to be okay” and “stay strong.” As much as words can improve the condition of the mind to create an environment where healing can flourish, it is equally important to get the treatments right. My treatments are dialysis. They are given several times per week for several hours each time. They are wearing me down and I am honestly concerned that if I have to do this much longer it will wear me out. The problem is that when you experience kidney failure nothing can be done to rejuvenate its function, therefore all you have to hope for is that you will be granted a transplant. I’ve been hoping and praying that I will get the call saying a donor has been found, but it has been years and no call has come to me. Part of the problem is that I am just a number on a list, a mere name who lingers there month after month. Nobody there knows that I have two of the most wonderful sons in the world who need me still or that I am a 54 year old former nurse. If I could practice nursing right now, I would. In a heartbeat I would go back to the way life was for me before CKD came crashing into my world. They don’t know that I suffered with hypertension, preeclampsia and glomera nephritis when I was pregnant and that is how my kidneys were damaged. To them I am one cell in a very large grid. That is why I have decided to take my chances and come to you directly through this page. I want to ask you personally to be my donor. Please take a moment of your time to leave me a message. I would LOVE to talk to you. I would LOVE to learn about you. I would LOVE to know that somebody out there sees me and knows that I have so much left to give. There are happier days ahead in this battle because people are now waking up to the fact that the medical and scientific evidence is resoundingly clear when it states that human beings can live their full lifespans with only one healthy kidney. That bit of information has been a big motivator of thousands of people who have become living donors. These people stepped up and saved the lives of people they loved and in some cases of people they had never met rather than see them die. I am searching for my living donor. I am dying to meet him/her – LITERALLY, dying to meet him/her. I need that special donor to help me restore my health and receive true healing from CKD. Will you help me? My blood type is B+ and I am listed at Albany Medical Center Transplant Center. Very Kindly Yours, Gloria |
KIDNEY FOR CHRISTOPHER |
I just started a new page for my friend Chris. Please visit the page, hit the like button, leave Chris a word of encouragement, and share, share, share the page! Let’s make this a great page on FB! https://www.facebook.com/Kidney-for-Chris-529698090527031/…
KIDNEY STORIES: A KIDNEY FOR CHRISTMAS
A kidney for Christmas: Teacher gives a child a special gift
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Monday December 23, 2013 12:01 AM By Ron Devlin What you can doBecome a donor
You can become a potential organ donor when you obtain or renew your driver's license. When you visit any PennDOT photo license center, you can choose to have the organ-donor designation printed on your card. For more information on organ donation, contact the Gift of Life Donor Program at 888-366-6771.
Follow Katelynn
Katelynn has a Facebook page: Katelynns Kidney Journey
A timeline of healing
The moment Cindy Santos laid eyes on 5-year-old Katelynn Ernst again, she wrapped her arms tightly around the child.
In the foyer of Katelynn's Maidencreek Township home Friday, they clung to each other with an intensity that sprang from a special relationship.
Indeed, Santos, 45, a substitute teacher in Katelynn's kindergarten class at Richmond Elementary School, had given her student a most precious Christmas present: a kidney.
On Dec. 10, in adjoining operating rooms at Penn State Milton S. Hershey Medical Center, surgeons removed Santos' left kidney and transplanted it into Katelynn.
The nine-hour procedure was successful, and both donor and recipient are recovering.
On their first meeting after Katelynn came home from the hospital, Santos gazed in amazement at the child to which she always will be linked, physically and emotionally.
"Look at you, you're beautiful," Santos said. "Does you tummy hurt? Mine doesn't anymore."
Chris and Alicia Ernst, Katelynn's parents, could hardly contain their emotions.
For more than three years, they had ridden an emotional roller coaster while awaiting word that a kidney had been found for their ailing child.
With virtually no kidney function, Katelynn was on dialysis 10 hours a day, seven days a week.
How long she could survive on a regimen of 13 medications to stave off the effects of the disease and the treatment was uncertain.
Then, out of the blue, came Santos, whose compassion freed their daughter to live a normal life.
Arriving at Christmas, the season of giving, the life-sustaining gift had spiritual overtones.
"I believe," Alicia said, "God sent her to us."
Providential meeting
Santos first met Katelynn on Sept. 12, when she was called in to substitute for kindergarten teacher Pam Loughery.
Doreen Green, Richmond's school nurse, alerted her that there was a child in the class who was on kidney dialysis.
From their first encounter, something deep down stirred in Santos as she contemplated one so young battling so grave an illness.
"The first time I met her, she made an impression on me," Santos recalled. "This quiet little girl, who's only 5 years old, had already been through the wringer."
A week or so later, by accident, Santos came across Katelynn's Kidney Journey page on Facebook.
At first, she didn't make the connection between the Katelynn on Facebook and the Katelynn she'd met in class.
Still, something made her scan the page, which listed the health-related conditions for qualifying as a donor.
"That's me," she said to herself.
She emailed Hershey Medical Center, beginning a three-month process that would change the lives of both teacher and student.
In her living room, sitting beneath a wall hanging that reads "Faith, Believe, Love," Santos turned reflective.
"I still find it amazing that there's part of me inside her," she said. "I still can't wrap my mind around it. It's surreal."
A child's misfortune
Katelynn was only 22 months old when she came down with what the Ernsts thought was the flu in June 2010.
Then she went into seizure and was rushed to Penn State Milton S. Hershey Medical Center, where she was put on a ventilator.
At first, doctors thought it was meningitis.
Further testing isolated exposure to E. coli bacteria as the cause of hemolytic uremic syndrome, which causes kidney failure in children. How Katelynn was exposed has never been determined.
On her second birthday, Katelynn had 30 percent kidney function, which went steadily downward. In August 2012, doctors told the Ernsts their daughter would need a kidney transplant, soon.
Because of diabetes, family members were ruled out as donors. The Ernsts turned to Facebook in search of a donor.
Some 25 people, including a man from Oklahoma who'd lost a son to kidney disease, responded. For one reason or another, all proved to be unsuitable donors.
On one occasion, the Ernsts rushed Katelynn to Hershey when a deceased donor had been found. Doctors were readying Katelynn for surgery when the donor's kidney proved deficient.
"It's an agonizing process," said Chris, 31, a Santander Bank financial analyst. "One day you're up, the next you're down."
The Ernsts had just about given up hope when, on Oct. 24, Santos emailed them from the Days Inn in Hershey with the news she was to go through final testing the next day.
The Ernsts had known there was a living potential donor, but they did not know whom. Nor did they know it was one of Katelynn's teachers who lived less than a mile away.
"We were on our way home from Target when we got the news," recalls Alicia, 30, a stay-at-home mother of four children. "I just bawled my eyes out."
Good news at last
Santos had only taught Katelynn once and tutored her a few times, but was drawn ever closer to the child.
"When I was at school, I'd have lunch in the nurse's office and Katelynn (came) in for her meds," Santos recalls. "Every time I saw her, something built in me."
Not wanting to raise the Ernsts' hopes, she kept her testing secret. At each stage of the rigorous process, she could have been disqualified as a donor.
Santos relied on her family for strength.
Her husband, Matt Santos, and their children - Casey, 18; Brett, 16, and Evan, 12 - were supportive. So were her parents, Walter and Bernadette Stupinski of Toms River, N.J.
"At first, she didn't tell us," said Bernadette, a retired court clerk. "We were dumbstruck, but now we couldn't be prouder."
Cindy Santos' brother, Air Force Maj. Danny Stupinski was speechless when he first got the news.
Later he emailed from the Middle East, saying, "She's doing a wonderful thing, giving this little girl a new lease on life."
The day after Thanksgiving, at her parents' home, Santos received the long-awaited call from Hershey's transplant coordinator Vicky Reilly that she'd been accepted as a donor.
"That's when I realized," she recalled, "that this thing was going to happen."
Chris Ernst got the news from Hershey the same day.
"Are you sitting down?" Reilly asked. "Mrs. Santos is going to be your daughter's donor."
On Dec. 9, 11 days later, Katelynn would undergo her last dialysis treatment in the Ronald McDonald House in Hershey. The next day she would receive a new kidney.
The Ernsts breathed a sigh of relief when, while their daughter was still in recovery, they witnessed concrete evidence the surgery had been successful.
"When we saw (her urine) trickling into the jar," Alicia recalled, "we cried."
The right thing
Glowing with pride, Santos said she feels like a new woman.
She's healing, physically and emotionally.
"There was a little girl less than a mile from my home, and she needed something I could give her," she said. "It was the right thing to do."
There was something unexpected in it for Santos.
Testing revealed she has pelvic congestion syndrome, a potentially serious condition linked to varicose veins in the lower abdomen. Removal of the kidney, doctors say, could prevent surgery as she ages.
"That was my this-is-something-you-should-do bonus," Santos said.
Being a parent, she put herself in the Ernsts' shoes. What would happen if one of her boys were in the same situation as Katelynn?
"God forbid, if one of our boys needed a kidney and we couldn't help, I hope somebody would step up and donate one," she says. "I'm confident that they would."
Being Katelynn
The Ernsts realize Katelynn's body could reject the kidney at any time.
They're hopeful that she will grow up to be a mother, a teacher or maybe even a doctor.
"Given her experience," Alicia said, "I'd like to see her work in the medical field."
Santos hopes Katelynn will grow up strong and happy and live a fulfilling life.
For now, though, it's enough that Katelynn will have the chance to be a child.
"I just want her to be able to live the life of a normal 5-year-old," Santos said.
That's fine with Katelynn, whose dubbed her new organ "Cindy the kidney."
Right now, Katelynn's main goal in life is to go to Disney World and meet her idol, Princess Belle.
Contact Ron Devlin: 610-371-5030 or [email protected].
You can become a potential organ donor when you obtain or renew your driver's license. When you visit any PennDOT photo license center, you can choose to have the organ-donor designation printed on your card. For more information on organ donation, contact the Gift of Life Donor Program at 888-366-6771.
Follow Katelynn
Katelynn has a Facebook page: Katelynns Kidney Journey
A timeline of healing
- Sept. 12: Substitute teacher Cindy Santos meets Katelynn Ernst, 5, in kindergarten class at Fleetwood's Richmond Elementary School, Richmond Township.
- Sept. 25: Cindy contacts Vicky Reilly, living donor transplant coordinator at Hershey Medical Center.
- Oct. 24: From Days Inn in Hershey, on the eve of final testing as a potential donor, Cindy emails Katelynn's parents, Chris and Alicia Ernst of Maidencreek Township. It's the first time the Ernsts were made aware that Cindy, who lives less than a mile away, was a candidate to donate a kidney to their daughter.
- Oct. 25: Cindy undergoes 10 hours of testing at Hershey.
- Nov. 29: The day after Thanksgiving, Cindy receives a call at her parents' New Jersey home saying she'd been accepted as a donor. The Ernsts get a similar call, notifying them Cindy would be the donor.
- Dec. 2: Cindy undergoes pre-op testing in the morning at Hershey. Katelynn is scheduled for pre-op testing that afternoon. After completing her testing, Cindy is standing on the sidewalk outside the hospital when the Ernsts drive by in their minivan. They stop and, for the first time, meet their daughter's donor.
- Dec. 10: Transplant is successfully completed at Hershey.
- Dec. 13: Cindy returns home.
- Dec. 18: Katelynn returns home.
The moment Cindy Santos laid eyes on 5-year-old Katelynn Ernst again, she wrapped her arms tightly around the child.
In the foyer of Katelynn's Maidencreek Township home Friday, they clung to each other with an intensity that sprang from a special relationship.
Indeed, Santos, 45, a substitute teacher in Katelynn's kindergarten class at Richmond Elementary School, had given her student a most precious Christmas present: a kidney.
On Dec. 10, in adjoining operating rooms at Penn State Milton S. Hershey Medical Center, surgeons removed Santos' left kidney and transplanted it into Katelynn.
The nine-hour procedure was successful, and both donor and recipient are recovering.
On their first meeting after Katelynn came home from the hospital, Santos gazed in amazement at the child to which she always will be linked, physically and emotionally.
"Look at you, you're beautiful," Santos said. "Does you tummy hurt? Mine doesn't anymore."
Chris and Alicia Ernst, Katelynn's parents, could hardly contain their emotions.
For more than three years, they had ridden an emotional roller coaster while awaiting word that a kidney had been found for their ailing child.
With virtually no kidney function, Katelynn was on dialysis 10 hours a day, seven days a week.
How long she could survive on a regimen of 13 medications to stave off the effects of the disease and the treatment was uncertain.
Then, out of the blue, came Santos, whose compassion freed their daughter to live a normal life.
Arriving at Christmas, the season of giving, the life-sustaining gift had spiritual overtones.
"I believe," Alicia said, "God sent her to us."
Providential meeting
Santos first met Katelynn on Sept. 12, when she was called in to substitute for kindergarten teacher Pam Loughery.
Doreen Green, Richmond's school nurse, alerted her that there was a child in the class who was on kidney dialysis.
From their first encounter, something deep down stirred in Santos as she contemplated one so young battling so grave an illness.
"The first time I met her, she made an impression on me," Santos recalled. "This quiet little girl, who's only 5 years old, had already been through the wringer."
A week or so later, by accident, Santos came across Katelynn's Kidney Journey page on Facebook.
At first, she didn't make the connection between the Katelynn on Facebook and the Katelynn she'd met in class.
Still, something made her scan the page, which listed the health-related conditions for qualifying as a donor.
"That's me," she said to herself.
She emailed Hershey Medical Center, beginning a three-month process that would change the lives of both teacher and student.
In her living room, sitting beneath a wall hanging that reads "Faith, Believe, Love," Santos turned reflective.
"I still find it amazing that there's part of me inside her," she said. "I still can't wrap my mind around it. It's surreal."
A child's misfortune
Katelynn was only 22 months old when she came down with what the Ernsts thought was the flu in June 2010.
Then she went into seizure and was rushed to Penn State Milton S. Hershey Medical Center, where she was put on a ventilator.
At first, doctors thought it was meningitis.
Further testing isolated exposure to E. coli bacteria as the cause of hemolytic uremic syndrome, which causes kidney failure in children. How Katelynn was exposed has never been determined.
On her second birthday, Katelynn had 30 percent kidney function, which went steadily downward. In August 2012, doctors told the Ernsts their daughter would need a kidney transplant, soon.
Because of diabetes, family members were ruled out as donors. The Ernsts turned to Facebook in search of a donor.
Some 25 people, including a man from Oklahoma who'd lost a son to kidney disease, responded. For one reason or another, all proved to be unsuitable donors.
On one occasion, the Ernsts rushed Katelynn to Hershey when a deceased donor had been found. Doctors were readying Katelynn for surgery when the donor's kidney proved deficient.
"It's an agonizing process," said Chris, 31, a Santander Bank financial analyst. "One day you're up, the next you're down."
The Ernsts had just about given up hope when, on Oct. 24, Santos emailed them from the Days Inn in Hershey with the news she was to go through final testing the next day.
The Ernsts had known there was a living potential donor, but they did not know whom. Nor did they know it was one of Katelynn's teachers who lived less than a mile away.
"We were on our way home from Target when we got the news," recalls Alicia, 30, a stay-at-home mother of four children. "I just bawled my eyes out."
Good news at last
Santos had only taught Katelynn once and tutored her a few times, but was drawn ever closer to the child.
"When I was at school, I'd have lunch in the nurse's office and Katelynn (came) in for her meds," Santos recalls. "Every time I saw her, something built in me."
Not wanting to raise the Ernsts' hopes, she kept her testing secret. At each stage of the rigorous process, she could have been disqualified as a donor.
Santos relied on her family for strength.
Her husband, Matt Santos, and their children - Casey, 18; Brett, 16, and Evan, 12 - were supportive. So were her parents, Walter and Bernadette Stupinski of Toms River, N.J.
"At first, she didn't tell us," said Bernadette, a retired court clerk. "We were dumbstruck, but now we couldn't be prouder."
Cindy Santos' brother, Air Force Maj. Danny Stupinski was speechless when he first got the news.
Later he emailed from the Middle East, saying, "She's doing a wonderful thing, giving this little girl a new lease on life."
The day after Thanksgiving, at her parents' home, Santos received the long-awaited call from Hershey's transplant coordinator Vicky Reilly that she'd been accepted as a donor.
"That's when I realized," she recalled, "that this thing was going to happen."
Chris Ernst got the news from Hershey the same day.
"Are you sitting down?" Reilly asked. "Mrs. Santos is going to be your daughter's donor."
On Dec. 9, 11 days later, Katelynn would undergo her last dialysis treatment in the Ronald McDonald House in Hershey. The next day she would receive a new kidney.
The Ernsts breathed a sigh of relief when, while their daughter was still in recovery, they witnessed concrete evidence the surgery had been successful.
"When we saw (her urine) trickling into the jar," Alicia recalled, "we cried."
The right thing
Glowing with pride, Santos said she feels like a new woman.
She's healing, physically and emotionally.
"There was a little girl less than a mile from my home, and she needed something I could give her," she said. "It was the right thing to do."
There was something unexpected in it for Santos.
Testing revealed she has pelvic congestion syndrome, a potentially serious condition linked to varicose veins in the lower abdomen. Removal of the kidney, doctors say, could prevent surgery as she ages.
"That was my this-is-something-you-should-do bonus," Santos said.
Being a parent, she put herself in the Ernsts' shoes. What would happen if one of her boys were in the same situation as Katelynn?
"God forbid, if one of our boys needed a kidney and we couldn't help, I hope somebody would step up and donate one," she says. "I'm confident that they would."
Being Katelynn
The Ernsts realize Katelynn's body could reject the kidney at any time.
They're hopeful that she will grow up to be a mother, a teacher or maybe even a doctor.
"Given her experience," Alicia said, "I'd like to see her work in the medical field."
Santos hopes Katelynn will grow up strong and happy and live a fulfilling life.
For now, though, it's enough that Katelynn will have the chance to be a child.
"I just want her to be able to live the life of a normal 5-year-old," Santos said.
That's fine with Katelynn, whose dubbed her new organ "Cindy the kidney."
Right now, Katelynn's main goal in life is to go to Disney World and meet her idol, Princess Belle.
Contact Ron Devlin: 610-371-5030 or [email protected].
KIDNEY STORIES: A KIDNEY FOR SARAH
KIDNEY STORIES: A KIDNEY FOR SARAH
We are three friends helping to find a kidney for our friend Sarah. And along the lines do our share in spreading awareness and education for the community
Description
Our friend Sarah is a friendly, happy and highly driven young woman. In 2010, while in grad school, she was diagnosed with kidney failure. The doctors stated that both kidneys had failed, and because of the state of the kidneys, it was too late to determine the exact cause of the failure. However, Sarah also has Sickle-Cell Anemia, a blood disease that also has been having a devastating effect …on her condition. She has been on hemo-dialysis and is in dire need of a kidney donor. She goes to dialysis 3x a week for about 4hrs, is on 10 different medications at the moment, and has unfortunately, had to stop working in order to be able to continue under her plan of care. She is currently listed on the national organ-sharing waiting list; however that can take up to 10yrs in the state of California, depending on the patient. Being the oldest of six children (therefore, making her siblings too young to donate), and not having enough family members here in the US, she has found herself with no donors. In order to help save her life, we are starting an effort using social-media to aid the search for a donor, as well as starting a fundraiser to help with the medical costs.
She has a blood-type of A+, and can receive from anyone with an A, O, or AB blood type. We are pleading for the public to please help get her off dialysis in order to get her life back. Only one kidney is needed, and a normal, healthy person only requires one kidney to live a long healthy life.
“A good living donor candidate is someone who is healthy, well-informed and makes a voluntary decision to donate one of their kidneys. Living donors must be over 18 and usually under 70 years of age. They must be in good general health, a non-smoker, with no evidence of significant high blood pressure, diabetes, cancer, kidney disease, heart disease or hepatitis. Living donors can live in any state, and it is important to know that all medicals costs are covered by the recipient’s health insurance.” And there are programs that will help cover travel costs associated with the transplant. If interested in testing to see if you could possibly be a match, pls inbox or contact:
Sandra Heisterkamp/ Alejandra Munoz - UCSD Center for Transplantation 619-574-8612 Patient: Sarah O. Umarhabib
If you do not meet the criteria for a donor, you can still help by kindly donating whatever you can afford to:
http://patients.transplants.org/saraho
Thank you all, and may God bless you…Feel free to hit the “Like” and “Share” button! The more people we reach, the better our chances of helping Sarah.
“An average of 18 people die each day from the lack of available organs for transplant.”- DonateLife America
https://www.facebook.com/Kidney4SarahO
WWW.FACEBOOK.COM/KIDNEYSTORIES
We are three friends helping to find a kidney for our friend Sarah. And along the lines do our share in spreading awareness and education for the community
Description
Our friend Sarah is a friendly, happy and highly driven young woman. In 2010, while in grad school, she was diagnosed with kidney failure. The doctors stated that both kidneys had failed, and because of the state of the kidneys, it was too late to determine the exact cause of the failure. However, Sarah also has Sickle-Cell Anemia, a blood disease that also has been having a devastating effect …on her condition. She has been on hemo-dialysis and is in dire need of a kidney donor. She goes to dialysis 3x a week for about 4hrs, is on 10 different medications at the moment, and has unfortunately, had to stop working in order to be able to continue under her plan of care. She is currently listed on the national organ-sharing waiting list; however that can take up to 10yrs in the state of California, depending on the patient. Being the oldest of six children (therefore, making her siblings too young to donate), and not having enough family members here in the US, she has found herself with no donors. In order to help save her life, we are starting an effort using social-media to aid the search for a donor, as well as starting a fundraiser to help with the medical costs.
She has a blood-type of A+, and can receive from anyone with an A, O, or AB blood type. We are pleading for the public to please help get her off dialysis in order to get her life back. Only one kidney is needed, and a normal, healthy person only requires one kidney to live a long healthy life.
“A good living donor candidate is someone who is healthy, well-informed and makes a voluntary decision to donate one of their kidneys. Living donors must be over 18 and usually under 70 years of age. They must be in good general health, a non-smoker, with no evidence of significant high blood pressure, diabetes, cancer, kidney disease, heart disease or hepatitis. Living donors can live in any state, and it is important to know that all medicals costs are covered by the recipient’s health insurance.” And there are programs that will help cover travel costs associated with the transplant. If interested in testing to see if you could possibly be a match, pls inbox or contact:
Sandra Heisterkamp/ Alejandra Munoz - UCSD Center for Transplantation 619-574-8612 Patient: Sarah O. Umarhabib
If you do not meet the criteria for a donor, you can still help by kindly donating whatever you can afford to:
http://patients.transplants.org/saraho
Thank you all, and may God bless you…Feel free to hit the “Like” and “Share” button! The more people we reach, the better our chances of helping Sarah.
“An average of 18 people die each day from the lack of available organs for transplant.”- DonateLife America
https://www.facebook.com/Kidney4SarahO
WWW.FACEBOOK.COM/KIDNEYSTORIES
TAGS: CMS, Cuts to dialysis centers funding, Dialysis Patient Citizens, kidney, kidney donations, kidney failure, kidney transplant, kidneystories, National Kidney Foundation, PKD, PKD Foundation, polycystic kidney disease, UNOS and tagged a kidney for sarah, awareness, blood, chronic kidney disease, diabetic, dialysis, donate life, donor, End Stage Renal Failure, Facebook, find a kidney for, fundraiser, Indiana University, Jim Myers, kidney, kidney disease, kidney for, Kidney Stories, Live Journal, living kidney donor, National Kidney Foundation, NCS, Ning, organ donation, polycystic kidney disease, recipient, save my life, seeking, share a spare, sharing, transfusion, transplant list, Tumblr, Weebly, WordPress by kidneystories. Bookmark the permalink.
KIDNEY STORIES: PRAYERS AND SUPPORT FOR JACKIE
KIDNEY STORIES: KIDNEY FOR MY MOM
Paula, our mom, has only 1 kidney and it’s failing her. She desperately needs another one. Please share this page!
Description
8 years ago, my mom was diagnosed with Chronic Kidney Disease. One kidney was removed, and the other has been sustaining her. She was maintaining a level of function for a while, but recently her numbers are plummeting and dialysis is imminent.
My brother and I have been tested to be donors for her, but we were saddened to find out we were not matches. My dad is willing to donate his kidney as p…art of a paired donation kidney program at Mayo Clinic in Rochester, Minnesota. We have been told by Mayo Clinic that she may be hard to match, and in order to give her the best chance of survival, we need more people to be tested to increase the odds of finding her a match.
Next year, my mom will hopefully be celebrating her 70th birthday, and my parents will hopefully be celebrating their 50th wedding anniversary.
https://www.facebook.com/pages/Find-a-Kidney-for-our-Mom/671467386226446
www.facebook.com/kidneystories
Paula, our mom, has only 1 kidney and it’s failing her. She desperately needs another one. Please share this page!
Description
8 years ago, my mom was diagnosed with Chronic Kidney Disease. One kidney was removed, and the other has been sustaining her. She was maintaining a level of function for a while, but recently her numbers are plummeting and dialysis is imminent.
My brother and I have been tested to be donors for her, but we were saddened to find out we were not matches. My dad is willing to donate his kidney as p…art of a paired donation kidney program at Mayo Clinic in Rochester, Minnesota. We have been told by Mayo Clinic that she may be hard to match, and in order to give her the best chance of survival, we need more people to be tested to increase the odds of finding her a match.
Next year, my mom will hopefully be celebrating her 70th birthday, and my parents will hopefully be celebrating their 50th wedding anniversary.
https://www.facebook.com/pages/Find-a-Kidney-for-our-Mom/671467386226446
www.facebook.com/kidneystories
find a kidney for my mom, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: AMY'S QUEST FOR A KIDNEY TRANSPLANT
KIDNEY STORIES: AMY’S QUEST FOR A KIDNEY TRANSPLANT
Lupus Nephritis *Listed in San Antonio, TX at University Health System. *Blood type: A+ *Contact to get tested: Louisa.Gonzalez@uhs-sa
DescriptionABOUT AMY:
I am 36 yrs old, I grew up in the best small town, Madill,OK. I played basketball and ran track in high school. I was even a cheerleader during my Freshman and Junior year. My college years, I attended Murray State Junior College and South Eastern State University. Moved to San Antonio in 2001. Received MBA from Webster University. Diagnosed with Lupus in October 2003, End Stage Renal …Disease April 2013. I enjoy all types of music, I like going to watch outdoor movies in the summer. I like hanging out with friends, I consider my friends to be my family. I am involved with the Lupus Foundation of America and I work for Choctaw Global Staffing. I enjoy going to outdoor events, Hondo Corn Maize in November and Holiday in the Park are two of my favorite events. I don’t know what I would do without my family (here and Oklahome). They take very good care of me. *+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+ Kidney Program Overview: http://bit.ly/1fbozAJ Kidney Referral Criteria:http://bit.ly/1bOpioR Becoming a Living Donor: http://bit.ly/16XlsXR Living Kidney Donation: http://bit.ly/1gkdi3Y Questions? Contact: Louisa.Gonzalez@uhs-sa Source: facebook.com KEY WORDS: amy's quest for a kidney transplant, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
Lupus Nephritis *Listed in San Antonio, TX at University Health System. *Blood type: A+ *Contact to get tested: Louisa.Gonzalez@uhs-sa
DescriptionABOUT AMY:
I am 36 yrs old, I grew up in the best small town, Madill,OK. I played basketball and ran track in high school. I was even a cheerleader during my Freshman and Junior year. My college years, I attended Murray State Junior College and South Eastern State University. Moved to San Antonio in 2001. Received MBA from Webster University. Diagnosed with Lupus in October 2003, End Stage Renal …Disease April 2013. I enjoy all types of music, I like going to watch outdoor movies in the summer. I like hanging out with friends, I consider my friends to be my family. I am involved with the Lupus Foundation of America and I work for Choctaw Global Staffing. I enjoy going to outdoor events, Hondo Corn Maize in November and Holiday in the Park are two of my favorite events. I don’t know what I would do without my family (here and Oklahome). They take very good care of me. *+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+*+ Kidney Program Overview: http://bit.ly/1fbozAJ Kidney Referral Criteria:http://bit.ly/1bOpioR Becoming a Living Donor: http://bit.ly/16XlsXR Living Kidney Donation: http://bit.ly/1gkdi3Y Questions? Contact: Louisa.Gonzalez@uhs-sa Source: facebook.com KEY WORDS: amy's quest for a kidney transplant, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: PRAYERS FOR BABY THEODORE
Theodore was born with renal failure. This is his story.
Teddy’s Brief History
Our Teddy was born via induced (but otherwise natural – go mama!) labor at 38
weeks gestation due to extremely low amniotic fluid. We knew he had severe
hydronephrosis in one kidney, and there were conflicting reports about the other
kidney: it was just fine, it was missing, it was small, it had no blood flow, it
looked good, who knows. When he peed after birth, the attending pediatrician
assumed things were fine and we didn’t push it.
At 6 days, we had a scheduled consult with a ped nephrologist and discovered
that Teddy was in kidney failure, his right kidney was small and nonfunctional,
and his left kidney was barely functioning, if at all. We were transferred to
the UI Hospital in Iowa City via ambulance and stayed there for three weeks
getting him stabilized.
Since then, he’s had a rough journey.
Here is a current diagnosis list
Vesicoureteric reflux (urine flows back from his bladder to his kidneys, VUR)
(Teddy has stage 4 reflux on one side, and 5 on the other. That’s the worst it
can be, and then one step down from the worst. His ureters are large and twisty,
rather than narrow and straight. Technically, it’s called hydroureter.) Reflux
nephropathy (kidneys damaged from the VUR) UPJ obstruction (the kidney that
isn’t too small had an obstruction at its outlet, which was fixed with T’s first
surgery when he was 8 days old.) Congenital renal dysplasia (one kidney is small
and underdeveloped) Chronic Kidney Disease, Stage V (this is the big “what’s
wrong.” Everything else is either what caused this or what is caused by this.
This is also known as kidney failure) Premature Birth (36 weeks, induced for
lack of fluid) Anemia of chronic kidney failure (his kidneys don’t make the
hormone that tells your body to make red blood cells) Feeding by G-Tube (he is
100% tube fed) Low Gammaglobulin Level (we’re still uncertain what this means)
IgA deficiency (though this is on his diagnosis list, I’m not sure if it’s
true.) High Blood Pressure (kidneys regulate blood pressure, and T was diagnosed
with hypertension when he was something like 6 months old) Hearing Loss (this
has been resolved with the tubes) Vomiting (ha ha ha) All sorts of hyper- and
hypo- things from his labs. (phosphate, calcium, etc)
Here are the surgeries he’s had
12/4/11 Left dismembered pyeloplasty with placement of percutaneous
nephrostomy tube and circumcision.
12/7/11 Broviac placement; PD catheter placement 12/21/11 Broviac replacement
(malpositioned) 2/2/12 G-tube placement, open procedure, Mic-key button 3/2
Broviac removal (infection) 3/7 Bard PowerPort placement 3/30 PowerPort replaced
(malpositioned), PD Catheter replaced (malpositioned) 8/10 Tubes 9/14 PD Cath
replaced 10/8 PD Cath revised, tacked down. Port removed. 11/5 PD Cath replaced.
11/14 PC Cath removed
12 surgeries before he turned 1.
Hospital Admissions:
11/26-11/29: birth (4) 3 days at home 12/2-12/23: NICU (22 days) 40 days at
home 2/1-2/9: Gtube (9 days) 16 days at home 2/26-3/9: Broviac infection (13) 16
days at home 3/26-4/6: dehydration (12) 95 days at home 7/11-7/17: line
infection (enterococcus) (7) 25 days at home 8/12-8/13: pre-surg, cancelled for
cdiff (2) 22 days at home 9/5-9/18: line infection (enterococcus and
ascintobacter), PD cath replacement (14) 13 days at home 10/2-10/13: line
infection (ascintobacter), port removal, PD cath replacement (12) 19 days at
home 11/3-11/15: dehydration, then catheter replacement, then fungal peritonitis
(Candida Parapsilosis), then cath removal. (13) 69 days at home
He’s had three bouts with C-Diff, two IVIG infusions, some 3-4 iron
infusions.
Last time I saw a number, his estimated GFR (a measure of kidney function)
was 8 (that’s pretty low).
That’s it in a nutshell. Happy to answer questions.
If you want to make a donation to Teddy’s fund, you may do so here: http://patients.transplants.org/teddyreid
Description
Theodore Joseph Reid was born November 26, 2011. He was born early via an
induced but otherwise natural labor due to low amniotic fluid, and it was
discovered at 6 days old that he was in kidney failure. Teddy is holding his own
for now, and is working on growing big enough to receive a kidney transplant.
Please pray on behalf of this precious baby boy and his parents, brother and
sister. Let’s shake the heavens with our hearts and voices. “Where 2 or more are
gathered in my name, I will be among them”
https://www.facebook.com/pages/Prayers-for-Baby-Theodore/270574979657186
Teddy’s Brief History
Our Teddy was born via induced (but otherwise natural – go mama!) labor at 38
weeks gestation due to extremely low amniotic fluid. We knew he had severe
hydronephrosis in one kidney, and there were conflicting reports about the other
kidney: it was just fine, it was missing, it was small, it had no blood flow, it
looked good, who knows. When he peed after birth, the attending pediatrician
assumed things were fine and we didn’t push it.
At 6 days, we had a scheduled consult with a ped nephrologist and discovered
that Teddy was in kidney failure, his right kidney was small and nonfunctional,
and his left kidney was barely functioning, if at all. We were transferred to
the UI Hospital in Iowa City via ambulance and stayed there for three weeks
getting him stabilized.
Since then, he’s had a rough journey.
Here is a current diagnosis list
Vesicoureteric reflux (urine flows back from his bladder to his kidneys, VUR)
(Teddy has stage 4 reflux on one side, and 5 on the other. That’s the worst it
can be, and then one step down from the worst. His ureters are large and twisty,
rather than narrow and straight. Technically, it’s called hydroureter.) Reflux
nephropathy (kidneys damaged from the VUR) UPJ obstruction (the kidney that
isn’t too small had an obstruction at its outlet, which was fixed with T’s first
surgery when he was 8 days old.) Congenital renal dysplasia (one kidney is small
and underdeveloped) Chronic Kidney Disease, Stage V (this is the big “what’s
wrong.” Everything else is either what caused this or what is caused by this.
This is also known as kidney failure) Premature Birth (36 weeks, induced for
lack of fluid) Anemia of chronic kidney failure (his kidneys don’t make the
hormone that tells your body to make red blood cells) Feeding by G-Tube (he is
100% tube fed) Low Gammaglobulin Level (we’re still uncertain what this means)
IgA deficiency (though this is on his diagnosis list, I’m not sure if it’s
true.) High Blood Pressure (kidneys regulate blood pressure, and T was diagnosed
with hypertension when he was something like 6 months old) Hearing Loss (this
has been resolved with the tubes) Vomiting (ha ha ha) All sorts of hyper- and
hypo- things from his labs. (phosphate, calcium, etc)
Here are the surgeries he’s had
12/4/11 Left dismembered pyeloplasty with placement of percutaneous
nephrostomy tube and circumcision.
12/7/11 Broviac placement; PD catheter placement 12/21/11 Broviac replacement
(malpositioned) 2/2/12 G-tube placement, open procedure, Mic-key button 3/2
Broviac removal (infection) 3/7 Bard PowerPort placement 3/30 PowerPort replaced
(malpositioned), PD Catheter replaced (malpositioned) 8/10 Tubes 9/14 PD Cath
replaced 10/8 PD Cath revised, tacked down. Port removed. 11/5 PD Cath replaced.
11/14 PC Cath removed
12 surgeries before he turned 1.
Hospital Admissions:
11/26-11/29: birth (4) 3 days at home 12/2-12/23: NICU (22 days) 40 days at
home 2/1-2/9: Gtube (9 days) 16 days at home 2/26-3/9: Broviac infection (13) 16
days at home 3/26-4/6: dehydration (12) 95 days at home 7/11-7/17: line
infection (enterococcus) (7) 25 days at home 8/12-8/13: pre-surg, cancelled for
cdiff (2) 22 days at home 9/5-9/18: line infection (enterococcus and
ascintobacter), PD cath replacement (14) 13 days at home 10/2-10/13: line
infection (ascintobacter), port removal, PD cath replacement (12) 19 days at
home 11/3-11/15: dehydration, then catheter replacement, then fungal peritonitis
(Candida Parapsilosis), then cath removal. (13) 69 days at home
He’s had three bouts with C-Diff, two IVIG infusions, some 3-4 iron
infusions.
Last time I saw a number, his estimated GFR (a measure of kidney function)
was 8 (that’s pretty low).
That’s it in a nutshell. Happy to answer questions.
If you want to make a donation to Teddy’s fund, you may do so here: http://patients.transplants.org/teddyreid
Description
Theodore Joseph Reid was born November 26, 2011. He was born early via an
induced but otherwise natural labor due to low amniotic fluid, and it was
discovered at 6 days old that he was in kidney failure. Teddy is holding his own
for now, and is working on growing big enough to receive a kidney transplant.
Please pray on behalf of this precious baby boy and his parents, brother and
sister. Let’s shake the heavens with our hearts and voices. “Where 2 or more are
gathered in my name, I will be among them”
https://www.facebook.com/pages/Prayers-for-Baby-Theodore/270574979657186
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KIDNEY STORIES: FIND A KIDNEY FOR DAVID
David is a 34 year old devoted father and wonderful husband
with ESRD (End Stage Renal Disease). He has been on dialysis and waiting for a
kidney since 2008. He is blood type O+. Please click about below to learn more
about his story.
Description
At
the age of 14, David got strep throat. When it was left untreated by his
physician, it shut down his vital organs resulting in both of his kidneys being
severely damaged which is known as post-streptococcal glomerulonephritis. He was
able to maintain a normal life on medication for 14 more years. In 2008, David
began Peritoneal Dialysis. In 2012, David had to begin hemodialysis as PD was no
longer working well. David would like to receive
a kidney so that he can resume a normal life again and be able to work full time
and be more active in playing with his 2 year old son. David is listed at Loyola
University Medical Center in Maywood, IL. You may reach out to Loyola
Transplant's Team at 708-327-4897. Loyola participates in paired kidney matching
program, so anyone with any blood type that is willing to donate in my honor
will be appreciated.
https://www.facebook.com/pages/A-Kidney-for-David/161517517339251
www.facebook.com/kidneystories
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Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking,
awareness, National Kidney Foundation, Indiana University, sharing, kidney
disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney
disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life, kidney for david
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disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney
disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life, kidney for david
KIDNEY STORIES: NONA NEEDS A KIDNEY
KIDNEY STORIES: NONA NEEDS A KIDNEY
My mother in law, Jan, needs a kidney. She is 64 years old with polycystic
kidney disease.
Description
My mother in law, Jan, needs a kidney. She is 64 years old
with polycystic kidney disease. Jan is married, a mother of two and grandmother
to 3 year old twin girls. Her blood type is O positive. Jan’s kidney center is
University of Colorado Hospital, Denver Colorado. Jan goes above and beyond for
her family and friends. She is someone who gives all of herself to us and now it
is her turn. Jan is in need of the ultimate gift, the gift of life. Please help
her.
https://www.facebook.com/NonaNeedsAKidney
www.facebook.com/kidneystories
My mother in law, Jan, needs a kidney. She is 64 years old with polycystic
kidney disease.
Description
My mother in law, Jan, needs a kidney. She is 64 years old
with polycystic kidney disease. Jan is married, a mother of two and grandmother
to 3 year old twin girls. Her blood type is O positive. Jan’s kidney center is
University of Colorado Hospital, Denver Colorado. Jan goes above and beyond for
her family and friends. She is someone who gives all of herself to us and now it
is her turn. Jan is in need of the ultimate gift, the gift of life. Please help
her.
https://www.facebook.com/NonaNeedsAKidney
www.facebook.com/kidneystories
TAGS: CMS, Cuts to dialysis centers
funding, kidney, kidney donations, kidney failure, kidney transplant, kidneystories, National Kidney
Foundation, polycystic kidney
disease, UNOS and tagged awareness, blood, chronic kidney disease, diabetic, dialysis, donate life, donor, End Stage Renal Failure, Facebook, find a kidney for, fundraiser, Indiana University, Jim Myers, kidney, kidney disease, kidney for, Kidney Stories, Live Journal, living kidney donor, National Kidney Foundation, NCS,
Ning, organ donation, polycystic kidney disease, recipient, save my life, seeking, share a spare, sharing, transfusion, transplant list, Tumblr, Weebly, WordPress by kidneystories
funding, kidney, kidney donations, kidney failure, kidney transplant, kidneystories, National Kidney
Foundation, polycystic kidney
disease, UNOS and tagged awareness, blood, chronic kidney disease, diabetic, dialysis, donate life, donor, End Stage Renal Failure, Facebook, find a kidney for, fundraiser, Indiana University, Jim Myers, kidney, kidney disease, kidney for, Kidney Stories, Live Journal, living kidney donor, National Kidney Foundation, NCS,
Ning, organ donation, polycystic kidney disease, recipient, save my life, seeking, share a spare, sharing, transfusion, transplant list, Tumblr, Weebly, WordPress by kidneystories
KIDNEY STORIES: FIND A KIDNEY DONOR FOR RACHEL
kidneystories2013
facebook.com
Source:
KIDNEY STORIES: FINDING RACHEL A KIDNEY DONOR
This is the OFFICIAL Facebook page of Rachel’s. Dedicated to finding her a
living Kidney donor. Time is of the essance and we need your help.
Description
Rachel is in End stage renal failure. Our mission is to help
find a living kidney donor for Rachel and to raise awareness about early
detection and signs of diabetes so that no other child goes undiagnosed. Rachel
was diagnosed type1 diabetic at the age of 3. Her blood sugar was 1,389. Through
the years, diabetes has taken a toll on her body. She has lost her vision, lost
half of her left leg, in kidney failure, had had 2 mild heart attacks and had a
pulmonary embolism. Rachel does dialysis 3 times a week for 4 hours.
The number for further information and to get tested is 1-317-944-4370 Ask
for Kelly Coffee.
https://www.facebook.com/FindingRachelAKidneyDonor
www.facebook.com/kidneystories
facebook.com
Source:
KIDNEY STORIES: FINDING RACHEL A KIDNEY DONOR
This is the OFFICIAL Facebook page of Rachel’s. Dedicated to finding her a
living Kidney donor. Time is of the essance and we need your help.
Description
Rachel is in End stage renal failure. Our mission is to help
find a living kidney donor for Rachel and to raise awareness about early
detection and signs of diabetes so that no other child goes undiagnosed. Rachel
was diagnosed type1 diabetic at the age of 3. Her blood sugar was 1,389. Through
the years, diabetes has taken a toll on her body. She has lost her vision, lost
half of her left leg, in kidney failure, had had 2 mild heart attacks and had a
pulmonary embolism. Rachel does dialysis 3 times a week for 4 hours.
The number for further information and to get tested is 1-317-944-4370 Ask
for Kelly Coffee.
https://www.facebook.com/FindingRachelAKidneyDonor
www.facebook.com/kidneystories
KIDNEY STORIES: HELP MICHAEL GET A KIDNEY
Help find a living kidney donor for our friend Michael. This is
the direct line to the transplant coordinator if you can help. 720-848-0855.
Description
This
page was created to help share Michael's story . We're hoping that the more
people know about live donation the better the chance of finding a donor for
Michael.
If you are wanting to donate directly to Mike or do a Paired
donation, this is the contact you must make. And please be persistant. If you
dont get a return call right away, please call again: Thank you from Michael and
friends. Pl...ease
call the kidney translpant coordinator at University of Colorado
Hospital
Telephone: 720-848-0855
Blood type B or O, or you can
be a Paired Donor with any blood type.
Prior to donation any potential
living donor will need to be up to date on age appropriate health maintenance
(colonoscopy, Pap, Mammo etc.)
People that are interested- have them call
to donor team- the donor coordinator will then do a quick questionnaire over the
phone and will also explain the process again.
Step 1: fill out a donor
screening form
Step 2: send back Donor screening form- Nurse to review
it
Step 3: first round of testing (height, weight , and blood pressure
checked by provider, 24 hour collection- this checks kidney function. (again
this can be done out of state)à if normal will proceed to step 4
Step 4:
Full work up including, social worker phone call or visit (again this can be
done out of state)
Step 5: Once coordinator receives the tests- potential
donor will presented to our team
Step 6: if approved by our team- schedule
surgery
Step 7: Pre-op (out of town donors will meet with the team,
including surgeon and possibly psychology)
Step 8: surgery
https://www.facebook.com/HelpMichaelPasturGetAKidney
www.facebook.com/kidneystories
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donor, recipient, seeking, awareness, National Kidney Foundation, Indiana
University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney
disease, chronic kidney disease, kidney for, diabetic, save my life, living
kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant
list, fundraiser, donate life,
Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion,
donor, recipient, seeking, awareness, National Kidney Foundation, Indiana
University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney
disease, chronic kidney disease, kidney for, diabetic, save my life, living
kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant
list, fundraiser, donate life,
KIDNEY STORIES: KITCH NEEDS A KIDNEY LIKE YESTERDAY
Bill needs a kidney...A live donor is his best option..Please
consider our plea .
Please share and like this page.....we know someone is
out there...
We just need our loved ones help to spread the message and
consider donation.
Description
My
husband my life. The page is for him. We met over 4 years ago and married this
past April.
He is the strongest person I know. He has overcome obstacles in
his life that some people couldnt even talk about.
Now he is in the fight
for his life he has no control over. We are still in the process (long process),
of being accepted
to the transplant program. But finding a living donor
during this pr...ocess
is his best option. Some testing is all it takes to be
accepted as a donor.
The surgery is very simple. All covered by recipients insurance. But we are not
begging for a kidney.
Just putting it out there. If youre not a match for
him, you can be a match for someone else.
Just think if it was your loved
one. What would you do?
If you have any questions please feel free to
contact me or Bill.
Thank you for your support!!
https://www.facebook.com/KitchsKidneyDonorAwarenessPage
www.facebook.com/kidneystories
TAGS: End, Facebook, Failure, Foundation, Indiana, Jim, Journal, Kidney, Live, Myers, More…NCS, National, Ning, Renal, Stage, Stories, Tumblr, University, Weebly, WordPress, a, awareness, blood, chronic, diabetic, dialysis, disease, donate, donation, donor, find, for, fundraiser, kidney, kitch, life, like, list, living, my, needs, organ, polycystic, recipient, save, seeking, share, sharing, spare, transfusion, transplant, yesterday
KIDNEY STORIES: LET' S LENGTHEN LYNN'S LIFE!
KIDNEY STORIES: LET'S LENGTHEN LYNN'S LIFE!
Sandra
Lynne Young is coping with kidney failure. This page is to alert others to her
need for a kidney transplant and to connect you to info on kidney disease and
organ donation. Any potential donors willing to be tested should click the
Message button.
Description
A dear lifelong friend, Sandra Lynne Young (aka Lynne Young II) of Zion, IL,
has been through quite an ordeal in the past few years due to kidney failure.
She endured a grueling period of dialysis which actually nearly cost her her
life in the Fall of 2011 due to the formation of several blood clots.
Miraculously she recovered after several surgeries and actually was able to
enjoy a reprieve from… dialysis when it appeared her kidneys were again
functioning on their own. However the kidney problems have returned and doctors
want to put her back on dialysis and are reactivating her on the donor waiting
list. She dreads the idea of going through dialysis again and the waiting list
for a kidney is very long. Sandra wants to live and enjoy her family. So this
page is to share her story and appeal to any who would consider becoming a
kidney donor for Lynne.
Even if you are not a potential donor, please
feel free to like and/or share this page as this will drive exposure and
awareness. Please leave a message if you might be willing to help Lynne.
This page will be revised and updated a little later. I’m sorry for the
incomplete nature of this page at the moment.
Thank you for your time
and concern.
Praying for good health for all.
Sandra had to be
hospitalized again on Saturday, December 29th and has learned that she must
resume dialysis 3 times a week until she receives a new kidney. Poor thing
brought in the new year in pain and in the hospital.
Anyone who might be interested in becoming a potential donor for Lynne,
please contact Stephanie Albano, Living Donor Coordinator, Froedtert Hospital
Milwaukee @ 1-414-805-0310. She will be more than happy to do an ‘over the
phone’ assessment with you.
You can also contact her if you would like more
information regarding donor processing or any other questions you may have. If
she is not available please don’t hesitate to leave a message. She will contact
you as soon as possible.
Please know that any and all information given is
completely confidential.
https://www.facebook.com/LetsLengthenLynnesLife
www.facebook.com/kidneystories
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Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion,
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University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney
disease, chronic kidney disease, kidney for, diabetic, save my life, living
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list, fundraiser, donate life,
Sandra
Lynne Young is coping with kidney failure. This page is to alert others to her
need for a kidney transplant and to connect you to info on kidney disease and
organ donation. Any potential donors willing to be tested should click the
Message button.
Description
A dear lifelong friend, Sandra Lynne Young (aka Lynne Young II) of Zion, IL,
has been through quite an ordeal in the past few years due to kidney failure.
She endured a grueling period of dialysis which actually nearly cost her her
life in the Fall of 2011 due to the formation of several blood clots.
Miraculously she recovered after several surgeries and actually was able to
enjoy a reprieve from… dialysis when it appeared her kidneys were again
functioning on their own. However the kidney problems have returned and doctors
want to put her back on dialysis and are reactivating her on the donor waiting
list. She dreads the idea of going through dialysis again and the waiting list
for a kidney is very long. Sandra wants to live and enjoy her family. So this
page is to share her story and appeal to any who would consider becoming a
kidney donor for Lynne.
Even if you are not a potential donor, please
feel free to like and/or share this page as this will drive exposure and
awareness. Please leave a message if you might be willing to help Lynne.
This page will be revised and updated a little later. I’m sorry for the
incomplete nature of this page at the moment.
Thank you for your time
and concern.
Praying for good health for all.
Sandra had to be
hospitalized again on Saturday, December 29th and has learned that she must
resume dialysis 3 times a week until she receives a new kidney. Poor thing
brought in the new year in pain and in the hospital.
Anyone who might be interested in becoming a potential donor for Lynne,
please contact Stephanie Albano, Living Donor Coordinator, Froedtert Hospital
Milwaukee @ 1-414-805-0310. She will be more than happy to do an ‘over the
phone’ assessment with you.
You can also contact her if you would like more
information regarding donor processing or any other questions you may have. If
she is not available please don’t hesitate to leave a message. She will contact
you as soon as possible.
Please know that any and all information given is
completely confidential.
https://www.facebook.com/LetsLengthenLynnesLife
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KIDNEY STORIES: WILL WORK FOR TYPE B KIDNEY
My name is Scarlet and I have a rare blood type. I have been on dialysis for
ten years. I had a brief reprieve for two years. However, due to complications
with the surgery, the graft did not last. Because of this, I am also highly
sensitized.
https://www.facebook.com/WillWorkForTypeBKidney?fref=ts
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ten years. I had a brief reprieve for two years. However, due to complications
with the surgery, the graft did not last. Because of this, I am also highly
sensitized.
https://www.facebook.com/WillWorkForTypeBKidney?fref=ts
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KIDNEY FOR MELINDA
in 2008 a year after my brother passed away from Renal Cancer i
was diagnosed with Renal Failure. it is now 2013 and i'm in the process of
getting on the donors list We are having a fundraiser to help get to
appointments, donor after care & health care.
Description
General Information
i
was diagnosed with kidney failure at the age of 23. i was having stomach pain
and was rushed to the ER, where i was told my kidneys were failing, with a lot
of test from my kidney specialist the reason for my kidney failure is still
unknown. i have alot of up coming appointments to UCLA in which i need help to
get to.
i really need to get to the bottom of whats causing my kidneys to
not functio...n.
i havent started dialysis yet. but i do have the Fistula in my wrist.
im a
wife and a mother of 3 beautiful kids they are my world. i fight everyday just
to have the strength to play or even get out of bed.
i made this page for
help with my expenses for my trips to UCLA
i thank you very much and
appreciate all your donations.
https://www.facebook.com/AKidneyForMelinda
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fundraiser, donate life,
KIDNEY STORIES: FIND A KIDNEY FOR KYLE
Become a living kidney donor for Kyle Lester McKinney. Blood type A or O
is compatible Dover, Arkansas
Mission
Our mission is to restore Kyle’s good health and quality of life by encouraging healthy
individuals to consider being a living kidney donor. While dialysis is a
temporary solution to end stage kidney failure there can often be negative side
effects. Dialysis is not a fix all and the best solution to end stage kidney
failure is a kidney transplant. Kyle could be on the deceased kidney donor list
for years before a kidney becomes available to him. A living kidney donor is his
best option. Your consideration is needed.
To be considered as a kidney
donor for Kyle, contact:
University of Arkansas for Medical Sciences
Sue
Weeks
(501) 526-5480
Or contact the McKinney's directly
Description
In
1996, at the age of 15, Kyle Lester McKinney was diagnosed with IgA Nephropathy,
also called Berger's disease. In February 2005, the disease took a turn for the
worst and Kyle started dialysis. Fortunately, his mother was a match and donated
one of her kidneys to Kyle in May 2005. Nearly seven years later, the donor
kidney rejected, and at 31 years old Kyle is once again in stage five kidney
failure and needs a second kidney transplant. Although
originally from Hector, Arkansas, Kyle and his wife Paige reside in Dover,
Arkansas with their two young daughters. He has been on dialysis since February
2012. In March 2013, he was placed on the deceased kidney transplant list; it
could be 2 to 5 years before a kidney becomes available to him by these means.
There is however another option for Kyle. This is to find a living
kidney donor. For a healthy person, one kidney is enough to filter blood
properly through the body. This leaves many with the option of donating a kidney
to someone like Kyle. A kidney transplant for Kyle would mean not being tied
down to dialysis and returning to a healthy, normal life. Kyle’s blood type is
A+ which means he can accept a kidney from someone of blood types A and
O.
Research has shown that there's little long-term risk for kidney
donation, provided you're carefully screened before becoming a donor. As a
potential kidney donor, you'll receive a thorough medical exam to determine
whether you're a good match for the potential recipient. And you'll be carefully
checked to make sure you don't have any health problems that might be made worse
by donating a kidney.
To get medical updates and information about
becoming a kidney donor continue to follow "FIND A KIDNEY FOR KYLE LESTER
MCKINNEY" on Facebook.
https://www.facebook.com/FindAKidneyForKyleLesterMcKinney
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KIDNEY STORIES: KIDNEY FOR TONDA
Tonda is in need of a kidney transplant. She is currently on hemodialysis
3 days a week, 4 hours each day. She has been on dialysis almost 6 years.
Tonda's blood type is O+, and she is working with IU Medical center in
Indianapolis IN.
Description
Tonda is an amazing wife, daughter, sister, and
friend. She is in need of a kidney transplant . This is her second round of
hemodialysis and is currently on the transplant waiting list at IU medical
center in Indianapolis Indiana. She is an O+ blood type.
Tonda began her
battle at the young age of 9 when she was diagnosed with diabetes. She was
insulin dependent at that time. She has been through... many struggles in life and yet is the most positive,
loving and generous person I know. She is a follower of Christ and lives her
life for the Lord. There is not a day that goes by that she is not thinking or
doing for others and putting herself on the back burner. She is the backbone of
our family and an inspiration to all.
Here is a little history of her past
12 or so yrs:
Tonda began kidney failure at he age of 27 or so and was
given strict diet and fluid restriction orders to follow in order to prolong her
need for dialysis. After a fee years of strict restrictions she inevitability
ended up in complete renal failure. She had to start dialysis treatment if she
wanted to survive. She began dialysis and was placed on the transplant list. By
the grace of God, just 3 months into her journey she received a phone call from
her transplant coordinator that a man passed away, and his family wanted to
donate his organs. She was a perfect match not just for a kidney but a pancreas
as well. We felt so very blessed by the news. Tonda underwent a very long
surgery in order to receive the blessed donation. She not only was able to stop
dialysis but was also able to stop taking insulin injections for the first time
in 20+ years! What a blessing! The new organs that she received were such a
great match for her that even the doctors were amazed!
She recovered well
from the surgery and was in hope that now she may be able to start a family. She
had dreams for years of being a mother and was unable to fulfill that dream due
to her complications of diabetes, and constant declining health. She knew one
day God would help her fulfill those dreams...
She was never able to
conceive children of her own, but was able to become a great Step-mom and
wonderful Grandma in which she is very grateful for.
Just five short years
after her transplant, she was once again given the bad news that her new kidney
was failing. Her battle was beginning again. She was placed on dialysis for a
second time however her original graft that was placed just 5 years earlier was
bad and not able to be used. She had to undergo yet another graft placement. She
has been battling dialysis again for almost 6 years and is currently on the
waiting list again.
She has also been very blessed with a best friend whom
has had all necessary testing and blood work done so that she can donate her
kidney to a someone in need, in return for a kidney for Tonda. (Her best friend
is not a match for her)
Tonda's health has been declining rapidly over the
past few years and at 39 years young, she still has so much life ahead of her.
Her friends, and family would love to help anyway we can, so we are asking that
you share her story as well as find a kidney central page to raise awareness on
the overwhelming need for organ donation. God bless each and everyone of you.
https://www.facebook.com/AKidneyForTonda
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KIDNEY STORIES: HELP FIND NURSE VAL A KIDNEY
Nurse Val is a Registered Nurse that was diagnosed with Kidney
Disease 4 years ago and has been on dialysis for 3 years. She refuses to go on
disability, and works 2 jobs, while on dialysis.
Mission
My name is
Alexis, I am Val's daughter, and I am starting this page to try to save my
mother's life by finding her a kidney, so that she can keep doing what she does
best, and keep SAVING LIVES.
Description
Valda got the
name "Nurse Val" from being a Nurse Full-Time (for 25yrs. now), even when she is
off of work people still call her for medical help and advice. She truly has a
big heart and is always there to help everybody with anything, not just
medical.
She has 3 biological children, 1 legally adopted child, 1 adopted
child who had no home, and a husband of 30yrs. I am starting this page to try
to save my mother's life by finding her a kidney.
General Information
Blood
Type O+
KIDNEY STORIES: KIDNEY FOR THERESA
Theresa (Harroun) Gliha, blood type A, lives in Michigan
Description
I am
a 58 year old wife, mother and grandmother living in the southeast Michigan
area. I was diagnosed with CKD (Interstitial Nephritis) in January 2012, most
likely due to NSAID toxicity. I had been on a daily dose of a prescription NSAID
(meloxicam) for my degenerative disk disease for about 7 years. My kidney
functionality had been steadily declining over those years but my physician
never noti...ced
or did not make me aware of it until I was in Stage 5, with a GFR of 11. By the
time I was referred to a nephrologist it was too late. Irreparable damage had
already been done, my only options were a life on dialysis or a kidney
transplant. Please don't let this happen to you. Ask for copies of all your
tests whenever blood or urine is taken. Make your Dr. explain the results to
you. If my kidney disease would have been caught when I was in Stage 3, we may
have been able to reverse some of the damage. I will have to start dialysis
soon, but I will continue to search for a kidney donor. My kidney donor would
need to be blood type A or O. My daughter was tested and was a match for me, but
she was disqualified due to blood pressure problems. 4 other potential donors
have been tested to no avail. I am praying for a miracle now. If you or anyone
you know might be able to help, please contact me via this site or call the
University of Michigan Transplant Center at 734.763.4228.
KIDNEY STORIES: FISHIN' FOR A KIDNEY
Bob Watkins has been on Dialysis for 3 years due to undiagnosed
diabetes. He needs a donor with B or O blood type. to see if you're a match
please contact The transplant coordinator at UMass Memorial Medical Center in
Worcester, Massachusetts
Description
Call 508 334-1000 and ask for the transplant coordinator
The website has great
information about living donation. The message board is for questions and
sharing experiences with other donors or potential donors.
www.LivingDonorsOnline.org
Please
share with everyone you know! The more people that view this page the higher the
chances to find a match :)
https://www.facebook.com/FishingForAKidneyForBobWatkins
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KIDNEY STORIES: MY SISTER NEEDS A KIDNEY TRANSPLANT
This is my sister Patty and she is in desperate need of a
kidney transplant. She is in end-stage renal failure and has been living on a
dialysis machine since Jan 2012 . She has no family match. Please click below
on "About" to read more information.
Description
Please help!! My sister Patty is a loving wife
and mother of 4 beautiful and supportive children - 2 boys and 2 girls who are
her world. Patty comes from a large family with 5 sisters, 3 of whom are not a
compatible match and 2 who are not medically eligible to donate. Our mother is
heartbroken that that she can't save her daughter because she is too old to
donate at 86 and our father is not al...ive. Her
loving husband, her 4 children and multiple people outside of the family have
been tested, and sadly, no compatible match. I had hoped so much that I could
donate my spare kidney to her immediately, and it was devastating news to learn
I was not a compatible match. In desperation to save my sister's life, I've
created this page to reach out to the public to ask if you - or anyone you know
- would ever consider donating a kidney to my sister if you matched or could
participate in the paired exchange program via the National Kidney Registry?
Since I can't donate a kidney to her, I and other family members are
participating in a "paired exchange program" in which the National Kidney
Registry is trying to find someone out there like my sister needing a kidney who
one of us may match and can donate a kidney to, and at the same time find
someone who matches my sister willing to donate a kidney to her. It is more
than a year that we are participating in this pair exchange and the Registry has
not been able to find a compatible donor for Patty and she cannot sustain life
on a dialysis machine. Her love and passion for life is enormous, but dialysis
makes her sick and her anemia leaves her with little energy to enjoy a life of
quality.
If you, or someone you know, would be willing to be tested to
see if you are a match for my sister and have the heart to donate one of your
kidneys if you are, please call JANICE GLIDEWELL , TRANSPLANT MANAGER, at
Allegheny General Hospital in Pittsburgh at 412-359-6558. Her email is
[email protected]. My sister's name is Patty Chapman.
Patty was
diagnosed with end-stage kidney failure and uncontrolled hypertension of unknown
etiology (cause). She has been living on a dialysis machine since January 2012.
We have no known history of kidney disease in our family and doctors have been
unable to determine what caused her condition. The waiting list for a cadaver
(dead) kidney is very long - approximately 4-5 years or more, and Patty will not
live this long. A number of people outside of the family have been tested but
still no compatible match.
Patty needs a donor whose blood type is
either B or O. It doesn't matter where you live in the USA or Canada to be
tested, and It's okay if you don't know what your blood type is. The
transplant center can test your blood (for free, of course). When you call
Janice she will ask you some questions about your medical history which will
help determine if you could be a potential donor, and if so, you would then be
asked donate a few tubes of blood to determine your blood type and whether you
match. All testing is completely free.
Please feel free to message me
if you have any questions you would like to ask.
If you wish to learn
more, please visit the National Kidney Registry for information on how you can
help. http://www.kidneyregistry.org/index.php
Pay it forward! Even if you have no interest in being a kidney donor, you can
still help Patty enormously by sharing this information with others. Clicking
on "Like" and "Share" will help spread the word. The most effective way of
spreading this information is by sharing the link to this page on your own
Facebook (by clicking "Share"). Please consider being a kidney donor to my
sister, and even if you can't "share your spare", please help me to reach as
many people as possible with this urgent plea in the hopes that someone can save
Patty's life. It only takes one Hero!!
Thank you so much!!
https://www.facebook.com/MySisterNeedsAKidneyTransplantCanYouHelp
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KIDNEY STORIES: SEARCH FOR A KIDNEY DONOR FOR BRAD WEEMAN
This Facebook page is an attempt to broaden our search for a
kidney donor for my husband, Brad Weeman. While we've been intensely private
about Brad's situation thus far, we are becoming more desperate to find a
donor.
Description
My
husband Brad suffers from Chronic Renal Failure and in July 2011, he entered
stage 5 renal failure and had to begin dialysis. Brad is officially on the
cadaver kidney transplant list for MA/New England, with an average wait of 5
years. If Brad were to find a living donor, that wait would be immediately
eliminated.
We have been intensely private about Brad's situation, but
at this point we ha...ve
decided we need to broaden our search to as many channels as possible.
Therefore, we have created this Facebook page in an effort to find someone with
blood type O who might be interested in being a donor for Brad. We would greatly
appreciate your consideration in this matter, even if it's to just "share" this
page and spread the word.
For those with questions and/or those of you
who would like to move forward with being tested, I have listed the donor
transplant coordinator Kristen's contact information below. You can also contact
me or Brad with questions, and access additional information on donation on the
NKF's website.
Thank you,
Meredith and Brad Weeman
[email protected]
Kristen Pelletier RN, BSN
Brigham and
Women's Hospital, Boston, Massachusetts
617.732.8683
[email protected]
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KIDNEY STORIES: KIDNEY 4 NICK
In search of a Kidney Donor for Nick Crouse.
Description
Nick
is a 22 year old small engine mechanic who enjoys fixing things. His hobbies
include going dirt bike riding and playing video games. He's a beloved son,
grandson, brother, nephew, uncle and friend. On November 14th 2012, Nick was
diagnosed with End Stage Renal Failure at Abington Memorial Hospital Trauma
Center. He was given emergency Dialysis, Plasmapheresis and received several
pints of blood. His week stay in the hospital
was the starting point to a new and very difficult lifestyle for him as well as
his loved ones. Since then Nick has endured multiple surgeries and is in need of
a Kidney Transplant. He has chose Penn Medicine Transplant Center to be where he
will undergo his transplant. More information will be included to inform
potential donors as well as to lead them in the right direction to be a kidney
donor to Nick. Nicks blood type is O positive which means he's compatible with O
positive and O negative blood types. There are further tests to be completed to
ensure the potential donor is a complete match. Please share this page with
everyone you know because if not you someone you know could be the miracle Nick
needs. Thank you!
Website to Penn Medicines Kidney Transplants
http://www.pennmedicine.org/transplant/patient-care/transplant-programs/kidney-transplant/
To become a Donor - Follow these steps
1.Go to Website above
2.
Click on Transplant Process
3.Right underneath click on Evaluations
4.
Choose the last printable File "Kidney Living Donor Referral Form"
5.Fill
out and Contact Via Message to arrange a convenient Pick up or Drop off or
simply mail it to Penn's Transplant Center; address given on the Form. Thank
you.
Email: [email protected] or Message Facebook
Page!
https://www.facebook.com/Kidney4NickC
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KIDNEY STORIES: KIDNEY NEEDED FOR JULIA ZOOK
I am in need of a kidney! To see my description, click on
About.
Description
Hi! My name
is Julia Zook. I am 30 years old and single and I live in Harlan, IN. In
September, 2008, I went to my doctor because I was having some issues. He did
some tests and I was diagnosed with kidney disease (PKD). At that time I was in
Stage 4 and on February 12th, 2009 I started dialysis (Stage 5). I do not know
how I got the disease or when it started. I am currently on hemodialysis at a
center in Auburn, IN. I go there three times a week, three and a half hours each
time. My blood type is A+, so anyone with A or O blood type is able to donate to
me. If anyone is interested in donating, you can contact my transplant
coordinator at (260)435-6211. I would prefer a living donor.
https://www.facebook.com/KidneyNeededForJuliaZook?fref=ts
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KIDNEY STORIES: JEAN NEEDS A KIDNEY
Hi! My names is Jean and I am one of 94,000 that need a kidney
transplant. Please read the About section to find out how you can help me find
one. Thanks so very much!
Description
Hi!
My names is Jean and I am one of 94,000 that need a kidney transplant. Late
2011 I was diagnosed with medullary sponge kidney (MSK) and stage 3 chronic
kidney disease (CKD). A short five months later my disease had progressed
quickly and I was informed a kidney transplant would be needed soon.
MSK is
a congenital disease. That means I was born with it. I do not have the typical
symptoms o...f
MSK, instead my MSK has led to nephrocalcinosis, shrunken kidneys and low
functioning kidneys. I do not have any other health issues and have fortunately
been able to avoid dialysis. But it is only a matter of time. I am hoping to
have a kidney transplant before dialysis is needed.
I am listed at IU Health
in Indy and the University of Louisville Hospital. My blood type is A. But any
blood type can donate! I have some loving family members who have gone thru the
testing but are unable to donate for various reasons. They are heroes in my
book!
If you have an interest in being a living kidney donor to me or any of
the other 94,000 kidney patients you can contact me at [email protected] or
call the IU Transplant Center at 317-944-4370.
If you cannot donate a kidney
but wish to help, please share my page and encourage others to share it also.
It could lead to a miracle!
Thank you!
Jean
https://www.facebook.com/pages/Jean-needs-a-kidney/191305110993991
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organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
KIDNEY STORIES: KIDNEY TRANSPLANT FUNDRAISER FOR DARWIN
Monetary donations to the Darwin & Carolyn Rittgers Fund
can be mailed to: Darwin & Carolyn Rittgers Medical Fund c/o Veridian Credit
Union, 315 Oak Ridge Circle, Waverly, Iowa 50677
Company Overview
Friends and family of Darwin Rittgers created
this page to inform others about his condition and how they can help.
Darwin, age 54, long-time resident of Waverly, IA and former Waverly Police
Officer, was informed by doctors in August of 2009 that his kidneys were losing
function and that dialysis was a certainty in the near future unless he had a
kidney transplant. Doctors continued monitoring ...his blood
levels closely and he was placed on the National Donor List which has a waiting
period of 3-5 years.
Several friends and relatives offered to donate;
however, for various reasons, they were unable to do so. Darwin was told that a
spouse is normally not a good candidate for a match, but after a routine blood
donation to the Red Cross they found that Carolyn had the same blood type! Both
Darwin and Carolyn went through comparative blood typing and DNA testing and
they received the wonderful news that Carolyn was a match and could possibly be
Darwin’s donor! They went to Iowa City at the end of October for further testing
to confirm this, but when Carolyn went through testing, they discovered she has
a cyst the size of a softball on her ovaries. She will be getting this taken
care of before the transplant will take place. Darwin continues to have his
levels and functions checked monthly as they prepare for an upcoming transplant,
hopefully with Carolyn being the donor.
This whole situation has put a
tremendous strain on Darwin & Carolyn physically, emotionally, as well as
financially, as you can imagine. It is common for transplant patients to be
asked to raise money prior to a transplant to cover such things as: anything not
covered by insurance, medicine co-pays, travel expenses (gas food, hotel stays),
outside testing, loss of income before and after the surgery, etc. This is a
unique situation, in that, if Carolyn is the donor, they will both be off of
work for quite some time following the surgery. We want to ensure that the last
thing they need to worry about is their finances….that they can focus on their
recovery.
That is the purpose of this group. We know that many people
love Darwin & Carolyn, have been impacted by their lives, and would want to
help. This page will be a way that we can keep everyone updated as to how they
are doing, where they are at in the process, and how you can help in some way.
We will be planning benefits for the family to raise funds, and have set up an
account at the First National Bank in Waverly in their name that people can
donate to. We are also encouraging groups and individuals to think of ways that
they can help…either by planning your own fundraiser ( garage sale, bake sale,
car wash, love-offering, raffles, collection jars in businesses, etc. ) through
your group, church, organization, or place of employment, promoting this page,
or getting involved in helping us get the word out.
If everyone will
help in some way , we know Darwin & Carolyn will be forever grateful. We
hope you will check back to this page often to see how you can help! Thank you!!
Donations to the Darwin & Carolyn Rittgers Fund can be mailed to
:
Darwin & Carolyn Rittgers Medical Fund
c/o Veridian Credit
Union
315 Oak Ridge Circle
Waverly, Iowa 50677
https://www.facebook.com/darwinsfight
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KIDNEY STORIES: FIND OUR DADDY A KIDNEY
Bilal is a 32 yr. old member of the U.S. Air Force. Needs
living kidney donor- Blood Type 0. Transplant center is Denver, CO. Click ABOUT
for more info...
Description
Bilal is 32 years old and is a member of the
U.S. Air Force. We have been married for almost 14 years, and have two beautiful
children together who are 8 and 4. We are praying for a wonderful person to step
forward and help save his life by donating their spare kidney. He is such a
vibrant and happy person, and nothing brings him more joy than playing with our
children. Bilal leads a very active l...ife, and is
a Black Belt in both Tae Kwon Do and Tang Soo Do, as well as a private pilot.
Unbeknownst to most, Bilal is also a very talented pianist, and was actually a
piano instructor before he joined the military. Bilal first found out he had
chronic kidney disease when he was 25 years old and began having problems with
his blood pressure. At the time, he was training for a marathon, and was
otherwise in perfect health. Over the last few years his kidney function has
declined dramatically, and we found out on June 6th, 2013 that he would have to
go on the national transplant list. Dealing with all of this has been difficult
for our family, but we are remaining optimistic. Bilal's nephrologist told us
his best option is to find a living donor. We are currently searching for a
donor with BLOOD TYPE * O * If you or someone you know is interested in being
tested for a match, please contact us via this page, or at
[email protected]. His current transplant center will be Denver, CO,
but he may also be on the list for Nashville, TN or Orlando, Fl. Thank you for
taking the time to look over this page, and God Bless.
https://www.facebook.com/pages/Our-Daddy-Needs-A-Kidney/623362297681542
www.facebook.com/kidneystories
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KIDNEY STORIES: DEBORAH DONNELL NEEDS A KIDNEY
Debbie has PKD. Both of her kidneys were removed in November
2012. She has been on dialysis for 4 years and has been waiting for a
transplant. We need a living kidney donor! Contact us for more info!
Description
Debbie has Polycystic Kidney Disease (PKD). She is a wife, mother, grandmother, teacher,
and scout leader. She has been on dialysis for 4 years and has been waiting for
a transplant. In November 2012, she had a bilateral nephrectomy (both kidneys
were removed) because they were so large they were further degrading her quality
of life. Since being on the waiting list she has received two calls, but neither
kidney was viable. You can become her guardian angel by being her living donor.
Or simply spread the word about her cause, please help us find a
match!
https://www.facebook.com/DebNeedsaKidney
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KIDNEY STORIES: FIND A KIDNEY FOR JACK
Jack Cox is a wonderful person. He is currently on dialysis
here in Richmond, Indiana and is looking for a kidney donor. Jack's blood type is
O+ so if you are interested PLEASE contact us! Thank You!
Description
He was a volunteer fireman for 23 years and is now a honorable member. He is a
amazing papaw to Keiten that is 5 and Ava that is 3! He loves to go camping,
this is when he feels relaxed being with his family! He is an avid Centerville
High School sports fan. He loves Friday nights going to basketball and football
games. He works full time at Wayne County Highway dept where he has been there
for ma...ny years now. He started dialysis in Sept of 2009 when
we surprisingly learned he was in stage 5 renal failure and also needing open
heart surgery. He recovered great from the open heart surgery but is still
struggling with the dialysis. He goes into dialysis at 8:30 at night and gets
out at 3:30-4 am then heads to work at 6:30 to work his 8 hour shift! He would
love to be able to spend more time with his Grandkids playing and also working
on cars but as most people don't know dialysis takes so much out of him its hard
for him to do that
All it takes to find out is a simple blood test.
There will be no medical costs to the donor. If you are interested in learning
more, feel free to call 1-800-382-4602 (IU Health Transplant in Indianapolis).
Do me one more small favor. Even if you are not interested in learning more,
PLEASE SHARE THIS FAN PAGE to get the word out to more people. Thank
you.
https://www.facebook.com/FindAKidneyForJack
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KIDNEY STORIES: MY COUNSIN JOELY NEEDS A KIDNEY
Joely is my cousin and she has been on dialysis for 15 years.
She is a beautiful down to earth person.. She works hard to help her family. We
are starting this fan page to find her a kidney, she had a O type blood.
I'm looking for
a kidney for my cousin Joely Sampson! She is blood type O positive. Her
transplant center is Methodist Hospital in Houston, Texas and the number is
(713) 441-1001. She has been on dialysis since April, 1997. She is in need of a
kidney ASAP. Her kidney failure is hereditary. She is the proud mother of two
beautiful children 16 and 25. One grandchild that is 5.
DescriptionMy cousin is
located in Houston, Texas and blood type O positive. My transplant center is
Methodist Hospital and the phone number is (713) 441- 1001. My coordinator name
is Stephanie.
https://www.facebook.com/MyCousinJoelyNeedsAKidney
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KIDNEY STORIES: DIANE'S LIVING KIDNEY DONOR SEARCH
Hi, my name is Diane. I am 57 years old. I live in Attleboro,
Ma. I have been married to my husband Len for 32 years. My kidneys shut down
almost four years ago.
Description
Hi,
my name is Diane. i am 57 years old. i live in Attleboro, Ma. i have been
married to my husband Len for 32 years. Len and I have one son, Nicholas. He is
31, married and lives nearby. Almost four years ago, my aortic valve burst. i
also got pneumonia. I was given medication that shut my kidneys down and have
been on dialysis since. I love to read Amish fiction and visit Amish Country
often....
I am active in my CHURH as an elder and I teach woman's bible study. I am a
past president of our local Lions International Club. I spend my time quilting
and volunteering. I currently help with a free food program in our CHURH,
Bethany Village Fellowship.
I am working with The Organ Transplant Team
from Rhode Island Hospital. They are a paired/donation hospital. They are
located at 593 Eddy St., Providence, R. I. 02903. They can be reached at
[email protected], 1-401-444-3091. My blood type is O+.
My e-mail
address is [email protected].
Thank you for taking the time to read my story.
https://www.facebook.com/DianesLivingDonorSearch
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KIDNEY STORIES: KAREN MADDOX JOURNEY TO A TRANSPLANT
I am 45 years old, a wife of 27 years. I have two children . A
daughter and a son . I have five grandchildren. I was diagnosed with IGA
Nephropathy and started dialysis in 2008.
Description
I have been trying to get on the transplant list for 5 years, I finally was placed
this year but now they are telling me I have and 5-10 year waiting time. I am in
search of a live donor. I am type o+ and need an o type to match . I am
currently listed at St. Vincent's hospital in Indianapolis, Indiana. My case
worker is Tammy Rader at (317) 338-2694 Anyone wanting to get tested please
call. My insurance would cover ALL medical cost
of any testing and surgery however you must have your own insurance in case
anything is found during testing. I am on dialysis 3 days a week for three to
four hours at a time. It is painful and very draining. Although it keeps me alive
it is not a cure only a treatment. I am so anxious to get a kidney and get back
to a normal life where I can have the energy to work again and play with my
grandchildren. Please help save a life , share your spare :)
https://www.facebook.com/KarenMaddoxjourney
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KIDNEY STORIES: DONATIONS ARE UP!
Anonymous kidney donation is on the rise, fueled by compassion
Aimee Bultemeier of Lee's Summit, a nursing assistant at the Mid America
Heart Institute, not only wears a Donate Life bracelet, but already has donated
one of her kidneys to someone she never met.
Aimee Bultemeier of Lee's
Summit, a nursing assistant at the Mid America Heart Institute, not only wears a
Donate Life bracelet, but already has donated one of her kidneys to someone she
never met. (Fred Blocher, McClatchy-Tribune)
•Living Kidney DonorsFind More Information About How to Be a Hero &
Save a Life at UW. UWHealth.org/LivingDonor
By James A. Fussell, The Kansas City Star
6:36 p.m. CDT, May 29, 2013
The idea kept nagging at Aimee Bultemeier.
"I have two perfectly good kidneys, and I only need one," the 37-year-old
nursing assistant thought. "I could save somebody's life."
Here's the thing: She had no idea who that somebody was.
It wasn't a friend or family member. Just another human being who was waiting
for a chance at a new life.
For Bultemeier, that was enough. The single mother of two called the Midwest
Transplant Network in Westwood, Kan., and volunteered to have major surgery to
save the life of a stranger.
She is one of a growing number of anonymous kidney donors nationwide. Such
altruistic, nondirected organ donations have grown in recent years, experts say,
thanks to the Internet, emotional videos on YouTube and the reach of social
media.
In 2011, the latest year complete statistics are available, there were 159
anonymous kidney donors in the United States.
"This was unheard of until the late '90s," said Anne Paschke, a spokeswoman
for the United Network for Organ Sharing in Richmond, Va. "The first ones we
recorded were in 1998. And if you go back a dozen years, there were only
30."
The Midwest Transplant Network also has seen more interest in such
donations.
"We've seen a steady increase in calls each year," said Catherine Nash, the
network's family services coordinator. "We probably get 30 to 40 people a year
calling with questions. Of those, about 20 follow through. Then, on average, two
of those (donate).
"But 100 percent of our callers are coming from an altruistic standpoint.
They want to help. They've seen the statistics about people dying waiting for a
kidney."
While people are born with two kidneys, organs that make urine and filter
waste from the blood, they can function normally with just one.
"We think about greed and narcissism and all the shootings," psychologist
Bruce Manley said. "But we forget that there is still a very large number of
people who are doing good and decent things for other human beings. This is just
an example of that. Then if we look at the role that social media plays, we can
start to see why this is happening at this moment."
Psychologist Renee Dietchman has another theory.
"Typically when times are tough, such as in the Great Depression, people want
to help," she said. "If they can't help financially, maybe they help out by
giving more of themselves."
Bultemeier works on the transplant floor at the Mid-America Heart Institute
at St. Luke's Hospital in Kansas City, Mo., and is familiar with such cases.
"In 2010, I became close to two guys waiting for heart transplants," she
said. "They were both single parents and both close to my age. It just really
touched me; more or less broke my heart. I mean, that could be any of us.
"I just couldn't imagine being young and single and a parent and needing an
organ to live, you know? And so pretty much that's when it just was clear as day
to me."
Before making her final decision, she did a lot of praying and Internet
research. Then she told her mother, Kathy Hood, who worried.
After all, Bultemeier's former husband, the father of their daughter, Lexi,
had died of a brain aneurysm.
"I worried that Aimee might be the only match for her if she ever needed (a
kidney)," Hood said. "She said, 'Mom, the chances of that happening are so slim,
and I could help save a life now!'"
Also, there is no guarantee a parent will be a match for a child.
After Bultemeier contacted the Midwest Transplant Network in September 2010,
it took nine months of interviews, medical tests, mental health screenings,
background checks and in-person interviews to make sure she was a good
candidate.
Nash said donors must not only undergo multiple screenings, they also must
realize that they're purposely putting their body at risk to help another
person.
Bultemeier passed on all counts.
"She is just so amazing and so positive," Nash said. "Her wanting to donate
reflects how she lives her life."
The hospital where Bultemeier works gave her eight weeks of paid time off to
donate and recover.
"My boss was amazing and supportive," she said. "I wish more businesses would
do that."
A year and a half after donating, Bultemeier doesn't know much about the
person who received her kidney.
"A few months after I donated, about October of 2011, I received a card from
my recipient," she said. "It was very short and sweet. I know it's a guy. He
said he was eternally grateful and he is doing great, and he hopes to meet me
one day and get to know me."
She wants to meet him and to hear his story. She imagines she might have
helped save someone with a wife and children.
"It's hard," she said in a quavering voice. "I knew going in that I might
never meet my recipient. And that's OK."
The need is great
Nationally about 95,000 people are waiting for a kidney, according to the
United Network for Organ Sharing. On average, 13 a day die, according to the
National Kidney Foundation. More than 400,000 people in the U.S. are on
dialysis.
For more information on kidney disease and organ donation, visit the National
Kidney Foundation website at kidney.org.
[email protected]
http://www.chicagotribune.com/health/sc-health-0529-anonymous-kidney-donation-20130529,0,7168758,full.story
www.facebook.com/kidneystories
Aimee Bultemeier of Lee's Summit, a nursing assistant at the Mid America
Heart Institute, not only wears a Donate Life bracelet, but already has donated
one of her kidneys to someone she never met.
Aimee Bultemeier of Lee's
Summit, a nursing assistant at the Mid America Heart Institute, not only wears a
Donate Life bracelet, but already has donated one of her kidneys to someone she
never met. (Fred Blocher, McClatchy-Tribune)
•Living Kidney DonorsFind More Information About How to Be a Hero &
Save a Life at UW. UWHealth.org/LivingDonor
By James A. Fussell, The Kansas City Star
6:36 p.m. CDT, May 29, 2013
The idea kept nagging at Aimee Bultemeier.
"I have two perfectly good kidneys, and I only need one," the 37-year-old
nursing assistant thought. "I could save somebody's life."
Here's the thing: She had no idea who that somebody was.
It wasn't a friend or family member. Just another human being who was waiting
for a chance at a new life.
For Bultemeier, that was enough. The single mother of two called the Midwest
Transplant Network in Westwood, Kan., and volunteered to have major surgery to
save the life of a stranger.
She is one of a growing number of anonymous kidney donors nationwide. Such
altruistic, nondirected organ donations have grown in recent years, experts say,
thanks to the Internet, emotional videos on YouTube and the reach of social
media.
In 2011, the latest year complete statistics are available, there were 159
anonymous kidney donors in the United States.
"This was unheard of until the late '90s," said Anne Paschke, a spokeswoman
for the United Network for Organ Sharing in Richmond, Va. "The first ones we
recorded were in 1998. And if you go back a dozen years, there were only
30."
The Midwest Transplant Network also has seen more interest in such
donations.
"We've seen a steady increase in calls each year," said Catherine Nash, the
network's family services coordinator. "We probably get 30 to 40 people a year
calling with questions. Of those, about 20 follow through. Then, on average, two
of those (donate).
"But 100 percent of our callers are coming from an altruistic standpoint.
They want to help. They've seen the statistics about people dying waiting for a
kidney."
While people are born with two kidneys, organs that make urine and filter
waste from the blood, they can function normally with just one.
"We think about greed and narcissism and all the shootings," psychologist
Bruce Manley said. "But we forget that there is still a very large number of
people who are doing good and decent things for other human beings. This is just
an example of that. Then if we look at the role that social media plays, we can
start to see why this is happening at this moment."
Psychologist Renee Dietchman has another theory.
"Typically when times are tough, such as in the Great Depression, people want
to help," she said. "If they can't help financially, maybe they help out by
giving more of themselves."
Bultemeier works on the transplant floor at the Mid-America Heart Institute
at St. Luke's Hospital in Kansas City, Mo., and is familiar with such cases.
"In 2010, I became close to two guys waiting for heart transplants," she
said. "They were both single parents and both close to my age. It just really
touched me; more or less broke my heart. I mean, that could be any of us.
"I just couldn't imagine being young and single and a parent and needing an
organ to live, you know? And so pretty much that's when it just was clear as day
to me."
Before making her final decision, she did a lot of praying and Internet
research. Then she told her mother, Kathy Hood, who worried.
After all, Bultemeier's former husband, the father of their daughter, Lexi,
had died of a brain aneurysm.
"I worried that Aimee might be the only match for her if she ever needed (a
kidney)," Hood said. "She said, 'Mom, the chances of that happening are so slim,
and I could help save a life now!'"
Also, there is no guarantee a parent will be a match for a child.
After Bultemeier contacted the Midwest Transplant Network in September 2010,
it took nine months of interviews, medical tests, mental health screenings,
background checks and in-person interviews to make sure she was a good
candidate.
Nash said donors must not only undergo multiple screenings, they also must
realize that they're purposely putting their body at risk to help another
person.
Bultemeier passed on all counts.
"She is just so amazing and so positive," Nash said. "Her wanting to donate
reflects how she lives her life."
The hospital where Bultemeier works gave her eight weeks of paid time off to
donate and recover.
"My boss was amazing and supportive," she said. "I wish more businesses would
do that."
A year and a half after donating, Bultemeier doesn't know much about the
person who received her kidney.
"A few months after I donated, about October of 2011, I received a card from
my recipient," she said. "It was very short and sweet. I know it's a guy. He
said he was eternally grateful and he is doing great, and he hopes to meet me
one day and get to know me."
She wants to meet him and to hear his story. She imagines she might have
helped save someone with a wife and children.
"It's hard," she said in a quavering voice. "I knew going in that I might
never meet my recipient. And that's OK."
The need is great
Nationally about 95,000 people are waiting for a kidney, according to the
United Network for Organ Sharing. On average, 13 a day die, according to the
National Kidney Foundation. More than 400,000 people in the U.S. are on
dialysis.
For more information on kidney disease and organ donation, visit the National
Kidney Foundation website at kidney.org.
[email protected]
http://www.chicagotribune.com/health/sc-health-0529-anonymous-kidney-donation-20130529,0,7168758,full.story
www.facebook.com/kidneystories
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KIDNEY STORIES: KIDNEY FOR DAVE WILSON
I am on a mission to get David Wilson a kidney, he is 48 and
has been on Dialysis for 5 years and it is taking a toll on him emotionally and
physically.
Description
He is in need of a Kidney and I can't donate since I do not match his blood type. He is type
O and therefore only type O can donate, which makes this an even harder task.
He has given and helped people his whole life and now he needs help to get his
life back.
https://www.facebook.com/KidneyForDaveWilson
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KIDNEY STORIES: KIDNEY FOR OUR SISTER ANNA
In 2009, Anna had her left kidney removed due to cancer. During
the surgery, they made a mistake & clamped off the blood supply to her right
kidney, which caused it to die. Lost of her son @ the age of 31. She needs
someone with blood Type A or O
Description
We are writing to you about our sister Anna Marie Ruffattola McKinney. It’s to let
you know about her current health challenges, and how you can help. This is not
an easy letter for us to write, but we know that without sending this, someone
who might be interested in helping won’t have that opportunity.
In 2009,
our sister Anna underwent surgery to remove her left kidney due to cancer. When
the...
surgeons were operating to remove her left kidney using a da Vinci robot, they
made a mistake and clamped off the blood supply to her right kidney which caused
it to die. Because of that error, she was left with no renal function and she
currently suffers from kidney failure.
Anna has been on dialysis for almost
three years. She began doing dialysis in a local clinic three days a week;
however, that did not work for her. She never had a day where she felt well -
she was always exhausted. They looked for other options, and researched at-home
dialysis. Although the daily dialysis is much better, it is very difficult for
Anna to have a normal life – everything must center on the dialysis, which takes
3-4 hours a day – sometimes longer. In addition to frequent leg cramps and
blood pressure issues, Anna suffers from exhaustion and shortness of breath.
Life as a dialysis patient is not easy.
Anna has always been there to help
others, and she really has a positive attitude about her health issues, despite
everything that has happened to her. When her older son J.T. was
five-years-old, he was diagnosed with leukemia. He was in remission for three
years but then required a bone marrow transplant when his condition declined. He
beat the odds and survived. However, at the age of 30, he developed hepatitis
from a blood transfusion he received before the transplant. In 2002, one month
before his 31st birthday, J. T. lost his battle. We all miss J.T. and our hearts
ached for our sister as she deals with the loss. Now, our hearts ache again
because Anna is the one who needs help.
In January, Anna was placed on the
list for a kidney transplant; however, we realize it could take years to find a
donor. My younger sister and I both have high blood pressure, so we are not able
to donate a kidney. The wait for a deceased donor is quite long, yet the
benefits of receiving a kidney from a living donor are much greater. The wait
for a deceased donor is 5+ years and a kidney from a living donor lasts twice as
long as one from a deceased donor.
“Anna needs a new kidney, and we hope you
will consider being tested to be a donor.” I know that the need for kidney
transplants is extensive, and that the need is grave. Anna, as well as many,
many others needs and deserves a second chance of regaining her life back.
If you can help, please do. If you know anyone who might, please forward this
on. Forwarding this to your family, friends, work, school, congregation, or any
other communities you belong to would be most gratefully appreciated. Any
assistance anyone would be able to offer would be greatly appreciated.
If
you would like to learn more about living kidney donation, please feel free to
contact us or Anna’s transplant coordinator, Katrina Reedus - Kidney Transplant
Clinic Coordinator, IU Medical Center, 500 n. University Blvd, Room 4601,
Indianapolis, IN 46202 @ 317-944-4370 or [email protected].
Thank you so
much!
Jeannette Ruffattola Fulmer [email protected]
Mary Ann Ruffattola Nicoson [email protected]
https://www.facebook.com/KidneyForMySisterAnnaMarieRuffattolaMckinney
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KIDNEY STORIES: KIDNEY TRANSPLANT FOR KENNY JOHNSON
In need of a transplant
Description
Are you an A+ or O+ Blood TYPE???????
A transplant is Kenny's best option
for survival and having a good quality of life. His Kidney disease has
progressed and has officially been referred for a Kidney transplant after his
kidney function dropped below 20%. However, the wait for a deceased-donor kidney
is longer than he may have. As a single father of two, Kenny's situation
threatens his entire family. So, we now turn to
his friends, family and community:
Will you step forward and give Kenny the
gift of life?
This page is dedicated to finding Kenny a donor. There is
no cost to you to take the test. There will be more info to follow on where you
can take a test to see if you are a match. Please post your love, thoughts and
prayers and share on your wall as well to get the word out. We need a donor NOW.
Even if you DON'T know Kenny please share this information. Thank you.
Got the
letter today I am officially on the national kidney list for a donor. Also UCSF
called me today and told me that someone signed up to be my donor filled out the
information but somehow they did not get the persons name They can fill it out
again at ucdonor.org or call Don at UCSF telephone #(415) 3534642
https://www.facebook.com/pages/Kidney-Transplant-for-Kenny-Moses-Johnson/221312251265825
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KIDNEY STORIES: MANNY MONTOYAS KIDNEY DONOR SEARCH PAGE
Kidney donor search and fundraising page. Our fundraising will
include events to help fund our donor with expenses not covered by our insurance
such as transportation, hotel etc. during the transplant process.
Description
Donating one's kidney to someone in need of a transplant is an important decision and a
unique gift. Kidney transplantation enables a patient suffering from kidney
disease to stop dialysis treatments, and enjoy a life filled with more freedom,
energy and productivity. This page is set up for our kidney donor to assist
with funds that may accrue during down time through the donation. Travel,
Hotel, Wages . After care as well as any Medical not covered by our
insurance.
My husband developed Type II Diabetes in his early
thirties. He started out with medication and then on to insulin. Manny was
diagnosed with renal failure about five years ago. His number were low but
doctors were able to raise them a bit. Two years later we were in surgery
inserting a peritoneal catheter in Manny's lower abdomen. Manny now does
xchanges 4 to 5 times daily. We've had several screeners
and inquiries about how to get tested but yet to find a match. Manny is O+ and
so am I, however I was unable to test any further do to medical issue myself. I
had to figure a way to get our story out. I began with a Facebook page posting
bits of information on donation as well as fund raising for our donor. Manny and
I would like to pay for extra expenses our insurance will not cover such as Air
Fare (transportation), Hotel, etc. We have had a yard sale with many donated
items from co-workers which was a success. Upcoming event we have planned a
family car wash. All proceeds to go to the donor fund along with other event in
the future.
https://www.facebook.com/DonorFundraiser
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KIDNEY STORIES: A KIDNEY FOR KIMBERLY L THOMPSON
Look for a Kidney transplant
Description
Looking for a
Kidney transplant, , My blood type is O positive and I'm also Registered at
Upstate hospital. Looking for a Donor O positive blood
type for a Kidney! to see if your qualify to be a donor or would like to get
tested Please Contact R. Ellen havens @ Upstate Medical university at 750 East
Adams Street, Syracuse NY 13210 The Phone number is 3154645413 or you can email
her @ [email protected] or you may visit the website www.upstate.edu! Thank you
https://www.facebook.com/pages/A-kidney-For-Kimberly-L-Thompson/534395286612532
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Description
Looking for a
Kidney transplant, , My blood type is O positive and I'm also Registered at
Upstate hospital. Looking for a Donor O positive blood
type for a Kidney! to see if your qualify to be a donor or would like to get
tested Please Contact R. Ellen havens @ Upstate Medical university at 750 East
Adams Street, Syracuse NY 13210 The Phone number is 3154645413 or you can email
her @ [email protected] or you may visit the website www.upstate.edu! Thank you
https://www.facebook.com/pages/A-kidney-For-Kimberly-L-Thompson/534395286612532
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list, fundraiser, donate life,
KIDNEY STORIES: KIDNEY FOR MONICA-A GIFT OF LIFE
Dear Friends and Family,
This is probably the most difficult letter I’ve
written. You see, my wife, Monica, is in need of a kidney transplant, and I
need to let my friends and family know about her condition.
Monica’s
kidneys failed (in a 2 year span) from a rare kidney disease that affects one in
100,000. She has been on the kidney transplant list and on dialysis for over a
year. Being on dialysis
is emotionally and physically draining. To perform dialysis, she has to hook up
to a machine for 9 hours every evening. During this time, she has been unable to
tuck the kids in for bedtime or care for them when they are sick. She struggles
each morning to get the kids ready for school since she is usually still
connected to the dialysis machine. She has had several surgeries and
procedures due to the complications of being on dialysis and had to give up her
job because she can no longer work full time. Her doctor advised her that she
should start looking for a living donor immediately. Throughout this ordeal,
she remains to be the sweetest person you will ever meet and a great mother to
our 4 year old daughter and 7 year old son.
Monica has had more than 4
people to genuinely offer to be tested to donate a kidney to her – but they were
ruled out for various reasons.
We are pursuing a living donor for two
main reasons (but there are many others), kidneys from living donors last, on
average, twice as long as kidneys from deceased donors and the waiting list for
a deceased donor kidney is an average of 8 years. Most people can donate who
don’t have high blood pressure, cardiac problems or some other medical
condition.
Here’s some basic information about kidney donation:
•
People are born with an extra kidney – you only need one to live a full,
healthy, long life.
• The majority of the donor surgery is done
laproscopically, with tiny incisions.
• The recuperation period is
generally 2 weeks for those with a desk job and 6 weeks for those whose job
entails heavy lifting.
• The surgery would be done at UCLA Medical Center
that has some of the best surgeons in the country.
• All medical expenses
would be paid by my insurance benefits.
• Most donors say if they had
another extra kidney they would donate again in a heartbeat and that it is one
of the best experiences of their life.
For general information about
kidney donation, please visit www.lkdn.org & click on “For Living
Donors.” Or, you can also call the kidney donor information line at the UCLA
Medical Center at (310)794-2798. They will send you a packet of information and
you will not have to disclose any personal information at this time. Feel free
to pass this letter along to people that you know and “like” Kidney for Monica-A
Gift of Life on Facebook. Lastly, please keep us in your prayers --Matthew 21:22
And whatever you ask in prayer, you will receive, if you have
faith.”
Thanks for your support and concern,
Delshaun Lanier
https://www.facebook.com/pages/Kidney-for-Monica-A-Gift-of-Life/218882284859645
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KIDNEY STORIES: KIDNEY FOR MY SISTER
This page is for my sister Christine who needs a kidney. I am
setting this up to help her and maybe someone out there may want to help since I
cannot help her.
Description
Details of Christine's life since her kidneys failed and present day dialysis.
Details
of my life as a living donor up to present day.
I want to share both
the struggles my sister faces and the life of a living donor so everyone can see
how normal of a life I live with just one kidney.
(FROM JIM AT KS): Christine's kidneys originally failed
in 2001 due to lupus. She started dialysis that same year. She had a
transplant in 2003, but that kidney failed in 2010. She was put back on
dialysis. In 2012 her mother tried to donate, but it appears to have been
unsuccessful. She is currently on dialysis. Corrections could be
forthcoming.
https://www.facebook.com/KidneyForMySister
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KIDNEY STORIES: KIDNEY FOR TANYA
Help find a kidney for our friend. Tanya (25) has been battling
kidney disease since childhood and the time has come for a transplant. None of
her close friends or family are a match so we have turned to social media in
hope of finding a living donor.
If anyone would
like more information on being a donor for Tanya you can contact Valerie Barto
at Lutheran Kidney Transplant Center. She is the living donor coordinator. Her
phone number is 260-435-6211. She is very friendly and will answer any
questions. Thank you!
https://www.facebook.com/AKidneyForTanya
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KIDNEY STORIES: BOB'S KIDNEY CAMPAIGN
I have IgA which runs in my family am in need of a kidney.
Please check out my story by clicking on About.
Description
Hi
my name is Bob Evans, no not the restaurateur, but a husband to Suzi, father of
three, Trevor 42, Matt 40 and Kristen 36, grandfather to 10 adorable
grandchildren ages 18 down to 3, and father-in-law to Jessica, Sara and Tim. My
wife and I have been married for almost 43 years and she is my strongest
supporter and the love of my life. I’ve lived in Needmore, Indiana all my life.
I am 64 years o...ld
and soon will be going on dialysis. My kidneys are failing due to a disease
which runs in my family, IgA so no one in my family can donate; therefore I have
to rely on someone outside the family.
I’ve owned my own body repair
business for 50 years and I have plans to continue to work for many years to
come. I’m a graduate of Needmore High School and went into the army after
graduation. I am a US Army Veteran and served for six years in the Indiana
National Guard. For several years now I have been a member of the Bedford Noon
Lions where I’ve served as Tail Twister and Second Vice President. I am a 32nd
Degree Mason and a member of the Masonic Lodge # 14 F&AM in Bedford,
Indiana. I am member of two local churches, First Baptist of Bedford and
Community Baptist Fellowship. As a school bus driver for 40 years, I have
enjoyed driving life’s precious cargo, our children, to and from school. My
hobbies include collecting old local high school yearbooks prior to the
consolidation of the smaller schools in the county, and sifting through the
volumes of old newspaper books I have amassed. I am an avid local history buff
and will be going on the local high school TV channel regarding the area’s
history of past movie theaters. I have been a participant in fund raising events
such as, The Brain Games, for the local Historical Society and the Noon Lion’s
spaghetti dinners. I love trivia and the old black and white television shows
from the 50’s and 60’s. I cherish the times I spend with my wife, children,
grandchildren, sister, aunts, and cousins as family is very important to me. I
go daily to the local gym to work out as I know that this will keep me healthy
longer.
I recently passed with flying colors all tests to see if I am a
healthy candidate to go on the transplant list. At my age and blood type (O+)
there is at least a 4 year wait to receive a kidney and the longer I wait the
more my health will decline. It will be more beneficial to me to receive a
kidney from a living donor as it lasts about twice as long as one from a
deceased donor and will be a better match. In order for someone to donate they
have to be in good health, no uncontrolled hypertension, diabetes, cancer, etc.
You do not have to be type O+ to donate, as University Hospital in Indianapolis,
Indiana has paired donation.
To share my journey and to contact me, go to my
Facebook page: Bob’s Kidney Kampaign and share the link on your page. To inquire
about donation call IU Health, University Hospital, Living Donor Coordinators
Kelly Coffey, or Tracy Perry at: 317-944-4370 or 800-382-4602 iuhealth.org and
tell them you would like to donate your kidney.
Won’t you consider donating
to save a life? Please share this with all your friends, family, and neighbors.
Thank you for taking the time to read this may God Bless.
Bob
https://www.facebook.com/BobsKidneyPage?fref=ts
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KIDNEY STORIES: KIDNEY FOR RANDY
Randy is 19 yrs old. He can accept type B or O. Shands
Transplant Center @ UF. 3522650254He has been on dialysis since April 2013. His
first transplant was in 2005.
Description
The
story of Randy Owens, A 19 year old young man, whom resides in the city of
Ocala, Fl.
He graduated from Vanguard High school. Although he has tried
his hardest to live a normal life, like the rest of his cousins, friends,
and family, he simply
cannot. When Randy was 7 years young, he was
diagnosed with FSGS
. In 2004, things took a turn for the worst and at that
time, dialysis began.
...
At the age of 10, Randy was on Hemo and Parateniel dialysis up until his first
transplant
from his mother. Unfortunately, that kidney failed within the
first 5 minutes, due to clotting. Randy then
went 1 year without any kidneys
at all. He lived off of the dialysis machines, playing the role
as kidneys.
Within that year Randy had 2 random strokes, 7 seizures, which resulted in the
loss of his vision and was also paralyzed.
But as the fighter that we have
all come to adore, he chose to not give up. After one long week later,
his
sight and body movement finally returned.. 11 months later on December 7th, 2005
he received a kidney from a cadaver. It took one full month for the kidney
to fully kick in and start
to work properly. This kidney lasted nearly 8
years. On December 29th, 2011 his kidney started to
fail, again. He lost
all his body weight and tipped the scales at 155lbs. and although that sounds
healthy, he
lost his weight. At 6 foot tall he weighed in at 195 pounds. He
then was put on plasma freesias mixed with Bortezamib . He was the first
patient at University of Shands to have this treatment. Even at the risk at
hand
all he wanted was to get better, and that treatment helped his kidney
last up until January of 2013.
Randy began getting very weak, dizzy,
nauseous, and more severe like flu symptoms. Randy has some good
days, but
mostly bad. Days in which his whole body aches, including his teeth, toes, feet,
head, and ears hurt. The real question
to ask him was what didn't hurt?
Randy is now on Hemo dialysis. Randy's
blood type is B+ but O and B works as
well. We're not asking for someone to give their life, we're just
asking for
someone to help save one. He is a fun out going teenager, looking to live a
normal life
like any other teenager. Randy wants to start school and go
to work. He likes playing guitar, singing and hanging with friends. He enjoys
jet skiing, water sports and wants to learn to scuba dive.
https://www.facebook.com/AKidneyForRandy
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KIDNEY STORIES: FIND A KIDNEY FOR UNCLE MANNY
Help us Find a Kidney for Uncle Manny...Daddy Dwayne
Description
Aloha everyone,
I am starting a new page for
my father, Dwayne "Uncle Manny" Fernandez... As some of you know, my father had
a kidney transplant through my then-fiancé, Khari Hatten, and lived an active,
dialysis-free life for 8 years thereafter.. Unfortunately, this past December,
the kidney transplant shut down and he became very sick. We are reaching out
through the biggest social media outlet to find
him a new, healthy kidney. The more word we can get out to help him, the faster
we can hopefully save him. If you know our dad personally, you know that he is a
wonderful man, a great role model, and now, the best grandpa my son could ask
for. Please share this page and help us find "Uncle Manny, Daddy Dwayne" a new
kidney. Any questions, (blood type, etc.) inbox, please. Mahalo, Mailani
Fernandez
FOR EVERYONE IN HONOLULU, IF
YOU'RE WILLING TO GET TESTED, QUEEN'S MEDICAL CENTER HAS DAD ON FILE FOR DONORS,
HE IS BLOOD TYPE A POSITIVE... AT THE LEAST, YOU CAN HELP BY SHARING THIS PAGE
ON YOUR TIMELINE AND SUGGESTING OTHERS LIKE AND SHARE AS WELL... MAHALO NUI LOA!
Hey Everyone,
Just a little background, for
those who may want to know... When my dad was first told he needed a transplant
in 2004, I (Mailani) immediately offered him my own, but he refused because most
of his diseases are hereditary, therefore he wouldn't take them from my sister
or myself. My mother could not offer hers as she was still active duty military.
My fiance at the time beca...me
his donor, and it lasted until this December. My mother, now being retired, is
trying to offer hers, but Queen's is not offering her the test, and she could
possibly not be a match... That is why I am seeking out the biggest possibility
of reaching out to my dad's friends and family, and even strangers, to find him
a match asap. The procedure is minimal and I believe Khari (his previous donor)
was out of work for a week at most, but left the hospital after a day or 2 at
St. Francis. If you'd like to help, you can go to your doctor and tell them
you'd like to get tested to be a kidney donor for BLOOD TYPE A, and they can
help you from there. Please help us keep our daddy around and healthy so he can
enjoy life and seeing his grandson, (my son Tyson) make it to the NFL or NBA one
day! We love all of you for
sharing this page and helping us in our efforts. Mahalo Nui Loa from our family.
-Mailani
Fernandez
https://www.facebook.com/pages/Find-A-Kidney-for-Uncle-Manny/595457820464329
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KIDNEY STORIES: SHARE YOUR SPARE WITH MELISSA
If anyone is interested in being tested for my friend Melissa
please contact Grace, Melissa's Transplant Coordinator at Fairfax Hospital, VA
703-208-6035. If you have questions I would be glad to hear from you
contact/text me at 516-991-5001.
Description
Hi,
my name is Melissa and I am a daughter, wife, mother, and grandmother. I have
lived a very active life however, now my life has changed.
I have
Polycystic Kidney Disease (PKD) which is a genetic kidney disease. For over 5
years my kidney's have been failing and finally in July 2012 they stopped
working. Since then I have been doing periteneal dialysis, at home. Before I
had to discontinue working I managed a Family
Practice law firm. Now I keep myself busy as an artist and bee keeper. I love
this life!
Unfortunately, due to genetic and other complications, my
family is unable to
donate to me. If you could share your spare and this
feels right to you, I would be forever grateful. Please, I need just one kidney
and I will take such good care of my precious gift.
In order to be
considered, and you have blood type of either type A or O then
https://www.facebook.com/pages/Would-you-share-your-SPARE-Kidney-with-my-friend-Melissa/603065759721286
www.facebook.com/kidneystories
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KIDNEY STORIES: MESHIA'S HOPE
Hello, my name is Meshia and I am a kidney patient. I was
diagnosed with end stage renal disease (ESRD) at the early age of seventeen. I
was placed on dialysis for a short period of time and was blessed to have
received the gift of a kidney transplant in March of 1995. My transplanted
kidney changed my life and my quality of life was back again. Although my life
changed drastically, I was able to graduate from high school and continue on
with my life.
My transplanted kidney began to fail in July of 2010. I am happy
to be able to say that my kidney lasted for fifteen years! The average life of a
cadaver (from a deceased body) is 8-10 years. During that 15-year span I
completed my Bachelor’s degree, got married and traveled to many
places.
I was placed back on peritoneal dialysis in August of 2010 and
later transitioned to hemodialysis. Despite the many challenges I have faced;
almost losing my life to pneumonia, months of rehabilitation, two total hip
replacements and two fractured feet, I have always remained positive and with a
smile on my face. It is my strong faith; support circle and outlook on life that
has helped me overcome these challenges.
I received my second kidney transplant, this time from a living
donor, my husband in July of 2012. So far, I am doing well and living each day
to the fullest. Before my transplant I wanted to help others living with this
disease. I have a strong desire to give back and plan to use my talents to do
so.
I would not trade my experiences as a kidney patient because it
has shaped me to be who I am today. I have been fortunate to have people placed
in my life that have taken excellent care of me and have given me a lot of
support. What better way to thank those people by using my experiences and
passion to help others? I hope to heal and empower people living with this
disease and by sharing my story to offer hope.
I am starting my organization; Meshia’s Hope to help empower
pre-dialysis, dialysis, and transplant patients. I am very compassionate about
speaking up for patients who need a voice. I have the pleasure of being a
patient ambassador on behalf of Dialysis Patient Citizens (DPC). I enjoy
advocating about issues that affect kidney/dialysis patients. I look forward to
partnering with like- minded individuals to raise awareness and be part of the
movement to prevent kidney disease.
I started this group as a means to educate and reach out to
others. I am here to offer guidance, support, and to be an advocate for those
who are suffering from an illness--not just renal failure because there are
other illnesses associated with kidney
failure.
Life is truly a precious gift and I am living proof of it. God
bless!
Please
feel free to contact me with any questions or comments you may
have.
https://www.facebook.com/aihsem.adams?fref=ts
https://www.facebook.com/KidneyStories?ref=hl
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KIDNEY STORIES: A KIDNEY FOR SCOTT
Scott was diagnosed with kidney failure and began dialysis in
June 2012. He needs a donor with blood type O. His transplant center is Legacy
Good Samaritan in Portland, OR. Please contact Margaret Marksthaler at
503-413-7349 or e-mail [email protected]
Greetings! Welcome to my A Kidney for Scott Facebook page.
I'm writing this from my dialysis chair in Vancouver, WA. I'm 44 years old.
As noted in my page description, I was diagnosed with kidney failure in June,
2012 due to the disease of IgA Nephropathy, which is a build-up of protein in
the kidneys. I began dialysis immediately in the hospital and continued
hemodialysis at Vancouver DaVita... once I came home. My blood type is O, so I need a
donor with a similar type.
I was married in 2001 to my lovely wife Debra
and helped raise my now-adult stepsons Ian and Preston. I've continued to
maintain my full-time employment as a grocery clerk at Fred Meyer in Vancouver,
a position I've held since 1986.
Since a kidney transplant with a live
donor has a considerably-better outcome than a transplant conducted with a
cadaver kidney, it's my hope that someone will donate a kidney so I can resume a
normal existence and end my need for dialysis treatments. Thanks for visiting
my page, and have a terrific day.
https://www.facebook.com/AKidneyForScottW
www.facebook.com/kidneystories
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KIDNEY STORIES: FIND A KIDNEY FOR JUDY
Meet Judy Crawford, 55, who is in her twenty-seventh year
as a third grade teacher. Nineteen years ago Judy was diagnosed with kidney
cancer. The cancerous tumor was removed and her remaining kidney was weak,
functioning at only 30%. As the years have passed, the function of her one
remaining kidney has deteriorated and along with it her energy and general
health. Through all of this, Judy has... relied on
her strong faith in God. She has been a witness and inspiration to others
simply by the way she has reacted to her illness and led her life. Judy's
positive attitude, her quick smile and laughter, her dedication to her students,
and her interest and caring for others around her has left a lasting impression
on her friends and family.
Two years ago Judy was placed on a waiting
list for a kidney transplant. Eleven friends and family members stepped forward
as willing donors, but no perfect match found. Through each disappointment,
Judy remained upbeat and held tight to her faith. Two months ago, Judy's kidney
had deteriorated to the point that she had to begin nightly home dialysis. This
nightly schedule was chosen so she could continue teaching during the day.
However, the dialysis process has not been working for Judy. Due to scar tissue
in her body causing dialysis tubing difficulties, Judy has been in pain, her
body swollen and she has had two surgeries in an effort to get the dialysis to
work effectively. Throughout this time, Judy has been the sole financial
support for her family and continues to teach. Please consider being a kidney
donor for Judy. Please help save Judy's life. Your kidney could be the perfect
match!
Contact information:
If you wish to inquire about being a
match, call Indiana University at 1-800-382-4602 and ask for the kidney
transplant coordinator for Judy Crawford.
Thank you for your interest
in providing an unbelievable gift for someone in need.
https://www.facebook.com/FindAKidneyForJudy
www.facebook.com/kidneystories
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KIDNEY STORIES: THE LOPEZ FOUNDATION
The Lopez Foundation’s mission is to create positive, permanent
change for underprivileged children, adults and military families confronting
challenges in education and health.
Mission
The Charity’s mission is to create positive, permanent change for underprivileged children,
adults and military families confronting challenges in education and health, as
well as increasing community awareness about kidney disease and organ donation.
https://www.facebook.com/lopezfoundation
www.facebook.com/kidneystories
Mission Statement
The Lopez Foundation’s mission is to create
positive, permanent change for underprivileged children, adults and
military families confronting challenges in education and health, as well as
increasing community awareness about kidney disease and organ donation.
Contact
Travieso Productions
LionsGate
1601
Cloverfield Blvd., Ste. 200
South Tower Room Redondo
Santa Monica, CA
90404
www.thelopezfoundation.org
818-986-9095
Linda D. Small
Executive Director
[email protected]
Board Members
George P. Lopez
George Lopez is Co-Founder and Director
of The Lopez Foundation. Mr. Lopez has channeled his charitable energy in
the nonprofit world to improve and save the lives of people confronting the
challenges of chronic kidney conditions. One of the entertainment
industry’s premier comedic talents, Mr. Lopez serves as Founder and Principal of
TRAVIESO PRODUCTIONS, a film and television production company. Time
Magazine recognized Mr. Lopez as one of “The 25 Most Influential Hispanics in
America”, Harvard University honored his artistic work and charitable endeavors
with its “Artist of the Year and Humanitarian Award”, The ADCOLOR Industry
Coalition honored George Lopez with The All-Star Award, and People For the
American Way bestowed its “Spirit of Liberty Award” on him.
Linda D. Small
Linda D. Small is the
Director/CFO/Secretary/Executive Director of The Lopez Foundation. Her
consistent, compassionate commitment to improving lives in the Los Angeles
community includes 24-years as a member of the Junior League of Los Angeles
where Ms. Small served as the President and CEO, Development Director and
Training Director. She began her eight years of service with the National
Kidney Foundation of Southern California and Southern Nevada in 2002 as
Development Director. Within two years Ms. Small became the Executive
Director where she remained until she left to head The Lopez Foundation. Linda
is a highly respected, successful leader in the not-for-profit sector.
Dr. Lilly Barba
Lilly Barba is a Director of The Lopez
Foundation. Dr. Barba received her medical training at the State
University of New York-Buffalo, and completed her residency training in Internal
Medicine at USC Medical Center followed by fellowship training in Nephrology and
Hypertension at Harbor-UCLA Medical Center in Torrance, California.
Christy Haubegger
Christy Haubegger is a Director of The
Lopez Foundation. Christy Haubegger founded “Latina” magazine in 1996
following her graduation from Stanford Law School. “Latina” grew to a monthly
publication just a year after its launch with Ms. Haubegger serving as its
Publisher, President and CEO until 2001. Christy moved into the world of
entertainment in 2002 and served as Associate Producer on “Chasing Papi” and
Executive Producer on “Spanglish”. She now works with Creative Artist
Agency (CAA) providing insights on multicultural markets to CAA. Ms.
Haubegger is a popular speaker and the recipient of numerous awards and media
recognition for her achievements.
Lawrence J. Kohl
Lawrence J. Kohl is a Director of The
Lopez Foundation. Based in Los Angeles, Lawrence Kohl’s occupation is in Wealth
Management working for the Kohl family office. Previously, Mr. Kohl was
President and Founder of Atomic3D, an original animated content company and
software developer for streaming delivery on the internet. Started in 1995, the
company was one of the leading providers of animated content for the internet.
Previously Mr. Kohl was the President and Founder of Paradigm Software
Corporation from 1989- 1992 where he formed a sales and marketing team to
focus on the integration of 2D and 3D technologies. Mr. Kohl has a MBA
from the University of Miami. His BA in Business Administration is from
Kendall College in Chicago. Mr. Kohl is concentrating his efforts in
charitable work that benefits children, primarily as a board member of the Santa
Monica Boys and Girls Club and previously for the Zimmer Children’s Museum.
Stacey Kohl
Stacey Kohl is a Director of The Lopez
Foundation. Business woman, Stacey Zinman Kohl is the creator of Bloom Love, a
incredibly successful and admired children’s clothing line. She was first
inspired to enter the fashion industry after the birth of her daughter,
Elizabeth. Charmed by her sweet innocence, Stacey set out to create
clothing that would convey that feeling with softness and comfort. She
started by shopping a few samples around town – talking her way into Los
Angeles’ chic boutiques and not leaving until she made a sale. She
also showed pieces to her celebrity friends who fell in love with the line.
Before she knew it, the line was in demand and available in top stores all
around the country such as Neiman Marcus, Bloomingdales, Fred Segal and many
others.
Laura LaRocca
Laura LaRocca is a Director of The Lopez
Foundation. Laura LaRocca has established herself as a force in the beauty
industry. A born entrepreneur with the kind of drive it takes to build a
multi-million dollar company from the ground up, Laura’s business acumen has
been taking shape since before she can remember. After graduating from the
University of Wisconsin and the Aveda Institute, Laura worked in the
entertainment industry as a Managing Hair Stylist for print media, movies and
hit television shows such as Felicity and Scrubs. In 1998 she became
Co-Founder/CEO of DuWop – one of the most innovative brands in the beauty
industry. Laura grew the brand from an idea to $20 million in annual
sales. Laura is leading the personal care industry as the CEO of LaRocca
Skincare with a focus of growing sales, giving back to the community and
protecting the environment.
Michael G. Wilson
Michael Wilson was born in Kentucky,
but raised in Oklahoma and Texas. He graiduated from the University of Oklahoma
in 1979 with a Bachelor’s degree in Business Administration/Finance. He was a
5-time All American Gymnast at OU and NCAA Champion in floor exercise in 1979.
Michael was also a member of the World Cup and World Championship teams in 1978
and 1979. In addition, he earned a spot on the 1980 Men’s Olympic Gymnastics
team.During his business career, Michael has successfully developed and owned
numerous companies in the health care industry including at TPA in Oklahoma, PPO
networks in both Oklahoma and Texas, a Benefit Consulting firm in Texas and
several other industry-related companies. Michael currently owns and manages
three organizations in Plano, Texas in the healthcare industry including Century
Healthcare, Corporate Health Plans of America, and Healthcare Highways. Michael
also is privileged to participate as a member of several organizations’ Board of
Directors.Hard work and perseverance have provided Michael with numerous
opportunities throughout his life and he is fortunate to be able to “give back”
and help others.
Cynthia Stafford
Cynthia Stafford is a dynamic
entrepreneur, philanthropist and mother of five. She focuses her efforts on
empowerment in both education, particularly in children with special needs and
women’s rights, with a global agenda of ventures and causes she endows and
capitalizes. While raising her deceased brother’s children, Ms. Stafford won the
California Lottery on Mother’s day in 2007. Ms. Stafford is one of the top
philanthropists in Los Angeles. She has personally donated $1million to Geffen
Playhouse where she currently serves on the Board of Directors and is a special
liaison to the Geffen Theatre’s Education Advisory Board. Ms. Stafford was
selected by the Lifetime Network as one of its prestigious “Remarkable Women”,
alongside Michelle Obama, Hillary Clinton, and Maria Shriver. Ms. Stafford is
also the CEO of Queen Nefertari Productions LLC. Queen Nefertari Productions
recently released two award-winning films which include: the multicultural
coming of age tale “Polish Bar”, currently on the film festival circuit and a
supernatural thriller “The Inheritance”, released by Image Entertainment.
Brooke Kaufman
Is a celebrity Real Estate Agent who has
a strong passion for bringing awareness to kidney disease and supporting the
children’s camp.
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KIDNEY STORIES: FIND A KIDNEY FOR HEATHER
Heather is a single mother of three boys in need of a kidney.
YOU could be the living donor who changes Heather's life. Please click on the
About button and read the Description for more details. Please share with your
friends and spread the word.
Description
Heather is a 42 year "young" single mother of 3
boys living in Mankato, MN. In 2000 Heather was diagnosis with IgA nephropathy.
IgA is a protein called an antibody that helps the body fight infections. IgA
nephropathy (Berger's disease) occurs when too much of this protein is deposited
in the kidneys. IgA builds up inside the small blood vessels of the kidney.
Structures in the kidney called glomeruli
become inflamed and damaged. To learn
more click on the link www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001500/
In 2012 Heather's kidneys had decreased enough that she needed to start
dialysis. On Feburary 7th, 2012 Heather had her first dialysis treament. She
now continues to go three times a week for 3 hours each time. She is thankful
that dialysis has allowed her to continue to work and be a mother to her boys.
But a new kidney would give Heather an even better chance at a better quality of
life. May 30th, 2012 Heather was placed on the kidney donation list. Heather's
blood type is O+. The wait for a deceased donor is about 5 years. Living
donation is more effective and kidneys from a living donor are always
healthier.
Please help us to keep spreading the word about Heather and
her need for a donor. If you or anyone you know is interested in being Heather's
donor PLEASE call: 612-625-5115 or 800-328-5465 for a consultation and to
request a kit. Mention that you are interested in donating for Heather
Sandland.
https://www.facebook.com/FindAKidneyForHeather
www.facebook.com/kidneystories
Newspaper article about
Heather:
February 3,
2013
Woman in need of kidney transplant
spreading the word about organ donation
By Robb Murray Free Press
Staff Writer The Mankato Free Press Sun
Feb 03, 2013, 05:35 AM CST
She arrives early and begins the routine. Or is it a ritual?
Step on scale. Wash hands. Make way to chair in corner. Sit.
Nurse Mary Gerndts comes over and says hello. She’s been working with
Heather Sandland for about a year now.
On the inside of Sandland’s left forearm is a fistula, a device that
facilitates dialysis treatments by allowing easy access for blood to be pulled
out, cleaned, then returned.
As Gerndts prepares to insert those needles, Sandland grows uncomfortable.
She’s never been a needle lover anyway, and this process will involve three of
them.
The first is for an injection of a drug called Lidocain, a process that
comes with a little irony. Injected with a tiny needle, its purpose is to numb
the skin so that when the big, 15-gauge dialysis needles make their charge, it
won’t be as painful.
“This is one of the worst parts,” Sandland says.
Gerndts looks for the right place.
“I’ll just poke around, here, to find the spot,” the nurse says.
Gerndts finds the spot and pokes. As the Lidocain enters her arm, Sandland
bows her head, grows silent and grimaces. Within minutes, the other, much-larger
needles are in, too. Blood races through a tube and into a sophisticated machine
that scrubs the blood clean of anything that shouldn’t be there. The blood is
then sent, through another tube, back to Sandland.
The machine — for three hours, three days a week — does the job her kidneys
can’t.
Without these visits, she would die.
And eventually, Sandland will need a new kidney. She can’t live forever on
dialysis. So to look down the road into her future, where she envisions watching
her sons grow and spending plenty of time with them, it’s all dependent on one
thing: a kidney transplant.
Unless modern medicine comes up with a way for people to live without
functioning kidneys, she’s going to have to find one, whether one comes
available via a death or someone comes forward as a match. Until then, dialysis
is her way of life.
A quick look around the room reveals Sandland isn’t alone, neither in the
dialysis center nor her plight.
“Every patient (undergoing dialysis) needs a kidney,” said Mayo Clinic Health
System in Mankato nephrologist Fawad Qureshi. “But not every patient in there
can get one.”
Anyone who has had a previous organ transplant is out. Anyone who is obese is
normally not a good candidate for a transplant. The very old are typically not
good candidates, nor are people with other health concerns, such as heart
disease.
The best scenario is a new kidney, but some can’t withstand a surgery. There
are 100,000 people on the list for a kidney transplant.
“Most of them won’t get a kidney,” Qureshi said. “And the list is expanding
3,000 to 4,000 patients every year.”
Sandland says she’s hopeful. Her kidney failure was brought on by something
called IgA nephropathy, a condition in which high amounts of retained protein do
damage to the kidneys over time. Her doctors in the Twin Cities, where she goes
for her kidney failure treatment, have told her the average wait for a kidney
from a deceased person is about five years.
Asking for help, though, has been difficult for Sandland. She said it’s just
not in her nature to aggressively pursue possible donors. So she’s stuck to
spreading a more neutral pro-organ donation message.
“It’s hard for me,” she said. “I just try to tell my story and help get the
word out.”
Sandland has three sons, ages 22, 15 and 12. For the younger two, they’ve had
to figure out how to get up, get dressed and get off to school on their own
three days a week.
“It can get hard at times,” she said. “I can’t do what other parents can
do.”
Her struggle with kidney failure has meant she’s had to miss a lot of her
kids’ activities, including much of her son’s soccer season — “That was really
hard. I never miss my kids’ things.”
And living with a mom enduring kidney failure has opened their eyes to what
could be.
“They know it could get to the point where, if I don’t get a kidney, people
die waiting for kidneys,” she said.
To pass the time, she listens to music or watches TV. She tries not to watch
the clock on the dialysis machine, the pie-shaped indicator that could drive you
crazy if you let it.
The only thing worse than waiting in the chair is waiting for a kidney.
The wait for a kidney can be longer or shorter depending on blood type. The
shortest waits come to people with blood type AB. Blood type B is the longest
wait and blood type O is the second longest.
The most important thing, Qureshi said, is spreading the word.
“People have a lot of pride when it comes to these kind of things,” he said.
“They do not want to ask, and I think it is very important that we give people
the opportunity to help.”
MCHS has dialysis units in Fairmont (24 chairs), New Ulm (24 chairs) and
Mankato (70 chairs).
As Qureshi says, most people who need a kidney won’t get one.
“Kidney failure is a very poor diagnosis,” he said. “For someone who is old,
it’s sometimes worse than getting a diagnosis of colon cancer.”
For those patients, the end usually comes with medical professionals keeping
a patient comfortable until they die. Death by kidney failure is a quiet one.
Patients get very tired and die in their sleep.
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KIDNEY STORIES: KIDNEY FOR DANNY
Joseph 'Danny' Stephens been on dialysis since July 2011. He
has Polycystic Kidney Disease, his blood type is 'O+'. If you want more info or
want to donate a kidney call Barbara O'Neal at the Piedmont Transplant Institute
in Atlanta, Ga. 404-605-4128
Description
I
have set this page up to find a donor for my husband Danny/Steve Stephens. He
has been on dialysis since July 2011. His blood type is 'O+'. You can contact
Barbara O'Neal at Piedmont Transplant Institute in Atlanta, Ga 404-605-4128 she
will then ask you some questions about your general health in order to see if
you might be a good donor. Please make the call
Many know him as Steve
and/or Joe. H...is
family and friends growing up called him Danny, he is a retired Army Sgt and his
military buddies called him Steve, and then there are the business people he
dealt with while he had his trucking business called him Joe. I know a lot of
names, that's what I thought when I first met him, lol, thinking what's up with
this guy. We have been married for almost 15 years, he has been a great father
to my kids and a wonderful grandfather for our grandkids.
https://www.facebook.com/pages/Donate-a-Kidney-for-DannySteve-Stephens/501955813183571
www.facebook.com/kidneystories
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KIDNEY STORIES: HELP FIND JERRY A LIVING KIDNEY DONOR
Jerry Wellin (my father) is a living breathing walking miracle!
If you would like to help him and our family PLEASE FEEL FREE to contact me on
here.
Biography
Hello my father's name is Jerry Wellin. He is 45
years old. I'm his oldest daughter Jara Wellin and I've made this page for my
father because he is having a hard time with dealing with all of his sicknesses.
I'm not only reaching out for help for him and to show my father there are
people out there just like him and in similar situations. Also to show him that
people do care support and want to help him get
threw this and everything else.
I'm also made this for myself to have
support with dealing with my fathers sickness and knowing that I'm not alone.
My father also has another daughter named Shaye Wellin. And this page is
also to help her in letting her know that there are people all over who dose
care and want to help our daddy.
Jerry is in deepest need of a kidney
transplant. He has already have had to have 1 kidney removed from his body and
the other 1 is still there but completely nonfunctional and dead.
Jerry
has been on kidney dialysis for 6 years now. His health is heading down hill
fast. Lately its been one thing or another that's started going wrong with his
body.
Jerry is needing a donor with the blood type of either B or O.
Please help my father in any way that you are able to. Even if its just posting
that you care about him, that your hear to support him and his family, and that
he is not alone in his situation and sicknesses.
All your help and support
is greatly apprecated from our whole family and my father.
If you would
like to know anymore information about my father and his situation PLEASE FEEL
FREE to contact me on here by messaging me and or posting on the wall and I will
get back to you as soon as I able to.
Once again Jerry and My Whole Family
would like to thank you for all your help, support, and showing all of us that
you care about us, we are not alone, and there is also other people in similar
situations that can help us out even though that you may not know us. It
honestly helps a lot!
Sincerely,
JaraLynne, Jerry, Shaye, Dalasa, and
the rest of our family
God Bless
https://www.facebook.com/KidneyForJerry
www.facebook.com/kidneystories
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KIDNEY STORIES: BENEFIT FOR JESSICA FRYSZ
Local Woman's Plea For A Kidney
By WKBW News
March 3, 2012Updated
Mar 3, 2012 at 1:15 AM EDT
BUFFALO, N.Y. ( WKBW ) More than a 100,000 people in this country are in need
of a lifesaving organ transplant, and an average of 18 people die every day
waiting for a donor.
A local woman, who is need of a kidney transplant, is making a public plea for help. 24-year old Jessica Frysz lost the use of her kidneys at a very young age, and now her only hope is for a stranger to come forward to donate.
Eyewitness News Anchor Joanna Pasceri has her story.
Jessie has been on dialysis since she was a year old. The process is taking a
toll on her life. It's causing her veins and arteries to shrink and harden, and
she now receives dialysis through her legs.
Jessie had a kidney transplant when she was 11. The donor was a 40-year old
woman who died in a car crash, but the organ was rejected, and it was back to
dialysis.
Jessie's doctors are now putting hope in a living donor and a new drug that
they believe will allow her to accept the kidney transplant.
A simple blood
test will reveal if someone is a compatible donor. Her family is not an option
because her disease is genetic.
If you or someone you know is interested in taking a blood test to see if
it's compatible, contact Jessie by phone or email. She can be reached at (716)
507-5981 or at [email protected].
https://www.facebook.com/pages/Benefit-for-Jessica-FRYSZ/315874285205973
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KIDNEY STORIES: BRYAN NEEDS A NEW BEAN
This is just my little page to hopefully find a viable kidney
donor and to share updates concerning my journey with End Stage Renal
Disease.
Description
Hi. I'm Bryan. I'm 35 years old and I'm living with End Stage Renal Disease. I
was diagnosed with Stage 3 Chronic Kidney Disease during a routine check-up in
May 2012. Not knowing anything about the disease and not really believing it, I
didn't pay much attention. On my follow-up visit a few months later, my blood
labs had indicated that I was now in Stage 4 of the disease. My kidney
function...
had continued to decline and I was told that I would need dialysis soon.
Having been born with a horseshoe kidney (conjoined), I was no stranger to
hospitals when I was growing up. Recently, my doctor has further diagnosed me
with Alport's Syndrome which is a genetic condition characterized by kidney
disease, hearing loss, and eye abnormalities. Significant hearing loss, eye
abnormalities, and progressive kidney disease are more common in males with
Alport syndrome than in affected females. I put off starting dialysis for a few
months and during that time, I was hospitalized three times for various
electrolyte imbalances. I was told that my potassium had grown to such a high
level that I was in danger of having a heart attack. Things seemed pretty
grim.
I reluctantly succumbed to dialysis on January 13, 2013 after
receiving a call from my kidney doctor urging me to go straight to the ER for
an emergency treatment. I go to these treatments three times a week and they
last approximately 4.5 hours. During that time, my blood is taken out and passed
through an artificial kidney to keep me alive. Dialysis is kind of a last resort
thing to keep me alive until I can get a kidney. Getting a kidney transplant is
NOT A CURE. Donated kidneys don't last forever but they do provide some
semblance of a normal life and they give the recipients freedom from being
tethered to the dialysis machine for the rest of their lives. If donating your
kidney sounds like something you would like to know more about, I urge you to
visit the National Kidney Foundation's page for more information or simply
message me. Thanks for taking the time to read about my cause.
https://www.facebook.com/BryanNeedsANewBean
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KIDNEY STORIES: WELLINTON'S KIDNEY DONOR SEARCH
I can accept A or O Blood Types but ANY type can be my Donor
via the Kidney Exchange Program. All expenses are paid so "Come on out to the
Coast" (and save a life while you're at it!) for a San Diego/ Rancho Bernardo
Dad
Description
Dear
Friends,
First let me say "Thank You" for clicking to this page. Talking
about this is a difficult thing. My Doctor is actually the one that suggested
Facebook, and if it weren't for a small group of "Angel Friends" the page may
not exist!
Also I might add for ANONYMOUS inquiries one may call
SCRIPPS CLINIC, LA JOLLA CA. 858-554-4363(Ashley) and ask questions - be sure to
tell her your are ...calling
for information on possible donation for patient Douglas Wellington.
My
name is Douglas Wellington and I live in the North County of San Diego
California (although you do not need to live in California if you are interested
in donating).
I am a "young" 57 year old man with a loving wife and
beautiful 12 year old son.
He is an unbelievable good boy, Boy Scout and I
believe him to be an "old soul."
We are a small, but close family. My
business has always been Real Estate Brokering, however now I do not have the
energy to deal with such stress. I now currently buy and re-sell my own homes.
It's an ideal job for someone with my illness, so i see it as a blessing...I've
had many in my life..Even my End Stage Kidney Disease must have some hidden
blessing..it will show up, I'm certain.
With regards to Kidney donation,
there is allot of information online to read about and anyone interested in
donation a Kidney and living the with one will be surprised to find out how
normal your life will be. I wonder what it would feel like to save someone's
life if I could. It must rank the ultimate in "Altruistic Deed."
Below I
have outlined some basic facts about Kidney Donation.
Here we go:
1.
Many people are actually born with one Kidney and only find out should they have
a scan of some sort. They life totally normal lives.
2. These days the
procedure is done via "Laparoscopic" Surgery.(please see below)
3. Hospital
stay is about 3 days. (Procedure is 3-4 Hours)
4. Donor recovery time for a
desk job is about 2 weeks.
5. There is no cost to the donor.
6.I can
accept from an "A" or an"O"blood type.
Anyone interested in donating
remains TOTALLY in control from the time they inquire to the actual time of the
operation and at anytime can change their mind and no one will ask any questions
and this happens all the time.
So in reality, no one is considered an actual
donor until the day of the procedure!
Below is a copied bit of info taken
from a Kidney Transplant webpage:
Laparoscopic nephrectomy
Laparoscopic nephrectomy is a form of minimally invasive surgery using
instruments on long, narrow rods to view, cut, and remove the donor kidney. The
surgeon views the kidney and surrounding tissue with a flexible videoscope. The
videoscope and surgical instruments are maneuvered through four small incisions
in the abdomen, and carbon dioxide is pumped into the abdominal cavity to
inflate it for an improved visualization of the kidney. Once the kidney is
freed, it is secured in a bag and pulled through a fifth incision, approximately
3 in (7.6 cm) wide, in the front of the abdominal wall below the navel. Although
this surgical technique takes slightly longer than an open nephrectomy, studies
have shown that it promotes a faster recovery time, shorter hospital stays, and
less postoperative pain for kidney donors.
I hope you will pass this
around to all your Friends and associations. After all it
only takes one
person to step up. Feel free to call me ANYTIME my cell is on 7/24.
Or
email me at [email protected]
Thanks for reading!
Douglas (D.J) Wellington
Rancho Bernardo/ San Diego
858-776-3000
https://www.facebook.com/pages/Wellingtons-Kidney-Donor-Search/315150378524664
www.facebook.com/kidneystories
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KIDNEY STORIES: AVA'S ANGELS
Ava is in need of an Adult Kidney Donor who is either blood type A or O.
A donor must be between the ages of 18-50 and in overall good health.
If interested in being a Kidney Donor, please send messages here or to
[email protected]
Description
Ava
was born with Autosomal Recessive Polycystic Kidney Disease, ARPKD for short. It
is a rare genetic kidney disease that affects about 1 in 20,000
infants/children.
Ava lived in two different hospitals for roughly her
first 11 months. During these months she underwent a Left Nephrectomy (left
kidney removal) at 5 months of age. She has had multiple tubes, wires and
machines hooked up to her and in her all
providing life saving services. She has been feeding tube fed for most of her
young life, now relies on a Gastric Feeding tube that is inserted into her
stomach from the outside in.
Ava's kidney is now failing even more and
she is quickly approaching dialysis and transplant time.
Through all of
this struggle and turmoil Ava remains a very happy, loving and busy little girl.
She is her Mommy's little miracle and Hero.
https://www.facebook.com/AvasJourney
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KIDNEY STORIES KYLE'S KIDNEY PROJECT
Helping our friend Kyle Sullivan (29) find a Kidney Transplant
donor. Diagnosed with Alports Syndrome in 2008. Function of both kidneys have
failed resulting in a three times a week Dialysis gig & deafness. Let's help
our friend :)
Mission
Kick-start Kyle's Kidneys - Find a donor match of O Blood and to bring awareness to get folks to donate their organs. I have a lot of friends who are suffering too. Get out and
Donate LIFE!
Descriptionhttp://www.youtube.com/watch?v=1usjPZOlzh8
Diagnosed with Alports Syndrome http://en.wikipedia.org/wiki/Alport_syndrome
Safety Information
Donating a kidney is a major decision. There are many
things you should know before making your decision. In addition, we have many
health care professionals who can also help you make your decision. It is
important that you fully understand how donating a kidney will affect you and
your family.
For further information please contact us at
[email protected]
This Web page will answer some of those
questions.
http://www.umm.edu/transplant/kidney/qanda.htm
To help donate to Kyle's hearing aids, visit https://www.giveforward.com/fundraiser/1782/kyleskidneyproject
https://www.facebook.com/KidneyKyle
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KIDNEY STORIES: PLEASE DONATE A KIDNEY FOR JOHNNY
My father Johnny is a kind hearted individual. Unfortunately, I am not
a match. His blood type is 0+. He would do anything for anyone. His kidneys
failed in 2008. He has been undergoing dialysis, and everyday is a battle.
Please let me know if you like to make a difference and save a life. Best
Regards
https://www.facebook.com/PleaseDonateAKidneyToJohnny
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KIDNEY STORIES: FIND A KIDNEY FOR ERIC SLADEN
My husband's name is Eric Sladen he is currently 27 yrs old and
we are in desperate search of a new kidney. with our lives just beginning and a
brand new daughter we need your help to find this Miracle.
Description
Living donor
contact Info CEDAR SINAI HOSPITAL LOS ANGELES, CA
Donor Last Name (A-K)
Jessica Contreras, management assistant 310-4238463
Donor Last Name (L-Z)
Enrique Becerra, management assistant 310-4234718
THE KIDNEY IS FOR ERIC
SLADEN, BLOOD TYPE A+
https://www.facebook.com/AKidneyForEricSladen
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KIDNEY STORIES: A KIDNEY FOR KEVIN
I need a type O (+ or -) kidney! Contact Living Donor
Coordinator Stephen Knapik (Stony Brook Hospital) at (631) 444-6944 if you are
interested in being tested as a potential donor. More info available below in
the "About" section!
Mission: Find Kevin a type
O kidney! Both of his aren't doing too hot because of Alports Syndrome.
Description
Last summer my kidneys started to fail and I almost died but I'm Irish & lucky so I
survived! I've been on dialysis for 7+ months and it is the opposite of fun!
Help a handsome lad out by spreading the word about my need for one
fully-functioning type O kidney. The donor must be in good health and
preferably under the age of 50. I just need one and most people have two, so
stop being so selfish! haha As most of you know I am an only child, so I have no
siblings to donate and both my parents are unable to help due to medical
reasons. If you can't personally help, please spread the word to your friends
and family! Help a fella out!
General Information
Donor info here:
http://www.stonybrookmedicalcenter.org/transplant/livingdonor
IF YOU ARE NOT TYPE O YOU CAN STILL HELP!!! If your kidney is healthy, it can be
donated via a paired exchange!
If you would like more information on
donating, talk with Stephen Knapik, the Living Donor Coordinator at SBUH, at
(631) 444 6944 and ask for Mr. Knapik. Or you may contact Mr. Knapik by email
at: [email protected]
https://www.facebook.com/pages/Find-a-Kidney-for-Kevin/569352236422754
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KIDNEY STORIES: A KIDNEY FOR SCOTT
My boyfriend Scott was born with Polycystic Kidney Disease, a
disease passed through families. Now, his kidneys have shutdown and he is in
need of a kidney donation.
Description
Scott was born with Polycystic Kidney disease.
His father had polycystic kidney disease and received a donor kidney that lasted
over 20 years until his death (from a non-kidney related ailment) last year.
Over the past 40 years, Scott's kidneys have slowly developed cysts and are now
to the point where he is in kidney failure. In November, he had surgery to put
a tube in his abdomen and began peritoneal dialysis. Every night, he must be hooked up
to a machine for 9 to 10 hours to perform the task his kidneys cannot. In
addition, he suffers from high blood pressure due to the kidney failure, causing
severe daily headaches even with the use of medication. He is also suffering
from anemia and is losing bone mass every day he is on dialysis. Basically, he
needs a kidney yesterday.
Scott is currently on the deceased donor list,
but the average wait time in Oregon is a little over two years. A deceased
donor kidney has a much higher rate of rejection and does not last as long as a
living donor kidney. Although the disease is only passed from a polycystic
parent 50% of the time, his sister was also born with the disease and is not
able to donate a kidney. Due to health reasons, I am also unable to
donate.
Scott is a very active person, and enjoys camping, fishing,
hiking, hunting and anything in the outdoors. His lifestyle has had to be
adjusted due to the dialysis. Scott is also an amazing person, who certainly
didn’t deserve any of this. He has a seven year old daughter that lives in
Medford, Oregon, that he visits as often as possible. He is also a wonderful,
caring person. I recently suffered a pulmonary embolism and am currently in the
middle of a long recovery. Scott works all day as a vascular technician at Bend
Memorial Clinic, and then comes home to cook dinner, walk our wonderful dog,
Cooper, clean the house, and help take care of me even though he is tired and
doesn’t feel well from the dialysis. All this before hooking up to his dialysis
machine for the night.
If you have ever considered being a living donor,
please look at what is involved - for Scott or for anyone in need of a kidney.
Scott needs a blood type A or O donor. It does not matter if you are positive
or negative – only blood type. In addition, there is a "matching service" that
can swap kidneys of two donors that do not have blood types that match their
recipients. The kidney donor process is not “sawing you in half” like it used
to be. In a healthy person without prior abdominal surgery, it is generally a
laparoscopic procedure. The following contains great information regarding what
to expect when you donate a kidney. http://www.kidney.org/transplantation/livingDonors/infoQA.cfm
Scott's insurance covers all donation medical costs. He is in the transplant
program at OHSU - this where the surgery will take place.
Being a living
donor is a rewarding experience for many healthy people. The life you change is
one of a person someone loves very much. I hate seeing Scott suffer every day.
Receiving a kidney for Scott would be the greatest gift I can imagine, and would
change our lives forever!
Please contact us if you are interested in
being tested as a match for Scott. We will contact OHSU and provide your name
to the transport coordinator and then you will be able to call her to get more
details and to start the process.
Thank you so much for taking the time
to read Scott's story!
UPDATE: We have a donor! Surgery is scheduled for 7/26! We are
counting down the days! I am not sure if our donor wants to remain anonymous or
not? So if you (most special awesome person in the world) don't want to be
anonymous let me know. Otherwise I will keep it on the downlow.
:)
https://www.facebook.com/AKidneyForScott
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KIDNEY STORIES: KIDNEY DONOR ANGEL NEEDED
My name is Jennifer. I am a 42 yr/old woman. I reside in
Pittsburgh Pennsylvania. I live with my awesome husband, John, & our 2
furry children. I have been on dialysis for over 2.5 yrs. I am in grave need of
a kidney donor who is "O" blood type.
IF YOU OR
SOMEONE YOU KNOW "O" BLOODTYPE, AND MAY BE INTERESTED IN BEING MY DONOR, THE
FIRST THING YOU HAVE TO DO IS CONTACT MY TRANSPLANT COORDINATOR AT UPMC
HOSPITAL, IN PITTSBURGH, PA.:
Thomas E. Starzl
Transplantation
Institute, UPMC
Nanci McCombs
412-647-3005
[email protected]
https://www.facebook.com/pages/Kidney-DONOR-ANGEL-Needed/126263597563713
www.facebook.com/kidneystories
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KIDNEY STORIES: LAVON'S HOPE
Lavon went into Kidney failure on June 28, 2012. His Kidney
function was at 5%. He has went threw rounds of hemo now he is doing PD. He is
in need of a kidney transplant.
Description
Lavon was diagnosed as a child with diabetes, he went into Kidney failure on June 28,
2012, His Kidney function was at 5%. He has went threw rounds of hemo, now he is
on peritoneal dialysis (PD), He is in need of a kidney transplant & on the
waiting list at UAB Birmingham, AL (Blood Type B+) he also has a
life-threatening heart condition called ventricular arrhythmias, he had a 90%
blockage they put 2 heart stents in &, they put in a implantable
cardioverter defibrillator (ICD) on Jan 16, 2013.
https://www.facebook.com/lavonshope
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KIDNEY STORIES: PROJECT MOM
Project MOM (Mom on a Mission) honors the life of Brittany Stark by promoting the Donate Life California Registry. Please consider signing up to be an organ and tissue donor in her memory at www.donateLIFEcalifornia.org/Brittany.DescriptionBrittany has now been gone almost as long as she lived. But she continues to inspire to this very day. Her mom currently is riding a bike from San Francisco to raise awareness. She'll arrive at Children's Hospital in San Diego by Mother's Day. My Crazy Idea: I promised Brittany I would promote organ and tissue donation always. I don't want other families to face the loss we did. This next birthday is big. It's been 15 years since my 14-year-old died. I wanted to do something spec...ial. Hence, the idea of a bike trip from San Francisco to San Diego.
My plan is to start April 29 (Donate Life Month) and arrive at Rady Children's by Mother's Day. Rady is where Brittany died and where I'm blessed to work as a Parent Liaison.
My 620-mile bike route is outlined in black along the coast. My tentative plans are to visit hospitals, churches, DMVs, and Donate Life Champions like the Salt Creek Grille restaurant.
My 620-mile bike route is outlined in black along the coast. My tentative plans are to visit hospitals, churches, DMVs, and Donate Life Champions like the Salt Creek Grille restaurant.https://www.facebook.com/projectmom2013www.facebook.com/kidneystories
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donate life,
KIDNEY STORIES: FIND A KIDNEY FOR SHELLEY
My name is Shelley Jackson-Robertson. I am a 44 year old woman.
I have been on dialysis since June 2007. My blood type is B+ and UCLA in
California is my transplant center. The telephone number for the living donor
line is (866) 672-5333.
Description
A
little about me, I have been married for almost 2 years now to a wonderful man.
I have a 21 year old son who I am very proud of. My husband and my son in
addition to my sister are my biggest supporters. I have been on dialysis since
June 2007 and on the transplant list since then. My kidneys failed due to
uncontrolled high blood pressure. Even though dialysis takes up a lot of my
time, I still am able to work a full time
job and work my Tupperware business.
I am the oldest of three children.
Last year we lost our beautiful mother on January 11, 2012 and on May 28, 2012
we lost our father as well. Most people would be ready to give up but not me! I
am continuing to push forward and not let this get the best of me!! I appreciate
all the love that has been shown to me!!
Please continue to share this page
for me!! My goal is to find a donor!! I love you all and GOD
BLESS!!!!!
https://www.facebook.com/FindAKidneyForShelley
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KIDNEY STORIES: KIDNEY FOR SONIA (SONIA ALL CAPS)
*Searching for a living donor
*My blood type is O+
*Transplant Center is University of Chicago(UIC)
Description
Hi
everyone, my name is Sonia and I am 57 years old and i am currently seeking for
a Kidney Donor.
I am a married women to a great husband for 40 years and we
have 4 beautiful children.
I am a grandmother of 11 granchildren that i
adore with all my heart.
I was diagnosed with Renal Failure a couple of
years ago and since July of 2012 I have been on dialysis and need a
transplant.
Dialysis has bee...n hard at times but i try to make the best of it
because i want to live a long life for my family.
I am sadden that such a
thing had to happen to me but im fortunate to still be here.
I am just now
looking for a Living Kidney Donor because this is the best way for me to go
while i continue to do all my testing so that i can be placed on the waiting
list for a deceased donor which we all know might be years from now.
If
there is anyone out there that is willing to donate a Kidney to myself it would
be greatly appreciated just for the fact that the good Lord has given you a
great heart to donate to someone in need.
I hope and pray that soon i can
find a donor because im working very hard to live a long beautiful life.
A couple of things about the transplant that a donor would like to know:
*My Transplant Center is at the University of Chicago (UIC)
*I am O+
*Donor can not have diabetes or high blood pressure.
*Any donor would have to
contact the coordinator at the UIC and will have to
undergo blood work in
order to be a match with myself.
* also all Surgery is paid for by my
insurance, so donor does not have to
pay ANYTHING...
*****If anyone
would like to donate a kidney out of the kindness of there heart
or knows
of anyone who would like to donate, please feel free to contact my
UIC
Transplant Coordinator- Her name is Xenia @ 1-312-413-9489
or email my
daughter Cindy at [email protected] and she will provide
you with all
the info you will need*****
Thank You and i hope to find a donor
soon....GOD BLESS EVERYONE...
https://www.facebook.com/KidneyForSonia
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KIDNEY STORIES: KIDNEY FOR ASHLYN
Hi, my name is Ashlyn Poss. I was diagnosed with Stage 5 kidney
failure when I was 16. I have been on dialysis since then, about 3 1/2 years. My
blood type is A. I am listed at UAB in Birmingham, AL. 205-996-9408
https://www.facebook.com/AKidneyForAshlyn/info
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KIDNEY STORIES: PULVERIZING KIDNEY DISEASE
We are the Pulver family and Brian is battling stage 5 renal
failure and is searching for a donor for transplant. He is 34 and O blood type.
Join us on our journey.
Description
Brian is currently battling stage 5 kidney failure and hoping to find a living donor for
transplant. Days are currently filled with appointments, labs, procedures, and
a lot of waiting. Brian keeps his sense of humor while we hold on to faith that
God is in control.
https://www.facebook.com/PulverizingKidneyDiease
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KIDNEY STORIES: HELP SAVE TWO, DONATE!
This page was created to help find two willing Live Kidney
donors for Kidney Transplant of mother & daughter suffering with Kidney
Failure
Description
My daughter and I suffer from an inherited kidney disease called Focal Segmental
Glomeruloscierosis or FSGS. FSGS is when the kidneys are scarred and do not
filter out toxins through the urine. When this happens, dialysis is required to
sustain life. Although dialysis is sustaining our life now, it also causes other
health issues... like heart disease. To lead a more normal & healthier life
a kidney transplant is needed for the both of us. We ask
that you learn more about the donation process and consider donating to us.
Thank You!
To learn more about Kidney Transplantation Please visit: www.ochsner.org click on services at the very
top of page, click on Multi organ transplants in drop down menu, under programs
choose kidney & kidney/pancreas transplants.
Our blood type is O+,
which means we are able to receive a kidney from someone who has a blood type of
O+ or O-.
For testing to see if you are a good candidate for possible
donation please contact: Kidney Transplant Coordinator- Yolanda @ (504)
842-3925
https://www.facebook.com/pages/Help-Save-Two-Lives-Consider-Being-a-Kidney-Donor/176044905882194?id=176044905882194&sk=info
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KIDNEY STORIES: PATTY NEEDS A KIDNEY
I was diagnosed with chronic renal failure 12 & 1/2 yrs ago
and remained stable up until the past 2 & 1/2yrs (April 22, 2011) which
began my journey on dialysis. My blood type is A+.
Description
I'm currently on the transplant wait list at Piedmont Hospital in Atlanta Georgia
patiently waiting for "the call" that a kidney is available. I've had over 50
plus surgeries/diagnostic procedures since April 22, 2011 due to complications
of which arose from ESRD with two more surgeries to be scheduled within the next
two to four weeks. My husband of almost three years as well as my family and
...friends are very supportive but unfortunately none are
healthy enough to be considered as a possible donor. My goal is to find a living
donor vs a cadaver donor as you know my body would be less likely to reject a
live kidney not to mention they function longer and I wouldn't have to wait an
additional 5 to 8 yrs on the transplant list. I do feel my body getting weaker
each year that passes with all of the dialysis and surgeries so I'm searching
for that "angel" who would love to give me "the gift of life" a kidney.
I am in need of a donor with blood type A or O due to I'm A positive.
I'm listed at Piedmont Hospital in Atlanta ! Potential donors call 404 605-4605 and
speak with a Living Donor Coordinator.
https://www.facebook.com/PattyNeedsKidney
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KIDNEY STORIES: STACIE NEEDS A KIDNEY
I have FSGS/Nephrotic Syndrome and I need a kidney so I can
live to see my children get married and have grandchildren! Please click "About"
for more info!
Description
I have
FSGS/Nephrotic Syndrome. My blood type is A+, but I was told today that I only
need someone with either A or O blood type to be tested. If you would like to be
tested to see if you are a match for Stacie York, please call Loma Linda Kidney
Transplant Center at 1-909-558-3636, press option "5" for the Living Donor
office and they will assist you from there. The link to their website is: http://lomalindahealth.org/medical-center/our-services/transplantation/services-and-procedures/kidney-transplant/index.page
I would love to have a healthy kidney so I can live to see my children get
married and have grandchildren!
https://www.facebook.com/pages/Stacie-Needs-a-Kidney/299867646807831?id=299867646807831&sk=info
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KIDNEY STORIES: PATTI'S KIDNEY CAMPAIGN
I have systemic lupus, an autoimmune disease that can damage
virtually any organ or system in the body. In my case, lupus has caused joint
pain, bone deterioration, and kidney failure. I am looking for someone to
donate their spare Kidney.
Description
My name is Patti Schultz. I’m 36 years old and live in Interlochen, Michigan. I’m
married to my best friend of 14 years, Kurt Schultz, and we have an energetic
10-year-old son, Kalob.
I enjoy photography, scrapbooking, and spending
time with my family. Previous to my illness, I worked in occupational therapy. I
took great pride in my career and enjoyed helping others regain their
independence af...ter
illness or injury.
I have systemic lupus, an autoimmune disease that can
damage virtually any organ or system in the body. In my case, lupus has caused
joint pain, bone deterioration, and kidney failure.
I need a kidney
transplant and am currently preparing for dialysis as I wait for a donor.
Because my transplant center, the University of Michigan, participates in paired
donation, a person of any blood type can be a living donor for me. If you would
like to be tested to see if you are a match, please call my transplant
coordinator, Ann Gray, toll-free at 1-800-333-9013 or locally at 734-615-1850.
Or, if you prefer, you may e-mail her at [email protected].
My
insurance covers all medical expenses, and you do not have to be a resident of
Michigan to be a donor. Programs that cover the cost of transportation, lodging,
meals, and car rental are available.
Thank you for taking the time to
read my story and for considering giving me the Gift of Life. If you are unable
to donate but would like to help, please pass my story on to others. Thanks so
much.
Sincerely,
Patti Schultz
Read more:
Hi!
My name is Patti Schultz. I’m 36 years old and live in Interlochen,
Michigan. I’m married to my best friend of 14 years, Kurt Schultz, and we have
an energetic 10-year-old son, Kalob.
I enjoy
photography, scrapbooking, and spending time with my family. Previous to my
illness, I worked in occupational therapy. I took great pride in my career and
enjoyed helping others regain their independence after illness or
injury.
I have systemic
lupus, an autoimmune disease that can damage virtually any organ or system in the
body. In my case, lupus has caused joint pain, bone deterioration, and kidney
failure.
I need a kidney transplant and am currently
preparing for dialysis as I wait for a donor. Because my transplant center, the
University of Michigan, participates in paired donation, a person of any blood
type can be a living donor for me. If you would like to be tested to see if you
are a match, please call my transplant coordinator, Ann Gray,
toll-free at 1-800-333-9013 or locally at 734-615-1850. Or, if you prefer,
you may e-mail her at [email protected].
My
insurance covers all medical expenses, and you do not have to be a resident of
Michigan to be a donor. Programs that cover the cost of transportation, lodging,
meals, and car rental are available.
Thank you
for taking the time to read my story and for considering giving me the Gift of
Life. If you are unable to donate but would like to help, please pass my story
on to others. Thanks so much.
Sincerely,
Patti Schultz
https://www.facebook.com/PattisKidneyCampaign/info
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KIDNEY STORIES: SAVING SUPERMAN SAM
This page is created to share awareness about kidney disease.
Samuel was born with a rare form of kidney disease called Congenital Nephrotic
Syndrome the Finnish type.
https://www.facebook.com/SavingSupermanSam
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KIDNEY STORIES: POLLY'S KIDNEY
I am a 41 year old single mother of 3 needing a kidney
transplant. My blood type is O and my transplant center is located in Indiana.
I've been on dialysis since August 1, 2011. Contact Valerie at Lutheran
Transplant (260) 435-6275. Please help me.....
Description
I was diagnosed with kidney disease at the age of 14 and had my 1st transplant at
15; the kidney came from my mother. It lasted 21 years and I had no issues at
all. But it rejected in 2007. My 2nd transplant was in 2008 from my brother.
However, it only lasted 3 years before it rejected due to medication
complications. I started on peritoneal dialysis but soon found out that I have a
leak in my diaphragm
that's causing fluid to enter into my lung cavity. So I am now on hemo dialysis
until the leak can be repaired. My body does not tolerate hemo very well. I'm
very sick and fatigued while on it making me worthless to my children. I am in
desperate need of another transplant. I just need one more chance at this life.
Please consider donating your spare kidney and help save my life and give my
children their mother back; healthy and whole. I don't know how long I can
tolerate living this way. I'm just existing...I want to be living. Thank
you!
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KIDNEY STORIES: DEBORAH DENNELL NEEDS A KIDNEY
Debbie has PKD. Both of her kidneys were removed in November
2012. She has been on dialysis for 4 years and has been waiting for a
transplant. We need a living kidney donor! Contact us for more info!
Description
Debbie has
Polycystic Kidney Disease (PKD). She is a wife, mother, grandmother, teacher,
and scout leader. She has been on dialysis for 4 years and has been waiting for
a transplant. In November 2012, she had a bilateral nephrectomy (both kidneys
were removed) because they were so large they were further degrading her quality
of life. Since being on the waiting list she has received two calls, but neither
kidney was viable. You can become her guardian angel by being her living donor.
Or simply spread the word about her cause, please help us find a match!
https://www.facebook.com/DebNeedsaKidney
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KIDNEY STORIES: FIND A KIDNEY FOR KIM
I was diagnosed with Polycystic Kidney's when I was age 18. My blood type is
O postive. I am listed at Integris Baptist Hospital in Oklahoma City, Ok. My
Transplant Coordinator is Susan 405-949-3816.
https://www.facebook.com/FindAKidneyForKim
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KIDNEY STORIES: JENNIFER NEEDS A KIDNEY
You can be tested!! All you have to do is make a phone call to
the transplant center and tell them you want to be tested for me. Blood types A
and O are what I'm compatible with, but if you don't know don't worry. They
will find that out for you.
Description
Jennifer is a 36 year old wife and a mother of
three girls. Her girls are ages 15, 12 and 8. She was first diagnosed with
kidney disease in May of 2010. She began having excruciating pains in her side,
back and stomach. Ending up in the emergency room a few days later they found
that she had an extreme kidney infection and they found an abscess on one of her
kidneys. She was admitted into the ...hospital for
an 8 day stay and a biopsy was done on the abscessed kidney. The result was
Glomerulonephritis and the doctors said she would eventually need a transplant
but she would be 80 years old by that time.
In August of 2011 she made
another trip to the ER with horrible stomach pains, this trip indicated she had
pancreatitis and her gall bladder needed to be removed. Thus another 8 day stay
at the hospital. Her kidney function was not bouncing back this time and she
was now in Stage 5 Chronic Renal Failure.
Getting sicker and sicker her
only option now was dialysis. She went in to have a PD catheter placed in her
stomach on January 5th, 2012...her birthday. After a few weeks of healing she
began dialysis treatments. About two weeks of treatments and again she ended up
in the ER from pain and trouble breathing, they found nothing. A few more days
went by and the pain got worse. She went to her doctor and they did an x-ray and
found her chest cavity filled with dialysis fluid. The fluid was literally
crushing her lungs making it impossible for her to breathe. The doctor sent her
directly to the ER again, this time to be admitted. Several more tests were
done and the result was that 2/3 of her chest cavity was filled with fluid. She
then had to have a procedure called thoracentesis done to remove the
fluid.
The doctors then informed her that due to the leak or possible
tear in her peritoneum, she may not be able to do dialysis through the PD
catheter any longer. The next option is a fistula. On February 14th, 2012 she
underwent another surgery for the fistula in her left arm. This will take 10
weeks to heal and there is a possibility that it will not work.
Meanwhile, in April of 2012, Jennifer had surgery for the placement of a perma
cath which is located in her neck. This is the most dangerous of all the
accesses because the catheter goes directly into the heart and is very prone to
infection.
***UPDATE***
The fistula done on Valentines Day never
matured and is not usable. She had another surgery in Jan 2013 for another
fistula, this time in her right arm. In March, the surgeon suggested that this
fistula may not be usable either without further surgery. The dialysis clinic,
against dr's orders, used the fistula. On the third time of use, they
infiltrated her arm. She was unable to move her arm and was in severe pain for
almost two weeks. As of April 2, 2013 the fistula remains unusable and the
surgeon wants to perform a revision on the fistula.
This family
needs your help. Prayers are definitely appreciated and welcomed. The
estimated out of pocket cost for the transplant itself is around $50,000. After
the transplant the anti-rejection medication can cost up to $23,000 per
year....for the rest of her life. This doesn't include all the doctor visits,
ER visits, hospital stays and current medication costs.
To be tested,
please call:
LeAnne Whitehead 404-605-4605
Piedmont Atlanta Transplant
Center
Donor Coordinator
https://www.facebook.com/JennifersKidneyTransplant
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KIDNEY STORIES: FIND A DONOR FOR JASON
Please care by hitting Share to show this on your timeline.
Once vibrant
and strong his family and friends have seen him fight through ESRD. Please help
us beat the odds.
Jason is O+ we can donate B+.
Description
This page is for Jason Andy Timbes my wonderful husband, caring friend and awesome
father to four precious children.
Jason was diagnosed with kidney failure
in 2011 at the age of 42.
Once vibrant and strong his family and friends
have seen him fight through the Ending Stages of Renal failure (ESRD). He now
waits for a living donor or paired donation.
... The survival rate of the person with Jason's level of
ESRD is about 5 years , dialysis adds 4 years a living kidney donor would add 25
years or more.
Jason is a wonderful giving person. Last year he headed
a fundraiser that gave one of his coworkers , whose wife had been fighting end
stage cancer. a paid vacation to visit their family for Christmas. That was
their last Christmas together, she passed away shortly there after.
Jason is an altruistic person himself, he has helped many people during his
life. He has so much more to give, share and live.
Please help him be
able to see his children graduate high school and college, walk his daughter
down the aisle, hold his grandchildren, pass on the giving heart he
has.
Please " Care to Share" for Jason / please share this FB page with
as many people as you can
----------------------------------------------------------------------------
Jason is an O+ and while O can give to anyone they must only receive from an O
donor.
At this time no family members are a match for Jason
Jason
has his initial registration at Vanderbilt University Hospital Transplant Center
in Tennessee phone number 615- 936 -0695.
If you would like to contact
and donate just mention it would be for Jason A. Timbes , birth date
06/22/1969.
Even if you are not a match your donation can start a
chain of life for several lives!
Vanderbilt has a paired donation
program .
If you have a loved one or know someone in need of a kidney with
a non-matching donor then we have a B+ kidney to give.
Thank you for
your support!
https://www.facebook.com/pages/Help-find-a-Living-or-Paired-Donation-Kidney-for-Jason-Andy-Timbes/451121498282454
www.facebook.com/kidneystories
Once vibrant
and strong his family and friends have seen him fight through ESRD. Please help
us beat the odds.
Jason is O+ we can donate B+.
Description
This page is for Jason Andy Timbes my wonderful husband, caring friend and awesome
father to four precious children.
Jason was diagnosed with kidney failure
in 2011 at the age of 42.
Once vibrant and strong his family and friends
have seen him fight through the Ending Stages of Renal failure (ESRD). He now
waits for a living donor or paired donation.
... The survival rate of the person with Jason's level of
ESRD is about 5 years , dialysis adds 4 years a living kidney donor would add 25
years or more.
Jason is a wonderful giving person. Last year he headed
a fundraiser that gave one of his coworkers , whose wife had been fighting end
stage cancer. a paid vacation to visit their family for Christmas. That was
their last Christmas together, she passed away shortly there after.
Jason is an altruistic person himself, he has helped many people during his
life. He has so much more to give, share and live.
Please help him be
able to see his children graduate high school and college, walk his daughter
down the aisle, hold his grandchildren, pass on the giving heart he
has.
Please " Care to Share" for Jason / please share this FB page with
as many people as you can
----------------------------------------------------------------------------
Jason is an O+ and while O can give to anyone they must only receive from an O
donor.
At this time no family members are a match for Jason
Jason
has his initial registration at Vanderbilt University Hospital Transplant Center
in Tennessee phone number 615- 936 -0695.
If you would like to contact
and donate just mention it would be for Jason A. Timbes , birth date
06/22/1969.
Even if you are not a match your donation can start a
chain of life for several lives!
Vanderbilt has a paired donation
program .
If you have a loved one or know someone in need of a kidney with
a non-matching donor then we have a B+ kidney to give.
Thank you for
your support!
https://www.facebook.com/pages/Help-find-a-Living-or-Paired-Donation-Kidney-for-Jason-Andy-Timbes/451121498282454
www.facebook.com/kidneystories
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KIDNEY STORIES: HELP LANGSTON
Hi I am Langston Navarro
I am 14 years old.
I regret I have end stage renal failure.
My Kidneys no longer work so I have to do dialysis every night.
My dad and I built this website to help raise funds so I can have a Kidney
Transplant.
I live in a small town and want to go to a culinary college to become a chef
when I grow up and it is my dream to beat my disease that made my kidneys no
longer work.
The doctors said my disease can spread into my heart and brain but I just
went through a ton of tests and I am excited to say its only in my kidneys.
They will continue to monitor my progress and hope that the disease only
attacked my kidneys
and never comes back to get me again.
I just want to you to know it really means a lot that you took the time to
come visit my website even if you are not able to donate can you please pass on
the word of my new website so others can come visit.
Contact Details
P.O. Box 1507
Mesquite, NV 89024
Questions : 435-705-4817
Talk
To Langston: [email protected]
https://www.facebook.com/Helplangston
www.facebook.com/kidneystories
I am 14 years old.
I regret I have end stage renal failure.
My Kidneys no longer work so I have to do dialysis every night.
My dad and I built this website to help raise funds so I can have a Kidney
Transplant.
I live in a small town and want to go to a culinary college to become a chef
when I grow up and it is my dream to beat my disease that made my kidneys no
longer work.
The doctors said my disease can spread into my heart and brain but I just
went through a ton of tests and I am excited to say its only in my kidneys.
They will continue to monitor my progress and hope that the disease only
attacked my kidneys
and never comes back to get me again.
I just want to you to know it really means a lot that you took the time to
come visit my website even if you are not able to donate can you please pass on
the word of my new website so others can come visit.
Contact Details
P.O. Box 1507
Mesquite, NV 89024
Questions : 435-705-4817
Talk
To Langston: [email protected]
https://www.facebook.com/Helplangston
www.facebook.com/kidneystories
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KIDNEY STORIES: CHARLIE'S ROAD TO A KIDNEY TRANSPLANT
Meet Charlie……..
.
Robert Shivley aka “Charlie”, is a Christian man who was born in Columbia,
SC. He was married to Sherrie on July 31, 2011. They
currently live in San Antonio, TX. Charlie is the father of 2 daughters,
Melissa and Emily. Both are married and have children. Melissa is
married to Bobby and they have 2 daughters, Kailey and Samantha. Emily is
married to Jon and they have a daughter, Ava. He also has 2 step children
Wayne who is married to Jacqueline and has 4 children, Ashlyn, Isabella, and
Jonathon and Zacchaeus. Kimberly who is married to Micheal and has a son,
Dalton.
He was diagnosed with Type II Diabetes in 1990. From
1990 to 2005 he battled the disease but was rather non compliant. He
didn’t always have the medication that he needed and that played into
the worsening of the disease. He began losing his sight in 2003 when
he was diagnosed with Diabetic Retinopathy. He got progressively worse and
was totally blind in 2005. Prior to becoming totally blind, Charlie led a
very active life, he was an avid sky diver, rock climber, did many white
water rapids runs, enjoyed painting and photography and he was a fire
fighter and paramedic in Columbia South Carolina.
At the same time that he went blind he was diagnosed with End Stage Renal
Disease (ESRD). It was then that he was placed on dialysis and his road to
needing a kidney began. Charlie has now been on dialysis for 8 years and on the
Kidney Transplant list for the same amount of time.
Every Tuesday, Thursday and Saturday morning, for the last 8 years
Charlie has spent 3 1/2 hours in the dialysis chair. He gets up at
5am and gets to dialysis at 6:30. On dialysis day he is gone until around
noon and then comes home and eats lunch. He is very worn out so he usually
lays down for a nap after lunch and sleeps until dinner time. He very much
looks forward to getting a kidney and being able to do things without having to
schedule it all around dialysis. Right now everything he does is scheduled
around dialysis, that includes his school schedule, all doctor appointments,
events, movies, date nights…and the list goes on. It also includes going home to
South Carolina to see family, without having to schedule with a dialysis unit
there.
In addition to his ESRD and the blindness, the Diabetes has also caused him
to develop Coronary Artery Disease and Peripheral Vascular Disease, and
neuropathy in his feet and legs. He had to have a double by-pass in August
of 2011 because two arteries in his heart had become 100 percent and 80 percent
occluded with plaque. In January and February of 2012 the arteries in
his legs had to be cleaned of plaque. This summer he will have to have both eyes
removed as they are dying and causing him great pain. Living with all of the
complications means living with many restrictions. There’s having to
schedule everything around dialysis days. Checking your sugars multiple times a
day. Giving yourself insulin shots at each meal and bedtime. Constant
monitoring of feet for ulcers or sores. Doctor appointments for heart, kidney,
feet…..and the list goes on. As you can imagine the bills that go along
with all of these aliments are never ending as are the bills for
medications.
When asked if there was one thing that he could go back and do all over
again what would it be? Charlie’s response was “take my Diabetes
seriously”. His hope is that people will see him and where he is now and
not ignore the disease. He would like to be a positive example of how to
live with the Disease and the complications, so that those who are diagnosed can
see that there are things you can do even if you are disabled.
Charlie is a wonderful Christian man who maintains a pretty positive attitude
considering all that he is dealing with. Even with all of the negative
forces at work around him he still relies on God to help him with any
issues that are put in his path. He is currently a student at San Antonio
College, where he is taking all of his main courses and then will transfer
to Wayland Baptist University on his road to becoming a pastor. In
addition to his schooling he has been very busy. In January of 2012 he
started a movie ministry. The ministry shows free, family friendly movies
to the community one Saturday a month. It has given him great joy to be able to
do something positive in the community. He also joined the church choir last
year and has been given the privilege of being selected as a Yoke Fellow (Deacon
in training) at his church. If anyone is interested in talking with Charlie
about Diabetes or Kidney failure please email to [email protected]. He will be happy to
share his insight with you individually or to a group.
http://gsservant.wordpress.com/
www.facebook.com/kidneystories
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KIDNEY STORIES: FIND A CERTAIN KIDNEY
Jack Certain needs a new kidney from a donor with blood type O.
If you or someone you know can help, please contact us via this page or call the
University of Minnesota Transplant Office, 612.625.5115.
Description
Jack
can blame his twin brother Sam for their early entry into the world on Sept 14,
2005. Sam's water broke 8 1/2 weeks early and the boys made an abrupt but safe
journey into the world. Jack, weighing in at 4 lbs, needed immediate surgery to
treat posterior urethal valves (PUV). As a result of PUV, both kidneys were
damaged and Jack began making plans to receive his mamas kidney.
Jack
made i...t 2 ½ years before receiving his first transplant at
the U of MN on May 2nd, 2008. The first year post transplant yielded some of
the most grace-filled moments and some of the most frightening moments. We
packed our bags and headed back to the hospital many times to treat mini
rejection episodes and high fevers. Ultimately, Jack assimilated his new kidney
and by the time we celebrated his one year kidney anniversary his parents
decided to now expand their family. Lucy arrived easefully and on time.
Whew!
4 years passed before Jack’s kidney health began to deteriorate
again. In Dec of 2011, another trip the hospital and biopsy later revealed he
had Glomerulopathy (a condition where the filters of the kidney are ‘gummed’ up
and acting like an aged kidney). Jack was moved to stage 5 renal failure and
began making plans to now receive his dads kidney. Dad was approved as a donor
in 2008 but they chose Mom’s kidney because it was smaller and a better ‘fit’
for Jack. Upon reconfirming that dad was still a match last month, we learned
that Jack has developed significant antibody against Dad’s tissue no longer
making them a “match”.
Jack will have a feeding tube and his dialysis
catheters placed the first week of 2013. Dialysis will follow right away and
continue until he finds his kidney. Due to the high level of antibody that Jack
has, he will be a hard match to find. Jack also has proteinuria (protein
leaking in his urine) which may require that Jack’s current kidney be removed
prior to finding his next one.
As Jack’s mama, I have never asked “why
him?” or “why us?”. I am very clear that Jack chose our family and that we have
the capacity to navigate him and our family through this. However, we need help.
We need a willing donor that has a blood type 0 to take this next step forward.
** Follow us and read more of our story at
acertainkidney.blogspot.com
https://www.facebook.com/JackCertainKidney/info
www.facebook.com/kidneystories
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KIDNEY STORIES: IN NEED OF A KIDNEY
RECEIVING A NEW KIDNEY blood type AB+
Description
Hello My Name
Is Edwin Mansour I Am A 44 Year Old Male With Kidney Failure Which I Received
From Hereditary situation I been on HEMO DIALASIS 3 TIMES A WEEK SOME TIMES 4
TIMES A WEEK DEPENDING ON HOW I AM FEELING getting dialysis for 3 years now I
have never been sick and this took me by surprise my family is suffering
emotionally seeing me slowly waste away this is some thing I wouldn't wish on my
worst enemy it is just a matter of time before my clock stops ticking THAT'S WHY
I AM MAKING THIS PLEA " I NEED A KIDNEY" ANY HELP IN THIS MATTER WOULD BE
APPRECIATED!!
transplant coordinator: ARIELLA TOMBACK 212-659-8596
FROM MOUNT SINAI MEDICAL CENTER NEW YORK CITY
My Blood Type Is AB+
https://www.facebook.com/pages/In-Need-Of-A-Kidney/336521179715097?id=336521179715097&sk=info
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KIDNEY STORIES: CARLA NEEDS A KIDNEY
Carla needs a Kidney so we set up this page to spread the
message. She is A Positive. Can you help?
Description
Carla is one
of those types of individuals who gives back. Earlier in her life she provided
a safe place for delinquent girls to re-establish a positive life path. She is
a retired teach and social worker. She's Mom to five dogs - two are rescues -
and two cats. She's an avid gardener, bridge player and loves nature. Her home
in Lake Cowichan, BC is a wonderful mixture of art and fun and her grounds are
peaceful and respectful of the surroundings.
Carla is 69 years old and she needs a
new kidney. She'll be on dialysis by the end of the year without a live donor.
Carla is a canine lover and walking encyclopedia on training, health &
nutrition for dogs. Check out the BC Transplant Facebook page for excellent info
on what it takes and the ramifications of donating a live kidney.
Here are some important numbers and
websites: BC Transplant website: http://www.transplant.bc.ca/index.asp or
Living Donor Direct Contact Number 1-604 806 9027. The website is a wealth of
information.
https://www.facebook.com/pages/Carla-needs-a-Kidney/493658244005513
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KIDNEY STORIES: KIDNEY 4 MAGGIE
I'm looking for a B+ or O Blood type kidney. 13 people die everyday
waiting for a kidney transplant. Please share to spread the word ♥
Description
My name is Margaret Leon, also known as Maggie. I was diagnosed with type 1
diabetes when I was 6 years old. Today I am 33 years old. My diabetes is causing
both my kidneys to fail. Ive been in stage 5 kidney failure for 2 years now.
That means I have to do dialysis 3 days a week for 3 hour each treatment to stay
alive.
I am currently looking for a B or O kidney donor. I am also
currently listed...
at UCLA, California for a kidney and pancreas. If I can find a living donor, my
chances of my new kidney are greater on lasting me a longer life, then one of a
deceased donor.
I have been doing dialysis for 2 years now to maintain
life. I have a loving husband and 3 children at home. Our youngest daughter who
is 12, has Cerebral Palsy. She cant wait for the day when I can have the energy
to play with her again like I used to when she was little.
The symptoms
I'm having at Stage 5 kidney failure includes:
General ill feeling and
fatigue
Generalized itching and dry skin
Headaches
Hair loss
Weight loss without trying
Loss of appetite
Nausea
Bone pain
Brain and nervous system symptoms, Drowsiness and confusion
Problems
concentrating or thinking
Numbness in the hands, feet, or other areas
Muscle twitching or cramps
Easy bruising, nosebleeds
Excessive
thirst
Frequent hiccups
Sleep problems, such as insomnia
Swelling
of the feet and hands
Vomiting
Doing dialysis is a struggle for me.
I have had many surgeries and still continuing to have surgeries to keep my
fistula going in my arm so I can receive treatment. Sitting there in the chair
for 3 hours straight, freezing and hurting because the needles aren't small is
very hard. I try to have a great attitude about it, but sometimes its over
whelming.
If you or any you know would like to donate, please send me an
email or IM
[email protected]
Ive been told my wait time on
the list can be up to 5 years. Remember I have already gone through 2 years of
dialysis and I have 1 year of wait time on the list so far. That leaves me 3-4
years of dialysis until my chance of getting a deceased donor for my blood
type.
To learn more about kidney donation, please feel free to check out
www.kidney.org
If you would like to
donate, remember that my insurance will cover your surgery and hospital stay.
Please call my coordinator:
UCLA Violet Castro (310) 267-6948
or
UCLA Mishon Surprenant (310) 267-6903
https://www.facebook.com/pages/Kidney4maggie/437079296366862
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KIDNEY STORIES: FIND STEVE A KIDNEY
Starting the process again. Needing to find someone to donate
a Kidney for Steve. Has 2 kids and a wife that need him very much. Anyone
interested contact MVH @ 937-208-8000 and talk to Ann Taylor. Or OSU medical
center is 614-293-6724.
Description
I'm
in need for a special person to give the gift of life to my family and I. I'm
36 years old with a wife and two kids. I received the gift of life (Kidney
transplant) in June 2012. Recently I had a biopsy and it showed a new disease
called FSGS. Since then my creatinine level jumped from 2 to 8.4. And I'm
starting this process again. It is hard for me to find the right match because I
also received a kidney back in 2004 from my
mother that rejected 3 years later. So I now have a high level of antibodies
that make it very hard to find the right match. My blood type is A- so A and O
will work. If interested in donation please contact MVH @ 937-208-8000 and talk
to transplant, or contact OSU medical center @ 614-293-6724. The transplant
centers will walk you through the testing process. U might be our
hero.
https://www.facebook.com/pages/Find-Steve-a-Kidney/158341700952207?id=158341700952207&sk=info
www.facebook.com/kidneystories
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KIDNEY STORIES: I WEAR GREEN FOR SOMEONE I LOVE
My son had this condition called Nephrotic Syndrome you don't hear about
this all the time over 89,000 ppl or more has this ..
DescriptionMy son has a
condition called Nephrotic Syndrome .What that is that : Nephrotic syndrome is a
group of symptoms that include protein in the urine, low blood protein levels,
high cholesterol levels, high triglyceride levels, and swelling.
Causes,
incidence, and risk factors
Nephrotic syndrome is caused by different
disorders that damage the kidneys. This damage leads to the release of too much
protein in the urine. but the good news is that his Kidneys are not Damage we
got a hold on that is time .. But he need all the prayer right now he is
fighting this so hard ... My boy is an amazing person and so strong I love him
with all my heart. He is my best friend.. so please pray for him thank you..
This is how you can be a organ donor for DERICK
SLONE. PLEASE help .... ask for Lynne Polly living donor coordinator..
phone number is 1_859_474-6544. PLEASE be his hero PLEASE. Spare a KIDNEY please
for my little boy PLEASE... I have a good team for YOU it's call a KIDNEY FOR
DERICK SLONE.
https://www.facebook.com/IWearGreenForSomeoneILove/info
www.facebook.com/kidneystories
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love, Indiana University, Jim Myers, kidney, kidney disease, kidney for, Kidney Stories, Live Journal, living kidney donor, National Kidney Foundation, NCS,
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KIDNEY STORIES: DYING FOR A KIDNEY
49 year old wife and mom waiting on transplant list for 3 years. Please help
save my life and get my living back
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donate life,
save my life and get my living back
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KIDNEY STORIES: FIND A KIDNEY FOR TERESA
Hailing from sunny Arizona, Teresa is looking for a kidney
donor that will help brighten her future. She has Type O+ blood and is treated
at the University of Arizona Medical Center (Tucson, AZ). Lend a hand, share
this page!
DescriptionDiagnosed at
the age of 10 with Rapidly Progressive Glomerulonephritis from untreated strep
throat (at the time of being diagnosed 50% function of both kidneys were gone),
had been in remission until last year. I am 44 years old.
https://www.facebook.com/pages/Find-a-Kidney-for-Teresa/151349485026268?id=151349485026268&sk=info
www.facebook.com/kidneystories
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donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: KIDNEY 4 CRAIG
If You Would Like to Get Tested to See if You Can
Donate your Kidney
By Catherine Grand and Bonita
Landreau in Kidney 4 Craig (Files)
Thank you!
First step: Obtain your blood type from your doctor.
Then: Please contact the Ottawa Hospital ....Brenda at 613-738-8400 extension
81744, or if you're calling long distance, call toll free at 1-866-428-2241,
option 3, then option 8.
You can also email to [email protected].
Once you receive and read the package, you need to contact Mary Rada again to
confirm that you wish to proceed with the donation process.
If you are not a blood-type match for Craig but would still
like to donate a kidney, there is a way do so and get Craig a
kidney through participating in the Living Donor Paired Exchange (LDPE)
registry. Mary Rada (613-738-8400 ext. 82778, [email protected]) is the contact
for LDPE.
Paired exchange, at its simplest, is a program that registers
incompatible pairs into a database with other incompatible donor/recipient pairs
to hopefully create an opportunity for two recipients to receive kidneys from
each other’s living donor. Read more here:
http://www.organsandtissues.ca/s/english-public/living-kidney-donation
Thank you again!
Craig Dunbar
By: Andrew Dunbar
Craig Dunbar was born on June 28, 1972 in Ottawa, Ontario but nobody
could ever imagine what he would have to go through during his life. Craig was
the third child born in his family and the youngest. He grew up in a big house
in Carp where he loved to go swimming and play sports. He was a very athletic
smart kid. When he was young he played hockey and won many trophies and
awards.
Craig attended St. Michaels School while he lived in Carp. After high
school, he went to a police/firefighter college. Craig was a garbage truck
driver until he graduated college and became a firefighter. Craig saved many
lives as a firefighter and was on T.V and in newspapers all across Ottawa.
Craig married Heather Andrew in 2006 at the Canadian Golf Course. Craig
doesn’t have any kids yet but he has three dogs Petey, Phinny and Abby. In May
2007, Craig’s kidneys failed and now he is waiting for a kidney transplant. He
also now works for the Kidney Foundation of Canada because he can no longer be a
firefighter due to his kidneys. He has showed people with and without kidney
failure that you can still play sports and be physically fit with kidney
failure. He is an inspiration to everyone who meets him or hears him speak. On
October 17th 2012 he was on CTV morning live talking about the Kidney Foundation
and how you can help.
Craig has raised over $60,000 for the Kidney Foundation by doing
fundraisers and receiving donations. Examples of this are he does yearly runs,
walks, dances, car washes, and BBQ’s. Since he works for the Kidney Foundation
he also helps plan many fundraisers and events for the Kidney Foundation.
Craig
has also accomplished many goals he set about raising money and awareness for
the Kidney Foundation.
Craig Dunbar has inspired many people to help the Kidney Foundation.
Craig is hoping to get a kidney transplant in the next few years. Craig’s family
has supported him and does the best they can to help whenever they can. As a
result Craig is an energetic, athletic person that will never give up no matter
what.
Our
son/husband/brother/uncle/ cousin/nephew/fellow fire fighter/coworker and
beloved friend, Craig Dunbar, is in need o...f a
kidney... badly... the purpose of this page is to get the information out there
and to find a kidney for Craig!!
His kidneys failed in 2007. He currently
does home hemo dialysis six days a week which keeps him alive. Craig's current
dialysis access is failing and he is quickly running out of access options.
The only option for him now is a living kidney transplant, and soon! Please get
tested and see if you can change his life!!
Check out the Files
section for information on how to become a donor, to learn about Craig and his
journey, living kidney donation and other items we thought you may find
interesting...
you can also follow us on twitter! #kidney4craig,
@kidney4craig
and visit us at www.kidney4craig.com
You only need one
kidney to have a happy healthy life!!
Craig Dunbar
Hello All,
I feel odd writing this, knowing that I am sending it out to be seen
by 4000 people who have joined this group to support me and my family in our
effort.
4000
I can’t properly put into words what that number means to me.
Until 6 days ago, I bore this burden alone, shielding my family and friends from
the worst of my condition. I’ve become used to hiding details of my condition,
unless it’s to raise awareness of the disease and advocate for others. I know
that many dialysis patients are very sick, and I’ve been very lucky so far in
that I’ve been able to do my own treatments at home, and by receiving more
dialysis have been healthier.
When I reached out, I never dreamed that things would take off
like this. To go from bearing this alone, to having 4000 new friends, to being
the top story on the news, having Strombo and others tweet in support of the
campaign... I’m stunned. I sat here in front of an empty page for quite a while
trying to find words to express how I feel right now... Anything I try to write
just seems to fall short.
I’ve completely lost track of the messages I’ve been getting, and
for that I apologize. Each and every comment I’ve received is greatly
appreciated. I just haven’t been able to respond to all of them, and at times
have been so overwhelmed I’ve been completely speechless and unable to
respond.
I’d like to thank everyone very deeply for the outpouring of
support. Even though this has been a very bad week for my dialysis, I feel
stronger than I have in a long time. That light at the end of the tunnel is
getting brighter every day.
C
https://www.facebook.com/groups/Kidney4Craig/
www.facebook.com/kidneystories
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Ning,
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KIDNEY STORIES: KATELYNN'S KIDNEY JOURNEY
Anyone interested in being considered as a donor for Katelynn
Ernst's kidney transplant should contact Vicky Reilly at Penn State Hershey;
717-531-6092 or [email protected]
Donors can be between age 18-70 with no
known health issues.
MissionTo spread the
word about Hemolytic Uremic Syndrome (E-Coli) and to promote organ
donation.
Company Overview
Description
Katelynn was almost 2 years old when she got
sick. After being seen by her pediatrician he informed us that she just had the
flu. The following day after checking on her my wife found her having seizures.
She was taken to an area hospital where they thought she had meningitis. After
sedating her she was medevac’d to Penn State Hershey Children’s Hospital. We
had no idea what was going on and ...we were not
able to see her. After Katelynn was there for 5 hours the doctor came to speak
with us. She informed us Katelynn was indeed in kidney failure. Katelynn had
been placed on the ventilator her body was being attacked by hemolytic-uremic
syndrome (HUS). Katelynn had somehow contracted the E-Coli virus and would need
to undergo dialysis. She needed 3 blood transfusions and had dialysis 10 hours
each day. After coming home on dialysis on her 2nd birthday her nephrologist
informed us some of her kidney function had returned. Thankfully she got back
30% of her kidney function and did not need dialysis.
See
More
General
InformationKatelynn suffers from end stage kidney failure. She is
currently on 10 mediciations daily some of which she take 3 times a day. She
has high blood pressure and takes 2 blood pressure medicines to regulate her
blood pressure. She has a vitamin d deficiency and also has high
cholesterol.
https://www.facebook.com/KatelynnsKidneyJourney/info
www.facebook.com/kidneystories
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Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
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donate life,
KIDNEY STORIES: AMY NEEDS A KIDNEY DONOR
Click on "About" to learn more. Amy suffered from Polycystic Kidney Disease
(PKD). Her kidneys were removed in 2006. She's been on the waiting list for a
donor kidney for nearly 9 years, on dialysis nearly 11, needing an angel donor
with BLOOD TYPE 0.
Description
Amy
suffered from Autosomal Dominant Polycystic Kidney Disease (ADPKD), the most
frequent life-threatening, hereditary disease. Amy was diagnosed with PKD at
the age of 21. She married her sweetheart and raised a family of five children
including a set of twins. Their sons are serving in the military. They now
have 9 grandchildren. Due to damaged kidneys from this disease she went into
Stage...
5 kidney disease or End Stage Renal Failure requiring dialysis to live which is
equal to daily life support.
She has been on dialysis nearly 11 years
(started dialysis at age 44) and on the deceased donor list for nearly 9 years
has never had a transplant. By the numbers she has had so far approximately
3000 treatments lasting more than 24,000 hours over the years. She has had more
than 13 major surgeries and 75 procedures. She is running out of veins to use
for dialysis. She is still young (just turned 54) and has so much left to do,
see, accomplish. Amy needs a kidney transplant as soon as possible. Once she
receives a healthy kidney, her chances for a full recovery and healthy, long
life increase drastically. With so many people waiting for a transplant
(currently 93,000 waiting for a kidney) finding a living donor is the best
option!
Amy and her family live in southwest Missouri, USA and she is
currently listed at KUMC Transplant center in Kansas City Kansas.
The
following are the most important things to know about organ donation.
*
Most people are born with 2 kidneys. Studies show that kidney donors live a
normal, healthy life with only one kidney and are no more likely to suffer
kidney failure. To read a study from the “New England Journal of Medicine” about
kidney donors’ health after their transplant, go to:
www.lkdn.org/Long_Term_Effect_Kidney_Donors_Health.pdf
An interesting fact to realize is 1 in every 750 people are born with one
kidney and their life expectancy is the same as someone who is born with 2
kidneys.
* As a result of new anti-rejection drugs, the “matching” of
donor/recipient has become much easier. For situations where the donor/recipient
are not compatible, “kidney paired exchange” programs allow these donors to be
paired and matched with other incompatible pairs. To learn more about the
matching process go to:
www.lkdn.org/LKDN_Matching.pdf
For more
information about kidney paired exchanges go to:
www.lkdn.org/LKDN_Paired_Exchanges.pdf
* Organ donors need to be in good health, without high blood pressure, diabetes,
kidney, heart, liver or other major health issues. For more details on donor
qualifications go to:
www.lkdn.org/who_can_be_living_donor.html
* Donating a kidney involves a major surgical procedure and the donor is usually
in the hospital 1-3 days. The recuperation period is anywhere from 14-21 days
for those with an office job, and about 6 weeks if the individual’s work entails
more physical labor. The majority of the procedures are done laparoscopically,
with 3-4 small holes for the instruments. A small incision is made to remove the
transplanted kidney.
* Medical expenses relating to the transplant are
completely paid by the recipient’s insurance company.
In 2005 Amy
suffered a severe and life-threatening blood infection (sepsis). This left her
suffering from what is known as hemolysis and needing 11 blood transfusions.
The transfusions drastically increased her antibody levels which make her a very
very difficult match. While others at her transplant center typically only wait
about 2 years before receiving a deceased donor organ, Amy has been waiting 8
years and still no transplant. Amy has also gone through what is known as IVIG
therapy numerous times in an effort to lower her antibodies and enable her to be
a better match for a donor organ. She is still a tough match.
Amy
started out on in-center dialysis and after about 8 months switched over to home
hemodialysis with her loving husband as a care partner. She has been doing home
hemodialysis for over 9 years and has had numerous surgeries, procedures etc.
She just lost her 10th arm access for hemodialysis. She recently had a PD
(peritoneal dialysis) catheter placed in her belly to try and do home dialysis
using the peritoneum in her abdomen. After just a few weeks it was evidently
not working (another hospital stay) and she is back on home hemodialysis. Amy
and her family are praying and hoping this dialysis will last her long enough to
find a donor organ and be dialysis free. She has endured countless procedures,
surgeries and "hiccups" along her journey, including another infection requiring
hospitalization in May 2012 - that will make her 5th bout of MRSA
sepsis.
Diabetes is the #1 cause of needing dialysis in the U.S., with
high blood pressure the #2 cause. An estimated 100,000 people join the ranks of
dialysis patients each year, yet the number of those remaining on dialysis
remains the same due to the high mortality rate. If more people signed an organ
donor card or stepped forward to donate blood, bone marrow, tissue and organs
like kidneys while still living so many more lives could be saved and those
waiting (the current 93,000 for kidneys) would be able to live longer, healthier
lives.
If you are interested in donating for/to Amy or anyone else
remember that just a few days in the hospital for you could give Amy or another
person waiting 15 or more years of dialysis free living. You must have blood
type O (for Amy)and be in good health.
Amy's transplant coordinator is
at
University of Kansas Medical Center
Transplant center
Tham
Hoffman
913-588-5049
email [email protected]
Even if you
don't match Amy you could be a match for one of the other 93,000 waiting on the
deceased donor list in the United States and could be a life-saving option for
someone else. While you are at it, PLEASE like her page and spread the word
about living organ donation and especially help Amy fulfill her dreams and
wishes. Thank you kindly. Blessings & Peace,
http://donatelife.net/
http://www.lkdn.org/
http://www.unos.org/
http://www.transplantliving.org/living-donation/facts/
http://kidneyschool.org/
http://homedialysis.org/
http://www.kidney.org/
http://www.aakp.org/
http://www.kidneyfund.org/
www.pkdcure.org
https://www.facebook.com/AmyNeedsALivingDonorKidney
www.facebook.com/kidneystories
(PKD). Her kidneys were removed in 2006. She's been on the waiting list for a
donor kidney for nearly 9 years, on dialysis nearly 11, needing an angel donor
with BLOOD TYPE 0.
Description
Amy
suffered from Autosomal Dominant Polycystic Kidney Disease (ADPKD), the most
frequent life-threatening, hereditary disease. Amy was diagnosed with PKD at
the age of 21. She married her sweetheart and raised a family of five children
including a set of twins. Their sons are serving in the military. They now
have 9 grandchildren. Due to damaged kidneys from this disease she went into
Stage...
5 kidney disease or End Stage Renal Failure requiring dialysis to live which is
equal to daily life support.
She has been on dialysis nearly 11 years
(started dialysis at age 44) and on the deceased donor list for nearly 9 years
has never had a transplant. By the numbers she has had so far approximately
3000 treatments lasting more than 24,000 hours over the years. She has had more
than 13 major surgeries and 75 procedures. She is running out of veins to use
for dialysis. She is still young (just turned 54) and has so much left to do,
see, accomplish. Amy needs a kidney transplant as soon as possible. Once she
receives a healthy kidney, her chances for a full recovery and healthy, long
life increase drastically. With so many people waiting for a transplant
(currently 93,000 waiting for a kidney) finding a living donor is the best
option!
Amy and her family live in southwest Missouri, USA and she is
currently listed at KUMC Transplant center in Kansas City Kansas.
The
following are the most important things to know about organ donation.
*
Most people are born with 2 kidneys. Studies show that kidney donors live a
normal, healthy life with only one kidney and are no more likely to suffer
kidney failure. To read a study from the “New England Journal of Medicine” about
kidney donors’ health after their transplant, go to:
www.lkdn.org/Long_Term_Effect_Kidney_Donors_Health.pdf
An interesting fact to realize is 1 in every 750 people are born with one
kidney and their life expectancy is the same as someone who is born with 2
kidneys.
* As a result of new anti-rejection drugs, the “matching” of
donor/recipient has become much easier. For situations where the donor/recipient
are not compatible, “kidney paired exchange” programs allow these donors to be
paired and matched with other incompatible pairs. To learn more about the
matching process go to:
www.lkdn.org/LKDN_Matching.pdf
For more
information about kidney paired exchanges go to:
www.lkdn.org/LKDN_Paired_Exchanges.pdf
* Organ donors need to be in good health, without high blood pressure, diabetes,
kidney, heart, liver or other major health issues. For more details on donor
qualifications go to:
www.lkdn.org/who_can_be_living_donor.html
* Donating a kidney involves a major surgical procedure and the donor is usually
in the hospital 1-3 days. The recuperation period is anywhere from 14-21 days
for those with an office job, and about 6 weeks if the individual’s work entails
more physical labor. The majority of the procedures are done laparoscopically,
with 3-4 small holes for the instruments. A small incision is made to remove the
transplanted kidney.
* Medical expenses relating to the transplant are
completely paid by the recipient’s insurance company.
In 2005 Amy
suffered a severe and life-threatening blood infection (sepsis). This left her
suffering from what is known as hemolysis and needing 11 blood transfusions.
The transfusions drastically increased her antibody levels which make her a very
very difficult match. While others at her transplant center typically only wait
about 2 years before receiving a deceased donor organ, Amy has been waiting 8
years and still no transplant. Amy has also gone through what is known as IVIG
therapy numerous times in an effort to lower her antibodies and enable her to be
a better match for a donor organ. She is still a tough match.
Amy
started out on in-center dialysis and after about 8 months switched over to home
hemodialysis with her loving husband as a care partner. She has been doing home
hemodialysis for over 9 years and has had numerous surgeries, procedures etc.
She just lost her 10th arm access for hemodialysis. She recently had a PD
(peritoneal dialysis) catheter placed in her belly to try and do home dialysis
using the peritoneum in her abdomen. After just a few weeks it was evidently
not working (another hospital stay) and she is back on home hemodialysis. Amy
and her family are praying and hoping this dialysis will last her long enough to
find a donor organ and be dialysis free. She has endured countless procedures,
surgeries and "hiccups" along her journey, including another infection requiring
hospitalization in May 2012 - that will make her 5th bout of MRSA
sepsis.
Diabetes is the #1 cause of needing dialysis in the U.S., with
high blood pressure the #2 cause. An estimated 100,000 people join the ranks of
dialysis patients each year, yet the number of those remaining on dialysis
remains the same due to the high mortality rate. If more people signed an organ
donor card or stepped forward to donate blood, bone marrow, tissue and organs
like kidneys while still living so many more lives could be saved and those
waiting (the current 93,000 for kidneys) would be able to live longer, healthier
lives.
If you are interested in donating for/to Amy or anyone else
remember that just a few days in the hospital for you could give Amy or another
person waiting 15 or more years of dialysis free living. You must have blood
type O (for Amy)and be in good health.
Amy's transplant coordinator is
at
University of Kansas Medical Center
Transplant center
Tham
Hoffman
913-588-5049
email [email protected]
Even if you
don't match Amy you could be a match for one of the other 93,000 waiting on the
deceased donor list in the United States and could be a life-saving option for
someone else. While you are at it, PLEASE like her page and spread the word
about living organ donation and especially help Amy fulfill her dreams and
wishes. Thank you kindly. Blessings & Peace,
http://donatelife.net/
http://www.lkdn.org/
http://www.unos.org/
http://www.transplantliving.org/living-donation/facts/
http://kidneyschool.org/
http://homedialysis.org/
http://www.kidney.org/
http://www.aakp.org/
http://www.kidneyfund.org/
www.pkdcure.org
https://www.facebook.com/AmyNeedsALivingDonorKidney
www.facebook.com/kidneystories
TAGS: Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: A KIDNEY FOR LYSA
I started this page for my mom Lysa. She is currently
on dialysis and needs a kidney transplant. Her blood Type is O- She is currently
on dialysis and lives in the New York Metro area. She is a mom and grandma to my
little girl. If you know anyone who is looking to donate a kidney please contact
us. My moms email is [email protected]
on dialysis and needs a kidney transplant. Her blood Type is O- She is currently
on dialysis and lives in the New York Metro area. She is a mom and grandma to my
little girl. If you know anyone who is looking to donate a kidney please contact
us. My moms email is [email protected]
TAGS: I started this page for my mom Lysa. She is currently
on dialysis and needs a kidney transplant. Her blood Type is O- She is currently
on dialysis and lives in the New York Metro area. She is a mom and grandma to my
little girl. If you know anyone who is looking to donate a kidney please contact
us. My moms email is [email protected]
on dialysis and needs a kidney transplant. Her blood Type is O- She is currently
on dialysis and lives in the New York Metro area. She is a mom and grandma to my
little girl. If you know anyone who is looking to donate a kidney please contact
us. My moms email is [email protected]
KIDNEY STORIES: ALVIN AWAITS
Alvin is a devoted son, brother, uncle, counselor, and
patriarch of the Salima home. As a husband, Alvin is unparalleled, according to
his wife, Candace. They have been married for nearly 18 years, and hope to have
another 20 at minimum. Unfortunately, Alvin has end stage renal failure (kidney
failure) and requires a kidney transplant. He is on three separate lists right
now and is anticipated to be at the top of the list somewhere in the next one to
six months. Alvin still works fulltime, so he is fully insured. However, there
are the expected expenses of the surgery, take home medications, and
aftercare.
Alvin is the favorite uncle of his nephews and nieces. He is
an active uncle and relishes the time spent with each of them. Family is
everything to Alvin, and even with his health challenges he does his best to
spend what time he can with those he loves.
Alvin's work experience with at-risk youth spans over 27
years. He has served in many capacities as a supervisor, program manager,
facilitator and trainer, but by far his most rewarding work is direct contact
with young people as a mentor and counselor. Occasionally, Alvin receives calls
and letters from men and women he was able to reach and effect positive change
when they were considered troubled youth. Alvin continues his direct work with
young people as a treatment counselor for the Juvenile Justice Services
Department in the State of Utah.
https://www.facebook.com/pages/Alvin-Salima-Awaiting-a-Kidney-Transplant/482995135075912
http://www.alvinsalima.com/aboutalvin.html
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KIDNEY STORIES: HELP FOR DANILO
Danilo life is full of pain and struggling. He is
fighting for his life everyday.
Danilo is going to need at least 5-6
kidney transplants in his life tine and 1 liver transplant and ongoing dialysis
treatment.
DescriptionUCLA Living
Donor Line 866-672-5333
Danilo Transplant Coordinator Sheila Akantara
310-267-6924
https://www.facebook.com/HelpForDaniloVuckovich/info
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KIDNEY STORIES: FIND A KIDNEY FOR LEONA
Leona Michelle Hicks is a 55 year old devoted wife, she was
diagnosed with end stage kidney disease in 2007 due to hereditary and started
dialysis in February 2009. She needs a kidney from someone with blood type O+.
Her transplant center is in NJ.
Description
July
by Susan Yost who was inspired by Leona's story and donated her kidney to Leona.
I though it was a message from God that lead me to the story, to help my
God-sister who has been on the waiting list for nearly 5 years.
Her brother
was unable to donate a kidney due to health issues and we were elated to find
out her nephew was a match but after further testing he was found to have a
medical condition
that made it impossible for him to donate a kidney to his Aunt.
The family
calls her Michelle. In 1994 she was hospitalized for pancreatic issues and
nearly lost her life. When I went to see her in the hospital, the nurses kept
calling her Leona and with all the ventilators and tubes that were hooked up to
her and with family and friends praying round the clock for her recovery, she
was trying to say something to me. I finally understood she was trying to utter
her name, Michelle - I let all the nurses & doctors know to call her
Michelle and not Leona. I think our connection helped me understand what she
wanted.
She had suffered so much loss in a short period of time with the
loss of her mother to cancer on Good Friday, April 4, 1980 when Michelle was
only 23. She lost her older sister Brenda, who was 10 years her senior to
Hodgekins disease. Brenda knew she had the disease since the age of 17 but
decided to live her life to the fullest and was blessed with three children and
against all odds lived till she was 36. She passed away November 21, 1983. Two
months later Michelle lost her father to a stroke on January 21, 1984.
Through all the losses and sufferings she survived the depression that ensured
and dedicated her life to her family.
Michelle had a great job that she
loved, working as dispatcher and office manager of a trucking company. She is
married to the love of her life, Woody, a devoted husband and veteran. They
unfortunately were never able to have children of their own. She is the
godmother to my daughter and godmother to her deceased cousin, Stanley's son.
Her wish was to travel to her godson, Terry's wedding in Mexico, May 18th but
due to the regimen of dialysis three times a week will be unable to do so.
Michelle also assisted with the care of her Elder Uncle Sammy who also had
kidney issues untill he passed. He was a retired major in the U.S. Army and
lived a good life and was saddened when he learned his youngest niece had to go
through dialysis as he had done for four years until his death in 2010.
I
pray that there is someone out there who has a Type O+ blood that would help her
live her life to the fullest as she deserves happiness and the ability to live a
normal life again.
Thank you for your help in Fighting for our Leona - Our
Michelle
https://www.facebook.com/FindAKidneyForLeonaMichelle
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KIDNEY STORIES: THE GIFT OF LIFE-KIM NEEDS A KIDNEY
If you're blood O+/O-, you could donate a kidney to save Kim.
Lupus n. was found in 2000. Chemo then transplant in 2001. She's been on
dialysis 4yrs, transplant list 3yrs. Like & share our site! Coord: Jennifer
Hamilton 713-441-5486 [email protected]
Description
Lupus nephritis is kidney inflammation caused by
lupus. The body’s immune system attacks the body’s own cells and organs. It can
lead to significant illness and even death.
________________
For
anyone who knows Kim Buco you know she's the sweetest, most hardworking,
accepting, loving, funny, energetic person you'll ever meet.
... If she didn't tell you she was sick you would never
know. She has never used her illness as an excuse & continues to push along
every day.
A person like this shouldn't have to.
Kim is in
need of a kidney. Currently she undergoes dialysis 3 days a week for several
hours. She was diagnosed with lupus nephritis in 2000. After enduring chemo for
6 months, she was blessed with a transplant in 2001. Unfortunately, it failed 7
years later. Aside from being on the waiting list at Methodist Hospital &
UTMB Galveston, she has been searching for a kidney by word of mouth &
hospital match & swap programs ever since. She has even had friends &
family members tested near & far. Due to this disease affecting 2 of her
deceased aunts, family members are not able to donate. Another blessing came
this year when Kim received a phone call stating that there was a donor. Partly
due to high antibody levels from the previous transplant it did not work out
this time around. We are one step closer though! Kim remains hopeful &
continues to pray reverently.
I am making this page on her behalf in
hopes that more of her friends & kind strangers find it in their hearts to
get tested to see if they can help Kim live a normal life again. Prayers are
always appreciated as well.
For more info, contact (Transplant
Coordinator @ Methodist Hosp):
Jennifer Hamilton
[email protected]
713-441-5486
This holiday season try to give a gift that truly
matters. I know Kim & her family would be forever grateful. After recent
events I've realized that life is too short. Some lives can be saved with our
help.
Thank you for your time. Please like & share this page in
efforts of a kidney match for our dear friend Kim Buco.
________________
“Organ donation is perhaps the greatest gift one human
could offer another. Literally giving a piece of yourself in order to save
another person's life and prolong your time with that person... it is
remarkable.”
— Dr. Osama Gaber, Director of Transplantation
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KIDNEY STORIES: HELP MABEL GET A KIDNEY TRANSPLANT
Our good friend, Mabel, is in need of a life-saving kidney
transplant. We are committed to helping Mabel connect with her "Kidney Hero,"
so she can live a healthy, longer-lasting life with her loving family and
friends. Please join us in our efforts!
Description
Mabel was diagnosed with Chronic Kidney Disease
(CKD) severeal years ago and has been on dialysis for four years. Hemodialysis
helps to sustain Mabel's life by filtering waste from her blood, which is a very
grueling process that she endures three times a week.
A living kidney
donor will offer Mabel a healthier and longer lifespan. As of yet, a
compatible donor has not been identified; however, we continue to remain hopeful that a match will
soon be found. Mabel is O+ blood type, however, if a willing donors blood type
is incompatible--there is a paired exchange program that makes a transplant
possible.
If you'd like to inquire about becoming a potential donor,
please contact Mabel's transplant coordinator by calling (650) 725-9891 at the
Stanford Kidney Transplant Center. Please inform her transplant coordinator
that you are calling to learn more about being a possible kidney donor for Mabel
Munoz.
If you're unable to "share your spare," please "Like" our page
to help us in our efforts to get the word out there.
Your kind and
generous consideration is very much appreciated, thank you!
https://www.facebook.com/HelpMabelGetAKidneyTransplant/info
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KIDNEY STORIES: CHRIS BLACKWELL'S LIVING DONOR SEARCH
young man in search of a living donor
Description
my name is christopher blackwell, i am from Canton, Ohio, i started this page
because i am search of a living donor for my kidney transplant, i was diagnosed
with focal scelrosis glomorsis) renal failiure at the age of 17, started
dialysis march 7th 2011, the journey of my sickness has been one of pain and
hurt and loss of many hopes and energy, i am now listed at cicinnatti childrens
hospital, i ...dialysize
at Akron Childrens Hospital, my blood type is 0+, i do dialysis 3 days a week,
and i run 4 hours, with an av fistula, i am on a 1500 fluid restriction, and
strict renal diet, dialysis is very hard on my body and bones and was inflicted
on me in the middle of my senior year so, i am not in college or anything, i
enjoy guitar singing and have great faith in Christ! here are the people to
reach about being my donor: Julie Ross or Debbie Schoborg, numbers are:
1-513-636-4531 or 1-(800)-344-2462! you can also reach me by my cell at:
3306148267, for more questions! and here is the number to my transplant nurse
Providence: 330-543-4174 and my social worker Paul Zarembka: 330-543-8469 and my
nephrologist doctor Larry Patterson.
https://www.facebook.com/ChrisBlackwellsLivingDonorSearch/info
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kidney disease, chronic kidney disease, kidney for, diabetic, save my life,
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transplant list, fundraiser, donate life,
KIDNEY STORIES: KIDNEY FOR OUR DADDY
Michael Schultz is 42 years old he is in need of a KIDNEY from
someone willing to share their spare!
Description
Michael Schultz is a 42 year old husband,
father, son, brother, uncle and friend. He is in need of a KIDNEY from someone
willing to share their spare! We are looking for someone in relatively good
health. Michael spoke with his Doctor today and his suggestion was for for us
not to limit the blood type. Michael is set up for the shared donor program.
Basically if we have someone willing to donate... but is not
the right match, we can see if there is another donor on the list willing to
swap donors. Long story short, you give me yours and I'll give you mine.
If you are interested in getting tested to see if you are a match for
Michael, please call the Kidney Donor Information Line at Virginia Mason Medical
Center, Seattle, WA, 1-206-341-1201 or 1-800-354-9527 ext. 11201. Tell them you
want to be tested as a possible match for Michael Schultz. Michael has two young
daughters, finding a donor means not only changing his quality of life but gives
them a healthy father to see them grow up.
Michael was diagnosed with
kidney failure (IGA Nephropathy) in June of 1996. His mom donated her kidney in
December 1999; it lasted only 4 years. Michael has been on dialysis since
December of 2003. He spent 5 years on peritoneal dialysis until an infection in
2008 resulted in him having to go to hemodialysis 3 times a week.
Michael has been married to his wife Carol for almost 10 years and they have two
beautiful young daughters, with a house full of girls to keep him busy you can
only imagine it can be a mix of good and bad days for his stamina level.
Before Michael was diagnosed with kidney failure he was a very
athletically active person who worked full time and was always looking for the
next big adventure. Today Michael goes to the local dialysis center three times
a week for 3 ½ hour long visits each time. Because of Michael’s prior
transplant, it is much more difficult for him to find a match!
His
doctor suggested we try social media as a way to get the word out. Michael has
only been called 4 times in the past 9 years we are hoping this will work for
us! Please share this information with as many people as you can, it only takes
1 person to change Michael’s life forever! Getting Michael back to the athletic
active man that will get to watch his daughters complete all of life’s
milestones is our goal!
Will you help us? Please call the Kidney Donor
Information Line at Virginia Mason Medical Center, Seattle, WA. 1-206-341-1201
or 1-800-354-9527 ext. 11201. Tell them you want to be tested to see if you are
a match for Michael Schultz, we THANK YOU in advance.
If you have any
questions, please contact Carol Schultz (Michael’s wife) via Facebook by private
message.
https://www.facebook.com/pages/Kidney-for-our-Daddy/142219652609690?id=142219652609690&sk=info
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KIDNEY STORIES: KIDNEY FOR A MARINE, HUSBAND AND FATHER, ISH HARRIS
Ishamon Harris III is on a quest to find a living kidney donor.
Description
Marine, husband, and father, Ishamon Harris III,
has long been in need of a kidney transplant due to a blood disease which was
triggered by a spider bite while serving our country in the United States Marine
Corp. For the better part of his adult life, Ishamon has been on dialysis to
keep him alive. Ian or Ish (as his friends and family call him) is a genuinely
happy person with a huge personality... go along
with his corresponding physical stature. A new kidney for him would also be a
new lease on life for both him and his family. Having to be restricted in nearly
every facet of his life has been both Harrowing and frustrating for him and
everyone involved. It is not his wish to beguile anyone from emotion nor
finances. He is simply trying to do what anyone else on this planet would do,
the endowed instinct to stay alive and raise a family. It is also his mission to
emote the experience and the challenges of day to day life for someone put in
his position of conflict. That purpose is for those who are in similar
situations as him, and to show the humanity and gravity of this forced way of
life. If you are reading this it means you care for this man. Please help in any
way that you see appropriate. Thank you very much.
- Douglas
Kirk
This is a statement from Ishamon's mother:
"Ishamon Ian
Harris III is my son. Ian was born 30 years ago. He is married to a great gal
Amy, and has two miracle kids, ages 9 and 3. Ian joined the United States Marine
Corp in his senior year of high school, early 2001. During his service he got
very ill due to a spider bite. His body swelled up to the point of not being
able to recognize him. It's heart breaking to see pictures of your son where he
is deployed and not being with him. There is no cure for this deadly disease.
Dialysis keeps a person alive and he goes to treatment 4 times a week for 4.5
hours each time. Traveling is virtually impossible, so holidays and special
events are often missed. My greatest wish of my life is to see Ian with a new
kidney. Ian would be able to continue mentoring kids in sports and art. I want
Ian to have a full wonderful life and see his kids graduate school as young
men."
- Barb Harris
https://www.facebook.com/KidneyForIshHarris/photos_stream
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KIDNEY STORIES: A KIDNEY FOR DAVID
David is a 34 year old devoted father and wonderful husband
with ESRD (End Stage Renal Disease). He has been on dialysis and waiting for a
kidney since 2008. He is blood type O+. Please click about below to learn more
about his story.
Description
At the age of 14, David got strep throat. When it was left untreated by his
physician, it shut down his vital organs resulting in both of his kidneys being
severely damaged which is known as post-streptococcal glomerulonephritis. He was
able to maintain a normal life on medication for 14 more years. In 2008, David
began Peritoneal Dialysis. In 2012, David had to begin hemodialysis as PD was no
longer working well. David would like to receive
a kidney so that he can resume a normal life again and be able to work full time
and be more active in playing with his 2 year old son. David is listed at Loyola
University Medical Center in Maywood, IL. You may reach out to Loyola
Transplant's Team at 708-327-4897. Loyola participates in paired kidney matching
program, so anyone with any blood type that is willing to donate in my honor
will be appreciated.
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KIDNEY STORIES: FIGHTING FOR LIFE OF BYRON LIPSCOM
To find a suitable donor for Byron Lipscomb or someone who will participate
in the Kidney Swap program.
Description:
This page was
set up to support the efforts to find a donor for Byron Lipscomb, who is in need
of a kidney transplant. Byron, whose condition has been hampered by the severing
of his arteries during a procedure has been placed on the National Kidney Swap
list. The Kidney Swap program allows transplant patients an increased
opportunity to receive a donor kidney because one does not have to be a perfect
match. A donor can donate their kidney on the behalf of the recipient and thus
the recipient will receive a kidney from the national database.
Byron update: Byron & his son are following
doctors orders as they get closer to the transplant date. He's told me that he
has his good and bad days but he is feeling much better as they go through
several transplant classes in preparation for the surgery. It is projected that
the transplant should take place before the summer. In the meantime, there is
something that we can do for Byron & every kidney patient in America &
that is to take care of our own bodies. Kidney failure
is on the rise & dialysis centers are packed to capacity. Attached is a
recipe on how we can occasionally cleanse our kidneys for $1 or less, so that
the build up of sodium is not left in the kidneys as a residue to create harm.
Don't assume that because you're feeling good today that your body doesn't need
some fine tuning. If you get your car's oil changed every 3,000 miles, then we
shouldn't feel burdened to take care of our body as well. To your wellness.
https://www.facebook.com/FightingForByron
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KIDNEY STORIES: FIND A KIDNEY FOR JIM
My name is Jim Myers. I am a former attorney and professor. I
suffer from PKD, ESRD, and kidney failure. Seeking a donor.
Description
My name is Jim Myers. I am a former attorney and college professor. I suffer from
Polycystic Kidney Disease (PKD), End Stage Renal Disease (ESRD) and kidney
failure. I am seeking a living donor. I am currently on Dialysis (since August
of 2012) and I am listed on the kidney transplant list at Indiana University.
My Kidney Transplant Coordinator is Kristy Williams, RN (800-382-4602)(Fax:
317-...944-0346). If you are interested in becoming a donor,
my Renal Transplant Coordinator is Linda Wood RN, CCTC (800-382-4602 or
317-944-4370). Her office hours are M-F 8:00 am to 4:00 pm. I am a type O- blood
type. My reason for doing this is that I have a son Jim. He works for the
Arizona Diamondbacks in their PR department. I would like to watch him progress
in his career, graduate from law school, get married, have children. I'd like
to meet my grandchildren! PKD has been particularly devastating in my family. I
want that to stop with me. I have complete insurance coverage that would cover
the cost of the operation, including your medical costs as a donor. Did you
know that you can live with only 1 kidney? Are you the one?
Update:
I had an MRA done today at the request of Rush Transplant from Chicago. It was
a short test, no dye where they just MRI'd my head. (Yes, again). I am hoping
that if this test comes out all right, that I make their list. My next goal is
to connect and get on the list at the U of Wisc in Madison. 3 different centers
nearby in 3 different states. I'll keep you posted. Tomorrow I am taking part
in a webinar about Understanding Your Lab Results and Thursday there is a
webinar that is part of the Dialysis Patient Center's training to become an
Ambassador for them. Looking forward to that! As many of you know, I am an
Advocate for the National Kidney Foundation and it has become my life's work and
passion to promote kidney awareness. Thanks for reading and please share my
page and all of the pages you see shared on Kidney Stories!
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KIDNEY STORIES: IN NEED OF A KIDNEY DONOR
Mission
To live a full
life through the generosity of a live kidney donor
Company Overview
My Info:
41 yr old male, happily married for 8 yrs as of 3/2013, wanting to live a full
life without the confines of dialysis. A few family members have expressed
interest in being tested as of recently and we will follow through on that.
However, the more options the better the chance for a perfect match. What an
incredible gift to be able to give someone; LIFE.
DescriptionTransplant
Hospital: Georgia Health Sciences Health System in Augusta GA
Testing,
Surgery and more at no cost to donor
General InformationThose
interested in being tested may contact
KATE HEFFNER : LIVE DONOR
TRANSPLANT COORDINATOR
706-721-3773 (leave message)
On
my page is the name Kate Hefner, the number is there, call here and tell her you
want to donate to Ralph Morris and she'll help get things going. Also, any
questions please text me and I'll help any way I can...912-690-4922. Thanks for
your interest in giving. God Bless, Ralph
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KIDNEY STORIES: ALAN NEEDS KIDNEY
Alan is a 21 year old from New York. He needs a kidney from
any blood type (A, B, O, AB). His struggle started at a week and a half old
when he lost 1 1/2 of his kidneys. Click about to learn more.
Description
Please help us.....
It breaks my heart
to watch my vibrant son grow sicker every day. He is 21 years old with his whole
life ahead of him, and so much to offer the world. He lost one and a half
kidneys at a week and half old due to a rare combination of dehydration, related
to gastritis, on a scorching hot summer’s day, and a genetic webbing in one of
his major arteries. His blood clotted and the temporary
lack of blood flow to his kidneys caused them to atrophy.
In spite of
that, he has grown into a strapping young man with amazing talents and
strengths, which I always thought of as a special blessing. He is very brave,
but he is running out of time. I cannot bear the thought of him tied to a
machine. He loves going to school and excels at every subject. When he is well,
he hopes to have the chance to fall in love and start a family.
We have
exhausted all potential donors in our family. My daughters are too young. His
older brother gave him a perfect kidney, but the kidney was damaged during the
procedure, even though he had one of the best surgical teams. They have learned
from the first attempt and are prepared to attach the next kidney without a
problem. I was almost accepted as a donor, but I have compromised circulation to
my kidneys, which disqualifies me. His father has high blood pressure, and the
few siblings, and other relatives that we have are too old.
I would not
be asking if I was not desperate to save my son. We need one healthy adult who
is willing to donate a kidney. Our gratitude would be timeless and immeasurable.
Please take the time to consider our plight and share this message with whoever
can help. I know my son was born for a purpose. He dedicates all of his time to
the pursuit of knowledge, which I believe will someday benefit mankind. Please
give him a chance to fulfill his destiny.
Contact renewal at 1 718 431
9831 or email [email protected] to find out more about kidney
donation.
https://www.facebook.com/AlanNeedsAKidney/info
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KIDNEY STORIES: KIDNEY FOR ERVIN
Please join us on our quest to find Ervin a kidney donor. He is
type "O" blood. Please share our journey with your family and friends. Even if
we can not find a donor for Ervin, maybe we can help to find a donor for someone
else in need. Thank you =)
Description
Hello my name is Ervin Mills and I am 56 yrs
young. I am married and the father of 2 daughters and 2 sons and "papa" to 2
girls and 2 boys.They are the reason I am fighting to get my life back.I was
diagnosed with F.S.G.S.kidney disease about 22 yrs ago. like everyone else, I
was in denial that I would actually end up on dialysis and that a machine would
be the only thing keeping me alive. I start...ed dialysis
in July of 2007 It was the beginning of a new chapter and an end to the "normal"
life I knew. I try to keep my spirits up and stay positive but some days are not
as good as others. I lost my mother in law 2 yrs ago to kidney disease (she also
was a dialysis patient she was on for 5 yrs). I have been on the transplant list
since October 2009. they say the "average" wait here is 5-7 yrs but many that I
know have been waiting longer then that unless they have a living donor. I have
had 2 people offer their "spare" A very good friend of mine was the 1st one but
he takes a low-dose high blood pressure med that eliminates him from being a
donor and the 2nd was my brother who is of a different blood type than mine (we
are 1/2 siblings) My children have all offered but they are just starting their
lives and kidney disease runs on both sides of their families (mine & their
mothers) so I am afraid by taking one of theirs I will be putting them at risk
for developing it later. I dont want my kids to go through what I do everyday. I
am hoping to find someone who would be willing to "share their spare" with me. I
live in upstate NY in between Rochester and Syracuse and my transplant center is
at Strong Memorial Hospital in Rochester NY. My insurance would take care of all
the cost for both you and me. My Renal Transplant Coordinator is Mary Kremer
and you can contact her @ 1-585-275-7753 with any questions. Thank you
=)
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KIDNEY STORIES: FIND A KIDNEY FOR SIERRA
•Sierra's story..... I would like to tell a story about a brave and strong
little girl name Sierra. Sierra has jumped many hurdles in her life since she
was born. You see I was diagnose with diabetes and preeclampsia when I was
caring her .The doctors did not think she would make it. She had to fight to
live for 38 weeks. Then on May 24 2000 she was born. She weighed 4lbs 8oz at
Guadalupe Hospital. She was born with multiple problems like a heart murmur and
no outer ears. I got to see her for a few minutes be for they rushed her off to
San Antonio to Santa Rosa hospital because the doctors in Seguin did not think
she would make it. We had her baptized at Santa Rosa not knowing what the
outcome was going to be. She had many nurses and doctors taking care of her .
She had one operation at 2months old. She stayed in Santa Rosa for 4 months it
seemed like a life time to mother and she proved them wrong and when the doctors
told me she would never say momma and never grow or walk it was like a stab to
my heart. But with help from many therapist coming to the house 2 to 3 times a
week she proved the doctors wrong again. As she has gotten older her heart
murmur healed. And at the age of 2yrs she came a cross another hurdle she was
diagnosed with RSV and thought she was going to die. The preacher even came
over and prayed over her. She stayed in the hospital for several months she
bounced back and proved the doctors wrong again. She is very outgoing and
talkative and brave little girl. She has went through 2 ear constructive
surgeries that did not take and even though she has no outer ears and wears a
hearing aid with a headband she still acts like any other normal child her age
11yrs old. She loves to swing, singing, watching movies hanging out with family
and friends. She loves the outdoors she loves all animals, picking flowers and
watching butterflies, birds and planes go by. But on February of 2011 we
had got some heart breaking and devastating news that she was in renal failure
she would need to go dialysis and will need a kidney transplant. You see she was
born with one kidney that never grew since she was 3months old. It was like some
one hit me in the stomach with a sledge hammer we were devastated to here the
heart breaking news. So in march of this year she started dialysis she goes 3
times a week to Santa Rosa hospital in San Antonio no days off no holidays off
she loves going to school and now she only goes twice a week. I would do
anything in the world for my girls. It hurts my heart and I am trying to be
strong as any mother can be when not knowing what could happen to there child.
You see I am looking for one special angel to help my sweet baby girl sierra me
and my family would do it but we can not because of the problems that run on
both sides of our families we can not donate.so I am asking from the bottom of
my heart as mother to mother sister to sister and friend to friend if there
anybody out there with a kind and special heart out there that hears Sierra’s
story and would like to donate a kidney to her please contact Santa Rosa in San
Antonio, Texas they pay for all the testing and everything we would be more
than grateful to whom can help answer our prayers. Sierra has many people that
would miss her terribly. Please give our daughter a chance to grow up and
experience a chance to graduate from school, fall in love, get married and live a
normal life . Please look into your heart and give her a chance at life and help
this special little girl. If anyone is interested in donating you can
call Rosie at the university hosp.at210-358-4000 or McKenzie at Santa Rosa
hosp.at 210-704-4627 and they will give you more info. This story is by my
wife Tammy McGarey.
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KIDNEY STORIES: A KIDNEY FOR MY HUSBAND-STEPHEN
Steve is currently on Dialysis, 6 days a week for 4 hours a
day, while he waits for a kidney transplant. He suffers from kidney failure due
to Childhood Diabetes. Steve is in need of a live donor with Type A Blood (Type
O is also compatible).
Description
Stephen is my wonderful husband of 32 years. He
was diagnosed with Type 1 Diabetes as a child and has been battling the disease
ever since. We have four amazing children; Stephen Jr., Thomas, Michelle, and
Amanda. Stephen Jr. and Michelle are both getting married in the coming year. We
are staying strong in faith and hoping Steve will receive a kidney in time to
walk our beautiful daughter down th...e aisle in
December, 2013.
Steve must have a kidney donor with an A or O blood
type. If you are able and would like to inquire about donating, please
contact:
Milagros Narido
Transplant Coordinator
Yale New Haven
Hospital
203-688-8372
[email protected]
Patient: Stephen
Johnson
Thank you for taking the time to read Steve's story. We hope you
will "like" and "share" this page with friends/family to help us spread the
word
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KIDNEY STORIES: GIFT OF LIFE FOR DANA
This is the journey to find Dana Pitt McCulley a viable kidney. She has
been on dialysis since Dec. 2011. She needs bloodtype B or O. Her transplant
center is MUSC in Charleston, SC. Please share your spare!
Description
Dana is 47
and has been married 25 years. She and Mike have a 16 year old son and 20 year
old daughter. Her kidney's failed in Dec. 2011 due to high blood pressure.
She has been on dialysis since then. Dana is the ultimate definition of a
fighter!!
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KIDNEY STORIES: KIDNEY FOR LARA
I am a 36 year old Type 1 Diabetic and mother to an adopted son who is 15
months old.
Description
Due
to complications from Type 1 diabetes since I was 7 years old, I am in need of a
kidney. Type O blood. My husband never knew what he was getting into with the
vows of "in sickness and in health". Unfortunately I have been sick more than
healthy. He has had to take on a very involved role of raising our child. I
don't know too many dads that stay home with their new babies for a month all
...by
themselves and also still change diapers without being asked. I had a donor who
went through the process of being tested (which took her almost 7 months because
she thought once I had my chest catheter for hemo dialysis I was stable). We
found out in February after many delays that she was not a suitable donor after
all and I found myself back to square one. I started PD in April and was able
to take my first real family vacation just recently. I am doing well on
dialysis, but would rather not have to do it at all. I want to be able to be
the one who gets up with my son at night instead of everyone having to wake up.
I want to be able to not be tethered to a machine for 9 or more hours a night
and to actually be able to walk past the exit to my bedroom after 9pm. I realize
I probably have a long wait ahead of me since it seems like most of the people
who need a kidney are Type O. I live in Arizona.
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KIDNEY STORIES: KIDNEY FOR KIM
Kim was diagnosed with polycystic kidney disease when she was 16. She
struggled and fought with this disease for over 20 years until the disease took
over and her kidneys stopped functioning.
Description
Kim
was diagnosed with polycystic kidney disease when she was 16. She struggled and
fought with this disease for over 20 years until the disease took over and her
kidneys stopped functioning. Midway through 2008, the doctors decided it was
time for her to begin preparing for a transplant. As soon as the doctors gave
the green light for people to start testing, Kim’s sister, Sara, stepped up,
and...
without a second thought, was the first person tested. She was a match. Being
able to witness this loving, life-saving act from Sara was truly inspirational.
The fact that she was an almost perfect match was truly amazing because Kim and
Sara are not blood related, not that anyone could ever tell from being around
them. In November of 2008 the doctors took out both of Kim’s kidneys, which
were each the size of NFL footballs. A few weeks later Kim received the gift of
life from her sister. In September of 2011, Kim's transplant needed to be
removed due to complications. As of right now, she has no kidneys and goes to
dialysis three nights a week and a machine that is currently keeping her alive.
Now, Kim needs a kidney, again to stay alive.... this is her
journey.
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KIDNEY STORIES: A KIDNEY FOR MY HUSBAND-STEPHEN
Steve is currently on Dialysis, 6 days a week for 4 hours a day, while he
waits for a kidney transplant. He suffers from kidney failure due to Childhood
Diabetes. Steve is in need of a live donor with Type A Blood (Type O is also
compatible).
Description
Stephen is my wonderful husband of 32 years. He
was diagnosed with Type 1 Diabetes as a child and has been battling the disease
ever since. We have four amazing children; Stephen Jr., Thomas, Michelle, and
Amanda. Stephen Jr. and Michelle are both getting married in the coming year. We
are staying strong in faith and hoping Steve will receive a kidney in time to
walk our beautiful daughter down th...e aisle in
December, 2013.
Steve must have a kidney donor with an A or O blood
type. If you are able and would like to inquire about donating, please
contact:
Milagros Narido
Transplant Coordinator
Yale New Haven
Hospital
203-688-8372
[email protected]
Patient: Stephen
Johnson
Thank you for taking the time to read Steve's story. We hope you
will "like" and "share" this page with friends/family to help us spread the
word.
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KIDNEY STORIES: JOHN KIM NEEDS A KIDNEY
Hello, my name is John Kim. And I am searching
for a kidney donor. In other words, I have been on dialysis for the last 3 yrs,
because my kidneys don't work anymore and i need a kidney. It's as simple as
that. My lifestyle and quality of life depend on it. Asking others for such a
selfless and significant gift is a hard thing to do. I hope I'm asking in a way
that will not strain friendships but get me the help I need.
I have Focal Segmental
Glomerular Sclerosis. Alonzo Mourning, the NBA basketball player also had FSGS.
He was able to avoid dialysis when his cousin donated his kidney to him.
I first learned that I have FSGS after an ultrasound exam of my kidneys when I
was 23.. Blood tests showed that my kidney function was gradually deteriorating,
but we all start out with an abundance of excess kidney function capacity so it
had no impact on my life, until recently I had to go on dialysis at the age of
32. I'
m 35 now and I have been dialysis for 3
years so far.
Now, I have three options: dialysis, a kidney transplant,
or do nothing. Dialysis has its own limitations and consequences and will be a
temporary solution until I can get a new kidney. Doctors have said that I am a
good candidate for a transplant because I am otherwise healthy and a new kidney
will solve my problem.
Kidney transplants, experimental a generation
ago, have become almost routine and are highly successful. The problem is the
availability of donor kidneys that have matching blood type, tissue types, and
other factors that affect the chances of rejection. Kidneys come from two
sources: sudden victims of fatal accidents, and living donors. The waiting lists
for patients in need of a kidney is greater than the supply from fatalities so
living donors are encouraged. In addition, a kidney from a living donor provides
the best prognosis for long term success of the transplant.
Living
donors are often family members because of genetic similarity and motivation to
volunteer. But, just as a fatality can result in a donation from an unrelated
victim, living donors can be unrelated, too.
In my case, as I mentioned
above, many of my relatives are incompatible donors, so we are all looking
elsewhere for donors while we face the alternative prospect of an indeterminate
wait on dialysis followed by emergency surgery when and if we get to the top of
the waiting list for a cadaver kidney.
A transplant is a better
treatment for kidney failure than dialysis, and a living donor is a better
option than waiting for a matching accident victim, for a variety of reasons.
So, I am on the lookout for a friend who wants and is able to make a great
difference in my life.
I've always enjoyed an active life in the
outdoors, playing basketball and tennis. In recent years, I've used those
interests to maintain my health for this eventuality. I have been working to be
sure I can provide a good home for a donated kidney - whatever the source - for
a long time.
But, now that the time has come, I recognize that it's hard
to ask for a kidney. I can't walk up to a friend and say "Can ya spare a
kidney?" The decision to consider donating is significant and personal. There
shouldn't be pressure or guilt associated with that choice. But there needs to
be information, and that's really my goal here. I've already provided some
information about my situation and need. People need to know about the process
of donating and the short and long term consequences. I will summarize what I
have learned and give some online resources to confirm and elaborate on that
information.
First, normal healthy kidneys are way over-engineered for
the job they really have to do. You have two and you really only need about 20%
of the blood cleaning capability that you were probably born with. (Remember,
that's why I've been fine all these years as my kidneys gradually deteriorated.)
Generally when organs come in pairs, both need to be there (eyes, ears, lungs,
etc). You can get along with one but it restricts your abilities. But most
people with healthy kidneys can do just fine all life long with one. The
surgeons do not transfer any quality of life from the donor to the recipient.
The recipient gets the valuable and needed gift from the excess capacity of the
donor.
But, nothing is simple. The donor takes all the typical risks of
a laparoscopic surgery to remove one healthy kidney, and the pain (the
literature says "discomfort" but let's be real here) and time of recuperation
from that surgery. The recipient of the kidney (or his insurance, actually) pays
all of the medical costs of the donation (it's called the "procurement cost" in
the business). The recipient is prohibited by law from actually buying the
kidney, but can pay non-medical costs associated with the donation (travel
expense, etc).
Not every friend can be a donor. As mentioned above,
there must be tests for compatible blood type, tissue types, antibody reactions,
etc. My blood type is B+. The donor's health must be evaluated to be sure that
the donated kidney is really excess capacity and that the donor is able to
endure the surgery and recovery. Some general health guidelines include:
* not diabetic or pre-diabetic
* no hypertension (high blood pressure) or
medication for same
* no history of kidney stones or kidney infection
*
Body Mass Index less than 35
* over 18 years of age and less than "about" 60
(Mayo clinic says 70)
Once those requirements are met, they get into
detailed evaluation of physical and mental health, including motivations and
doubts/concerns as well as the actual physical structure and condition of the
kidneys. Some donor candidates learn of undiagnosed problems during this
thorough health evaluation.
Once everything matches up between donor and
recipient, the transplant is scheduled as elective surgery at everyone's
convenience. Recovery time in the hospital is about a week for the donor and a
couple of weeks for the recipient. Then there are follow-up checkups to be sure
everything is healing nicely and any post operative issues are dealt
with.
So, that's a summary of the process, you can confirm this
information and get more details from a number of medical websites
including:
http://www.nephcure.org/
http://www.kidneylink.org/LivingDonationOverview.aspx
http://intermountainhealthcare.org/hospitals/imed/services/transplantnew/programs/kidney/Pages/home.aspx
http://www.mayoclinic.com/health/kidney-transplant/MY00792
http://www.mayoclinic.com/health/kidney-donation/AN01988
Finally, no one "owes" me a kidney. And no one owes me an explanation for their
decision or their medical inability to offer a kidney. It's a major proposition
with lots of factors to consider. If you want to explore the possibility check
the donor criteria in the general information in the links above. After I get
all my testing complete so they know what a match needs to look like (by August,
I hope), you could contact my transplant coordinator and tell her you would like
to be tested for John Kim.
Heather Busch
UCI Medical Center
101
The City Drive
Orange, CA 92868
714-456-8441 (office)
714-456-8796 (fax)
www.ucihealth.com/transplant
The
transplant coordinator can answer your questions and ask some health screening
questions to determine if you could continue with blood testing and other health
evaluations. She does not tell me who contacts her or what information was
exchanged.
I would ask two things of everyone who reads this. First,
please share this with other mutual friends. Second, please look around your
circle of family and friends because there may well be someone else closer to
you who has a similar need. If you are willing and able to help them, that could
help me by taking them out of competition with me on the transplant waiting
list.
Thank you for your friendship over the years and your thoughtful
consideration of this information. You do not need to respond to me in any way
about this. I appreciate everyone's thoughts and good wishes.
John
Kim
Www.nephcure.org
Www.livingdonorsonline.org
https://www.facebook.com/pages/John-Kim-needs-a-kidney/352016184820439
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KIDNEY STORIES: FIND A KIDNEY FOR LOIS
Lets find a kidney for Lois.
Description
Lois is a 73
year young great grandma who's kidney's failed in January of 2012 without much
warning. She wants to live as long as her mother did (age 93) in order to watch
her great grandchildren grow up.
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KIDNEY STORIES: NEEDED-KIDNEY DONOR FOR LYN
Lyn Nolan is in great need of a kidney transplant. Please
consider becoming a donor today! Click "About" to find out more!
Description
In a
cozy home nestled in the hills of Potter County, PA, lives a wonderful woman and
her family. Lyn Nolan is a devoted mother of 3 sons and 2 daughters, loving
wife to Rod, hard-working cardiac sonographer at Olean General Hopsital, and
friend to many. Lyn is gravely ill, however. Her body has entered Chronic
Renal Failure, and with only one working kidney, the situation is serious. Her
doctors at UPMC have determined that Lyn needs
to find a kidney donor as soon as possible, even before her body requires
dialysis.
While immediate family donors usually make the best donor
matches, Lyn's family is unable to help due to three of these members having the
same kidney condition. You can help in three ways:
1. Be tested to see
if you are a match. Call Maureen Vekasy, RN, CCTC at (412) 647-5800 for more
information (Refer to Lyn as Darialyn Nolan during the phone call.)
2.
Even if you are not a match for Lyn, your kidney may still save her life with
the Pairing Donation Program. This works by you donating your kidney to someone
compatible on the list and that person has someone compatible from their list
share with Lyn. It is a win-win! 2 people's lives are saved!
2. Like
and share this Facebook page with all your friends.
When we find a match
for Lyn, all of the donor's surgery costs are covered 100% by Lyn's health
insurance.
Please help us make a difference in the life of our good friend.
Call the number today!
https://www.facebook.com/HelpSaveLyn
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KIDNEY STORIES: FIND KIDNEY DONOR FOR NATHAN
Can you spare a kidney? Please follow me on a journey to find a
kidney donor. Click “About” to read my story.
Description
My
name is Nathan Siriraksasit and I am 36 years old. I have been diagnosed with
ESRD (End Stage Renal Disease) at the age of 22 and have been on dialysis since
then. I have had one kidney transplant back in November 2001 that lasted until
March 2007. This page is to help me find a kidney donor. Please share this page,
even if we don't find a match for me, we can help someone else. I am on
dialysi...s 3 times a week for 3 hours 45 minutes hours each
time and also try to held a full-time job. There are many things and places I
want to do and see but being on dialysis is limited me from doing them.
I am listed for a transplant but without a living donor I could wait for many
years. I am blood type AB that means I can match up with any blood type donor.
The statistics are depressing: more than 90,000 people in the U.S. are waiting
for kidney transplants. The list grows by nearly 7,000 patients a year. Fewer
than 17,000 kidneys are transplanted annually. Rejection of the original kidney
transplant produced fighting antibodies. These antibodies have now made me
sensitized to certain donors - making it difficult to find a match. It is now
necessary to find a pool of eligible living donors to increase my matching odds.
A living donor candidate is a person who is healthy, well-informed and
makes a voluntary decision to donate one of their kidneys. Living donors must be
over 18 and usually under 60 years of age. They must be in good general health,
a non-smoker, with no evidence of significant high blood pressure, diabetes,
cancer, kidney disease, heart disease or hepatitis.
I live in Las
Vegas, Nevada but a donor can be from anywhere in United States. It is important
to know that all medicals costs are covered by my health insurance. The surgery
usually takes about 3-4 hours and the donor usually leave the hospital after 3
days and go back to work after a week. As you might imagine, donating life to
another is a remarkable gift that takes a great deal of thought that can only be
obtained by being well informed.
For more info about being tested to
become a donor please contact Julie at UMC Transplantation Center at
702-383-2224. Or email me at [email protected] - Thank you!
https://www.facebook.com/FindKidney4Nathan/info
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KIDNEY STORIES: TOP 10 REASONS TO DONATE YOUR KIDNEY TO NEAL
This page is dedicated to raising awareness about kidney donation and
helping Neal Demby find a kidney donor. Please click "About" for more
information and our super Top 10 List!
Description
Have
you ever wanted to do something selfless and life-altering? My Dad has spent
his life dedicated to that mission and now he is in need of a kidney; he must
count on someone brave and heroic to return this kindness to him. Over his
40-year career as a dentist and public health professional, he has traveled the
country and the world working to make sure those who are most in need, including
spe...cial needs children and adults, receive quality dental
health care, HIV/AIDS testing and treatment, and other vital health services. He
is the coolest, smartest, most rad dad EVER to me (Hilary) and my sister,
Jessica; a loving husband to Sherry; an adoring “pop-pop” to Jessica's two
amazing sons, Lukas (age 4) and Kaleb (age1); a brother to Jill; an uncle to a
brood of 13 nieces and nephews; and a friend and colleague to thousands of
wonderful doctors and health professionals.
Suffering from secondary
focal segmental glomerulosclerosis kidney disease for over 13 years, his
deteriorating kidney function required him to begin dialysis in July of 2012.
Even after this setback, he continues to work and travel with same vigorous
schedule he has always maintained. Admittedly, this is not always easy, but he
refuses to let this (hopefully!) temporary treatment run his life. He has worked
tirelessly to continue to fight the good fight while our family does all we can
to try to find a living donor.
Of the 15,000 kidney transplants done in
the US annually, about 6,000 are through living donors. The demand for kidneys
far outweighs the supply of either living donor or cadaver kidneys. While my Dad
is currently on the list to receive a cadaver kidney, the wait is usually 3-5
years, and that may be more time than he has. We know that the longer he is on
dialysis the greater the risk of him developing other health problems or dying
(particularly after the 6 month time frame, which he has already passed). A
kidney transplant will double his life expectancy compared to staying on
dialysis treatment. The bottom line is that living donors remain the best option
because the kidney is healthier, lasts longer, and has fewer
complications.
**THINKING ABOUT DONATING TO NEAL?**
Now here’s the
important stuff for you to know if you’re thinking about becoming a living
donor. First, the best source of information about living donation that I’ve
found is from The National Kidney Foundation’s website (http://www.kidney.org/transplantation/livingdonors/infoqa.cfm).
Donors can be any age ranging from 18 to their early 70s. As long as
they are in good health and have normal kidney function, they can donate. The
cost of the living donor's evaluation, testing, and surgery are paid for by the
recipient's Medicare or private health insurance. Transplant centers are deeply
concerned about the health of the donor and do all they can to minimize risk.
And, if during preliminary testing they detect even the smallest chance that you
would not be a good candidate to donate, they’ll tell you right away that you’re
not eligible. In terms of risks to donor, it is little different than most
surgery. The procedure is usually done laparoscopically and is minimally
invasive. The hospital stay for the donor is usually about 3 days. A 2009 study
in the New England Journal of Medicine indicated that the long term survival of
living kidney donors was no different from that of matched control individuals.
Basically, if you are a relatively healthy person, the risks are minimal and the
vast majority of donors go on to lead perfectly healthy, normal lifestyles.
Apparently it's not a big deal to live with one kidney (some people are born
with only one and never know it!) because the remaining kidney just enlarges to
compensate.
**INTERESTED IN DONATING TO NEAL?**
If you think you
might want to donate but are worried about the logistics, no need to travel,
we’ll come to you! It took a lot of hard work (thank you Sherry!), but my Dad is
currently activated for a transplant at 6 renowned transplant centers around the
country:
• New York Presbyterian Hospital/Columbia University in New York
City, NY
• University of Pennsylvania Hospital in Philadelphia, PA
• Yale
New Haven Hospital in New Haven, CT
• University of California at Irvine
Hospital in Irvine, CA
• Banner Hospital in Phoenix, AZ
• University of
Miami Hospital in Miami, FL
The first step is contacting us to let us
know where you live and which hospital would be the most convenient for you.
Then we’ll send you a one-page donor information form for you to submit to the
hospital by fax or email. This form gets the ball rolling, then the hospital’s
transplant coordinator will contact you about further testing to determine if
you are eligible and provide you with all the information you’ll need to make an
informed decision.
If you have any questions about my dad, donation in
general, or think you want to begin the process of donating, please post a
comment on this page or send us a message. Thanks for your interest and please
keep us in your thoughts!
**TOP TEN REASONS TO DONATE YOUR KIDNEY TO
NEAL DEMBY**
Okay, now here they are (the reason you probably clicked on
this page in the first place!), the top ten reasons to donate your kidney to
Neal Demby:
# 10. Work for the feds? Federal government employees (many
state employees too!) receive 30 days paid leave for organ donation over and
above your normal sick and annual leave. You do the math: that’s 3 days in the
hospital, 27 on the beach.
(check out the details here: http://www.kidney.org/transplantation/livingdonors/pdf/LDTaxDed_Leave.pdf)
# 9. “I’m recovering from donating my kidney.” Best pick-up line ever.
#
8. From now on, every time Neal provides free health care to people in need, you
rack up additional good karma points.
# 7. Fifteen states offer $10K in
organ donation tax deductions. Sweet!
(check out the details here: http://www.kidney.org/transplantation/livingdonors/pdf/LDTaxDed_Leave.pdf)
# 6. Neal is a gourmet cook and loves to prepare delicious feasts for
his favorite people. Just saying.
# 5. Recovering after donating your
kidney to Neal is a great excuse to stay in bed and binge watch all three
seasons of Downton Abbey.
# 4. If you ask nicely, the surgeon will
fashion the space where your kidney was into a convenient change purse.
# 3. For the rest of your life you can play the "I gave a kidney" card to get
out of chores and win arguments.
# 2. Easy way to drop two pounds, just
in time for swimsuit season.
# 1. With only one kidney, you can get your
buzz on juuust a smidge faster
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KIDNEY STORIES: A NEW KIDNEY FOR WANDA
Wanda Aquino is in need a donor with an A or O blood type
(positive or negative) Please call Stacey at Medical Univ. of South Carolina at
843-792-0704 or toll-free at 1-800-277-8687. Be sure to include Wanda's name
when leaving a message.
Description
Hi
everyone,
My name is Jeri-Lynn, and I'm writing this on behalf of my
mother, Wanda, who was diagnosed with Polycystic Kidney Disease (PKD) in 2000,
and has been on a transplant list for a new kidney for over 2 years.
PKD
is a life-threatening illness characterized by the presence of multiple cysts in
the kidneys. It can result in End Stage Renal Disease, which my mother also
suffers from, and...
eventually kidney failure.
PKD is hereditary, and if one parent carries
the gene, the children have a 50% chance of developing the disorder. I would
have donated my kidney without a second thought, but I have PKD as well.
My mother is the most hard-working and self-sacrificing woman I've ever known.
She spent her life in the service of others, helping and taking care of people
whenever she could, and of course, being a loving wife and mother. I hate to use
the old cliche, but what else can you call a woman who worked full-time, raised
a family, and kept a perfect household other than Wonder Woman? That's what
she's been to us. No matter what any of us went through, we always knew she'd be
there for us. There was always someone we could turn to. She's been the pillar
of this family. My mother taught me what unconditional love is.
Even as
she suffers today, her biggest complaint is that she can't do more for other
people. She fights through her pain with a strength I can only describe as truly
awe-inspiring.
Currently, my mother has been doing dialysis on a daily
basis since July 2012. While the procedure is thankfully done at-home, we are
still in desperate need of a new kidney.
If you or anyone you know is
interested in giving the biggest gift you could ever give this family, please
contact me, Jeri-Lynn Aquino - either through facebook, or you can email me at:
[email protected]
Please, please like this page, share it on
facebook, and spread the word. Even if you don't think you can make such a
commitment, asking questions is more help than you know.
Thank you,
Jeri-Lynn and Family
(positive or negative) Please call Stacey at Medical Univ. of South Carolina at
843-792-0704 or toll-free at 1-800-277-8687. Be sure to include Wanda's name
when leaving a message.
Description
Hi
everyone,
My name is Jeri-Lynn, and I'm writing this on behalf of my
mother, Wanda, who was diagnosed with Polycystic Kidney Disease (PKD) in 2000,
and has been on a transplant list for a new kidney for over 2 years.
PKD
is a life-threatening illness characterized by the presence of multiple cysts in
the kidneys. It can result in End Stage Renal Disease, which my mother also
suffers from, and...
eventually kidney failure.
PKD is hereditary, and if one parent carries
the gene, the children have a 50% chance of developing the disorder. I would
have donated my kidney without a second thought, but I have PKD as well.
My mother is the most hard-working and self-sacrificing woman I've ever known.
She spent her life in the service of others, helping and taking care of people
whenever she could, and of course, being a loving wife and mother. I hate to use
the old cliche, but what else can you call a woman who worked full-time, raised
a family, and kept a perfect household other than Wonder Woman? That's what
she's been to us. No matter what any of us went through, we always knew she'd be
there for us. There was always someone we could turn to. She's been the pillar
of this family. My mother taught me what unconditional love is.
Even as
she suffers today, her biggest complaint is that she can't do more for other
people. She fights through her pain with a strength I can only describe as truly
awe-inspiring.
Currently, my mother has been doing dialysis on a daily
basis since July 2012. While the procedure is thankfully done at-home, we are
still in desperate need of a new kidney.
If you or anyone you know is
interested in giving the biggest gift you could ever give this family, please
contact me, Jeri-Lynn Aquino - either through facebook, or you can email me at:
[email protected]
Please, please like this page, share it on
facebook, and spread the word. Even if you don't think you can make such a
commitment, asking questions is more help than you know.
Thank you,
Jeri-Lynn and Family
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KIDNEY STORIES: A KIDNEY FOR KATRINA
My name is Katrina I am 30 yrs old and a single mother of a
little girl she is 9. I have a chronic condition called Kidney disease. It is
called IGA nephropathy.
Description
I
have been living with this since I was 15 a sophmore in high school. I had my
first transplant when i was 16 in 1997. My father gave me one of his kidneys. I
am so greatfull for him! I lived with that kidney for 7 years. I finished high
school and had my beautiful daughter, all thanks to my dad. That kidney got
infected and had to be removed. :( I got put back on dialysis and the transplant
list...
waiting for my next kidney. I had my ups and downs, in and out the hospital and
also had a seizure being on dialysis which was really scary. 2 1/2 years later i
was so blessed to recieve my second kidney transplant from someone unknown but I
thank them forever. I got to live a normal life again. I went back to nursing
school. First I got my CNA license then finished with my LVN license. I started
working, had my own place, and was able to feel like a real adult taking care of
my daughter. Then i started getting sick again and yep there was a virus in my
kidney. Had to have that kidney removed and again put back on hemodialysis.:(
I am still currently on dialysis and it has been almost two years now. Me
and my daughter have tried to have as much of a normal life as we can, but i had
to quit working, move back home and got my license suspended because of seizures
i have been having since i am back on dialysis. :( Dialysis is very hard on my
body (well anyones body) and my blood pressure is all over the place. I have
had to increase more medications to keep it under control.
I wish my health
was better and the only way is to have another transplant. It will be my 3rd
transplant..eeeekk I am very nervous. I would be able to work again and feel
like an adult. Most of all my daughter would know her mommy is okay. It breaks
my heart to watch my daughter worry everyday about me. If her mom is gonna have
a seizure while she is sleeping next to her, or when they go on walks she
worries if i am gonna pass out. This little girl has a big heart and i love her
so much and just want the best for her. She is my world and would love to know
she doesn't have to worry so much about her mommy. She already does not have a
dad in her life and i just want to be around healthy enough to take care of her
and myself. Right now my mom does alot for me and is always by my side any time
i need her! She did ask my nephrologist if she could donate but unfortunately
she has some minor kidney problems herself and can't do it.
So I am asking
anyone who is willing to help me?? Anyone who would be interested in being a
kidney donor for me i would be so blessed and greatfull!! And if it is not you
thats ok please just LIKE this page so the word can be spread and maybe there is
someone out there that could...Thank you for reading this :)
and God Bless
you all....
https://www.facebook.com/AKidneyForKatrina/info
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KIDNEY STORIES: FIND A KIDNEY FOR JEN
My name is Jen Jackson from Cleveland, OH. I've had lupus
nephritis since I was 13. They said I wouldn't live to be 30 but I turned 40
this year! The lupus finally got the better of my kidneys in May of 2011 and
I've been on dialysis ever since.
Description
My
name is Jen Jackson from Cleveland, OH. I've had lupus nephritis since I was 13.
They said I wouldn't live to be 30 but I turned 40 this year! The lupus finally
got the better of my kidneys in May of 2011 and I've been on dialysis ever
since. After an initial 5 months on hemodialysis, I am now able to do peritoneal
dialysis at home, however the sessions are 12 hours long and occur every night.
...It is
frustrating to me to be connected to a machine for that length of time, but it
keeps me alive. I have made it through the past 23 months with the help and
support of my family, friends, doctors, and especially my amazing husband, Rob,
and my son, Austyn. My blood type is A+. I can receive a kidney from anyone who
is an A or O blood type. Please consider being a donor...message me or call the
Living Donor Center at the Cleveland Clinic (1-800-223-2273 x53150) for more
information.
https://www.facebook.com/FindAKidneyForJen
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KIDNEY STORIES: FIND A KIDNEY FOR NORRIS
Norris Coit has PKD and has been on hemodialysis for three
years. What he really needs is a new kidney, his blood type is "O". If your
blood type is O and you are interested in donating please message me on this FB
page.
Description
Norris Coit
lives in Nevada with his four year old daughter.
Stanford University
Hospital is the contact facility for Norris's case.
https://www.facebook.com/NorrisALovingFatherAndPersonNeedsAKidney/info
www.facebook.com/kidneystories
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KIDNEY STORIES: A KIDNEY FOR MARCUS PAYNE
Blood type: O, Residence: Indiana, Donor Info: calls can be made to
Kelly Coffee at 317-944-4370, Hospital: IU Transplant Center
Description
My
son Marcus is 18 years old and was born with Polycystic Kidney Disease. He
received his diagnosis at 20 weeks gestation. His father also has this disease
as well as many family members. I have diabetes so there aren't really any
family options. His sister hasn't yet been diagnosed but carries the strong
possibility of having the disease as well. Marcus recieved his first kidney
transplant ...June
24, 2010. Unfortunately that kidney had BK virus which attacked itself once it
was suppressed. He also developed a rejection. He had about 3 good months post
transplant before the kidney began to fail. Finally in May of 2012 he started
peritoneal dialysis to do the job that his transplanted kidney could no longer
do. We are forever greatful to the family who donated their loved one's kidney.
In August, due to complications, the transplanted kidney had to be removed.
Marcus is recovering nicely from the surgery and is ready to recieve a new
kidney. He has always enjoyed being outdoors and loves anything on wheels.
Four wheelers, dirt bikes, and his beloved Subaru WRX. XBox has been a great
distraction during much of his recovery. He hopes to attend IvyTech in the
spring and further his education. If anyone is interested in finding out more
on being a donor for Marcus, please call 317-944-4370, IU Transplant Center.
Thank you and God bless!
https://www.facebook.com/AKidneyForMarcusPayne
www.facebook.com/kidneystories
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University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney
disease, chronic kidney disease, kidney for, diabetic, save my life, living
kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant
list, fundraiser, donate life,
KIDNEY STORIES: PRAYERS FOR ADAM
Adam is a 49 year old father of two beautiful daughters who
need their Dad around for a long time.
Description
Adam
first found out he has kidney failure in early February of 2012. He was
immediately sent to OSF in Peoria, Illinois where more tests were done and the
doctors concluded that he needed to be on dialysis because his kidneys were no
longer functioning at a safe level. He now has dialysis three times a week for
four hours at a time. Dialysis is an unpleasant process where blood is taken out
of th...e
body and ran through filters to remove what the kidneys would usually in a
working body, and then returned back into the body through large needles. Adam
was placed on a kidney transplant list in Illinois when he was in the hospital
in February, but it can take many years to receive one. This process is
particularly more difficult than usual because Adam has the blood type O. A few
people have tested to be a donor but have unfortunately not been able to due to
health findings in the testing. If you or anyone you know would be interested in
being a kidney donor to Adam please send a message or help spread the word by
sharing this page. Adam and his family greatly appreciate all of the thoughts
and prayers during this difficult time in their lives.
♥
https://www.facebook.com/adam.prayers
www.facebook.com/kidneystories
KIDNEY STORIES: IN SEARCH OF A KIDNEY FOR LISA HALL
My mom Lisa Hall is in search of a kidney. She is a wife,
mother, grandma, and sister to many people who love her. All families have
that person who is their rock. She is ours. She is always there to help any
of us in times of need.
Description
Please give
us our mom, grandma, wife, and sister back. Night after night Lisa has done
dialysis at home. In hopes that she would someday get a kidney. That hope is
still alive...and we would all love to see her smile again. Love to see her
working endlessly in the yard, hanging out with her grandkids, cooking,
cleaning, and just enjoying life again. Be our Angel...Donate your kidney
today! Call Tracy Perry at IUPUI Monday-Friday 8am-4pm at 1-800-382-4602 for
more information and begin testing. All testing is paid for!
https://www.facebook.com/InSearchOfAKidneyLisaHall
www.facebook.com/kidneystories
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transplant list, fundraiser, donate life,
KIDNEY STORIES: IN SEARCH OF A KIDNEY FOR GIGI
A page created in name of my beautiful wife to see if Facebook
can bring us a miracle in the form of a kidney....
Description
Greeting FB family. This here is a page to not
only to try & find my wife a hero willing to donate a kidney, but also to
bring awareness of Kidney disease.
Any questions please don't hesitate
to ask, here are some words written by her~
Ok,
... So now that I have opened up and asked for help I
want to put some key information out there.
I have been receiving so many
responses and I couldn't be more grateful! Thank you!
I need a Kidney
Transplant. My blood type is O Positive (O+)
The first step is to find
someone with the same blood type. Once we determine that, the donor will have to
call my Transplant Coordinator at NYU Hospital.
After that my involvement is
limited. One thing the Transplant committee wants to make sure is that the donor
is doing this because they want too and are not being pressured by the recipient
(me).
They will test your physical health and your mental health.
For those that don't know much.... I have been on dialysis for almost 2 years. I
only have one Kidney. When I was born my kidneys did not work. They removed my
left kidney and "fixed" my right one. I slowly started to get worst in my
adulthood. I was told so many scary things from Doctors. The scariest was when I
was told I could not have children. But boy did I prove them wrong... Once I
became pregnant they tried to scare me and say I would not go past 7 months...
Happy to report I completed 36 weeks pregnant and not only did I make it to the
end, I had a wonderful pregnancy. After Mia was born, my kidney did not make it
so I started Dialysis a year later... Don't misunderstand me... I would do it
all over again for my beautiful Mia! She is healthy, smart, beautiful, and has
such an amazing spirit. To know Mia is to love her.
With that said... I must
fight for her and for my incredible husband who never missed my appointments
when I was pregnant and has been holding my hands since.
Thank you for
reading this and for all the support.
May God bless us all.
Gigi
https://www.facebook.com/KidneyForMyWife
www.facebook.com/kidneystories
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KIDNEY STORIES: A JOURNEY TO A TRANSPLANT
A family's journey to kidney transplant. Follow three sisters
through their journey to find a living donor for kidney transplant due to
Autosomal Dominant Polycystic Kidney Disease.
Description
We are three
sisters that are all in stage four renal failure and need a transplant. We need
donors with either A or O blood type. Two of us are listed with the University
of Maryland. We are also double listed, one at Jefferson Hospital in Pensylvania
and the other at The Virginia Transplant Center in Richmond VA.
https://www.facebook.com/AJourneyToTransplant
www.facebook.com/kidneystories
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University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney
disease, chronic kidney disease, kidney for, diabetic, save my life, living
kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant
list, fundraiser, donate life,
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donor, recipient, seeking, awareness, National Kidney Foundation, Indiana
University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney
disease, chronic kidney disease, kidney for, diabetic, save my life, living
kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant
list, fundraiser, donate life,
KIDNEY STORIES: FIND A KIDNEY FOR BARBARA
Blood Type is AB+
Live in Southern California
Description
I
was told by my nephrologist the end of May 2012 that my transplanted kidney
from 10 years ago is going into failure. I am 55 years old, and I am a wife, mom
of 2, step mom of 3, grandma of 10, sister, aunt, daughter and mom to 3 amazing
dogs.
I have been on dialysis for the first time since Augsut 2012.
Because of my blood type, I am able to be matched with ANY blood type.
I am
currently listed
at USC Hospital in Los Angeles. The donor Coordinator is:
Noriko Yamasaki,
RN
USC Transplant Institute
Keck Medical Center of USC
e-mail:
[email protected]
direct phone : 323.442.7404 | fax:
323.442.6203
https://www.facebook.com/pages/Find-a-Kidney-For-Barbara/394256900669513?id=394256900669513&sk=info
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list, fundraiser, donate life,
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University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney
disease, chronic kidney disease, kidney for, diabetic, save my life, living
kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant
list, fundraiser, donate life,
KIDNEY STORIES: PLEASE HELP FIND A KIDNEY FOR OUR DAD
Our dad has Polycystic Kidney Disease (PKD) and needs a kidney
transplant. He needs a donor who has blood type B or O. To see if you are a
match, call Pam Grubbs at the Medical College of Georgia toll free,
1-800-736-2273.
Description
Our
dad, Dwight Mosby Sr., was diagnosed with a genetic condition called polycystic
kidney disease (PKD) in 2004. There is currently no cure for PKD; his best
treatment option is for the diseased kidneys to be removed and for a healthy
kidney to be transplanted.
Dwight is a Vietnam veteran who served his
country for 30 years; retiring in 1996 at the rank of Sergeant Major. He is a
husband, father...,
grandfather, brother, uncle, cousin, and friend to many.
PKD is a kidney
disorder passed down through families in which many cysts form in the kidneys,
causing them to become enlarged. About 1 in 1,000 people in the U.S. are
affected. The disease gets worse slowly, eventually leading to end-stage kidney
failure
If you know of someone who may be interested in donating one of
their healthy kidneys to our dad, they can speak to Pam Grubbs, RN, Transplant
Coordinator at MCG (Medical College of Georgia) Hospital. She will answer any
questions, assess their potential donor status, arrange for testing to see if
they are a viable candidate, all at no cost to the donor candidate. If they are
compatible and are willing to donate, the procedure and recovery are at no cost
to the donor. Pam Grubbs may be reached toll free by calling 1-800-736-2273 or
locally via 706-721-8560 or 706-721-2888. All inquiries remain
confidential.
Dwight's blood type is B+, he needs a donor who is either
type B or O.
We appreciate your willingness to save our dad's life by
finding out if you would be a suitable donor, by sharing this page with your
friends and family, and/or by offering your prayers and words of
encouragement.
https://www.facebook.com/AKidneyForDwight
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KIDNEY STORIES: HELP MY MOM FIND A KIDNEY
Wonderful Mom of 2 and Grandmother of 3 in need of a Kidney!
Indiana based ... B- Blood type ... Drug free and disease free ... In need
of 2nd Transplant ... Had first one for 17 years! ... Is currently on dialysis
Description
My
Mother is a wonderful Mom of 2 and Grandmother of 3. In 1994 she found out that
due to a Hereditary Kidney Disease she would have to receive a transplant. After
13 months on dialysis she received the call she had been waiting for. A cadaver
kidney was available and they believed it to be a match! For 17 years the new
kidney worked beautifully until she caught a virus and it attacked her
kidney.... She is now in need of a second transplant.
Upon
finding out that she would need another kidney transplant my Step-Dad
volunteered. It was then we found out that he had not only Colon but Rectal and
Prostrate Cancer as well. He is still in the process of recovering from this and
cannot now be a donor. Also due to the disease being hereditary my brother and I
cannot donate to her as well.
My Mom has a B- blood type and is drug and
disease free. We wish the same of a donor. If you are interested in helping save
someone's life then please contact me and we can go from there.
https://www.facebook.com/HelpFindMyMomAKidney?fref=ts
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list, fundraiser, donate life,
KIDNEY STORIES: 4 TEAM MCCARDLE KIDNEY AND FUNDRAISER PROJECT
The goal of this page is to raise awareness of Brian's urgent need of a
kidney donor & to link this page with our fundraising page http://www.giveforward.com/fundraiser/j542/4teammcardlefundraiser
Description
Brian's BLOOD TYPE = 0 negative
CLICK
HERE to DONATE to "4 Team McArdle Fundraiser" --> http://www.giveforward.com/fundraiser/j542/4teammcardlefundraiser
Brian's Story:
In 1992 at the age of 19 Brian was diagnosed with IgA
Nephropathy,also known as Berger's Disease. IgA is a kidney disorder that occurs
when IgA-a protein that helps the body fight infections-settles in the kidneys.
Through out ti...me
the IgA deposits may cause the kidneys to leak blood and sometimes protein in
the urine. About 25% of adults with IgA Nephropathy develop total kidney
failure.
Brian married Marcie in 1997 and the had their 1st child, Joseph in
1998. Late in 1998 Brian's symptoms began to increase & he was in need of a
transplant. In Feb of 1999 he received his kidney from his mother and they both
recovered well. He was very fortunate to get his kidney so quickly he did not
have to under go dialysis. Brian did great and had no problems. In the next few
years they had 2 more children Josie & Jenna. During that time his sister
Monica was also diagnosed with IgA as well and went through 2 transplants one
from a great family friend and the last one from their dad. She and both the
donors are still doing great!! The last few years Brian has had some medical
issues but as far as we know not related to IgA. Late in 2011 & early 2012
his problems became more serious so his Dr decided he needed to see the Dr's at
UAB. After a few days,many tests and a kidney biopsy they decided the only
option for him was another transplant. His biopsy showed signs of rejection, IgA
re-occurring and a toxicity to Cyclosporine(one of his immuno suppressant meds).
In March of 2012 he was put on the waiting list at UAB. (Since the family was
all out of kidneys) :) Brian was able to go back to work until March 2012. He
began Short Term Disability,as he was having some other medical issues and had a
few stays in the hospital.By the end of the summer he had 2 out patient
procedures,one in which was putting a Peritoneal catheter into his stomach. This
allowed him to do Peritoneal Dialysis at home and try to keep things as normal
as possible for his children. Brian & Marcie went through a few weeks of
training for this and things began to get a little better! He dialysised every
night for 8-10 hours and had one exchange during the day. He then went to Long
Term Disability in September. Just as he got past his 6 months of PD at home he
developed a tunnel infection.
Brian is now on nocturnal hemodialysis which
entails M,W & F nights from 8 pm to 4 am at a local clinic.
Although
Brian and Marcie realize there are people out there who have it a lot worse its
just not easy to deal with on a daily basis but they are very fortunate to have
a great support system of family & friends.
The hopes of this fundraiser
was created to not only benefit the McArdles, but to raise awareness of kidney
disease.
***Your efforts will directly benefit Brian, Marcie & their 3
young children***
If you would like to be a living donor please call:
UAB 1-888-822-7892
Emory in Atlanta 1-866-727-3250
***** They will
answer any questions you might have
https://www.facebook.com/pages/4-Team-McArdle-Kidney-Project-Fundraiser/348050018629557?id=348050018629557&sk=photos_stream
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KIDNEY STORIES: A KIDNEY FOR LEAH
Giving a kidney is giving someone their life back.
Mission
To find a donor
for my sister and educate people about kidney donation.
Company Overview
Leah
is my sister. She is a 43 year old single mom who works a full time job. She
also has a part-time job: dialysis. Dialysis removes the toxins from her blood
because Leah does not have working kidneys. Every week, she spends
approximately 15 hours of her life, planning for, driving to and from, and
sitting at dialysis. Leah needs a kidney! Leah has been on and off dialysis
for over 10 year...s.
In 2000, she received a kidney from our cousin, Pat, That kidney gave Leah 6
years of freedom from dialysis. She was able to return to work full-time. She
was once again able to travel and take vacations without worrying about
arranging for dialysis. In 2007, Leah received the news that her donated kidney
was rejecting and infected and had to be removed. For almost two years now,
Leah has been back on dialysis.
Most dialysis patients do not work.
Most dialysis patients receive government money and medical benefits. Not Leah.
My sister works full time and fully supports herself and her son. And for 12+
hours a week, not including travel time, she sits in the hospital on a machine.
She has a very limited diet and is not allowed to drink fluids. She is
restricted to chewing ice if she's thirsty.
Imagine being a mom who cannot
attend your child's football games because you have to sit on a dialysis
machine. Imagine yourself unable to take vacations unless you can find a
hospital willing to do your dialysis and then devoting half of your vacation to
sitting in an unfamilliar hospital hooked to a machine.
Dialysis is not
life. Please help us give Leah her life back!
Our whole family has been
tested and we do not have a match for Leah. Please help us FIND A MATCH!
A match for Leah needs to have blood type O. If you have blood type O and want
to be further tested, it's a very simple blood test to see if your blood has
antibodies that would be rejected by Leah's body.
Here's what I'm
asking of you; if you'd be interested in being tested, contact Leah's transplant
coordinator. If not, or if you don't have the right blood type, PASS THIS ON!
Please pass this to every single person on your friends list. We need to get
the word out. You never know if someone who is a friend of a friend of a friend
is a match and wants to help. PASS THIS ON!
Transplant
Coordinator:
Patty
612 873 7718
Hennepin County Medical Center
Transplant Center
Tell her you want to be tested as a match for Leah
Erickson D.O.B. 10/4/69
https://www.facebook.com/pages/A-Kidney-for-Leah/176604805235?id=176604805235&sk=info
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KIDNEY STORIES: A KIDNEY FOR JIM
Jim is a 42 year old single dad Located in Arizona and is in need of a
Kidney from an "O" Type donor. Jims Transplant center is Banner Good Samaritan
Medical Center and can be contacted at (602) 839-0210 or 1(800) 554-1923
Description
In
June of 2008 Jim was diagnosed with Membranous nephropathy, a kidney disease
affecting the glomerular basement membrane, the part of the kidneys that helps
filter waste and extra fluid from the blood. Jim had various treatments to slow
the effects of this disease and try to prolong the inevitable of End Stage Renal
Disease. Jim continued to work full time and raise his son as a single father
w...hile
not letting on with the challenges that he now faced.
In March of 2011
Jim relocated to Arizona with his son, leaving family and friends back in Ohio
to start a new job. Then in April of 2012 he was told that his disease had
progressed to End Stage Renal Failure and would need to start dialysis
immediately. Jim chose peritoneal dialysis as he found that to be the best
option to continue working his job full time and supporting his son both
academically, and athletically. This was an extremely trying time for Jim and
his son as all of their support was back in Ohio.
Imagine having to come
home and explain the situation to your son, how do you prepare your child for
this? Having to share information with them "in case of emergency" here is
where all the vital information is!
Jim has been on Dialysis since July
and while not a huge fan of being hooked up to a machine that now is necessary
to keep you alive because without it your blood would become to toxic for your
body he appreciates what it is doing not only himself but for his family as
well. While Jim continues Peritoneal Dialysis he remains hopeful that enough
people will spread his message not only to help him find a HERO, but to help the
many others out there waiting for their HERO to come along.
Please take
the time to spread word not only of Jim's cause but that of everyone in need of
an Organ Transplant, because you can save a life and be one of the untold HERO's
that we are so desperately looking for.
https://www.facebook.com/pages/A-Kidney-for-Jim/449123271806288?id=449123271806288&sk=info
www.facebook.com/kidneystories
KIDNEY STORIES: KRUISIN' FOR KIDNEYS
Raising awareness of kidney disease and helping "end stage
renal disease" (ESRD) victims through organized rides and fundraisers.
Mission To bring hope and
renewed faith to those suffering with kidney disease.
Description
Chuck Hooper was diagnosed with ESRD in 2011.
This is a frightening diagnosis and one that results in years of suffering for
victims and their families. Chuck and his family were among the very rare as
they had a miracle and guardian angel in Lisa Porterfield, Chuck's wife's best
friend, as she was a donor match and was more than willing to offer the
selfiess gift of a kidney. Lisa donated a... kidney to
Chuck on February 5th, 2013 at UNC Hospital, in Chapel Hill, NC. Chuck's ESRD
was short lived compared to the thousands that live on dialysis for many years.
Through experience and education received on kidney disease and renal failure,
we felt it was our calling to raise awareness and bring hope to others that are
suffering with this life threatening condition.
https://www.facebook.com/pages/Kruizin-for-Kidneys/546373398727881?id=546373398727881&sk=info
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Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor,
recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor,
recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
KIDNEY STORIES: MY MOM NEEDS A KIDNEY
Hi, my name is Shelley and I had a kidney transplant on February 26, 2013. My
living donor found me because of a page my daughter started fo...r me on FB called...My Mom Needs A Kidney !! I shared
the page and my friends shared our page and my donor saw it and right away
wanted to get tested! FB really can work. I started looking for a donor as soon
as a was told I would need a transplant. I was scared to death, but chose to
focus that fear on finding myself a living donor! I ended up having to start
dialysis in May of 2012. I was devastated and absolutely hated every minute of
it!! People would actually ask me how dialysis was going...like it was a new job
or something! I would respond by saying...'well...it really sucks and always
will!' People think if your on dialysis then your going to be ok. Needless to
say, I had A LOT of anger about the whole situation. I right away had someone
come forward who wanted to donate before I had to start dialysis, but after
finishing almost all of the testing she had to back out. That sent me into a
downward spiral! Why did I really believe that a stranger would want to help
me!! I gave up for a while and then my daughter had the excellent idea for the
page. A friend from first grade thru high school shared and her best friend Lisa
ended up being a match for me! I didn't get excited at first. Why would a total
stranger with 5 kids want to help me? Lisa is an amazing person, very giving,
full of life and I must add, has very active kidneys!lol She gave me my life
back, free from dialysis and on my way to being able to enjoy life. So, don't
give up. Fight for you. Tell everyone who will listen about your story, you will
be surprised how many people really do care :)
If you would like us to post
your info on our page, just let us know at My Mom Needs a
Kidney-Shelley
https://www.facebook.com/KidneyInNeed/info
www.facebook.com/KidneyStories
TAGS: my mom needs a kidney, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook,
Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor,
recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor,
recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
KIDNEY STORIES: KIDNEY 4 DADDY
This page was created to raise fund for Idora's husband kidney
transplant. She is the potential donor. If everything goes well, the surgery
will take place in 2013.
Description
Salam and hi everyone!
My name is Idora
and I'm married to the love of my life, Rizal. We have three beautiful but very
naughty boys. If you see us, you would think that we are like any other young
and married couples, who want to lead good and productive lives, and see our
sons grow to be good men.
Sadly, the future is a bit bleak. Rizal
suffers from chronic kidney disease and has been on dialy...sis for more than 2 years. The sessions are 3 times a
week which is about 4 hours per session. Post dialysis he is tired and rests
throughout the day. He had a thriving career before in IT. He is unable to
achieve his dreams now.
He is only 34 years old. My wish is simple. I
want him to be back able to play with the kids, I wish him to be able to travel
and most of all I want him to see the kids grow up to be fine men. And I want my
husband back, as the man I married, who is funny, good, hardworking. I am
appealing to all, to help up with this drive.
It is not just for a
selfish reason. I know may people will say there are people with worse illnesses
and lives. But I also believe this drive will create awareness to many
Malaysians, rich or poor, young or old. I want to create awareness for kidney
disease. I want people to learn all about kidney and how early detection can
prevent or prolong kidney failure. If this can happen to me, it can happen to
anyone. There is little support for healthcare in Malaysia, especially when it
comes to the expenses.
My family and friends are supportive, and are
helping me with ideas to raise funds.
All proceeds from the featured
products and events in this page will go to the Kidney4Daddy Fund. Payment can
be made directly to the bank account below:
Bank: Maybank
Account
No: 114290033585
Please email us at [email protected] once
payment is made together with the reference number and your product of choice or
the event name.
We are on twitter too @Kidney4Daddy
Update on
K4D @ 13th Dec 2012
Thank you everyone who has Liked us, shared our page
and mentioned us from twitter, facebook, between friends and family members. It
has been 6 months since I created this page. In this 6 months, many have helped
us in so many ways that I could ever imagined. I have met many wonderful people
who gave their hand of support through organising events for us and supporting
our products.
A little good news that I would like to share is I am
donating my kidney to my husband. A little over 3 months after we started this
fundraising, we found out after the many tests that I had to go through that we
are a match. We are not blood related and to find this test to be a match is a
Godsend blessing to our family.
On God's will, the transplant will take
place in early 2013. Since both of us will be in recovery mode post transplant,
a big amount of the funds will be used during the period. We hope for a smooth
recovery, InsyaAllah.
Pray the best for us.
Thank
You,
Idora
https://www.facebook.com/Kidney4Daddy/info
www.facebook.com/kidneystories
TAGS: kidney 4 daddy, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life
KIDNEY STORIES: A FRIEND IN NEED OF A KIDNEY
"I have learned that I Can’t Post Melanie’s Story on Anyones Wall asking them
to Share her Story for us because I have been Blocked and Can’t make Comments on
Any Pages we have Liked and Shared for 15 Days for some Reason (this hurts
Melanie and she did NOTHING Wrong Either). So can we Ask you to Share it for us
until then Thanks so much. We are 20 Likes away from Our 400 GOAL Please help us
by Sharing so we can Find her LIVING DONOR ♥"---WENDY
Wendy and Melanie have “overshared” in the eyes of FB. They sell
jewelry to help offset transplant costs and because they have not paid for
advertising, they are treated differently than other paying customers.
This is not right. They have the right attitude; we are not in business
against each other. As victims of kidney disease, we all have the same
interests, we all pull the rope in the same direction; we are not in
business competing for a scare resource in a declining market. We are
engaged in an altruistic venture to help improve the likelihood of kidney
donation for all. We are pulling the rope in the same direction! The
page a Friend in Need recognizes this! They share their own page and the
pages of others who are afflicted as well, not just of kidney disease, but their
scope is much, much broader. It is a known fact that one can find a donor
on FB, and Melanie has been deprived of her ability to search for 2 weeks.
Because they “overshared.” This is nonsense! FB pages, particularly kidney
pages were set up to be shared. That is their main reason to be.
These people like me are seeking a donor and helping others to seek, many who
are unable to help themselves. Here is the link to their page: https://www.facebook.com/FriendInNeedOfAKidney.
Please go there, hit the Like button, leave a little love on the page for them
to read, share their page, and seriously consider that you are donating a kidney
to a woman that makes handmade jewelry in an effort to finance a transplant and
the post transplant medications. The first year of a transplant costs over
$125,000 and just about $25,000/year thereafter for the meds. This is
hardly a for profit enterprise. This cannot really even be called a
cottage industry. Just a single mom trying to be there while her child
grows up, goes to high school, goes to her prom, maybe to college, gets her
first job, gets married, has her own children (grandchildren for Melanie).
FB knows the success rate for recipients seeking on FB. Loosing 2 weeks of
sharing and bringing people to their page is a great loss under these
circumstances. Did you know that some transplant centers use you ability to
afford a transplant and post transplant medications as a criteria to accept you
into their program? Remember, Medicare only covers 36
months post-transplant and then you’re on your own. Many transplants
now last 20 years; some more than that. I hope that you will show your
support. My good friends need you and me to act because they cannot.
Thank you for reading this.
Here is Melanie’s Kidney Story:
My name is Melanie Gibson-Gordon. I
live in Philadelphia Pa. I am 41 years old a Single Mother of a 9 year old
Daughter Emily. I am searching for a Living Donor because I need a Kidney. I
need a Kidney too live. Description Hello my name is Melanie Gibson-Gordon. I am
searching for a Living Donor.
I am a Single Mother of two Wonderful
children Emily who is 9 years old and my son Tom who is 23 years old. I like to
surround myself with music, poetry, friends, and my children they all help me to
cope with my illness. My Faith also helps me. I love to cook. I am interested in
going back to school again.
I love spending time with my daughter and enjoy
cooking with her and reading with her, we go to the movies and the park as much
as we can. Music is my passion. My family and I surround ourselves with music
and the instruments we love. I Love spending time with my friends when I can. I
also love helping out others.
In 1992 I was diagnosed with Good Pasture
Disease it is an Auto-Immune Disease.
In 2000 I received my first kidney. I
am in need of another one due to medication damage to the first one I
received.
I am unable to work due to my Illness. I go to Dialysis 3 times a
week hooked up to a Machine.
I have been on the Transplant Waiting List for
the last 2 1/2 years. I go to dialysis 3 times a week.
My blood type is
A+ but anyone with O blood can donate to me. My center does both paired and
chain matching. Any blood type can donate and save someone’s life.
You can
contact the Transplant Department at 1-800-JEFF-NOW and speak to the Living
Donor Coordinator she will help you.
We would Love to THANK YOU for taking
the time to read Melanie’s Story, and even getting the word out there about
Kidney Disease and Living Donors
to Share her Story for us because I have been Blocked and Can’t make Comments on
Any Pages we have Liked and Shared for 15 Days for some Reason (this hurts
Melanie and she did NOTHING Wrong Either). So can we Ask you to Share it for us
until then Thanks so much. We are 20 Likes away from Our 400 GOAL Please help us
by Sharing so we can Find her LIVING DONOR ♥"---WENDY
Wendy and Melanie have “overshared” in the eyes of FB. They sell
jewelry to help offset transplant costs and because they have not paid for
advertising, they are treated differently than other paying customers.
This is not right. They have the right attitude; we are not in business
against each other. As victims of kidney disease, we all have the same
interests, we all pull the rope in the same direction; we are not in
business competing for a scare resource in a declining market. We are
engaged in an altruistic venture to help improve the likelihood of kidney
donation for all. We are pulling the rope in the same direction! The
page a Friend in Need recognizes this! They share their own page and the
pages of others who are afflicted as well, not just of kidney disease, but their
scope is much, much broader. It is a known fact that one can find a donor
on FB, and Melanie has been deprived of her ability to search for 2 weeks.
Because they “overshared.” This is nonsense! FB pages, particularly kidney
pages were set up to be shared. That is their main reason to be.
These people like me are seeking a donor and helping others to seek, many who
are unable to help themselves. Here is the link to their page: https://www.facebook.com/FriendInNeedOfAKidney.
Please go there, hit the Like button, leave a little love on the page for them
to read, share their page, and seriously consider that you are donating a kidney
to a woman that makes handmade jewelry in an effort to finance a transplant and
the post transplant medications. The first year of a transplant costs over
$125,000 and just about $25,000/year thereafter for the meds. This is
hardly a for profit enterprise. This cannot really even be called a
cottage industry. Just a single mom trying to be there while her child
grows up, goes to high school, goes to her prom, maybe to college, gets her
first job, gets married, has her own children (grandchildren for Melanie).
FB knows the success rate for recipients seeking on FB. Loosing 2 weeks of
sharing and bringing people to their page is a great loss under these
circumstances. Did you know that some transplant centers use you ability to
afford a transplant and post transplant medications as a criteria to accept you
into their program? Remember, Medicare only covers 36
months post-transplant and then you’re on your own. Many transplants
now last 20 years; some more than that. I hope that you will show your
support. My good friends need you and me to act because they cannot.
Thank you for reading this.
Here is Melanie’s Kidney Story:
My name is Melanie Gibson-Gordon. I
live in Philadelphia Pa. I am 41 years old a Single Mother of a 9 year old
Daughter Emily. I am searching for a Living Donor because I need a Kidney. I
need a Kidney too live. Description Hello my name is Melanie Gibson-Gordon. I am
searching for a Living Donor.
I am a Single Mother of two Wonderful
children Emily who is 9 years old and my son Tom who is 23 years old. I like to
surround myself with music, poetry, friends, and my children they all help me to
cope with my illness. My Faith also helps me. I love to cook. I am interested in
going back to school again.
I love spending time with my daughter and enjoy
cooking with her and reading with her, we go to the movies and the park as much
as we can. Music is my passion. My family and I surround ourselves with music
and the instruments we love. I Love spending time with my friends when I can. I
also love helping out others.
In 1992 I was diagnosed with Good Pasture
Disease it is an Auto-Immune Disease.
In 2000 I received my first kidney. I
am in need of another one due to medication damage to the first one I
received.
I am unable to work due to my Illness. I go to Dialysis 3 times a
week hooked up to a Machine.
I have been on the Transplant Waiting List for
the last 2 1/2 years. I go to dialysis 3 times a week.
My blood type is
A+ but anyone with O blood can donate to me. My center does both paired and
chain matching. Any blood type can donate and save someone’s life.
You can
contact the Transplant Department at 1-800-JEFF-NOW and speak to the Living
Donor Coordinator she will help you.
We would Love to THANK YOU for taking
the time to read Melanie’s Story, and even getting the word out there about
Kidney Disease and Living Donors
TAGS: End, Facebook, Failure, Foundation, Indiana, Jim, Journal, Kidney, Live, Myers, More…NCS, National, Ning, Renal, Stage, Stories, Tumblr, University, Weebly, WordPress, a, awareness, blood, chronic, diabetic, dialysis, disease, donate, donation, donor, find, for, friend, fundraiser, kidney, life, list, living, my, needs, organ, polycystic, recipient, save, seeking, share, sharing, spare, transfusion, transplant
KIDNEY STORIES: GIVE A KIDNEY, SAVE A LIFE
<img src="http://ic.pics.livejournal.com/kidneystories54/60578284/15326/15326_900.jpg"
alt="GIVE" title="GIVE" width="900" height="674" />
<a href="http://boston.cbslocal.com/video?auto&topVideoCatNo=default&clipId=8704819"></a>
North Reading Man Finds Kidney Transplant Match Online
By Bobby
Sisk, WBZ-TV
March 25, 2013 12:20 AM
Share on email 1
View Comments
Reporting Bobby Sisk
Filed under
Local, News, Seen On
WBZ-TV, Syndicated Local, Watch + Listen
Related tags
Bobby
Sisk, CBS Boston, Eddie Beatrice, Facebook, Kelly Wright, Kidney Transplant,
Massachusetts General Hospital, North Reading, WBZ
NORTH READING (CBS) – It was Columbus Day weekend, 2011 when a
healthy Eddie Beatrice went in for surgery on his left rotator cuff.
“I had
already had the right one done so I knew what to compare it to and I knew
something was wrong by Monday night,” he said.
Just days later, Eddie,
a father of two, was beginning a fight for his life.
“There was a bacterial
infection from the rotator cuff surgery and that sent my body into septic shock
and the kidneys shut down immediately,” he explained.
Eddie went on to
spend three-and-a-half months in Massachusetts General Hospital. Once
discharged, he continued dialysis three days a week and is still in
treatment.
“I wouldn’t have made it without my family, my wife and kids and
friends,” he said. His two sisters wanted to help by donating a kidney, but that
wasn’t possible.
He was put on a waiting list and realized his wait
could be a long one.
“I decided at the first of the year that you know this
is my year. I’m going to take the bull by the horns,” said Eddie. He went online
and began doing research on kidney transplants.
Within an hour and a
half, he’d stumbled across something and someone that would change his
life.
“She wrote, I’ve decided to donate my kidney to an anonymous
recipient,” he said of a post on the Living Kidney Donor Network Facebook page,
written by a woman named Kelly Wright.
“I registered with the national
network just to do an anonymous donation and found their Facebook page,” Kelly
said. Nearly three months later, she is on her second visit to Massachusetts
from Newport Beach, California and staying with Eddie and his wife and kids in
North Reading.
Testing showed she is a match and the two will undergo
surgery on April 2nd. “That’s even better that I know who has my kidney and that
they’re doing well,” she said.
The story brings tears to Kelly, a
veterinarian with children of her own. She said she’d wanted to donate before,
but the timing wasn’t right. She discussed it with her husband and family and
decided the time was now.
“Is there divine intervention here,” Eddie asked.
“Is somebody looking down and saying, you’ve been through enough and let’s send
you an angel?”
“I’m really looking forward to him feeling better,”
Kelly said. Both hope their well-timed meeting leads to more awareness for
living kidney donation. It’s as if they’ve known each other for years and can’t
wait for all the years yet to come.
“We’ll be family for life now,” Eddie
explained.
Eddie is documenting his and Kelly’s journey on his Facebook
page eddieskidneycampaign.com.
alt="GIVE" title="GIVE" width="900" height="674" />
<a href="http://boston.cbslocal.com/video?auto&topVideoCatNo=default&clipId=8704819"></a>
North Reading Man Finds Kidney Transplant Match Online
By Bobby
Sisk, WBZ-TV
March 25, 2013 12:20 AM
Share on email 1
View Comments
Reporting Bobby Sisk
Filed under
Local, News, Seen On
WBZ-TV, Syndicated Local, Watch + Listen
Related tags
Bobby
Sisk, CBS Boston, Eddie Beatrice, Facebook, Kelly Wright, Kidney Transplant,
Massachusetts General Hospital, North Reading, WBZ
NORTH READING (CBS) – It was Columbus Day weekend, 2011 when a
healthy Eddie Beatrice went in for surgery on his left rotator cuff.
“I had
already had the right one done so I knew what to compare it to and I knew
something was wrong by Monday night,” he said.
Just days later, Eddie,
a father of two, was beginning a fight for his life.
“There was a bacterial
infection from the rotator cuff surgery and that sent my body into septic shock
and the kidneys shut down immediately,” he explained.
Eddie went on to
spend three-and-a-half months in Massachusetts General Hospital. Once
discharged, he continued dialysis three days a week and is still in
treatment.
“I wouldn’t have made it without my family, my wife and kids and
friends,” he said. His two sisters wanted to help by donating a kidney, but that
wasn’t possible.
He was put on a waiting list and realized his wait
could be a long one.
“I decided at the first of the year that you know this
is my year. I’m going to take the bull by the horns,” said Eddie. He went online
and began doing research on kidney transplants.
Within an hour and a
half, he’d stumbled across something and someone that would change his
life.
“She wrote, I’ve decided to donate my kidney to an anonymous
recipient,” he said of a post on the Living Kidney Donor Network Facebook page,
written by a woman named Kelly Wright.
“I registered with the national
network just to do an anonymous donation and found their Facebook page,” Kelly
said. Nearly three months later, she is on her second visit to Massachusetts
from Newport Beach, California and staying with Eddie and his wife and kids in
North Reading.
Testing showed she is a match and the two will undergo
surgery on April 2nd. “That’s even better that I know who has my kidney and that
they’re doing well,” she said.
The story brings tears to Kelly, a
veterinarian with children of her own. She said she’d wanted to donate before,
but the timing wasn’t right. She discussed it with her husband and family and
decided the time was now.
“Is there divine intervention here,” Eddie asked.
“Is somebody looking down and saying, you’ve been through enough and let’s send
you an angel?”
“I’m really looking forward to him feeling better,”
Kelly said. Both hope their well-timed meeting leads to more awareness for
living kidney donation. It’s as if they’ve known each other for years and can’t
wait for all the years yet to come.
“We’ll be family for life now,” Eddie
explained.
Eddie is documenting his and Kelly’s journey on his Facebook
page eddieskidneycampaign.com.
TAGS:
KIDNEY STORIES: SAVE BRADEN'S MAMA
I'm a thirty year old married mother of one that is in desperate
need of a kidney transplant. We found out I was in kidney failure when I was
pregnant.
When I was 12 it was found that I had high blood pressure...my
kidneys were tested at that time and found to be functioning normally...I was
not put on any medication...I didn't get on high blood pressure medicine until I
was 18. I had symptoms of kidney failure (itchiness, lethargic, nausea) but
didn't have a clue there was anything seriously wrong. A routine 24 hour urine
test when I was 11 weeks pregnant informed us that my kidneys were functioning
at 30%. My Dr. thought that my kidneys would probably rebound after
pregnancy...around the time my son turned one my kidney function was 15%. I had
an AV fistula surgery in Sept 2009. I had the fistula pulled up in Jan of 2010.
I was at 9% for a long time. When I finally started dialysis I was at 6%...that
was March 12, 2011.
Stacey's
blood type is b positive who means she can receive a donation from a b or an o
donor. She is listed on the University of Iowa's transplant list. If you would
like to be tested please let us know so we can send you a packet! Thanks
:)
(319)
356-1616
http://www.uihealthcare.org/
www.facebook.com/kidneystories
TAGS: save bradens mama, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook,
Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor,
recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor,
recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
KIDNEY STORIES: KIDNEY 4 CARLOS
This Page is to raise awareness of Kidney disease and help
support Carlos Amato
and his fight for a Kidney transplant!
Thank
You and God Bless!
Mission
Our goal is to
raise awareness, hopefully find a donor and raise enough money towards Carlos'
Transplant and Medications!
Description
In
2000, he was diagnosed with Type 2 diabetes, which also afflicted his mother. A
few
years ago, while hospitalized with congestive heart failure, he learned
he also
suffers from Kidney Failure-End Stage Renal Disease. Janrury 2012
he received fistula surgery on his left wrist to prepare him to endure regular
dialysis treatments three times a week, which will leave him exhausted and
greatly af...fect
his quality of life. Doctors say a kidney transplant is critical to his
survival.
Despite his health challenges, Carlos' attitude has remained
positive. This dedicated family man wants nothing more than to be healthy and
spend many more years with his wife, Julia, their three young children and his
two older sons 19 & 23. His family means everything to him, and he hates
that they are so worried about his health. Although he's not able to be as
active as he would like, he enjoys sports, going to the movies, spending time
with friends and going to family functions when he has the energy. He looks
forward to the transplant that will allow him to return to his normal, active
lifestyle. But right now, he needs your help.
The average kidney
transplant costs approximately $250,000. And that's only the beginning. Even
with health coverage, he faces significant expenses related to the surgery. For
the rest of his life, he will need follow-up care and daily anti-rejection
medications. Post-transplant medications are very pricey usally between $2000.00
- $5000.00 per month, and they are as critical to his survival as the transplant
itself.
Carlos and his family live an hour and a half from the
transplant center, incurring travel expenses for every doctors appointment and
evaluation. They will need to temporarily relocate to be closer to the hospital
when he receives his transplant, causing them to face additional expenses. He
had to stop working as a private security contractor because of his declining
health, adding to the financial strain.
<<Donation
Information>>
To make a tax-deductable donation to National
Foundation for Transplants (NFT) in honor of Carlos, click the link provided. If
you'd prefer to send your gift by mail, please send it to:
NFT Florida
Kidney Fund
5350 Poplar Avenue, Suite 430
Memphis, TN 38119.
Please
be sure to write "in honor of Carlos Amato" on the memo line.
Thank you
for your generosity!
Carlos is blood type "A" and is in need of a living
donor with either an "A" or "O" blood types.
Patient Health Institute:
Florida Hospital - Orlando
http://www.facebook.com/l.php?u=http%3A%2F%2Fpatients.transplants.org%2Ffaf%2FdonorReg%2FdonorPledge.asp%3Fievent%3D485635%26lis%3D1%26supId%3D359656689%26patientPID%3D15915http%3A%2F%2F&h=9AQHk5rF7See
More
Basic Info
Started
May 2012
Location
Port Saint Lucie,
Florida
Contact Info
[email protected]
Website
http://patients.transplants.org/faf/dono...
www.facebook.com/kidneystories
TAGS: kidney 4 carlos, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
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KIDNEY STORIES: SHARE YOUR SPARE WITH SUSAN
Susan is 39 years old. She suffers from Polycystic Kidney
Disease (PKD). She has 3 daughters who also suffer from PKD. She needs someone
with blood type A or O. To see if you are a match, call The University Of Utah
Toll Free 1-800-824-2073.
Description
Hi
My name is Susan Springer. I am 39 years old(even though i hate to admit that
and usually tell everyone i am 35!!) I am the mother of three beautiful
daughters and Gramma to 3 of the most wonderful babies in the world, with number
4 on they way!!!! I live in Wyoming and i have a genetic disease called
Polycystic Kidney Disease (PKD). This disease has literally destroyed most of my
family. I inh...erited
it from my mothers side, she was 11 out of 12 children in her family and out of
the 12, all of them had PKD except 2. And all have passed away mostly in their
40's and 50's except for one aunt, she has been on dialysis for about 13 years
now. The disease has been passed on to me and a lot of my cousins and my cousins
children. As you can imagine our family is rather large. My own three daughters
also have PKD. We are praying for the grand babies.
I have created this
page because i would like help in finding a live donor. My blood type is A which
will match a few different blood types they say. My kidney function is very low
but my doctors are trying to help me avoid dialysis by hopefully finding a
kidney and having a transplant very soon. If i do not find one soon i will have
no choice.
If you can not share your spare with me, please help me spread
the word and maybe someone who can will come forward.
Thank you so
much!
Any one interested or have any questions about donation may
contact the transplant center at The University Of Utah Toll Free
1-800-824-2073
https://www.facebook.com/ShareYourSpareWithSusanSpringer
www.facebook.com/kidneystories
Disease (PKD). She has 3 daughters who also suffer from PKD. She needs someone
with blood type A or O. To see if you are a match, call The University Of Utah
Toll Free 1-800-824-2073.
Description
Hi
My name is Susan Springer. I am 39 years old(even though i hate to admit that
and usually tell everyone i am 35!!) I am the mother of three beautiful
daughters and Gramma to 3 of the most wonderful babies in the world, with number
4 on they way!!!! I live in Wyoming and i have a genetic disease called
Polycystic Kidney Disease (PKD). This disease has literally destroyed most of my
family. I inh...erited
it from my mothers side, she was 11 out of 12 children in her family and out of
the 12, all of them had PKD except 2. And all have passed away mostly in their
40's and 50's except for one aunt, she has been on dialysis for about 13 years
now. The disease has been passed on to me and a lot of my cousins and my cousins
children. As you can imagine our family is rather large. My own three daughters
also have PKD. We are praying for the grand babies.
I have created this
page because i would like help in finding a live donor. My blood type is A which
will match a few different blood types they say. My kidney function is very low
but my doctors are trying to help me avoid dialysis by hopefully finding a
kidney and having a transplant very soon. If i do not find one soon i will have
no choice.
If you can not share your spare with me, please help me spread
the word and maybe someone who can will come forward.
Thank you so
much!
Any one interested or have any questions about donation may
contact the transplant center at The University Of Utah Toll Free
1-800-824-2073
https://www.facebook.com/ShareYourSpareWithSusanSpringer
www.facebook.com/kidneystories
KIDNEY STORIES: WELLINGTON'S KIDNEY DONOR
I can accept A or O Blood Types but ANY type can be my Donor
via the Kidney Exchange Program. All expenses are paid so "Come on out to the
Coast" (and save a life while you're at it!) for a San Diego/ Rancho Bernardo
Dad
Description
Dear Friends,
First let me say "Thank You" for clicking to this page. Talking
about this is a difficult thing. My Doctor is actually the one that suggested
Facebook, and if it weren't for a small group of "Angel Friends" the page may
not exist!
Also I might add for ANONYMOUS inquiries one may call
SCRIPPS CLINIC, LA JOLLA CA. 858-554-4363(Ashley) and ask questions - be sure to
tell her your are ...calling
for information on possible donation for patient Douglas Wellington.
My
name is Douglas Wellington and I live in the North County of San Diego
California (although you do not need to live in California if you are interested
in donating).
I am a "young" 57 year old man with a loving wife and
beautiful 12 year old son.
He is an unbelievable good boy, Boy Scout and I
believe him to be an "old soul."
We are a small, but close family. My
business has always been Real Estate Brokering, however now I do not have the
energy to deal with such stress. I now currently buy and re-sell my own homes.
It's an ideal job for someone with my illness, so i see it as a blessing...I've
had many in my life..Even my End Stage Kidney Disease must have some hidden
blessing..it will show up, I'm certain.
With regards to Kidney donation,
there is allot of information online to read about and anyone interested in
donation a Kidney and living the with one will be surprised to find out how
normal your life will be. I wonder what it would feel like to save someone's
life if I could. It must rank the ultimate in "Altruistic Deed."
Below I
have outlined some basic facts about Kidney Donation.
Here we go:
1.
Many people are actually born with one Kidney and only find out should they have
a scan of some sort. They life totally normal lives.
2. These days the
procedure is done via "Laparoscopic" Surgery.(please see below)
3. Hospital
stay is about 3 days. (Procedure is 3-4 Hours)
4. Donor recovery time for a
desk job is about 2 weeks.
5. There is no cost to the donor.
6.I can
accept from an "A" or an"O"blood type.
Anyone interested in donating
remains TOTALLY in control from the time they inquire to the actual time of the
operation and at anytime can change their mind and no one will ask any questions
and this happens all the time.
So in reality, no one is considered an actual
donor until the day of the procedure!
Below is a copied bit of info taken
from a Kidney Transplant webpage:
Laparoscopic nephrectomy
Laparoscopic nephrectomy is a form of minimally invasive surgery using
instruments on long, narrow rods to view, cut, and remove the donor kidney. The
surgeon views the kidney and surrounding tissue with a flexible videoscope. The
videoscope and surgical instruments are maneuvered through four small incisions
in the abdomen, and carbon dioxide is pumped into the abdominal cavity to
inflate it for an improved visualization of the kidney. Once the kidney is
freed, it is secured in a bag and pulled through a fifth incision, approximately
3 in (7.6 cm) wide, in the front of the abdominal wall below the navel. Although
this surgical technique takes slightly longer than an open nephrectomy, studies
have shown that it promotes a faster recovery time, shorter hospital stays, and
less postoperative pain for kidney donors.
I hope you will pass this
around to all your Friends and associations. After all it
only takes one
person to step up. Feel free to call me ANYTIME my cell is on 7/24.
Or
email me at [email protected]
Thanks for reading!
Douglas (D.J) Wellington
Rancho Bernardo/ San Diego
858-776-3000
https://www.facebook.com/pages/Wellingtons-Kidney-Donor-Search/315150378524664?id=315150378524664&sk=info
www.facebook.com/kidneystories
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disease, chronic kidney disease, kidney for, diabetic, save my life, living
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KIDNEY STORIES: FIND A KIDNEY FOR KAYLEE AND TORI
Kaylee and Tori DePriest are sister's and live outside of
Dallas, Texas, and have been battling kidney disease for a total of 15 years.
Both girls are A+, but can receive a kidney from someone with either A or O
blood.
Description
Kaylee and Tori are sister's and have battling
kidney disease for a total of 15 years. They live in East Texas and both see
doctors in Dallas. Kaylee was diagnosed at the age of 5 and then two short years
later when Tori was 5 she was also diagnosed with Nephrotic Syndrome FSGS.
Kaylee is currently a freshman in college working on her Associates
degree in Forensic Science and wants to transfer... to Sam
Houston State to receive her Master's Degree in Forensic Science. Kaylee
received a kidney transplant from her maternal grandmother in 2002 and in 2010
she completed rejected. In 2011 Kaylee started dialysis first on hemodiaysis
and then switched to pd dialysis so that it would be easier to attend college.
In 2012 she had her transplanted kidney removed. She is currently on the
transplant list at Baylor Hospital through the Dallas Transplant Institute in
Dallas, Texas. The transplant coordinator in charge of potential donors is Val
Kysiak and her number is 214-358-2300. Kaylee is hoping to have a transplant
soon so that she can finish college and reach her dreams dialysis free.
Tori is a Junior in High School and is looking forward to graduation. She wants
to attend college locally and receive her RN's license and then transfer to
Baylor University to receive her degree and become a physician's assistant. She
wants to work with children who are battling kidney disease and who better to
understand what you are going through than a kidney patient. I (Tori's mom) was
able to give her a kidney in 2004 and two weeks ago she had to have her
transplant kidney removed and start dialysis. We are currently working on
getting her on the transplant list (I will update that information as soon as
possible). She is currently doing hemodialysis while we wait on the pd catheter
site to heal and her to receive her supplies needed to be able to do dialysis at
home.
I truly believe that the greatest gift I could have ever given
my child was a kidney a new lease on life. Believe me if I could give my other
kidney to one of the girls I would do it in a heart beat and go on dialysis
myself. As a kidney donor I am able to live a full life and the sickest I
have ever been is the common cold.
Thank you for considering "Sharing
Your Spare" for one of my girls.
https://www.facebook.com/pages/Find-a-Kidney-for-Kaylee-Tori/553775187987830?id=553775187987830&sk=info
www.facebook.com/facebook
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KIDNEY STORIES: KIDNEY FOR KRISTY
I am O+ and I need a kidney. Please spread the word
Description
The
family and friends of Kristy Martz Hood are uniting to help Kristy raise enough
money to be put on the Kidney transplant list this October 2011.
Kristy
was diagnosed with FSGS - Focal Segmental Glomerulosclerosis as a child and had
her first biopsy at age 6. FSGS is is a cause of nephrotic syndrome in children
and adolescents, as well as an important cause of kidney failure in adults.
Krist.y
is now an adult, and in desperate need of a new as she is in end stage renal
failure right now.
Kristy has to pay $5,000 OUT OF POCKET up front to
show that if and when she receives a kidney, that she can afford to pay the 20%
she would owe out of pocket on her prescription medicine for the first year
after the surgery. The medication that you take after a transplant to ensure
your body doesn't reject it's new organ is very costly. Hers will be just over
$25,000 which is why she needs to raise $5,000 herself.
You can learn
more about Kristy and her battle's by checking out her giveforward page.
Please pray for Kristy as she continues her battle against her Kidney
failure. The only way she can be successful is a Kidney transplant.
Description
The
family and friends of Kristy Martz Hood are uniting to help Kristy raise enough
money to be put on the Kidney transplant list this October 2011.
Kristy
was diagnosed with FSGS - Focal Segmental Glomerulosclerosis as a child and had
her first biopsy at age 6. FSGS is is a cause of nephrotic syndrome in children
and adolescents, as well as an important cause of kidney failure in adults.
Krist.y
is now an adult, and in desperate need of a new as she is in end stage renal
failure right now.
Kristy has to pay $5,000 OUT OF POCKET up front to
show that if and when she receives a kidney, that she can afford to pay the 20%
she would owe out of pocket on her prescription medicine for the first year
after the surgery. The medication that you take after a transplant to ensure
your body doesn't reject it's new organ is very costly. Hers will be just over
$25,000 which is why she needs to raise $5,000 herself.
You can learn
more about Kristy and her battle's by checking out her giveforward page.
Please pray for Kristy as she continues her battle against her Kidney
failure. The only way she can be successful is a Kidney transplant.
TAGS: Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
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donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: FIND A KIDNEY FOR KEVIN
This is an open Community Page to raise awareness about organ
donation and to help find a Living Kidney Donor for our friend, Kevin
Armstrong. Blood Type A+
Description
Kevin Armstrong is a 45 year old husband and
father who was raised in Queens, NY but now resides in Middletown, NY. Due to
complications from two previous Heart Transplants, his kidney function was
reduced to 20% back in 2004. He lost all kidney function in 2009 and has been on
daily Peritoneal Dialysis treatment ever since. In addition to surving two major
cardiac events,one of which saw Kevin wi...thout a
pulse for close to an hour, he has also survived being diagnosed and treated
with Chemotherapy for Non Hodgkins Large Cell Lymphatic Cancer - Stage 1 and has
been dealing with Type II Diabetes since 2002. Along with signifigant vision
loss due to high blood sugar during his last transplant, he has recently began
to have gall bladder issues.
We have started this effort not only to secure
a Living Donor for Kevin to help improve his quality of life but also to
highlight the fact that there are almost 100,000 people right now in the U.S.
that are waiting for Kidney transplants. The average wait time for a kidney
transplant is between 7-10 years.
What ever it is you can do to help our
effort to spread the word about Kevin's need, educate people about organ
donation, donate your time, money or effort to our cause or even just pass his
story along, we would greatly appreciate it.If you are interested in being
tested, please contact Ariella Tomback, Transplant Liason at The Mount Sinai
Recanati/Miller Transplantation Institute. She can be reached directly at
hospital at 212 659-8596 and on her work cell phone at 917-992-7504 between the
hours of 9AM-5PM Monday through Friday for the Initial Living Donor Phone
Consultation. If you have any questions for us, feel free to contact us directly
at 914-213-8437.
donation and to help find a Living Kidney Donor for our friend, Kevin
Armstrong. Blood Type A+
Description
Kevin Armstrong is a 45 year old husband and
father who was raised in Queens, NY but now resides in Middletown, NY. Due to
complications from two previous Heart Transplants, his kidney function was
reduced to 20% back in 2004. He lost all kidney function in 2009 and has been on
daily Peritoneal Dialysis treatment ever since. In addition to surving two major
cardiac events,one of which saw Kevin wi...thout a
pulse for close to an hour, he has also survived being diagnosed and treated
with Chemotherapy for Non Hodgkins Large Cell Lymphatic Cancer - Stage 1 and has
been dealing with Type II Diabetes since 2002. Along with signifigant vision
loss due to high blood sugar during his last transplant, he has recently began
to have gall bladder issues.
We have started this effort not only to secure
a Living Donor for Kevin to help improve his quality of life but also to
highlight the fact that there are almost 100,000 people right now in the U.S.
that are waiting for Kidney transplants. The average wait time for a kidney
transplant is between 7-10 years.
What ever it is you can do to help our
effort to spread the word about Kevin's need, educate people about organ
donation, donate your time, money or effort to our cause or even just pass his
story along, we would greatly appreciate it.If you are interested in being
tested, please contact Ariella Tomback, Transplant Liason at The Mount Sinai
Recanati/Miller Transplantation Institute. She can be reached directly at
hospital at 212 659-8596 and on her work cell phone at 917-992-7504 between the
hours of 9AM-5PM Monday through Friday for the Initial Living Donor Phone
Consultation. If you have any questions for us, feel free to contact us directly
at 914-213-8437.
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KIDNEY STORIES: THE SULTANA PROJECT
Please help find a kidney donor, with A/O blood type, for my beautiful friend
Ramsha Sultana. Her transplant center location is Medstar Georgetown University
Hospital- please message us regarding contact information or any other
questions. :) Description Like most students graduating college, Ramsha is full
of hopes and dreams. However, Ramsha’s dreams are much different than those of
her peers. Her one hope is to meet a donor willing and able to match her
transplant needs. Ramsha has been living off of dialysis for the last 4 years,
ever since she was a senior in high school. Growing up without a mother has been
a tragedy in and of itself and now she must function without one of her vital
organs. Please help Ramsha so that she can become a Nephrologist herself to help
others in the same condition as her. All you need to be is healthy with A+ blood
type. Feel free to message her with any questions or concerns you may have. https://www.facebook.com/pages/Kidney-Transplant-The-Sultana-Project/543735552332844?id=543735552332844&sk=info
Ramsha Sultana. Her transplant center location is Medstar Georgetown University
Hospital- please message us regarding contact information or any other
questions. :) Description Like most students graduating college, Ramsha is full
of hopes and dreams. However, Ramsha’s dreams are much different than those of
her peers. Her one hope is to meet a donor willing and able to match her
transplant needs. Ramsha has been living off of dialysis for the last 4 years,
ever since she was a senior in high school. Growing up without a mother has been
a tragedy in and of itself and now she must function without one of her vital
organs. Please help Ramsha so that she can become a Nephrologist herself to help
others in the same condition as her. All you need to be is healthy with A+ blood
type. Feel free to message her with any questions or concerns you may have. https://www.facebook.com/pages/Kidney-Transplant-The-Sultana-Project/543735552332844?id=543735552332844&sk=info
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KIDNEY STORIES: HELP OUR DADDY FIND A NEW KIDNEY
https://www.facebook.com/photo.php?fbid=622645711084932&set=pb.622636174419219.-2207520000.1364186038&&theater
16 years ago, Tony Bollin received a kidney transplant. Now a
father of one year old twins, that kidney is failing. Help us find a new donor
for a wonderful husband, father and friend.
Blood type O positive
UCLA
Transplant center in CA
Description
Tony
Bollin is Blood Type O positive
His transplant will take place at UCLA in
California
His Patient Coordinator at UCLA is Myrlin Agunod 310-267-6913
He will start dialysis in 6 weeks.
Last time he was on dialysis, waited 5
years for a kidney.
...
In his early 20's Tony had started his career at Edison International.
During a routine physical his blood pressure was sky high. He was quickly
rushed to the hospital. Kidney failure. They call it the silent killer. It
happens to men in the early and late 20's but they still don't know the cause.
Tony was on dialysis for 5 years when one night he got the call. A deceased
donor kidney was his if he could get to UCLA. For 16 years that kidney served
him well. We met 2002 and 9 years later got married on the beach in Kauai. In
January 2012 we welcomed twin girls into the world. The greatest gift we have
ever know. Tony travels for a living and was gone quite a bit the first year of
the babies lives. In fall of 2012 he was working in Blythe, Ca. When he would
come home over the weekend, I started to notice that he didn't look well. His
legs and ankles were swelling and he was not his sparkling self. He continued
to get his monthly blood work done and everything was holding steady. Until
January 2013. We all got the Nurovirus and that was all he needed to push him
over the edge. His creatinine level went up to a 4.7. His local Dr. told him
to go to the nearest hospital. He stayed there for a week before they sent him
home. His swelling was gone and his levels were slowing declining. But blood
work 2 weeks later showed in rising again. He went back to UCLA, they tried
steroids but his levels still went all the way up to 7.0. That was on Monday
March 18th. They told him it was too late. Renal Failure. We are now going
through the process of getting his surgery set up for the dialysis, getting him
back on the transplant list and adjusting our lives to keep our house and our
family together.
https://www.facebook.com/pages/Help-our-daddy-get-a-new-kidney/622636174419219?id=622636174419219&sk=info
www.facebook.com/kidneystories
16 years ago, Tony Bollin received a kidney transplant. Now a
father of one year old twins, that kidney is failing. Help us find a new donor
for a wonderful husband, father and friend.
Blood type O positive
UCLA
Transplant center in CA
Description
Tony
Bollin is Blood Type O positive
His transplant will take place at UCLA in
California
His Patient Coordinator at UCLA is Myrlin Agunod 310-267-6913
He will start dialysis in 6 weeks.
Last time he was on dialysis, waited 5
years for a kidney.
...
In his early 20's Tony had started his career at Edison International.
During a routine physical his blood pressure was sky high. He was quickly
rushed to the hospital. Kidney failure. They call it the silent killer. It
happens to men in the early and late 20's but they still don't know the cause.
Tony was on dialysis for 5 years when one night he got the call. A deceased
donor kidney was his if he could get to UCLA. For 16 years that kidney served
him well. We met 2002 and 9 years later got married on the beach in Kauai. In
January 2012 we welcomed twin girls into the world. The greatest gift we have
ever know. Tony travels for a living and was gone quite a bit the first year of
the babies lives. In fall of 2012 he was working in Blythe, Ca. When he would
come home over the weekend, I started to notice that he didn't look well. His
legs and ankles were swelling and he was not his sparkling self. He continued
to get his monthly blood work done and everything was holding steady. Until
January 2013. We all got the Nurovirus and that was all he needed to push him
over the edge. His creatinine level went up to a 4.7. His local Dr. told him
to go to the nearest hospital. He stayed there for a week before they sent him
home. His swelling was gone and his levels were slowing declining. But blood
work 2 weeks later showed in rising again. He went back to UCLA, they tried
steroids but his levels still went all the way up to 7.0. That was on Monday
March 18th. They told him it was too late. Renal Failure. We are now going
through the process of getting his surgery set up for the dialysis, getting him
back on the transplant list and adjusting our lives to keep our house and our
family together.
https://www.facebook.com/pages/Help-our-daddy-get-a-new-kidney/622636174419219?id=622636174419219&sk=info
www.facebook.com/kidneystories
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disease, chronic kidney disease, kidney for, diabetic, save my life, living
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KIDNEY STORIES: FIND A KIDNEY FOR CHERI
This is Cheri's search for an O type kidney match. She is 32
years old and from Holyoke, MA. To be tested, please contact Western New
England Renal and Transplant Associates, 100 Wason Avenue, Spfld, MA 01107 (413)
733-9666, Fax (413)750-3432.
Description
Cheri is 32 years old, and lives in
Massachusetts. She is the mother to a 13 year old son, David. At the age of 7,
Cheri was diagnosed with Membranoproliferative Glomerulonephritis Type II. At
the time, not much was known about it. Over the years her kidney function
gradually declined. At the age of 20 she began dialysis. She joined the
transplant list in 2008. After 10 years on dialysis and 4 yea...rs on the transplant list, she received the gift of a
kidney donation from an anonymous donor. Unfortunately, she began rejecting the
kidney right away. She was treated for humoral rejection with Plasmapheresis,
Intravenous Immunoglobulin(IVIG), Splenectomy, Rituximab, and Velcade.
Gradually, the kidney began to function well enough that she could stop
plasmapheresis. After the first year during one of the many kidney biopsies she
had, it was determined that the disease that caused her original kidney damage
had be detected in the new kidney. More is known about this disease and it is
now better known as Dense Deposit Disease. In short, the patient's own immune
system attack's the kidneys. There are currently no known guaranteed treatments.
When she received the news, she was told DDD is rare (2-3 people per million),
which means that there hasn't been a lot of research because there aren't enough
people to do studies on. She was asked to join a study with the University of
Iowa and told about a new drug that was being used experimentally. It is called
Soliris and at the time was labeled as the most expensive drug in the world. She
started this medication and after some time it was shown that her Proteinuria
was markedly reduced. Due to Acute rejection which caused damage to the kidney,
her kidney function dropped too low to sustain her health and she returned to
dialysis in March 2013.
Cheri's blood type is O. She is looking for any
person who is willing to offer her a live donation. A live donation would give
her the best chance for a successful transplant and would allow her to begin
Soliris treatments again, so that she would be prepared for the transplant
surgery and hit the ground running this time. Thanks to all who are considering
getting tested. Just the thought is gift enough.
Living Donation
information:
http://donatelife.net/understanding-donation/living-donation/
http://www.unos.org/donation/index.php?topic=living_donation
To be tested, please contact Cheri through this page, Email:
[email protected], or her Transplant Center:
Living Donation
Coordinator - Joyce Turtino
Western New England Renal and Transplant
Associates
100 Wason Avenue
Springfield, MA 01107
Transplant
Services(413)794-2321
http://www.baystatehealth.com/Baystate/Main+Nav/Clinical+Services/Departments/Surgery/Transplant+Surgery/Living+Kidney+Donor
http://wnerta.com/
https://www.facebook.com/cheri.kidney.search/info
www.facebook.com/kidneystories
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University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney
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list, fundraiser, donate life,
KIDNEY STORIES: GIVE A KIDNEY SAVE A LIFE
This page was set up to help raise awareness and mentor those
who are considering the life saving journey of living kidney donation.
Description
Journey with
me as I become a living kidney donor.
April 2nd is surgery day! I travel to
Boston this Sunday for my pre-anesthetic testing on Monday then fly back Monday
night. This allows me to cover my practice and additional week while awaiting
surgery.
WOW....
https://www.facebook.com/pages/Give-A-Kidney-Save-A-Life/349434898491484
www.facebook.com/kidneystories
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list, fundraiser, donate life,
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kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant
list, fundraiser, donate life,
KIDNEY STORIES: A KIDNEY FOR MY DAD
My name is Julie and my Dad, Jim, is in desperate need a of
kidney transplant. PLEASE help. He is blood type A+. He is compatible with As
and Os. We live in Massachusetts and he is working with the transplant team at
Tufts Hospital in Boston, MA.
Description
My Dad is in
stage 5 of PKD. He is only 59 years old. I wanted to be his donor, but he wants
me to "save" my kidney for my younger brother Jared, who has the same disease.
My father is the type of person who would do anything for anyone. Now it's my
turn to do something for him. I need to find him a donor. Please consider being
a live donor, or even just "liking" and "sharing" the page, to help me spread
the word. Thank you! ♥
He is compatable with blood types: A and O. The +
and - do not matter.
https://www.facebook.com/AKidneyForMyDad/info
www.facebook.com/kidneystories
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list, fundraiser, donate life,
KIDNEY STORIES: KIDNEY DONOR NEEDED FOR LARRY
My name is Larry Kanzer. I am a 71 year old on hemodialysis
since 2009 and on the transplant
list for almost 4 years. I am a father of 1
son, 1 stepson and 1 stepdaughter. I have
6 beautiful grandchildren and 3
greatgrandchildren.
Description
I live in
Milford, PA and on the transplant list at Geisinger Wyoming Medical Center
in Scranton, PA. My blood type in B+ but can accept B or O type. My
transplant
coordinator is Cristie Miller, RN. Her phone number is
800-645-1228. I need your help!
https://www.facebook.com/pages/Kidney-donor-needed/511756218874628?id=511756218874628&sk=info
www.facebook.com/kidneystories
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sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
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recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
KIDNEY STORIES: MOM SAVES THE COACH
Player's mom donates kidney to save coach's life
Mark Reid and Patty
Cowser
JoeyCowser.jpg
Patty Cowser and Mark Reid have lived a remarkable story over the past six
months. Reid coached her son Joey Cowser at Merrillville four years ago.
Reid's kidneys were failing, and Patty Cowser chose to donate one of hers to
save Reid's life. Both are doing fine and will speak at Saturday's National
Kidney Foundation's walk at Westfield Southlake mall.
March 22, 2013 9:00 pm • Steve Hanlon [email protected],
(219) 933-4198
SCHERERVILLE | The Peifer Elementary School second-graders listened closely
as a story was told to them Tuesday morning. It was a tale that could change
their life.
Patty Cowser, a teacher's aide at Peifer, walked in front of Doreen Webb's
class and spoke.
“I donated one of my kidneys to my son's old football coach,” Cowser said,
referring to coach Mark Reid.
“When she says 'old' what she really means is former football coach,” Reid
said with a laugh.
Cowser's and Reid's lives came together for a brief time in 2009. Joey Cowser
was a freshman football player at Merrillville. Reid was the Pirates ninth-grade
coach.
The bond the two made was extreme.
Reid had walked up to Joey Cowser, who had hair hanging down his back, and
said, “Hey, hippie, get a hair cut. You're going to be my quarterback.”
That night, Patty Cowser helped shave her son's head.
“Every day Joey would come home and say, 'Coach Reid said this,' or 'Coach
Reid said that.' Joey told me that Coach Reid wasn't just helping (him) be a
better football player. He was helping my son become a man.”
Time went on. Joey Cowser played football and baseball at Merrillville, where
he is now a senior. Reid left Merrillville and is now a varsity assistant at
Hobart.
But Patty Cowser saw a Facebook post last summer that brought these families
together again.
“If anyone has a kidney in the shed they're not using I need one,” Reid's
post said.
The 53-year-old diabetic's kidneys had failed. He said a lifetime of eating
chips, hamburgers and soda had caught up to him. Death was an option if a donor
wasn't found.
The teacher at Pierce Middle School was extremely ill.
“I weighed 310 pounds, I was aching from head to toe,” Reid told the students
at Peifer. “I had cramps all over my body. All that poison in my system was
stuck there.
“But that lady over there saved my life," he said about Patty Cowser. "It was
the greatest gift.”
On Saturday, Cowser and Reid will be guest speakers at the National Kidney
Foundation's walk at the Westfield Southlake mall at 10 a.m.
The transplant took place in January in Indianapolis. Six months of testing
took place to make sure Cowser would be a healthy match. The odds of a donor
being so close in your life is against the odds.
While Reid and Joey Cowser were together every day at football practice,
Patty Cowser and Reid only had met and talked once.
“Coach was so good to my son it was like I knew him even though I didn't,”
she said. “When I heard he was sick, I knew I could do it. I knew I had to help
if I could.”
Her husband, Dan, had to go along with the plan. And as the surgery date got
closer, so did the families.
Reid and Patty Cowser ate Popsicles together in the days after the
transplant.
Patty Cowser used to love ham. But since one of her two kidneys was taken,
she can't eat it without getting sick to her stomach.
“That's OK,” she told the children at Peifer. “I can live without it.”
Reid teared up in front of the class when he talked about the wonderful gift
he received.
“I have grandkids and now they can grow up to know their papa, and it's
because of this wonderful lady,” Reid said. “The only thing harder than asking
someone for one of their kidneys is saying thank you afterward.”
Patty Cowser has touched many by the blessing she gave to her son's former
coach. But she may have touched her son's life in a greater way.
“I think my mom is a superhero,” Joey Cowser said. “The transplant was
dangerous, happy and insane. I knew my mom was at peace with her decision. It's
great to have a new family member.”
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KIDNEY STORIES: SAVE MITCHELL
Thank you for following Mitchell Lyne's Kidney Transplant
Journey. The brave little guy received his 1st transplant @ 8-years-old, his 2nd
in 2010, and received his 3rd & hopefully final kidney on August 7, 2012!!!
www.savemitchell.com
Description{Savemitchell.com & this Facebook page
is managed by a family advocate, Mary Beth.}
A kidney donated from a
living donor has a greater chance of successfully working in a recipient and a
living donation has a greater life expectancy.
According to the Organ
Procurement and Transplant Network (OPTN), as of March 1, 2012, there are 91,030
people on the wait list to get a kidney in the US.
If you'd like more
information and make a donation, please visit http://savemitchell.com/
http://www.youtube.com/watch?feature=player_embedded&v=EQyopvpD8VQ
www.facebook.com/kidneystories
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seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
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seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: A KIDNEY TRANSPLANT FOR DAVID MAHNCKE
Become a living kidney donor for David
Mission
Our mission is to restore David’s good health and quality of life by encouraging healthy
individuals to consider being a living kidney donor. While dialysis is a
temporary solution to end stage kidney failure there can often be negative side
effects. Dialysis is not a fix all and the best solution to end stage kidney
failure is a kidney transplant. David could be on the deceased kidney donor
list for years before a kidney becomes available to him. A living kidney donor
is his best option. Your consideration is needed.
To be considered as
a kidney donor for David, contact:
Bonnie Konkowski, RN
Pre Kidney,
Pancreas Transplant coordinator
319-384-7042
[email protected]
Description
In
2000, David was diagnosed with IGA Nephropathy, also called Berger's disease. In
March, 2012 the disease took a turn for the worst. David is in stage five kidney
failure and is in need of a kidney transplant. In May, he was placed on the
deceased kidney transplant list; it could be 2 to 5 years before a kidney
becomes available to him by these means.
Another option is to find a
living kidney donor.
For a healthy person, one kidney is enough to filter blood properly through the
body. This leaves many with the option of donating a kidney to someone like
David. A kidney transplant for David would mean not being tied down to dialysis
and returning to a healthy, normal life.
Research has shown that
there's little long-term risk for kidney donation, provided you're carefully
screened before becoming a donor. As a potential kidney donor, you'll receive a
thorough medical exam to determine whether you're a good match for the potential
recipient. And you'll be carefully checked to make sure you don't have any
health problems that might be made worse by donating a kidney
At 28
years old, David and his wife love to travel, going camping and kayaking and
following the Waterloo Black Hawk. Love and support from family and friends has
made David's heath problems easier to deal with. To get medical updates and
information about becoming a kidney donor continue to follow "KIDNEY TRANSPLANT
FOR DAVID MAHNCKE" on Facebook.
Monetary Donations to the David Mahncke
Kidney Fund can be mailed to: David Mahncke Benefit c/o Veridian Credit Union,
1827 Ansborough Ave, Waterloo, Ia 50701
https://www.facebook.com/pages/Kidney-Transplant-for-David-Mahncke/429167253784252?id=429167253784252&sk=info
www.facebook.com/kidneystories
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KIDNEY STORIES: DR RON RICHMAN IS A KIDNEY STORIES SUCCESS STORY!
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KIDNEY STORIES
Tell your Kidney Story here! Are you on dialysis? On a transplant list? Where and who is your living donor coordinator? What is that person's contact information? Are you a significant other, caregiver? A coach? Advocate? Do you have a success story to tell? What is life like after a transplant? Do you have to have a 2d or 3rd transplant? Did you make a decision not to have a transplant? Share your story here. Are you a donor? Can you share your spare? Tell your tale, share a video, let us know what you think.
KIDNEY STORIES: I NEED A KIDNEY-CHIRSTIAN RICHARDSON
I am a mother in serious need of a new kidney. I am currently on a waiting list but I
am afraid that it is going to take years before I can find a new kidney. My
kidneys are currently at 8% function and deteriorating day by day. My disease
was diagnosed 10 years ago is called IgA Nephropathy. It is an auto immune
disease. Couple of years ago it was at stage 1-2 but became stage 5 when I got
pregnant. My daughter was born a micro preemie (1 lb 10 oz)
in May 2011. She spent 3 months at the NICU. Today, she is a very active,
beautiful, and a healthy little girl. I would like to live long to see her grow.
We have been through so much as a family and I would really like to see her
become the person that she is going to be. She is my miracle baby and I love her
very much. Potential donors must have a type A blood. If you would like to be my
kidney donor, please call Tammy Wright at 8586505016 for Christian Richardson. I
can never repay you but I will be eternally grateful. Thank you so very much.
Christian Richardson
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KIDNEY STORIES: FIND A KIDNEY FOR ROSE
My transplant center is UPMC in Pittsburgh. You can contact the
living donor coordinator at 412-647-5512 for more information on donating.
Please share your spare and share my page!!! Thank you!
For those of you wondering who I am, my name is Rose Stephenson. I am 26 yrs old,
have a 3 yr old daughter Haley, who is my pride & joy and miracle. I'm
engaged to a wonderfully supportive man who loves me unconditionally.
I was
diagnosed with Chronic Kidney Disease in 2010, which quickly progressed to End
Stage Renal Failure, putting me on peritoneal dialysis 7 days a week in March
2012. I have b...een
waiting on transplant list at UPMC since June 2012 and currently being evaluated
at Cleveland Clinic as well. Doctors say I would do best with a living donor,
which is why I am reaching out to all of you now! I am blood type B+ but willing
to check out paired exchanges as well. Please consider sharing your spare with
me! Or anyone in need for that matter!
Anyone wishing to help can contact
UPMC transplant center and speak to Maureen @ 412-647-5512. It will be anonymous
if you wish it to :) thanks for reading
https://www.facebook.com/FindAKidneyForRose
www.facebook.com/kidneystories
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organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
KIDNEY STORIES: BEAUTIFUL BRIDGETTE
A page for prayer and support for Bridgette and her family during this difficult
time. Description I am Tammy Simmering, Welcome to team Bridgette. I have
created this page for prayers and support for my daughter during her battle with
kidney disease. I will post updates on how Bridgette is doing and how her
journey is going. September 15th, 2008 Bridgette took sick. She went to the
local emergency room thinking she had a stomach virus. Within a few hours she
was told the news. She was in kidne…y failure. Cat scans were done and she was
told she had a very large kidney stone in each kidney. They put stents in to
lift the stone up some and to try and give her kidneys some relief. Soon after
that she went back into the hospital and had a bilateral nephrostomy on one
kidney to get the stone out and again a few weeks later on the next kidney. Her
kidneys started getting worse as time went on. March first 2010 she started on
dialysis. She is one of the lucky ones to be able to do dialysis at home. She
had a cath placed in her peritoneal cavity which has been replaced once already.
She hooks to a machine every night for 7 and a half hours and it does what her
kidneys should do. Bridgette is now on a list for a kidney transplant. She is
married to a wonderful man named Jeff and has two very sweet little girls.
Destiny is 10 and kalix is 7. I am hoping to spread awareness for organ donation
and try and help my daughter possibly find that donor she desperately needs. If
you have any questions please feel free to email me at [email protected]
If you or someone you know is interested in being a potential donor
please contact Ohio State University Medical Center Comprehensive Transplant
Center at 1-800-293-8965. Tell them you would like to be tested for a potential
kidney match for Bridgette Chandler, her blood type is A+. Thank you so much!!!
https://www.facebook.com/prayers4bridgette/info
www.facebook.com/kidneystories
time. Description I am Tammy Simmering, Welcome to team Bridgette. I have
created this page for prayers and support for my daughter during her battle with
kidney disease. I will post updates on how Bridgette is doing and how her
journey is going. September 15th, 2008 Bridgette took sick. She went to the
local emergency room thinking she had a stomach virus. Within a few hours she
was told the news. She was in kidne…y failure. Cat scans were done and she was
told she had a very large kidney stone in each kidney. They put stents in to
lift the stone up some and to try and give her kidneys some relief. Soon after
that she went back into the hospital and had a bilateral nephrostomy on one
kidney to get the stone out and again a few weeks later on the next kidney. Her
kidneys started getting worse as time went on. March first 2010 she started on
dialysis. She is one of the lucky ones to be able to do dialysis at home. She
had a cath placed in her peritoneal cavity which has been replaced once already.
She hooks to a machine every night for 7 and a half hours and it does what her
kidneys should do. Bridgette is now on a list for a kidney transplant. She is
married to a wonderful man named Jeff and has two very sweet little girls.
Destiny is 10 and kalix is 7. I am hoping to spread awareness for organ donation
and try and help my daughter possibly find that donor she desperately needs. If
you have any questions please feel free to email me at [email protected]
If you or someone you know is interested in being a potential donor
please contact Ohio State University Medical Center Comprehensive Transplant
Center at 1-800-293-8965. Tell them you would like to be tested for a potential
kidney match for Bridgette Chandler, her blood type is A+. Thank you so much!!!
https://www.facebook.com/prayers4bridgette/info
www.facebook.com/kidneystories
TAGS:
KIDNEY STORIES: FIND A KIDNEY FOR WONDERFUL RENETA
Virginia Mason (VM) Living Donor Transplant Team directly
1-800-354-9527 Ext 11201 – Living Donor Coordinator :Mary Mason Email:
[email protected]
Description
I am not sure how to proceed from here; it has been a roller coaster since the end of
May this year.
My kidney decided to fail on me at that time thanks to food
poisoning and now I am trying to find a donor so I can continue my passion of
cooking and enjoying the amazing friends and family I have.
I am 46 years
research and development chef, with an amazing husband and a TYPE B blood.
I need some...one
that is willing to donate a kidney that is either blood TYPE B OR O, I know that
is a big thing to ask and will not be something that everyone is willing to do,
but there is always a chance someone out there that will be the right person to
do so.
I will try to document the next steps on this journey that I have
started here so you all can follow and forward to other people that you think
would be willing to help some way. Feel free to invite others to this page so
more people learn about kidney disease and the many ways it changes our lives.
Happy Sunday to you all
Dealing with the reality this week, that doesn’t
matter how well I am doing with my diet and life style changes, I am just buying
time, there is no cure for end stage kidney disease.
We have treatments to
prolong our lives and that will help us have a good quality of life as long as
we can, one of those treatments is Dialysis and the other is the kidney
transplant and here are some facts we need to accept and live with.
Prognosis facts:
On the average once a person starts dialysis they live 4
years, once listed it takes an average of 5 years to get a kidney from a person
who is deceased, a transplant with a kidney from a deceased person last a
average a 10 years, a kidney from a Living donor last an average of 20 to 25
years.
Long terms studies have shown that people who are Living Donors
live a long and healthy life, a typical Living Donor is in the hospital for 2 to
3 days and misses a couple weeks of work. A living donor normally lives a normal
life.
All cost of the medical care for the living donor testing and
medical expense for the donation, surgery, hospital stay and others is paid by
my health insurance.
Like me there are many more people looking for
living donors to improve their chances, today in the USA there are 117,339
people waiting for a transplant and out of those 95,488 are looking for
kidneys.” Waiting list candidates as of today 12:37am. All, 117,339. Kidney,
95,488”
Most people have 2 kidneys and they only need one to live, so
think about living donation, help someone that needs a better chance and time in
life.
If you would be interested in donating to me please call Virginia
Mason (VM) Living Donor Transplant Team directly 1-800-354-9527 Ext 11201 –
Living Donor Coordinator : Mary Mason Email: [email protected] if Mary is not
available talk with any other coordinator.
1-800-354-9527 Ext 11201 – Living Donor Coordinator :Mary Mason Email:
[email protected]
Description
I am not sure how to proceed from here; it has been a roller coaster since the end of
May this year.
My kidney decided to fail on me at that time thanks to food
poisoning and now I am trying to find a donor so I can continue my passion of
cooking and enjoying the amazing friends and family I have.
I am 46 years
research and development chef, with an amazing husband and a TYPE B blood.
I need some...one
that is willing to donate a kidney that is either blood TYPE B OR O, I know that
is a big thing to ask and will not be something that everyone is willing to do,
but there is always a chance someone out there that will be the right person to
do so.
I will try to document the next steps on this journey that I have
started here so you all can follow and forward to other people that you think
would be willing to help some way. Feel free to invite others to this page so
more people learn about kidney disease and the many ways it changes our lives.
Happy Sunday to you all
Dealing with the reality this week, that doesn’t
matter how well I am doing with my diet and life style changes, I am just buying
time, there is no cure for end stage kidney disease.
We have treatments to
prolong our lives and that will help us have a good quality of life as long as
we can, one of those treatments is Dialysis and the other is the kidney
transplant and here are some facts we need to accept and live with.
Prognosis facts:
On the average once a person starts dialysis they live 4
years, once listed it takes an average of 5 years to get a kidney from a person
who is deceased, a transplant with a kidney from a deceased person last a
average a 10 years, a kidney from a Living donor last an average of 20 to 25
years.
Long terms studies have shown that people who are Living Donors
live a long and healthy life, a typical Living Donor is in the hospital for 2 to
3 days and misses a couple weeks of work. A living donor normally lives a normal
life.
All cost of the medical care for the living donor testing and
medical expense for the donation, surgery, hospital stay and others is paid by
my health insurance.
Like me there are many more people looking for
living donors to improve their chances, today in the USA there are 117,339
people waiting for a transplant and out of those 95,488 are looking for
kidneys.” Waiting list candidates as of today 12:37am. All, 117,339. Kidney,
95,488”
Most people have 2 kidneys and they only need one to live, so
think about living donation, help someone that needs a better chance and time in
life.
If you would be interested in donating to me please call Virginia
Mason (VM) Living Donor Transplant Team directly 1-800-354-9527 Ext 11201 –
Living Donor Coordinator : Mary Mason Email: [email protected] if Mary is not
available talk with any other coordinator.
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KIDNEY STORIES: JORDAN'S JOURNEY
This page is to offer support and allow for updates on Jordan
I. Sink who is undergoing another renal biopsy.
Jordan is a
13 yr old for Rocky Mount Virginia. He has already underwent a kidney transplant
7 years ago. However recent test have shown an increase in protein in his urine.
He goes having ruled out a viral cause UVA Medical Center has ordered another
renal biopsy for him on March 1st. This page is meant to provide updates as well
as support for Jordan and his family. We ask that everyone stay positive on this
page as well as being respectful. Anything deemed disrespectful and/or hateful
will not be tolerated.
I. Sink who is undergoing another renal biopsy.
Jordan is a
13 yr old for Rocky Mount Virginia. He has already underwent a kidney transplant
7 years ago. However recent test have shown an increase in protein in his urine.
He goes having ruled out a viral cause UVA Medical Center has ordered another
renal biopsy for him on March 1st. This page is meant to provide updates as well
as support for Jordan and his family. We ask that everyone stay positive on this
page as well as being respectful. Anything deemed disrespectful and/or hateful
will not be tolerated.
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KIDNEY STORIES: DUNCAN'S CUSTOM WREATHS
I started making these beautiful wreathes a few weeks ago as a form of therapy.
I have Polycystic Kidney Disease and it has robbed me of my ability to work. I
was sitting at home and decided I needed a hobby and was looking on ESTY at the
beautiful wreathes but man they are PRICEY!! I thought to myself I could do
that, and that is where it began. my first few wreathes I put up on fb and
everyone said I should sell them. So here I am and it is the best therapy I have
ever found. These wreathes make me feel like I have meaning and purpose again:)
and I can make someone else smile by making something pretty for them!!
I have Polycystic Kidney Disease and it has robbed me of my ability to work. I
was sitting at home and decided I needed a hobby and was looking on ESTY at the
beautiful wreathes but man they are PRICEY!! I thought to myself I could do
that, and that is where it began. my first few wreathes I put up on fb and
everyone said I should sell them. So here I am and it is the best therapy I have
ever found. These wreathes make me feel like I have meaning and purpose again:)
and I can make someone else smile by making something pretty for them!!
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organ donation, find a kidney for, NCS, share a spare, transplant list,
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KIDNEY STORIES: NEIL NEEDS A KIDNEY DONOR
I need a kidney donor. Please help spread the word: Join the
conversation here or at http://NeilNeedsAKidneyDonor.com/ - Blood type
is A+, registered at Mt Sinai Hosp in NYC - 212-659-8024.
Description
I am in
urgent need of a living donor as my family & friends were eliminated by my
transplant center. I have 2 daughters - 16 and 12 - and my wife works for a
French bank. As an educator, I used to teach High School Science. I am in
end-stage kidney failure with PKD inherited from my father.
Blood type
is A+, so either A or O would be a direct match.
I am in NYC,
registered in Region 9 thru Mt. Sinai.
If you can help on my behalf,
contact +1.212.659.8024.
https://www.facebook.com/NeilNeedsAKidneyDonor/info
www.facebook.com/kidneystories
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KIDNEY STORIES: HELP FIND OTTO A HERO
Otto Machado is a husband and a father to 3 kids. Otto is on
dialysis to stay alive to watch his kids grow up. Otto's only real HOPE is to
find him a kidney or as we say find his HERO.R U his HERO Call the Transplant
center at 612-625-5115.
Welcome to TEAM MACHADO we call ourselves a
team because that's what we are. We hope you follow our familys journey to find
Otto the GIFT OF LIFE and as Dani begins her journey as her little kidney's try
to maintain. If you have ever wanted to do something amazing think about
becoming a living donor, 17 people DIE every day waiting for the GIFT OF LIFE.
Keep on smilin....
Background Story
Otto was born with a X-linked condition
called Alport's. He has 3 brothers who also have it and have all had kidney
transplants. Otto had his 1st transplant in 1993 and that kidney did great until
2006, he had his flu shot October 31 2006 and got sick and just could not shake
it. December 22 2006 while at home he passed out and after many test and a
kidney biopsie we were told Otto's body went crazy making antibodies to fight
the flu but turned around and attacked his Kidney, he was now in failure and
needed a new one. The wait in Minnesota is 5-7 years. We have 3 amazing kids
Bryce is 13 Cierra is 10 and Dani(danika) is 8. We were told when we had kids
our boys would never have to worry about Alports but our girls would be carriers
and there was a 30% chance they could suffer after menopause. Well on July 5th
2007 our worst fears were confirmed Dani our baby is in Stage 2 renal failure
and is anemic due to her kidneys not working properly. This site will let
everyone know how Otto and Dani are doing. We are desperately looking for a
living donor for Otto so that he can get off dialysis and be the amazing father
his kids look up too. Otto needs someone with A or O blood type, 18-65 and
healthy. If you have ever thought about being a living donor call Kathy Garvey
612-625-5115 she's at the UofM and can send a packet full of info. Please keep
our family in your prayers as we search for the Gift of Life. Keep on
smilin.....Team Machado
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KIDNEY STORIES: DWIGHT NEEDS A KIDNEY
Hello, I am Dwayne Barrett, 30 years old and looking for a Kidney Donor.
I have been on Dialysis for 2 years.
This will be my second Kidney Transplant, the first one was September 23,
1999. Two years ago, during the blizzard 2011 I was hospitalized with the Flu
which cause Kidney failure. Keeping the faith that soon I will be living a
normal life again.
Not being able to work is no fun when your still young . Just to have
the energy and freedom of living a full life would be awesome.
Having my animals has kept me going. I have a Blue Healer that is full
of energy, a cat, Lucky that is ok with just laying and sleeping me with me
after treatment, 4 Blue Bullies that I love to take to Dog Shows. I will be
posting some of their pictures as well.
Thank you for taking the time for stopping by to read this Journey of
my life. I will promise to keep you updated at all time's.. if & when I do
hear the wonderful news of this new gift of life. God Bless
https://www.facebook.com/DwayneNeedsAKidney/info
www.facebook.com/kidneystories
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KIDNEY STORIES: FIND A KIDNEY FOR CLAUDIA
1. Searching for a living kidney donor.
2. My blood type is
O+
3. Transplant center is Tampa General Hospital
4. We do NOT have to
be a match for you to donate!
Description
PLEASE LIKE MY PAGE AND READ MY STORY:
My name is Claudia, but my friends and family call me Chick. I am 66 years old,
and I have been married to the love of my life for 41 years. I am a wife, a
mother, and a grandmother to a sweet little girl named Avery Grace. I am full
of love and laugher, and I believe there is still much more joy to be
experienced in my life. Unfortunately, I am in need ...of a new kidney. I was diagnosed with Polysistic
Kidney Disease (PKD) in 1978. I lost my mother to this same genetic disease in
1982. Although I have lived with PKD for 35 years, the symptoms took over my
life in March 2012. After being extremely ill and having my kidneys only
working at 3% together, I began dialysis in August 2012. I am hooked up to my
machine 10 hours a day/7 days a week. I know that everything happens for a
reason, and that this is all part of God's master plan for my life. But I am
looking for a living donor, an angel, who can give me back the life that PKD is
trying to take away from me.
After a year of testing and a run-in with
breast cancer (yes, I am a survivor!), I was officially added to the transplant
list in January 2013 at Tampa General Hospital in Tampa, Florida. Since my
blood type is O+, my wait time is 3 - 4 years on the current wait list. If I
can find a living donor, I can avoid having to wait that long. I am part of a
national pairing program that allows me to provide a living donor that is not
necessarily a perfect match for me. Unfortunately, since my illness is genetic,
I do not want my daughter to be tested. If she has the illness, it would
jeopardize her insurance needs forevermore. If she doesn't have it, she would
need to keep her kidneys in case my granddaughter has the gene. It's a
difficult decision, but if I had donated to my mom 30 years ago, I would not be
here today. Both of my kidneys working so little is what kept me alive until
dialysis. As much as she wants to help me, we've decided she needs to save her
kidneys. We have also decided my son-in-law should do the same in case he needs
to help my granddaughter in the future. Sadly, my devoted husband is too old by
living donor standards to donate. If you are reading my page and thinking about
becoming my angel, you do NOT have to be a perfect match for me thanks to the
pairing program. You just have to have a willing heart and good health (Tampa
General will not allow those with diabetes or blood pressure controlled by
medicine). Please consider becoming a living donor for me so that I can live my
life to the fullest again and not be limited by my symptoms and my illness. If
you would at least partner with me and share this page, and ask others to share
it, I would be eternally grateful. I am trusting that God will provide what I
need in His timing. And while I continue to wait, I can only hope that my story
will inspire someone and bless others in a meaningful way.
Thank you for
your time...be blessed!
Chick
https://www.facebook.com/FindAKidneyForClaudia/info
www.facebook.com/kidneystories
2. My blood type is
O+
3. Transplant center is Tampa General Hospital
4. We do NOT have to
be a match for you to donate!
Description
PLEASE LIKE MY PAGE AND READ MY STORY:
My name is Claudia, but my friends and family call me Chick. I am 66 years old,
and I have been married to the love of my life for 41 years. I am a wife, a
mother, and a grandmother to a sweet little girl named Avery Grace. I am full
of love and laugher, and I believe there is still much more joy to be
experienced in my life. Unfortunately, I am in need ...of a new kidney. I was diagnosed with Polysistic
Kidney Disease (PKD) in 1978. I lost my mother to this same genetic disease in
1982. Although I have lived with PKD for 35 years, the symptoms took over my
life in March 2012. After being extremely ill and having my kidneys only
working at 3% together, I began dialysis in August 2012. I am hooked up to my
machine 10 hours a day/7 days a week. I know that everything happens for a
reason, and that this is all part of God's master plan for my life. But I am
looking for a living donor, an angel, who can give me back the life that PKD is
trying to take away from me.
After a year of testing and a run-in with
breast cancer (yes, I am a survivor!), I was officially added to the transplant
list in January 2013 at Tampa General Hospital in Tampa, Florida. Since my
blood type is O+, my wait time is 3 - 4 years on the current wait list. If I
can find a living donor, I can avoid having to wait that long. I am part of a
national pairing program that allows me to provide a living donor that is not
necessarily a perfect match for me. Unfortunately, since my illness is genetic,
I do not want my daughter to be tested. If she has the illness, it would
jeopardize her insurance needs forevermore. If she doesn't have it, she would
need to keep her kidneys in case my granddaughter has the gene. It's a
difficult decision, but if I had donated to my mom 30 years ago, I would not be
here today. Both of my kidneys working so little is what kept me alive until
dialysis. As much as she wants to help me, we've decided she needs to save her
kidneys. We have also decided my son-in-law should do the same in case he needs
to help my granddaughter in the future. Sadly, my devoted husband is too old by
living donor standards to donate. If you are reading my page and thinking about
becoming my angel, you do NOT have to be a perfect match for me thanks to the
pairing program. You just have to have a willing heart and good health (Tampa
General will not allow those with diabetes or blood pressure controlled by
medicine). Please consider becoming a living donor for me so that I can live my
life to the fullest again and not be limited by my symptoms and my illness. If
you would at least partner with me and share this page, and ask others to share
it, I would be eternally grateful. I am trusting that God will provide what I
need in His timing. And while I continue to wait, I can only hope that my story
will inspire someone and bless others in a meaningful way.
Thank you for
your time...be blessed!
Chick
https://www.facebook.com/FindAKidneyForClaudia/info
www.facebook.com/kidneystories
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list, fundraiser, donate life,
KIDNEY STORIES: FIND A KIDNEY FOR ROBERT
Aloha! I have Blood type B. I have been on Hemo Dialysis for more than 14
years now. I am looking for a compatible kidney to mines. I started
Dialysis in 2000. I have diabetes, High blood pressure & Gout. God
Bless!
Description
As u guessed I am from Hawaii on the Island of
Maui. I would like to see my grandson grow up to be a strong young man &
have the strength to help others without being so tired cause of kidney disease.
If u wish to help me find a kidney. Please call Nicki at #415-794-9023 to become
a Donor. She is my Social worker at UCSF. This is Located in San Francisco.
Thank u so much & God bless
https://www.facebook.com/pages/Find-Robert-a-Kidney/561253713899302?id=561253713899302&sk=info
www.facebook.com/kidneystories
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list, fundraiser, donate life,
KIDNEY STORIES: KIDNEY FOR JASON
Need a Kidney Donor with a blood type of A+, A- or O
If you would be
interested in donating please contact Helen Stamy Pena, RN
at The
Montefiore Einstein Center for Transplant
at 718-920-8483 or [email protected]
Hello Everyone! I am reaching out to the community in hopes of finding my
fiance Jason Calderon a kidney. He is a final stage renal patient and has zero
kidney function. He has dialysis 3 times a week for 4 1/2 hours at a time.
He lives in The Bronx, New York. A tattoo artist who loves to create
beautiful artwork for his human canvases but his health sometimes leaves him
with barely any energy... to draw. Not one to be down on himself he puts a bold
face forward and most of his clients have no idea of his health
issues.
No children but would love to start a family soon.
I am reaching out to you because I know somewhere out there is his angel of hope
and I just need to find them.
Thank you all for your time and live,
laugh and most of all love.
https://www.facebook.com/pages/A-Kidney-for-Jason/230912480296677?id=230912480296677&sk=info
www.facebook.com/kidneystories
If you would be
interested in donating please contact Helen Stamy Pena, RN
at The
Montefiore Einstein Center for Transplant
at 718-920-8483 or [email protected]
Hello Everyone! I am reaching out to the community in hopes of finding my
fiance Jason Calderon a kidney. He is a final stage renal patient and has zero
kidney function. He has dialysis 3 times a week for 4 1/2 hours at a time.
He lives in The Bronx, New York. A tattoo artist who loves to create
beautiful artwork for his human canvases but his health sometimes leaves him
with barely any energy... to draw. Not one to be down on himself he puts a bold
face forward and most of his clients have no idea of his health
issues.
No children but would love to start a family soon.
I am reaching out to you because I know somewhere out there is his angel of hope
and I just need to find them.
Thank you all for your time and live,
laugh and most of all love.
https://www.facebook.com/pages/A-Kidney-for-Jason/230912480296677?id=230912480296677&sk=info
www.facebook.com/kidneystories
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KIDNEY STORIES: KIDNEY FOR ERICA
My name is Erica Morse My Blood Type is O+.
I am 25 years old
and have been on dialysis since august 2012.
University Of Tennessee
Medical Center For Transplantation
865-305-9236
I am a Kidney
Transplant Recipient for 14 years now.
In order to be tested you will need to contact:
University Of
Tennessee Medical Center For Transplantation
865-305-9236
My
Blood Type is O+
My kidney is 14 years old and is finally giving out
because 14 years is the max they expect
a living donors kidney to
last.
God has gave me to much for me to not take care of my kidney.
https://www.facebook.com/FindAKidneyForErica/info
www.facebook.com/kidneystories
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KIDNEY STORIES: DONOR B OR O TYPE NEEDED FOR SON
Adam is 22 yrs old and in need of a donor that is blood types B
or O.
Description
Adam
was diagnosed at 17 years old. He's had his schooling, life, and everything he
knew ripped from him. He loves to make music, create pictures on his computer,
socialize (we call him a social butterfly)lol, He loves comedy, making people
laugh and going to work with me to make my patients smile and laugh as well. One
thing that stands out about Adam is that he has a huge heart! He would give
yo...u
anything to see you not suffer. He is the bright light in his dialysis center.
All the other patients greet him with smiles and hugs three times a week when he
gets there to do his session. Here is the hospital information for London,
Ontario, Canada (please bare with us, we are working with William Beaumont in
Detroit, Michigan to get him set up stateside. He needs a B or an O type kidney.
On the www.majorhope.ca website you will see his
story, information links, supporting businesses that are helping with our search
for a donor for him. Here's the hospital information, Call them and they will
tell you what needs to be done. They do participate in the International
Transplanting Program.
Here is the Hospital that he would be going to
within Canada.
London Health Sciences Centre
P.O. Box 5339
339
Windermere Road
London, ON N6A 5A5
Phone: 519-685-8500 (ext. 35932)
Fax: 519-663-3858
State that its for Adam Carter in Windsor, Ontario.
♥
For the American Hospital, we are still gathering all that is
necessary for them before we can give their number to contact regarding a
donation to Adam. Again, thank you all so much! You all are truly angels!!!
♥
If your interested in donating to my son you can call (519) 962-9916
or if you know you would be a match and are willing to donate you can fax your
information to: C. Paquette C/O Major Hope Fax number is (519)962-9950 Attention
Adam Carter.
https://www.facebook.com/pages/Kidney-Donor-B-or-O-type-needed-for-my-son/214293962028945?id=214293962028945&sk=info
www.facebook.com/kidneystories
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KIDNEY STORIES: MOM AND ME NEED A KIDNEY
My mom and I both have PKD (polycystic kidney disease) and both
need a kidney transplant. Follow our page to keep up to date on our progress
and to learn how you can help.
Ilana (mom) is blood type A, and can receive a
kidney from someone who is blood type A or O. To find out about being tested as
a possible match for Ilana please call her transplant coordinator at St.
Joseph's Hospital, Tracey Hamilton at 905-522-1155 ext 33193.
Arie (son)
is blood type O and can only receive a kidney from someone who is blood type O.
To find out about being tested as a possible m...atch for
Arie please call the live donor transplant coordinator at St. Michael’s
Hospital, Maureen Connelly at 416-867-3676.
If you are comfortable, it
is always best to let us know when you have called the hospital. You can share
that with us either through a private message on this page, or email us at
[email protected]
If you are not a match to either Arie or
Ilana but are still interested in learning more about being an altruistic kidney
donor please call one of the transplant coordinators at St. Joseph's Hospital -
there are many other people waiting - your call could change their
life.
https://www.facebook.com/MomAndMeNeedAKidney/info
www.facebook.com/kidneystories
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KIDNEY STORIES: HUSBAND SAVES WIFE
Wednesday, September 12, 2012
Clarksburg man donates a kidney to his wife
“I just did what I hope anybody would do”
by Morgan Young Staff writer
About four months ago
Jamie Klein Dubendorf couldn’t walk up the stairs in her Clarksburg home without
almost passing out. Now, thanks to a new kidney from her husband, she has no
trouble.
For seven years, Jamie, 29, had been feeling “a little off.” She said she
constantly felt tired but didn’t know why.
“I started losing my appetite,” she said. “It sucks the life out of you. I
literally felt like a walking corpse.”
Jamie said she visited her doctor in 2005 about the symptoms, which included
extreme fatigue, but wasn’t able to get any answers about what she was suffering
from.
“My kidney function was elevated, but [my doctor] said ‘You’re young, you
have nothing to worry about,’” she said.
“The doctor would say ‘Oh you’re fine,’ and she would still not feel right,
it was the same thing over and over,” said her husband, James Dubendorf, 25.
After being misdiagnosed again in 2009, Jamie was able to get some of her
blood test results. It was after some online research and a conversation with a
representative from the American Kidney Foundation that she realized that
something was wrong.
It was during the couple’s engagement in 2009 that Jamie was diagnosed with
focal segmental glomerulosclerosis — a form of kidney disease that can cause
kidney failure.
“At [first] I don’t think it felt real to me, so I wasn’t that upset about
it,” she said. “Later that day I was like ‘Oh my gosh, I have kidney
disease.’”
After four years of dating, Jamie and James were married on March 27, 2010,
in Beltsville.
Less than a year later, Jamie received the news that she needed a kidney
transplant.
While waiting to be placed on the transplant list she said she lost her job
doing accounting work and was diagnosed with celiac disease, a digestive
condition triggered by consuming gluten.
“I had a couple of bumps in the road,” she said.
Jamie was placed on the kidney transplant list in February of this year. Soon
after, James, as well as Jamie’s sister and her brother-in-law were tested to
see if they were a match. In the end, James was the best match for the
donation.
“I didn’t think twice,” James said. “For me just actually seeing her every
day suffering, I really wanted her to be better.”
“I was so thankful that he was donating his kidney. It is the most amazing
thing you can do for anybody. You’re literally saving somebody’s life,” she
said. “But in a way, while I was sick, I felt kind of guilty like he was forced
to do it. Of course he didn’t view it like that.”
The surgery took about three hours for James and four for Jamie. Without
James’s kidney, Jamie said she could have waited at least two years for another
donor.
The two had the transplant on May 11 at the University of Maryland Medical
Center in Baltimore. Four days after the surgery the couple returned home.
“I could have gone home earlier but I stayed because she was there,” James
said.
Now, four months later, Jamie has overcome a few complications, including
hydronephrosis — an obstruction in the urinary tract — and said she is feeling
much better.
“I can’t complain because I have a kidney now, and I’m feeling a lot better
than I was,” she said. “It’s the most amazing feeling.”
“Even when she was in the hospital you could just tell she was feeling
better,” James said. “It was like when I first met her. I told her ‘I got my
Jamie back.’”
Doctors have told Jamie that the first year is the most critical, as they
watch for signs of rejection and other complications. Jamie will have to take
medication for the rest of her life.
As for the couple, they say they are closer than ever.
“You just kind of form a closer bond, I mean his organ is inside me,” Jamie
said. “How could we not be closer.”
“I love her to death, and I’m just glad that I can see her healthy again,”
James said.
To Jamie and her family James is a hero, a label that he says he doesn’t like
to give himself.
“Her dad just keeps telling me ‘I’ll never be able to thank you enough,’” he
said. “I just did what I hope anybody would do.”
[email protected]
<img src="http://ic.pics.livejournal.com/kidneystories54/60578284/10315/10315_900.jpg"
alt="JAMES AND JAIME" title="JAMES AND JAIME" width="800" height="560" />
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KIDNEY STORIES: HELP FIND A KIDNEY FOR LESLIE
Leslie needs a kidney transplant! He has kidney failure and is on
dialysis. He would really like for you to help him out and locate a possible
doner! Interested Donors please call UAB Transplant @ 888-822-7892
or205-975-9200
Description
My name is Leslie R. Boling, I currently reside in Calhoun County AL. I’m searching for
individuals that might be interested in donating a kidney. I suffer from
Polycystic Fibrosis. I would very much like to beat the odds here when it
comes to waiting 7-10 years. If you’ve ever thought of donating an organ to help
someone here’s your chance. If interested please contact me at 256-473-1645 or
[email protected] Thank you for taking the time to read this.
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donate life,
KIDNEY STORIES: KIDNEY FOR KEN
With the love of family and friends, I have started a blog to
share, to support, to educate, to help, and ultimately to find a kidney for
Ken
Description
Ken
and I were married in 1972 and are blessed with 3 amazing children, Stefanie,
Greg and Kelly, and three beautiful grandchildren, Addie, Sophie, and Jillie. In
addition to being a wonderful husband, father, and grandfather, Ken is an avid
golfer, a diehard New Orleans Saints fan, and very active in his church and
community. In November 1998 at his routine yearly doctor’s appointment, a test
revealed something that was wrong with Ken’s kidneys.
After more invasive testing was done, he was diagnosed with Focal Segmental
Glomerulosclerosis, later changed to Membranous Nephritis. Here was a man who
was healthy with normal blood pressure, cholesterol, and weight. He had no
illnesses or diseases and no unusual symptoms. How could this happen? And so the
journey began – a quest to find answers, solutions, and treatments. With the
love and encouragement of my generous family and friends, I have started this
blog to support Ken, to educate and help others in similar situations, and
ultimately to find a kidney for Ken.
https://www.facebook.com/AKidneyForKen
www.facebook.com/kidneystories
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donate life,
KIDNEY STORIES: FROM HOSPITAL TO COMMANDER'S PALACE
Tuesday, February 26,
2013
From A Hospital To Commander's Palace...
First,
let me wish you all a belated but Happy New Year. I hope everyone had a
wonderful holidays with family and are off to a great start this year. I know
it has been quite some time since my last post. And so as I sat in the hospital
over the last week with Ken, I decided it was time to bring all of you up to
speed on the past couple months and tell you the latest story of our continuing
journey:
This story begins over
the holidays when Ken started having problems with his foot, horrible pain that
had him hobbling around. It lasted a few weeks, but finally it got better.
Remember with Ken's suppressed immune system a simple cold can turn into
pneumonia so every pain, cut, cough, and cold has to be taken care of
immediately. As the new year started, Ken just did not feel well. He was
still fighting a lingering cough, headaches and high blood pressure. One
morning he woke up complaining of chest and neck pain. I was ready to head to
the ER, but Ken was told to go get blood work done and a chest x-ray. Do
you know when you get that feeling that something is wrong? Well I got it as we
were waiting to be called in for the x-ray. Later that afternoon the doctor
called and told us to head to the ER. The X-ray was normal. It was not
his lungs but maybe his heart. They took an EKG and the cardiologist came
in and before I knew it they were running with him down the hall. By the time
they got in the room, three doctors and 4 nurses were working on him. It felt
like an episode of the television show ER. The cardiologist started asking him
questions and getting him to sit up and breath in and then bend over and breath
in. Ken had no pain when he was bending forward. The doctor told the nurses to
stop. He was not having a heart attack but had pericarditis - an inflammation
of the lining of the heart. He was in the hospital for 5 days. They gave him
powerful antibiotics intravenously. Ran all sorts of tests, one of which found
a spot on his lung which was a big worry and concern for us. After 5 days, they
sent Ken home on an oral antibiotic that had significant side
effects. Well, if it was a side effect, Ken seemed to experience it. He
had phlebitis in one arm from the IV. Then he started getting a painful
swelling in his other arm and on the bridge of his nose and on the back of his
heel. The doctors finally took him off of the antibiotic, but the damage had
already been done. He was followed up then by a pulmonary doctor who
decided the spot on his lung was from the blood clots he had in his lungs back
in October shortly after the surgery. He put him through a series of breathing
tests and he passed with flying colors. But he still did not feel good. His
blood work started showing that something was going on with the new
kidney.
On Friday February 15,
Ken was admitted to the hospital again, put back on the transplant floor
getting medicine intravenously to drop the level of Coumadin low enough to
safely have another kidney biopsy on that Monday, the 18th. The doctors assured
us that whatever the diagnosis there was medicine to treat the problem.
This is where the emotional roller coaster started again. The consensus
among the staff was that the original kidney disease that caused his kidneys to
fail in the first place was back in the new kidney. It was so scary
thinking about that. We prayed so hard this would not be the case. The
doctors reassured us that there was medicine to treat it; however, medicine
that had serious side effects. The second possibility was the virus he
has been battling since shortly after the transplant - known as the BK virus -
was in the new kidney. Again there was medicine to treat that which also
had serious side effects. Then there was a third possibility - the kidney
was rejecting. There are two types of rejections - acute and
chronic. Obviously the acute is easier to treat and can be stopped
whereas the chronic can be treated but the results are not as good. That
weekend before the biopsy was one filled with worry, fear, and uncertainty. So
we did what we knew best, what has comforted us the most in our lives, prayed
and put our fears into God's hands. Ken and I received information from our
friend Charlotte about people from Blessed Father Seelos shrine that come to
the hospital and pray with the patients. We immediately called and a
gentleman came. He prayed with us and talked to us. Ken held the
cross on his kidney and prayed. It was so comforting and emotional for
both of us. The next morning the biopsy was done. The results would
not be available for 36 hours. The waiting was hard and the doctors still
felt like it was the original kidney disease attacking his new kidney.
Finally the morning came and the doctor told us it was not the original kidney
disease. I was ready to dance and shout but that didn't last long because
the next words were we still don't know what it is so they are testing
more. We waited again praying that God would continue to hold our hands
on this journey. Results came in - no BK virus was found. Now I
really wanted to dance, but they still didn't have an answer. So another test
would be performed. Finally on Friday, the doctors told us that the
kidney was experiencing a mild acute rejection. It would be treated with
infusions of steroids combined with a change in his medicine regimen. A sigh of
relief, a look to the heavens, and a prayer of thankfulness and praise to
God!!!!!
Ken,
Pat, Kelly, and our amazing donor AlexSo we are finally home
after 8 days in the hospital. Ken will have another biopsy in 2 weeks to
make sure the kidney is not rejecting and the medicines are working. He
will continue to have challenges with the effects of the infusions, but we are
determined to enjoy each and every moment. We are looking forward to spending
more time with family and friends. Just one day out of the hospital, and Ken
and I were eating Sunday brunch at Commander's Palace with Kelly and Alex (see
picture above). We have learned that the bumps in the road continue but with
God holding our hands we are safe. We also know that we are surrounded by an
army of amazing friends and family who keep praying for us and following this
blog. Your support and love continues to carry us through every obstacle and
challenge on this road to recovery.
Until next time may the
Lord carry us on our journey,
Pat
2013
From A Hospital To Commander's Palace...
First,
let me wish you all a belated but Happy New Year. I hope everyone had a
wonderful holidays with family and are off to a great start this year. I know
it has been quite some time since my last post. And so as I sat in the hospital
over the last week with Ken, I decided it was time to bring all of you up to
speed on the past couple months and tell you the latest story of our continuing
journey:
This story begins over
the holidays when Ken started having problems with his foot, horrible pain that
had him hobbling around. It lasted a few weeks, but finally it got better.
Remember with Ken's suppressed immune system a simple cold can turn into
pneumonia so every pain, cut, cough, and cold has to be taken care of
immediately. As the new year started, Ken just did not feel well. He was
still fighting a lingering cough, headaches and high blood pressure. One
morning he woke up complaining of chest and neck pain. I was ready to head to
the ER, but Ken was told to go get blood work done and a chest x-ray. Do
you know when you get that feeling that something is wrong? Well I got it as we
were waiting to be called in for the x-ray. Later that afternoon the doctor
called and told us to head to the ER. The X-ray was normal. It was not
his lungs but maybe his heart. They took an EKG and the cardiologist came
in and before I knew it they were running with him down the hall. By the time
they got in the room, three doctors and 4 nurses were working on him. It felt
like an episode of the television show ER. The cardiologist started asking him
questions and getting him to sit up and breath in and then bend over and breath
in. Ken had no pain when he was bending forward. The doctor told the nurses to
stop. He was not having a heart attack but had pericarditis - an inflammation
of the lining of the heart. He was in the hospital for 5 days. They gave him
powerful antibiotics intravenously. Ran all sorts of tests, one of which found
a spot on his lung which was a big worry and concern for us. After 5 days, they
sent Ken home on an oral antibiotic that had significant side
effects. Well, if it was a side effect, Ken seemed to experience it. He
had phlebitis in one arm from the IV. Then he started getting a painful
swelling in his other arm and on the bridge of his nose and on the back of his
heel. The doctors finally took him off of the antibiotic, but the damage had
already been done. He was followed up then by a pulmonary doctor who
decided the spot on his lung was from the blood clots he had in his lungs back
in October shortly after the surgery. He put him through a series of breathing
tests and he passed with flying colors. But he still did not feel good. His
blood work started showing that something was going on with the new
kidney.
On Friday February 15,
Ken was admitted to the hospital again, put back on the transplant floor
getting medicine intravenously to drop the level of Coumadin low enough to
safely have another kidney biopsy on that Monday, the 18th. The doctors assured
us that whatever the diagnosis there was medicine to treat the problem.
This is where the emotional roller coaster started again. The consensus
among the staff was that the original kidney disease that caused his kidneys to
fail in the first place was back in the new kidney. It was so scary
thinking about that. We prayed so hard this would not be the case. The
doctors reassured us that there was medicine to treat it; however, medicine
that had serious side effects. The second possibility was the virus he
has been battling since shortly after the transplant - known as the BK virus -
was in the new kidney. Again there was medicine to treat that which also
had serious side effects. Then there was a third possibility - the kidney
was rejecting. There are two types of rejections - acute and
chronic. Obviously the acute is easier to treat and can be stopped
whereas the chronic can be treated but the results are not as good. That
weekend before the biopsy was one filled with worry, fear, and uncertainty. So
we did what we knew best, what has comforted us the most in our lives, prayed
and put our fears into God's hands. Ken and I received information from our
friend Charlotte about people from Blessed Father Seelos shrine that come to
the hospital and pray with the patients. We immediately called and a
gentleman came. He prayed with us and talked to us. Ken held the
cross on his kidney and prayed. It was so comforting and emotional for
both of us. The next morning the biopsy was done. The results would
not be available for 36 hours. The waiting was hard and the doctors still
felt like it was the original kidney disease attacking his new kidney.
Finally the morning came and the doctor told us it was not the original kidney
disease. I was ready to dance and shout but that didn't last long because
the next words were we still don't know what it is so they are testing
more. We waited again praying that God would continue to hold our hands
on this journey. Results came in - no BK virus was found. Now I
really wanted to dance, but they still didn't have an answer. So another test
would be performed. Finally on Friday, the doctors told us that the
kidney was experiencing a mild acute rejection. It would be treated with
infusions of steroids combined with a change in his medicine regimen. A sigh of
relief, a look to the heavens, and a prayer of thankfulness and praise to
God!!!!!
Ken,
Pat, Kelly, and our amazing donor AlexSo we are finally home
after 8 days in the hospital. Ken will have another biopsy in 2 weeks to
make sure the kidney is not rejecting and the medicines are working. He
will continue to have challenges with the effects of the infusions, but we are
determined to enjoy each and every moment. We are looking forward to spending
more time with family and friends. Just one day out of the hospital, and Ken
and I were eating Sunday brunch at Commander's Palace with Kelly and Alex (see
picture above). We have learned that the bumps in the road continue but with
God holding our hands we are safe. We also know that we are surrounded by an
army of amazing friends and family who keep praying for us and following this
blog. Your support and love continues to carry us through every obstacle and
challenge on this road to recovery.
Until next time may the
Lord carry us on our journey,
Pat
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kidney disease, chronic kidney disease, kidney for, diabetic, save my life,
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KIDNEY STORIES: A KIDNEY FOR DAVID
David is a 34 year old devoted father and wonderful husband with ESRD
(End Stage Renal Disease). He has been on dialysis and waiting for a kidney
since 2008. He is blood type O+. Please click about below to learn more about
his story.
Description
At
the age of 14, David got strep throat. When it was left untreated by his
physician, it shut down his vital organs resulting in both of his kidneys being
severely damaged which is known as post-streptococcal glomerulonephritis. He was
able to maintain a normal life on medication for 14 more years. In 2008, David
began Peritoneal Dialysis. In 2012, David had to begin hemodialysis as PD was no
longer working well. David would like to receive
a kidney so that he can resume a normal life again and be able to work full time
and be more active in playing with his 2 year old son. David is listed at Loyola
University Medical Center in Maywood, IL. You may reach out to Loyola
Transplant's Team at 708-327-4897.
https://www.facebook.com/pages/A-Kidney-for-David/161517517339251?id=161517517339251&sk=info
www.facebook.com/kidneystories
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KIDNEY STORIES: POLLY'S KIDNEY
I am a 41 year old single mother of 3 needing a kidney
transplant. My blood type is O and my transplant center is located in Indiana.
I've been on dialysis since August 1, 2011. Please help me.....
Description
I
was diagnosed with kidney disease at the age of 14 and had my 1st transplant at
15; the kidney came from my mother. It lasted 21 years and I had no issues at
all. But it rejected in 2007. My 2nd transplant was in 2008 from my brother.
However, it only lasted 3 years before it rejected due to medication
complications. I started on peritoneal dialysis but soon found out that I have a
leak in my di...aphram that's causing fluid to enter into my lung
cavity. So I am now on hemo dialysis until the leak can be repaired. My body
does not tolerate hemo very well. I'm very sick and fatigued while on it making
me worthless to my children. I am in desperate need of another transplant. I
just need one more chance at this life. Please consider donating your spare
kidney and help save my life and give my children their mother back; healthy and
whole. I don't know how long I can tolerate living this way. I'm just
existing...I want to be living. Thank you!
https://www.facebook.com/pages/Pollys-Kidney/217851588297408
www.facebook.com/kidneystories
transplant. My blood type is O and my transplant center is located in Indiana.
I've been on dialysis since August 1, 2011. Please help me.....
Description
I
was diagnosed with kidney disease at the age of 14 and had my 1st transplant at
15; the kidney came from my mother. It lasted 21 years and I had no issues at
all. But it rejected in 2007. My 2nd transplant was in 2008 from my brother.
However, it only lasted 3 years before it rejected due to medication
complications. I started on peritoneal dialysis but soon found out that I have a
leak in my di...aphram that's causing fluid to enter into my lung
cavity. So I am now on hemo dialysis until the leak can be repaired. My body
does not tolerate hemo very well. I'm very sick and fatigued while on it making
me worthless to my children. I am in desperate need of another transplant. I
just need one more chance at this life. Please consider donating your spare
kidney and help save my life and give my children their mother back; healthy and
whole. I don't know how long I can tolerate living this way. I'm just
existing...I want to be living. Thank you!
https://www.facebook.com/pages/Pollys-Kidney/217851588297408
www.facebook.com/kidneystories
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seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: KIDNEY TRANSPLANT FOR LUIS TOVAR
LINKS:
Medication Costs
1.http://co121w.col121.mail.live.com/default.aspx#!/mail/ViewOfficePreview.aspx?messageid=9fedcdd9-58e1-11e2-b2f7-00215ad82428&folderid=00000000-0000-0000-00
Account Number
2. Pending
Description
Please help save Luis Tovars' life. He is in End
Stage Renal Failure. His only hope
now is to get a kidney transplant (which
we are already in the process of finding
compatibility). The specialists at
the hospital have told us that all we need to do
for him is raise money for
his medications he would have to take after the
transplant so that his body
won't reject the new kidney. He's 20 years old. Way
to
young to be dealing with this and to be on dialysis for the rest of his
life. Please
donate generously to his fundraising account. Any contribution
helps.
If you have any questions or concerns about his condition please
message me.
https://www.facebook.com/KidneyTransplantForLuisTovar/info
www.facebook.com/kidneystories
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sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor,
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sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
KIDNEY STORIES: HELP FIND A KIDNEY FOR PATRICK
Patrick was born with Prune belly Syndrome and his kidney
failed Jan. 2012. He is in need of a gracious A- donor.
Description
PLEASE KEEP THIS PAGE MOVING:
Patrick Foltyn
of Millville NJ is in
urgent need of a kidney transplant as
a result of
a rare condition called
Prune Belly Syndrome he developed
... in utero. This syndrome affects about
1 in 40,000
infants and a large
amount of them don't live very long.
Patrick has
beat the odds and is 23
years old and chasing his dreams.
Recently, his
kidney failed and had to
be removed. He is on dialysis 3 times
a week to
survive which can be very
exhausting and painful. He has had to
put his
dreams on hold simply to
survive. He is in need of a donor as
soon as
possible. His blood type is A
negative. If you have a heart, you will
keep this post going along to give
Patrick a chance at life and to
pursue
his dreams. Pass this page along and
keep him in your thoughts
and
prayers.
Hello
everyone. My name is Patrick. I am currently looking for a living kidney donor.
I was born with a rare kidney disease called prune belly syndrome. To learn more
about it go to http://www.prunebelly.org/ . To read about my
life growing up with the disease read my blog at http://patfoltyn.blogspot.com/ . If you know
anyone that is interested in donation or wants to know more about prune belly
syndrome you can message me.
https://www.facebook.com/pages/Help-find-a-kidney-for-Patrick/234730929990869?id=234730929990869&sk=info
www.facebook.com/kidneystories
Urgent Update!!!!! Our friend Patrick, tells us that his transplant center is
the University at Pennsylvania Hospital, his transplant coordinator is Maureen
Simon. You can contact the center to reach her at 800-789-PENN (7366). Her
direct number is 2156626200.
the University at Pennsylvania Hospital, his transplant coordinator is Maureen
Simon. You can contact the center to reach her at 800-789-PENN (7366). Her
direct number is 2156626200.
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disease, chronic kidney disease, kidney for, diabetic, save my life, living
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disease, chronic kidney disease, kidney for, diabetic, save my life, living
kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant
list, fundraiser, donate life,
KIDNEY STORIES: FIND A KIDNEY FOR TONY MORAL
https://www.facebook.com/pages/Find-a-Kidney-for-Tony-Moral/471434262921946
www.facebook.com/kidneystories
Need a Kidney
Donor with a blood type of O positive.
Description
Hi
Everyone! I created this page in hopes someone could help me find a Kidney
Donor. Several years ago I was diagnosed with Polycystic Kidney Disease and now
my kidneys are failing, and I have been on kidney dialysis for the last 5
months. I am husband and father of three beautiful children. I would love to
start living normal again and spending some quality time with my family. Instead
I spend my time at the Kidney Center getting
dialyzed three to four days a week, four hour runs. I know this is long shot but
reaching out to the community for help. I am in need of Kidney Donor with a
blood type of O positive. It's a lot to ask for and to think about but is
someone is out there willing to donate a kidney please give me a call at
206-366-5277 or send me a email at [email protected]. You may also call Tammi
Smitten at the University of Washington Transplant Clinic at 206-598-8134
(Location Washington State.) Thank you.
www.facebook.com/kidneystories
Need a Kidney
Donor with a blood type of O positive.
Description
Hi
Everyone! I created this page in hopes someone could help me find a Kidney
Donor. Several years ago I was diagnosed with Polycystic Kidney Disease and now
my kidneys are failing, and I have been on kidney dialysis for the last 5
months. I am husband and father of three beautiful children. I would love to
start living normal again and spending some quality time with my family. Instead
I spend my time at the Kidney Center getting
dialyzed three to four days a week, four hour runs. I know this is long shot but
reaching out to the community for help. I am in need of Kidney Donor with a
blood type of O positive. It's a lot to ask for and to think about but is
someone is out there willing to donate a kidney please give me a call at
206-366-5277 or send me a email at [email protected]. You may also call Tammi
Smitten at the University of Washington Transplant Clinic at 206-598-8134
(Location Washington State.) Thank you.
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Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor,
recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
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recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
KIDNEY STORIES: GIVE LIFE
https://www.facebook.com/hegiveslifetoyou
www.facebook.com/kidneystories
Living Donor
Hi my name is Baird and i have been married to Kathy,my wife for 3
years,we are and always will be newlyweds
Description
I
have a genetic Kidney disease (poly cystic Kidney disease) that has been passed
down through the generations in which there is no known cure for
Iam very
healthy other than this and hope to live a long abundant life,my kidney function
at this time is about 13%.
If you know of any one who has ever considered
donating a kidney this might be the opportunity,my blood type is O+ which is
more difficu...lt
to find, I am compatible with a certain type of A, yet blood type should not be
a discouragement as it is also possible to donate into the UNOS system which is
a country wide paired donor program
All people have two kidneys and
only one is needed if interested contact 916-275-8778 and Thanks for taking the
time to read this post, God Bless
www.facebook.com/kidneystories
Living Donor
Hi my name is Baird and i have been married to Kathy,my wife for 3
years,we are and always will be newlyweds
Description
I
have a genetic Kidney disease (poly cystic Kidney disease) that has been passed
down through the generations in which there is no known cure for
Iam very
healthy other than this and hope to live a long abundant life,my kidney function
at this time is about 13%.
If you know of any one who has ever considered
donating a kidney this might be the opportunity,my blood type is O+ which is
more difficu...lt
to find, I am compatible with a certain type of A, yet blood type should not be
a discouragement as it is also possible to donate into the UNOS system which is
a country wide paired donor program
All people have two kidneys and
only one is needed if interested contact 916-275-8778 and Thanks for taking the
time to read this post, God Bless
TAGS: give life, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
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kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES : FIND A KIDNEY FOR NATHAN
Can you spare a kidney? Please follow me on a journey to find a kidney
donor. Click “About” to read my story.
Description
My name is Nathan Siriraksasit and I am 36 years old. I have been diagnosed
with ESRD (End Stage Renal Disease) at the age of 22 and have been on dialysis
since then. I have had one kidney transplant back in November 2001 that lasted
until March 2007. This page is to help me find a kidney donor. Please share this
page, even if we don't find a match for me, we can help someone else. I am on
dialysis 3 times a week for 3 hours 45 minutes hours each time and also try to
held a full-time job. There are many things and places I want to do and see but
being on dialysis is limited me from doing them.
I am listed for a transplant but without a living donor I could wait
for many years. I am blood type AB that means I can match up with any blood type
donor. The statistics are depressing: more than 90,000 people in the U.S. are
waiting for kidney transplants. The list grows by nearly 7,000 patients a year.
Fewer than 17,000 kidneys are transplanted annually. Rejection of the original
kidney transplant produced fighting antibodies. These antibodies have now made
me sensitized to certain donors - making it difficult to find a match. It is now
necessary to find a pool of eligible living donors to increase my matching odds.
A living donor candidate is a person who is healthy, well-informed and
makes a voluntary decision to donate one of their kidneys. Living donors must be
over 18 and usually under 60 years of age. They must be in good general health,
a non-smoker, with no evidence of significant high blood pressure, diabetes,
cancer, kidney disease, heart disease or hepatitis.
I live in Las Vegas, Nevada but a donor can be from anywhere in United
States. It is important to know that all medicals costs are covered by my health
insurance. The surgery usually takes about 3-4 hours and the donor usually leave
the hospital after 3 days and go back to work after a week. As you might
imagine, donating life to another is a remarkable gift that takes a great deal
of thought that can only be obtained by being well informed.
For more info about being tested to become a donor please contact Julie
at UMC Transplantation Center at 702-383-2224. Or email me at [email protected]
- Thank you!
<img src="http://ic.pics.livejournal.com/kidneystories54/60578284/9479/9479_900.jpg"
alt="NATHAN S" title="NATHAN S" width="568" height="810" />
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disease, chronic kidney disease, kidney for, diabetic, save my life, living
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KIDNEY STORIES: A KIDNEY FOR SHANNON
Shannon has Polycystic Kidney Disease. He has been on dialysis
since September 2011. His blood type is O You can reach his transplant
coordinatior at OHSU Oregon Health & Science Hospital in Portland OR.
503-494-3208
Description
Shannon and I have been married for 34 years.
We have two amazing sons. One is married, has 3 children and lives about 4
hours from us in Bellingham, WA. Our other son lives in Seattle about 2 hours
away from us and is busy enjoying life and working hard. Shannon was diagnosed
with PKD in his late 20s when we found out that his mother had it. In his 40s
his kidneys began to fail. September, ...2011 he was
hospitalized with diverticulitis, which we found out is common for PKD patients.
While in the hospital his kidneys failed and he began dialysis. It has been
difficult to adjust to his dialysis schedule and we miss being able to go to
Bellingham to spend time with our grandchildren and Rockaway Beach with
family.
https://www.facebook.com/AKidneyForShannon/info
www.facebook.com/kidneystories
since September 2011. His blood type is O You can reach his transplant
coordinatior at OHSU Oregon Health & Science Hospital in Portland OR.
503-494-3208
Description
Shannon and I have been married for 34 years.
We have two amazing sons. One is married, has 3 children and lives about 4
hours from us in Bellingham, WA. Our other son lives in Seattle about 2 hours
away from us and is busy enjoying life and working hard. Shannon was diagnosed
with PKD in his late 20s when we found out that his mother had it. In his 40s
his kidneys began to fail. September, ...2011 he was
hospitalized with diverticulitis, which we found out is common for PKD patients.
While in the hospital his kidneys failed and he began dialysis. It has been
difficult to adjust to his dialysis schedule and we miss being able to go to
Bellingham to spend time with our grandchildren and Rockaway Beach with
family.
https://www.facebook.com/AKidneyForShannon/info
www.facebook.com/kidneystories
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donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
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donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: SPARE A KIDNEY FOR MEGAN
We need your help please read our About section to learn more about our
friend Megan.
Description
Hello my name is Jackie, and I'm here today to
tell you a story about an amazing woman, and to also bring awareness to others
about Kidney Disease and Organ Donation.
My best friend for over 10 years
has been going through a tough time not just now but since she was born. It’s
like a black cat crossed her path as she was coming out of her mother’s womb and
from there she just never had a chance.
...It all
started when she was young and her parents were just not sure what was wrong
with her and unfortunately she didn’t get the proper care she needed. Her
kidney was dying and her second one would soon be on its way. She started
dialysis at the age of 9 and her first transplant was at the age of 14. Because
of her unhealthy living arrangements after her surgery, she moved from NJ to NY
to stay with her grandparents to have a better life. While staying with her
grandparents she was healthy and happy, she even pitched for her high school
softball team.
At the age of 21 she lost that gift of life that she
received at age 14. A normal 21 year old should be enjoying their new found
nightlife and having fun with friends. Not Megan, she unfortunately was in
renal failure once again and had to begin dialysis which meant no nightlife, no
freedom, and dialysis 4 times a week.
My friends and I didn’t understand
dialysis or how it affected her physically and emotionally. At the time she was
going through this, I was living with her and could see the exhaustion in her
face that came after a round of dialysis. For two years she was on dialysis
when an angel in the sky came down from heaven; her name was Doris. Doris and
Megan were attending the same school and when Doris got to know Megan better she
realized she had to help her. And in October 2006, Doris donated a kidney to
Megan and everything was perfect or so we thought. About a week after the
surgery Megan called me and said she was in a lot of pain in her right hand. I
ran over to where she was staying at the time after her surgery. I walked in
and she didn’t look well, she had fear and confusion all over her face. It
scared me and what was worse was when I saw her right hand; her pinky and ring
finger were discolored. We immediately went to the Emergency Room. After 12
hours, the ER doctor said they needed to transfer her immediately to Stony
Brook Hospital. We weren’t sure what was going on and they were talking about
the possibility of her losing her fingers. When she got to Stony Brook
Hospital, the doctors there said she had a blood clot from her surgery that
traveled to her fingers. Her fingers ended up turning black and dying. She
was devastated by what had happened. The stress of just having surgery and then
being told you will lose your fingers was unbearable. She was heartbroken and
just wanted to get out of NY and go to RI where her dad was living. She just
wanted to go home to try and heal.
After 6 months, her ring and pinky
finger on her right hand were completely black from the knuckle down and the
doctors had to amputate those fingers. I can’t imagine the pain of losing a
limb. But Megan kept her head held high. Yes she went into moods of depression,
discouragement and loss. But she pulled herself out of it and began her life
again. She continued going to school, got a job at a local RI hospital and
started living on her own again. She is a true inspiration.
But as always
tragedy hit her again. In February of 2011, Megan was rushed to the ER with
some pain. I came up from NY to be with her and as I arrived Megan got the most
devastating news. Her kidney of 5 years was rejecting and she was in renal
failure. She was to begin dialysis in April of 2011.
Her friends came
to her aid and tried to donate their kidneys but either no one was a match or
other medical issues have forbidden them to donate. She is a 5’6, 90 lbs a
ball of fire. She is my best friend, sister and soul mate and I want to make
everyone aware of the importance of organ donation. DONATING A KIDNEY is safer
than ever and so many good people like Megan are in need of your help.
Megan is inspiring not just for her strength but for her dignity, selflessness
to others, and dedication to living a full life even when her body
can’t.
So help us make people more aware of kidney donations. Because
there are many people like Megan who deserve to live and leave their footprints
in this life.
Megan's blood type is O she is located in Cranston, Rhode
Island and her current hospital is Brigham Hospital in Boston, MA. Megan can
only receive a kidney from someone with the blood type O or from someone willing
to do the swap program. We thank you for taking the time and reading Megan's
story, and even getting the word out there on Kidney Disease and Living Donors.
https://www.facebook.com/SpareAKidneyForMegan
www.facebook.com/kidneystories
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Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
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kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
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seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
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donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: KIDNEY FOR JEREMY
My name is Jeremy Bercier, I live in Minneapolis Minnesota. I am in need of an O
kidney. If interested in donating a... kidney
contact the university of Minnesota transplant clinic at 612-625-5115. I am 32
years old i have been on dialysis since Nov. Of 2008. My kidney failure was
caused by a birth defect. I had a transplant in 2006 from my sister. I had
hidden anti-bodies that cause my kidney to reject. I am currently doing dialysis
5 times a week doing home hemo. I have a beautiful wife and son who keep me
busy. I enjoy being active and have tried to stay that way all things
considered.
kidney. If interested in donating a... kidney
contact the university of Minnesota transplant clinic at 612-625-5115. I am 32
years old i have been on dialysis since Nov. Of 2008. My kidney failure was
caused by a birth defect. I had a transplant in 2006 from my sister. I had
hidden anti-bodies that cause my kidney to reject. I am currently doing dialysis
5 times a week doing home hemo. I have a beautiful wife and son who keep me
busy. I enjoy being active and have tried to stay that way all things
considered.
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chronic kidney disease, kidney for, diabetic, save my life, living kidney donor,
organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor,
recipient, seeking, awareness, National Kidney Foundation, Indiana University,
sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease,
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organ donation, find a kidney for, NCS, share a spare, transplant list,
fundraiser, donate life,
KIDNEY STORIES: A KIDNEY FOR NATHANAEL
Nathanael has been on dialysis for 8 and a half years and the
transplant waiting list for 7 years. He desperately needs a new kidney. We aim
to reach as many people as possible with Nathanael's story to increase his
chances of finding a matching donor.
Description
You
can read Nathanael's story here: http://livingkidneydonation.co.uk/nathanael-adams-life-on-dialysis-waiting-for-a-kidney-transplant.htm
What Can You Do?
Consider being tested to see if you are a match. More
info here:
...
http://www.organdonation.nhs.uk/ukt/how_to_become_a_donor/living_kidney_donation/living_kidney_donation.asp
http://www.giveakidney.org/how-to-give.html
Sign up to the Organ donation register:
https://www.organdonation.nhs.uk/ukt/how_to_become_a_donor/registration/consent.asp?campaign=1946
Share this page with your friends and spread the word!
Pray!!
www.facebook.com/kidneystories
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fundraiser, donate life,
KIDNEY STORIES: A KIDNEY FOR RANDY
Loving Father and Volunteer FireFighter in need of a type "A"
or "O" Kidney Donor
Description
On
March 28 2012 just 4 days after Randy's 37th birthday, Randy received the news
that all families pray not to hear. He was told he had stage 5 kidney failure
(ending stage) caused from his juvenile diabetes and would need a kidney
transplant to survive. Randy needs a Type "A" or "O" Donor. As of today Randy is
still looking for a living Donor and is still waiting to be put on the
transplant lis...t witch has well over 89,000 other people waiting for
a kidney Transplant and the number is going up everyday. Randy is a Clayton
Volunteer Firefighter and a loving father to his 3 year old son Donald. If
anyone is interest in getting tested, they can call Ellen at Upstate Hospital
Transplant Center in Syracuse, NY @315-464-5413.
https://www.facebook.com/pages/A-Kidney-For-Randy-S-Bourcy/390159561041837?id=390159561041837&sk=info
www.facebook.com/kidneystories
or "O" Kidney Donor
Description
On
March 28 2012 just 4 days after Randy's 37th birthday, Randy received the news
that all families pray not to hear. He was told he had stage 5 kidney failure
(ending stage) caused from his juvenile diabetes and would need a kidney
transplant to survive. Randy needs a Type "A" or "O" Donor. As of today Randy is
still looking for a living Donor and is still waiting to be put on the
transplant lis...t witch has well over 89,000 other people waiting for
a kidney Transplant and the number is going up everyday. Randy is a Clayton
Volunteer Firefighter and a loving father to his 3 year old son Donald. If
anyone is interest in getting tested, they can call Ellen at Upstate Hospital
Transplant Center in Syracuse, NY @315-464-5413.
https://www.facebook.com/pages/A-Kidney-For-Randy-S-Bourcy/390159561041837?id=390159561041837&sk=info
www.facebook.com/kidneystories
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donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: KIDNEY FOR JEFF
Jeff Pike is next on Kidney Stories:
https://www.facebook.com/KidneyCentral?fref=ts
Hi, my name is Jeff Pike and here is my Kidney story: I have been waiting for
a new kidney and been on dialysis since June 2010. I am A+ and can receive a
kidney from A and O. I am listed at Northwestern in Illinois and Madison in
WI.
I have three sons, 17, 13, and 10, and a wife of almost 25 years.
I
enjoy playing and watching sports with my boys. We also enjoy cooking and
decorating every year for our favorite holiday, Christmas.
A cardiologist discovered my Creatinine level at 15 during a blood test and
saved my life. I have been on dialysis since June 2010.
Here
is the contact information for my hospitals:
Northwestern Memorial
Hospital 312-695-0339
University of Wisconsin Hospital Madison
608-263-1384
www.facebook.com/kidneystories
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KIDNEY STORIES: FIND CHRISTINE A KIDNEY
50 year old wife, mother and grandmother of a 2 1/2 year old
precious grandson.
I live in the Tampa bay area in Florida.
Blood type
is A+
National Transplant Foundation for fundraising for a transplant.
http://patients.transplants.org/christinecurti
Description
Married to a fantastic man for 25 years. We've
been together for over 32 years.
We have been blessed with a 24 yr old
adopted daughter and we now
have our first grandbaby a grandson who is the
light of our lives.
I was born with one kidney and had 2/3rd of the other
removed
at age 4 due to CKD. I was expected to live a yr and here I am 50
yrs later.
...
About 6 yrs ago I began to have major issues with ESRD and have now
been on
Peritoneal Dialysis about 3 yrs. I do dialysis for 9 hrs a day.
Though I
feel much better than I did prior to dialysis, I still do not have
much
energy and ability to play with my grandson or work as I would love to do.
I hope to return to college and finish my degree. Then I would like to help
other kidney patients deal with the emotional aspect of renal disease and
life!
However, many days I am sick to my stomach, can't sleep due to
dialysis
and have chronic back, leg and joint pains due to ESRD.
I am
on the transplant list at Shands Hospital in Gainesville Florida.
If you
wish to be tested as a precious donor please message me
or contact my
transplant coordinator in the transplant dept.
My coordinator is Jillian
Ward (352) 265-0254
God Blessed me with a longer life. I pray I still have
time to spend an even
longer life to be with my Husband Kevin, Daughter
Nicole and our grandson Gavin. I love my family very much!
https://www.facebook.com/pages/Find-Christine-a-Kidney/457944657612118?id=457944657612118&sk=info
www.facebook.com/kidneystories
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KIDNEY STORIES: A KIDNEY FOR ARTISE
·
Artise
Johnson
Hello
FB world My Name is Artise
Johnson.
I’m a 39 year old Female who needs a Kidney looking for all the help I can get to
find a Kidney. I’m a B+ blood type or O. I live in Chicopee, MA any help will
do. If you are interested in being
tested to see if you are a match for ARTISE JOHNSON, call the Western New
England and Renal Transplant Center at 413-733-9666. Tell them you want to be
tested to see if you are a match for ARTISE JOHNSON. Thank
you.
I am a 39 yr old who just had a baby with my transplanted kidney!! I was on
dialysis for 12 yrs before my sister gave me a kidney in 2009.
In April of 2012, 3 yrs later it started to fail. I was told to go back
on dialysis where I am today. I did dialysis for 6 day a week for 5 hrs a day
while I was pregnant. My son was just born on Feb 27 2013. He was 2 months
early. He is doing well, a lil small but getting stronger every day. I’m glad to
be back on 3 days a week , but will be a lot more happy once I get a
transplant.. All I can say is I take it one day at a time. God has brought me
thru a lot in my life. Dialysis can be tough but I’m a strong willed person. The
lord has been answering my prayers so far. With a husband and my child, a kidney will come one day...♥.. Ty for
taking the time to read my story.
https://www.facebook.com/pages/A-Kidney-for-Artise-Johnson/254352324673204
www.facebook.com/kidneystories
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KIDNEY STORIES: A KIDNEY FOR MARK
Mark is a 27 year old and is in need of a kidney, Right now Mark is on
dialysis three times a week four hours a day.Mark has a five year old son David
that is his world.
DescriptionMaine
Transplant Program 1-800-870-5230 IF YOU ARE BLOOD TYPE A OR O AND YOU WANT TO
SEE IF YOU ARE A MATCH for Mark Godfrey, Ask for a living donor packet.
https://www.facebook.com/pages/A-Kidney-for-Mark/248891888523689?id=248891888523689&sk=info
www.facebook.com/kidneystories
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KIDNEY STORIES: RAYMOND'S KIDNEY DISEASE
The purpose of this page is to get the word out about Living Donor Kidney
Donations. Also, to share our story as we go throught the process, of dealing
with Kidney disease and kidney failure and the process of finding a living
kidney donor or wait for a cadaver donor. While our story is no different that
the thousands of others who are waiting for donors. I find this the best forum
to get the info...rmation
out to the public.
More info about Raymond's needs:
■ Raymond is
looking for a donor with type O blood.
■ He lives in Queens, New
York
■ He's been on Dialysis since December 2011
■ Raymond is
the eldest for 3 neither of his siblings were able to donate due to their own
health concerns. He's a husband and father of two sons (12 & 13) and two
step daughters (22 & 21 his youngest step daughter was a kidney match,
during the final steps of testing it was discovered that she had Lupus.)
Some notes from the North Shore Transplant Center:
Getting tested is
easy it’s just a blood test.
Kidney donation is the most common type of
living organ donation.
There is little risk to the donor to live with
one kidney.
To be a donor you must be in good health.
Donating
a kidney is a great way to donate life.
Transplants from living donors
are more successful.
You are giving a gift that allows someone to live a
longer, happier and healthier life.
North Shore Transplant Center
1554 Northern Blvd, Manhasset, NY 11030
516-472-5800
www.Northshorelij.com/transplant
www.livingdonor.org
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KIDNEY STORIES: PLEASE HELP MARTREL
Helping spread the word to find a transplant for Martrel. You're just a click
away from saving a life!
https://www.facebook.com/FindMartrelJohnsonAKidney/info
Description
It's been four years since I lost my first transplant kidney.
I am running out of dialysis access points on my body, and a transplant will
keep me from using the last spot on my body which would be a graft in my leg.
Please share the link to this page and help spread the word. You can contact me
directly or click on www.kidney.org for any questions you may have
regarding organ donations and how to become a donor.
If you would like to
get tested for me, please contact Fort Meyers transplant center call
239-343-0442, and ask for Cindy.
https://www.facebook.com/FindMartrelJohnsonAKidney
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KIDNEY STORIES: AIDAN'S COURAGEOUS JOURNEY
Aidan is still in need for a kidney donor His blood type is A
he matches with A and O Please contact Sonya Lopez @ 2155902449 for additional
info.... thanks so much!!!! need to be between the ages of 21 and 50
Description
Thanks for liking Aiden's Page :-) Aidan is 7
and he has FSGS which is a chronic kidney disease, we are listed on the
transplant list were looking for a kidney donor Aiden's blood type is A he is a
match with A and O because of the protein within his kidneys he is going to
have both kidneys removed and dialysis before he is able to have a "new"
kidney... this has been a very hard time for us, having
the support of our amazing doctors and family, friends has helped so much in
getting thru this!! I'm hoping by having this page will share with as many
people as possible about this rare disease that thousands of people each year
are fighting that we can find a cure!!! www.nephcure.org has a lot of information
about NS and FSGS please check out the website!!! Aidan has been so courageous
during this fight!! he will love to see all the people who support him thru this
journey in his life!! If interested to see if your a match please email me at
[email protected]. thanks so much Bobbi
https://www.facebook.com/AidansCourageousJourney/info
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KIDNEY STORIES: SHINING STRONG FOR TERRA
Shine Strong With Us!!!!!
Please click here to read Tarra's
story...
Description
Tarra (Wagner) is a 33 year old only child from
Branchville, New Jersey. She is blood type O positive and is in need of another
blood type O kidney donor, the + or - is not a factor.
She has been a
type 1 (Juvenile) diabetic since age 13 and has had lots of ups and downs and
complications since then, due to the diabetes. The biggest set back came in the
begining of 2011 when we were inform...ed that her
kidney functioning levels were dropping and her kidneys were failing. This
resulted iin her having to be admitted in St. Barnabas Medical Center in
Livingston NJ in Feburary of 2011 to have a catheter surgically inserted into
her stomach which is used to do dialysis which she does herself at home every
4-6 hours daily.
She's young and is supposed to be living life, not
worrying about it possibly ending...This all talkes it's toll on her and her
body and put a damper on enjoying life...
Tarra is currently registered
in Livingston New Jersey @ St.Barnabas Hospital. For more information or to
find out how to proceed with testing. Please contact her Transplant Coordinator
Donna Walton @ (973) 322-5047 or by email [email protected].
We Thank-You for taking the time to visit and read our page. We hope you will
share this page with your friends and assist us in spreading the word and
findind a donor...Not only for Tarra but also for the thousands ofothers who are
also waiting for their special gift of life... We appreciates every effort no
matter how small.
Tarra's treatments are very costly and not fully
covered! We invite you to shine strong with us in an effort to help raise funds
for Tarra’s continued medical care along with raising awareness of organ
donation.
Shining Strong is a compilation of Tarra’s name which
means Star and the reflection of her strength & the strength of her
supporters during this trying time. Thank you for supporting Tarra. Keep
Shining.
Donations can be made to:
Shining Strong for Tarra
PO Box 2869
Branchville, NJ 07826
https://www.facebook.com/pages/Shining-Strong-for-Tarra/199012546788328?id=199012546788328&sk=info
www.facebook.com/kidneystories
Please click here to read Tarra's
story...
Description
Tarra (Wagner) is a 33 year old only child from
Branchville, New Jersey. She is blood type O positive and is in need of another
blood type O kidney donor, the + or - is not a factor.
She has been a
type 1 (Juvenile) diabetic since age 13 and has had lots of ups and downs and
complications since then, due to the diabetes. The biggest set back came in the
begining of 2011 when we were inform...ed that her
kidney functioning levels were dropping and her kidneys were failing. This
resulted iin her having to be admitted in St. Barnabas Medical Center in
Livingston NJ in Feburary of 2011 to have a catheter surgically inserted into
her stomach which is used to do dialysis which she does herself at home every
4-6 hours daily.
She's young and is supposed to be living life, not
worrying about it possibly ending...This all talkes it's toll on her and her
body and put a damper on enjoying life...
Tarra is currently registered
in Livingston New Jersey @ St.Barnabas Hospital. For more information or to
find out how to proceed with testing. Please contact her Transplant Coordinator
Donna Walton @ (973) 322-5047 or by email [email protected].
We Thank-You for taking the time to visit and read our page. We hope you will
share this page with your friends and assist us in spreading the word and
findind a donor...Not only for Tarra but also for the thousands ofothers who are
also waiting for their special gift of life... We appreciates every effort no
matter how small.
Tarra's treatments are very costly and not fully
covered! We invite you to shine strong with us in an effort to help raise funds
for Tarra’s continued medical care along with raising awareness of organ
donation.
Shining Strong is a compilation of Tarra’s name which
means Star and the reflection of her strength & the strength of her
supporters during this trying time. Thank you for supporting Tarra. Keep
Shining.
Donations can be made to:
Shining Strong for Tarra
PO Box 2869
Branchville, NJ 07826
https://www.facebook.com/pages/Shining-Strong-for-Tarra/199012546788328?id=199012546788328&sk=info
www.facebook.com/kidneystories
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KIDNEY STORIES: KIDNEY FOR DAN
07/18/2012 Living Donor Transplant from God and Rob Skinner, My
Brother In Christ - Brothers For Life. University Of WI - Department Of
Surgery.
Biography
Looking for
that special kind hearted person 'My Hero' who will be a match for a kidney
donation, who will save my Life. Rob Skinner and God have givin me Life.
Description
I
became aware of my IgAN condition In 1990 and was told It had been In
progression since adolescent years. IgAN affects both kidneys, a form of
mesangial proliferative nephritis.
IgAN (Berger's Disease) can occur In
persons of all ages, but most often affects males In their teens.
Eventually I would need a kidney transplant.
I am 47 years old and have
worked In the transportation workforce for ...many years
and have one 19 year old son that Is so amazing and I'm so proud of.
I
proactively managed my IgAN disease for nearly 7 years.
1997 I went into
ESRD and started dialysis 3 days a week/4 hour treatments, this went on for
almost 4 years.
2001 I received a kidney transplant that I am so ever
grateful for to this day!
This writing I never Imagined writing nearly 11
years later.
I will need another kidney transplant. I realize It's far more
beneficial for me to pursue a living kidney donor. A kidney from a living kidney
donor has the potential to last on average about twice as long as a kidney from
a deceased donor.
I'm very appreciative of your Interest In helping me
spread the word about my need for a kidney transplant.
I'm also appreciate
you taking the time to read this. God be with you.
https://www.facebook.com/KidneyForDan/info
www.facebook.com/kidneystories
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KIDNEY STORIES: GWEN'S JOURNEY
My mom is the strongest women I know she was diagnosed with diabetes and high
blood pressure at a young age she has had many problems that caused her to have
kidney disease. She has 4 amazing daughter Kimberly Sue Rich, Kristina Lynn
Waits, Kellie Renee Curtis and me Cariann Nicole Dockery we love her so much :)
she is currently on the transplant list she has a 8 year weight my goal with
this page is to educate people about kidney disease and how to prevent it and to
help find my mom a donor if you are interested please contact me at
[email protected] Thanks in advance we really do appreciate each and everyone
of you.
https://www.facebook.com/GwensJourney
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KIDNEY STORIES: FIND A KIDNEY FOR CINDY CRIPPS
Im a 48 yr old wife ,mother and grandmother of 1 son and twin
grandsons. I have been on dialysis for 11yrs .
Description
I'm
on the transplant list @ UAMS in Little Rock AR. I am O+ and need a perfect
macth. I can take an O anything blood type. If you want to be my HERO call Sue
Weeks @1-501-526-5480 or 1-800-552-8026 or email [email protected]
My story is a long one in january 2001 I got sick with
TTP a blood disorder.I got real sick and almost died but i was sent to baptist
ho...spital in little rock where they did plasma exchance
and saved my life but my kidneys did not work anymore so I went on dialysis and
was bad sick for a couple of years in and out of the hospital with prancritis
and fluid around my heart and lungs but i have an amazing family and i got
better and on 9/11/03 my hero my neice Andie maroon gave me one of her kidneys
but it only worked for 3 years (best 3 years ever thanks Andie) by the way Andie
is doing great with only one kidney. anyway my new kidney stopped working in may
of 2006 back on dialysis and then back on the transplant list Then in 2007 i got
a cadaver kidney they said it was a perfect match but then they said it was
damaged but thought it could be fixed but they could not fix it so they had to
take it back out 5 days later those 2 surgerys almost killed me again. So back
on dialysis I went, just happy to be alive. back on the list. Then in march 2009
I found a lump on my right breast it was cancer but they did a double mastentomy
and got all the cancer and i got lucky and it had not spread and no cemo or
radition but they would not do breast reconstruction because i was on dialysis o
well i am still here but the cancer knocked me off the transplant list for 2
years but now i am back on the transplant list at uams in little rock but they
say i need a perfect match because I have a high antibodies
https://www.facebook.com/FindAKidneyForCindyCripps
www.facebook.com/kidneystories
grandsons. I have been on dialysis for 11yrs .
Description
I'm
on the transplant list @ UAMS in Little Rock AR. I am O+ and need a perfect
macth. I can take an O anything blood type. If you want to be my HERO call Sue
Weeks @1-501-526-5480 or 1-800-552-8026 or email [email protected]
My story is a long one in january 2001 I got sick with
TTP a blood disorder.I got real sick and almost died but i was sent to baptist
ho...spital in little rock where they did plasma exchance
and saved my life but my kidneys did not work anymore so I went on dialysis and
was bad sick for a couple of years in and out of the hospital with prancritis
and fluid around my heart and lungs but i have an amazing family and i got
better and on 9/11/03 my hero my neice Andie maroon gave me one of her kidneys
but it only worked for 3 years (best 3 years ever thanks Andie) by the way Andie
is doing great with only one kidney. anyway my new kidney stopped working in may
of 2006 back on dialysis and then back on the transplant list Then in 2007 i got
a cadaver kidney they said it was a perfect match but then they said it was
damaged but thought it could be fixed but they could not fix it so they had to
take it back out 5 days later those 2 surgerys almost killed me again. So back
on dialysis I went, just happy to be alive. back on the list. Then in march 2009
I found a lump on my right breast it was cancer but they did a double mastentomy
and got all the cancer and i got lucky and it had not spread and no cemo or
radition but they would not do breast reconstruction because i was on dialysis o
well i am still here but the cancer knocked me off the transplant list for 2
years but now i am back on the transplant list at uams in little rock but they
say i need a perfect match because I have a high antibodies
https://www.facebook.com/FindAKidneyForCindyCripps
www.facebook.com/kidneystories
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KIDNEY STORIES: HELP FIND A LIVING KIDNEY DONOR FOR MY MUM
I made this page to raise awareness of live kidney donation to
help my mum and other patients like her in the UK. Please 'like' and share. We
will not accept offers from people who want to sell their kidney. Thank you
x
Description
Hi
Everyone,
This page is a heartfelt attempt to reach out to my friends
and family for support in finding a living kidney donor for my mum. She was
diagnosed with end stage renal failure last year due to developing a hereditary
kidney disease passed on by her mother and grandfather. Having a familial
disease means that me and my brother and our other family members are unable to
donate. So anno...ying,
as I wish I could have done this for her. After having several tests, the
transplant team informed me that it is possible that I may be in the same
position as my mum later on in life and so they are not happy to take the risk
of using me as a donor. To say I was devastated is an understatement.
My mum is a predialysis patient, which means that finding her a donor soon is
imperative, it would mean she wouldn't have to endure the debilitating treatment
and recipients who are transplanted prior to dialysis have better long-term
transplant survival. The survival of transplants from living donors is
significantly better, than from a deceased person and waiting for a deceased
donor can take years. As you will all know, most of us are born with two
kidneys, after donating a kidney a person can live exactly the way they lived
before donating — a long, healthy, active life with no restrictions.
My
mums blood type is A-negative, but any type would be fine - with the 'paired
donation matching scheme' incompatible blood/tissue donors and recipients can be
placed on the transplant list as a pair and can exchange kidneys with another
incompatible pair.
I know that creating a page for a living kidney
donor on Facebook is a rather unconventional approach, but it has proved
successful in the past for other families, so I thought I would give it a go. If
it means potentially saving my mums life and raising awareness of living kidney
donation then it can't be wrong. Before my mums diagnosis, I didn't even know
people could donate a kidney, I thought all transplants were done using the
kidneys of deceased individuals, in cases of accidental death.
I would
appreciate any help and support from you guys, whether you're interested in
being a donor or you just want to pass this information on to your friends &
family to increase awareness; it would all mean a lot. If you are interested in
being a potential donor, please contact me on my facebook page http://www.facebook.com/TalulahDelilah We are
based in London, UK.
I appreciate you taking the time to read this and
thank everyone in advance for their efforts in helping us find a kidney donor
for my mum.
Best wishes
Talulah
Useful Links:
http://www.organdonation.nhs.uk/ukt/how_to_become_a_donor/living_kidney_donation/living_kidney_donation.asp
http://livingkidneydonation.co.uk/
http://www.kidney.org/transplantation/livingdonors/index.cfm
http://www.giveakidney.org/
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KIDNEY STORIES: PRAYERS FOR PFC MARSHALL LANE
This page was made to share Marshall's story and to keep family
and friends updated on his condition. Feel free to post on the wall. Thank you
all and if anyone is interested in being Marshall's donor please read our about
section!!!
Description
Marshall Lane was injured in combat August 13,
2012. Because of the severity of his injuries he was diagnosed with Cortical
Necrosis due to blood loss and he is now in need of a kidney transplant.
Marshall has been on the wait list here at Walter Reed since November of 2012
with several leads on who could donate but no matches have been found
yet.
The Living Donor Transplant coordinator is Nancy... Dipatuan, MD, MHA she can be reached at 301-319-2841.
Be sure you give them Marshall's name (Marshall Stuart
Lane) and that you are calling to receive a packet to be tested as a living
donor for him. They will fax the packet to you or have it sent in the mail and
will have you return it to Walter Reed. If all goes well with the preliminary
work up you will be contacted for further testing.
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KIDNEY STORIES: TRANSPLANT HAIRCUT
Background Story
Hi...My name is Paul Lumbag, and I need a haircut. Problem is, I
promised my kids I wouldn't cut my hair until I got a kidney transplant, and got
off dialysis.
I live in Northeast Pennsylvania, just outside of Scranton. I am
blood type A, and I go to Geisinger Medical Center in Wyoming Valley for
transplant evaluations. Been on dialysis for close to four years due to a
congenital defect. It's a great way to stay alive, but a lousy way to
live.
Paul’s transplant coordinator is Christy Miller, RN,
800-654-1228, www.mygeisinger.org.
In 1972, at age five, I was found to have a kidney disorder
during a routine school physical. There was excessive protein spillover seen in
the urinalysis.
At the time, my father was in the military and we were
living in Hawaii. This meant Tripler, the big pink hospital on the hill. I
remember many trips and a few admissions, feeling tortured by the military docs,
stuck on a ward with a bunch of old war vets. Perfect place to put a
kid.
I don't remember thinking this was something to be worried
about, aside from the dreaded trips to the hospital. I mean, I was 5 and
invincible.
I do remember as time went on, listening to the doctors
explain what they thought was wrong, and what it meant. They came up with a
diagnosis of polycystic kidney disease, and depending on what form, I was
doomed. If it was the juvenile form, then I'd be dead by ten. If the adult, I
might make 16.
Well, I'm 42 now, the diagnosis of PKD has been dismissed by
several doctors since, but being that my kidneys are too scarred up, it is
impossible to tell through biopsy what was wrong in the first place.
Up
until last year, this disease has had very little effect on the physical aspects
of my life. I was not allowed to play contact sports. That's about it.
Psychologically, it has had quite a bit of an impact, both on the surface, and
underlying. It has contributed a great deal to who I am today, as well as the
strange little detours I've taken to get here.
In 2009, I went to the
emergency room for stomach pains. Although I had been seeing a doctor on a
regular basis, my bloodwork had been stable for the past ten years, I felt fine
for the most part, and thought I just ate something a bit too old. The bloodwork
done that day was a kick in the head. I was sliding into acute renal failure. I
tried to make a joke of it to the er doc, considering that I worked in the
hospital and had joked with him before. He basically said if you don't
take care of this, you will die. So, here I am. Still.
They thought I might
be able to hold up a couple of more months before needing dialysis, so they just
prepped me for it. Surgery on the arm for fistula placement, explaining what
the process entailed. Unfortunately, two weeks later, my numbers spiked
higher, and it was back in the hospital for a portacath placement. I started
dialysis that night.
It has been a little over a year that I've been doing
this. A lot has happened, a lot has changed. Due to the massive mood swings I've
been having, and my tendency to internalize everything, it was suggested I write
about this process. I appreciate the suggestion, and will try to take you along
on this journey, throw in some flashbacks, and maybe even a few pictures. I'm
not doing this for pity or charity or anything along those lines. More like some
self centered therapy, letting off steam to whoever in the electronic atmosphere
wants to catch it.
I guess I should add that this may get a little messy,
but honesty usually is.
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KIDNEY STORIES: TRANSPLANT FOR TABITHA
About
Tabitha
Tabitha was
born on Jan 1st 1990 in Bremerton Wa.
Yes a new
years baby :) what a way to start a new year for any parent. She was raised by a
single parent for most of her young life, but that didn’t seem to effect her.
She adopted a couple of "MOMS" thru the years and is still very close with them
( thank you Ladies you have helped raise a WONDERFUL young woman
).
Tabitha is
very smart as well as artistic when the mood strikes her. One of
her favorite gifts as a kid was anything dealing with drawling. She
has a heart 10 times to big, if such a thing is possible :). When she was 12 she
and her brother came into the house and wanted to talk. They both was concerned
about this gentleman sitting across the street. They begged to get some hot
food together and asked me to go with them to give it to
him.
Tabitha has
always been the only girl in a Family of boys ( she has 4 brothers ). When she
was admitted into the ER November of 2010 she had just had a
lil sister added to the family. Her first time meeting her was when they
released Tabitha from the ICU and into a normal room. (picture to the right )
Since day one she and her sister has had a bound like no
other.
Tabitha is
now waiting for a kidney. Like any other renal patient she hates dialysis.. 18+
hours a week hooked to a machine and then the hours after feeling worn out and
drained has to take a lot out of you. And she has been doing this
same routine now for almost 3
years.
November of 2010 at
age 17 my Daughter Tabitha was diagnosed with ANCA and renal failure. This page
is to share some awareness about ANCA Vasculitis and her and others need for a
kidney/organ transplant.
Tabitha is Blood Type A+. Donors can be A+ and O. She is living
in the New Braunfels Tx area. she has done dialysis 3x times a week since Nov
2010. read full description for more info.
November of
2010 at 17 my Daughter Tabby was diagnosed with ANCA\renal failure. She is blood
type A+. This page is to share awareness about ANCA Vasculitis and her need for
a kidney transplant.
http://www.unckidneycenter.org/kidneyhealthlibrary/anca.html
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KIDNEY STORIES: A KIDNEY FOR ROSIE
Rosy Espinoza (59 yrs) is in need of a kidney. She
suffers from Polycystic Kidney Disease (PKD). She is in need of a kidney
from someone with blood type O. Click "About" to learn more. I live in
California ,City of Colton.
Description
This
is third generation to suffer from Polycystic Kidney Disease (PKD) in the
family. Rosy's mother passed away of PKD after being on dialysis for over ten
years. Although she is not yet on dialysis, Rosy had the access line for
dialysis placed on November 26, 2012. Her kidney function is at 14%. Rosy needs
a kidney from someone with blood type O.
Rosy (59 yrs)- Rosy is a wife,
mother of fo...ur, step-mother or six, grandmother, and
great-grandmother. She currently has a transplant coordinator. Loma Linda
University Medical Center Transplantation Institute in California. Ask for
Lorena Aparicio or Luisa Machain (909) 558-3636 EXT 36802 OR EXT 36803. , JANET
WILLIAMS 909-558-3689 MAIN CORDINATOR
What is Polycystic Kidney Disease
(PKD)? -Over 600,000 Americans have polycystic kidney disease (PKD). This
genetic disease causes many cysts to grow in the kidneys. Over time, these cysts
damage the kidneys and can lead to kidney failure.
-The most common type of
PKD is called Autosomal Dominant Polycystic Kidney Disease (ADPKD), and it is
caused by a dominant gene. If a person has this gene, he or she has a 50-50
chance of passing it on to a child. Signs of ADPKD often don’t appear until
adulthood, which is why this type of PKD is sometimes called “Adult PKD.”
-A
much less common type of PKD is called Autosomal Recessive Polycystic Kidney
Disease (ARPKD). Because ARPKD is caused by a recessive gene, a child has only a
one-in-four chance of inheriting the disease, even if both parents carry the
trait. ARPKD tends to appear very early in life, sometimes even before birth.
-A third type of PKD is called Acquired Cystic Kidney Disease (ACKD) and is
caused by kidney damage or scarring rather than genetics. Most dialysis patients
will develop ACKD after several years of treatment. Other diseases that slowly
damage the kidneys can also lead to ACKD.
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KIDNEY STORIES: STACIE NEEDS A KIDNEY
I have FSGS/Nephritic Syndrome and I need a kidney so I can
live to see my children get married and have grandchildren! Please click "About"
for more info!
Description
I have FSGS/Nephritic Syndrome. My blood type is A+, but I was told today that I only
need someone with either A or O blood type to be tested. If you would like to be
tested to see if you are a match for Stacie York, please call Loma Linda Kidney
Transplant Center at 1-909-558-3636, press option "5" for the Living Donor
office and they will assist you from there. The link to their website is: http://lomalindahealth.org/medical-center/our-services/transplantation/services-and-procedures/kidney-transplant/index.page
I would love to have a healthy kidney so I can live to see my children get
married and have grandchildren!
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KIDNEY STORIES: FIND A KIDNEY FOR RICKI
Ricki is a 59 year old mother of one, and a grandmother to 4.
She needs a kidney from someone with type O blood.. To see if you are a match
call Transplant Coordinator- Laureen Dame at Piedmont Hospital 404-605-4930.
Click "About" to learn more.
Description
Thanks for coming to my Kidney page! I am a 59
year old mother of 1 beautiful daughter who has graced my life with 4
grandchildren, ages 11 months to 7 years. They, and my soulmate Doug, are my
reasons for living and fighting this disease called End Stage Renal
Disease.
In February of 2010 I went for my yearly wellness exam. A few
days later, I received a call telling me there was a problem with
my kidneys, and I needed to see a kidney specialist. I was shocked, to say the
least, as I had no symptoms that I knew of. A few weeks and two nephrologist
appointments later I had a kidney biopsy, showing that I had Lupus and my
kidneys were functioning at 13%. I cried for months, couldn't even admit to
myself let alone anyone else that I had kidney disease!
My Doug has been
so wonderful and supportive, I couldn't ask for a more wonderful person. There
are days when I barely have the energy to get out of bed, and he has always been
there to help with whatever needs to be done. Every doctors appointment, every
testing at the hospital he goes, and has been involved in my disease since we
found out about it.
By June of 2011 my kidney disease had deteriorated
to stage 5, and I had surgery to place my PD catheter for dialysis. I have been
on dialysis since September 2011.
I worked as long as I could, but
finally had to stop in early June 2012 as my body just couldn't take the stress
of working in a kitchen every day and being on my feet for 8-10 hours. There are
days when it takes everything I'm worth to get out of bed in the morning. I've
always been a hard worker, and I loved my career but this disease has taken so
much from me.
I am proactive in CKD care and am trying to get the word
out about kidney disease.
So please if you are interested in being a
donor (even not for me but for another person) please contact our coordinator
and get the ball rolling. Remember you are giving a person a second chance of
life, and if that person is me, I want to say " Thank you for being so selfless"
you just gave me a chance to spend the next 20 years with the love of my life
and hopefully we can grow old together.
Transplant Coordinator- Laureen Dame
404-605-4930 757 388 3977 Piemont Hospital in Atlantal. Please note you need to
follow up with the transplant coordinator as the donor. They will not give me
any information. So PLEASE.... after a couple of weeks, call for a status and
keep calling every couple of weeks until to hear if you are a match or not.
They will not tell me anything about the donor. Again, thank you so
much.....
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KIDNEY STORIES: FIND A KIDNEY FOR JENNY
The purpose of this page is to raise awareness about living
kidney donation and hopefully find my donor in the process
Description
Hi
My name is Jennifer and i live in Tucson AZ, I have been suffering from End
Stage Renal Failure for the past 10 years I had my first transplant on July
2008, but unfortunately my happiness and good health didn't last long on January
2011 my body rejected the kidney even though the drs and myself did everything
we could to save it. I restarted dialysis that same month January 16, 2011 , I
was finally put on the Waiting list for a
cadaver kidney on January 2013, which is why I'm here looking for that someone
that can save me from living like this ...I feel like my whole life has been on
pause I have been sick since I was 19 I'm now 30 I just want a chance at a
normal life that doesn't have me depending on a machine every night to
survive...if you can help please call 520-694-6637 celeste the living donor
coordinator at University Medical Center in Tucson Az...im in need of a donor
with Blood type B or O but my center also has a paired exchange program plz
help or at least share my info
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KIDNEY STORIES: KIDNEY FOR KAPPY
A mom is in desperate need of a kidney. Blood Type A. Kappy is a mother
of a little girl. She started on dialysis in August 2010. She have been on the
transplant waiting list since Aug 2011. She was born with Renal condition called
Distal Renal Tubula
Description
Hello,
About me, hmmm.. I'm currently on dialysis, waiting for the gift of a
kidney. I was born with Renal condition called Distal Renal Tubular Acidosis.
(RTA) Is a very rare kidney condition. I also have put my heart and soul into my
garden wedding venue, I have designed and landscaped every inch of my Garden
venue myself. I don't know where I find the strength, but when you wants
something... so bad you can make it happen!
I have so much more in life to do. I just hope and pray I will receive
a kidney donation soon. I am Blood type A.
If you would like to be my living donor, please contact:
U of
W med center,
transplant coordinator Carol Arp
At:
206-598-6994
Thank you, ♥
Kappy
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KIDNEY STORIES: FIND A KIDNEY FOR JONATHAN
Type, and needs an A or O Kidney donor ASAP.
Description
Jonathan lives in Wyckoff, NJ, 27yrs old &
has been on dialysis on/off since he was 7yrs old. He is Blood Type A+, an A or
O Blood Type can be tested as a Donor. He is listed at St. Barnabas in
Livingston NJ. He had 2 Failed transplants and countless kidney related
surgeries. He has a blod clotting disorder which makes a working access next to
impossible at this point, as a last resort we have ...been working on begining peritoneal dialysis but have
not had success yet it getting it to work. Jonathan currently recieves dialysis
through a catheter in his chest which is meant to be temporary. No one in Jons
family is a match. He has a wife, with which he would like to start a family
with, a niece (6 months) and nephew (2yrs) and 2 God Children. He has a family
who loves him very much and we need help to keep him here with us for a very
long time. Please contact either Jonathan @201-254-4446 or his wife Felicia
@551-579-3046 Email: [email protected], or a family phone number is
201-857-5242. Thank you to anyone who took time to read this.
Jonathan is scheduled for
his 5th surgery attempt to try and get the catheter for peritoneal dialysis
working on April 4th. Please keep him in your prayers for a successful
surgery.
Special THANK YOU to all who "Liked" and/or "Shared" this page
today! ♥
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Description
Jonathan lives in Wyckoff, NJ, 27yrs old &
has been on dialysis on/off since he was 7yrs old. He is Blood Type A+, an A or
O Blood Type can be tested as a Donor. He is listed at St. Barnabas in
Livingston NJ. He had 2 Failed transplants and countless kidney related
surgeries. He has a blod clotting disorder which makes a working access next to
impossible at this point, as a last resort we have ...been working on begining peritoneal dialysis but have
not had success yet it getting it to work. Jonathan currently recieves dialysis
through a catheter in his chest which is meant to be temporary. No one in Jons
family is a match. He has a wife, with which he would like to start a family
with, a niece (6 months) and nephew (2yrs) and 2 God Children. He has a family
who loves him very much and we need help to keep him here with us for a very
long time. Please contact either Jonathan @201-254-4446 or his wife Felicia
@551-579-3046 Email: [email protected], or a family phone number is
201-857-5242. Thank you to anyone who took time to read this.
Jonathan is scheduled for
his 5th surgery attempt to try and get the catheter for peritoneal dialysis
working on April 4th. Please keep him in your prayers for a successful
surgery.
Special THANK YOU to all who "Liked" and/or "Shared" this page
today! ♥
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KIDNEY STORIES: PRAYERS FOR ADAM
Adam is a 49 year old father of two beautiful daughters who
need their Dad around for a long time.
Description
Adam
first found out he has kidney failure in early February of 2012. He was
immediately sent to OSF in Peoria, Illinois where more tests were done and the
doctors concluded that he needed to be on dialysis because his kidneys were no
longer functioning at a safe level. He now has dialysis three times a week for
four hours at a time. Dialysis is an unpleasant process where blood is taken out
of the body and ran through filters to remove what the kidneys would usually in a
working body, and then returned back into the body through large needles. Adam
was placed on a kidney transplant list in Illinois when he was in the hospital
in February, but it can take many years to receive one. This process is
particularly more difficult than usual because Adam has the blood type O. A few
people have tested to be a donor but have unfortunately not been able to due to
health findings in the testing. If you or anyone you know would be interested in
being a kidney donor to Adam please send a message or help spread the word by
sharing this page. Adam and his family greatly appreciate all of the thoughts
and prayers during this difficult time in their lives.
Was advised to place this on
status just in case someone knew of or wanted to be an anonymous kidney donor
with o blood type & has no health issues for Adam. Our transplant center is OSF St. Francis Transplant
Center in Peoria, Illinois. The coordinator's name is Becky. Center phone
number is 309-655-4101. Again, this is just additional information for the page.
Thank you & many blessings for re-posting! ♡
https://www.facebook.com/adam.prayers
www.facebook.com/kidneystories
need their Dad around for a long time.
Description
Adam
first found out he has kidney failure in early February of 2012. He was
immediately sent to OSF in Peoria, Illinois where more tests were done and the
doctors concluded that he needed to be on dialysis because his kidneys were no
longer functioning at a safe level. He now has dialysis three times a week for
four hours at a time. Dialysis is an unpleasant process where blood is taken out
of the body and ran through filters to remove what the kidneys would usually in a
working body, and then returned back into the body through large needles. Adam
was placed on a kidney transplant list in Illinois when he was in the hospital
in February, but it can take many years to receive one. This process is
particularly more difficult than usual because Adam has the blood type O. A few
people have tested to be a donor but have unfortunately not been able to due to
health findings in the testing. If you or anyone you know would be interested in
being a kidney donor to Adam please send a message or help spread the word by
sharing this page. Adam and his family greatly appreciate all of the thoughts
and prayers during this difficult time in their lives.
Was advised to place this on
status just in case someone knew of or wanted to be an anonymous kidney donor
with o blood type & has no health issues for Adam. Our transplant center is OSF St. Francis Transplant
Center in Peoria, Illinois. The coordinator's name is Becky. Center phone
number is 309-655-4101. Again, this is just additional information for the page.
Thank you & many blessings for re-posting! ♡
https://www.facebook.com/adam.prayers
www.facebook.com/kidneystories
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Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
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kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: KIDNEY FOR MARIA
I was diagnosed in Jan 2012 with Good Pastures Syndrome a rare
auto immune disease which attacked my kidneys. I am A+ and can accept O as well
need a donor :)
Description
January 2012 I lived at Wake Med. I started
many different therapies to clear this auto immune disease. Three different
surgeries drugs and plasma exchanges. After being released had to go on
dialysis first hemo which requires clinic visits 3 days a week for 3 hours on a
machine. Then in late February PD which is done at home. So no the auto immune
disease is gone thanks to all the therapies ...and chemo.
I am so ready to move on from all this so just sharing helps. There has to be
a happy ending to all I have been through ♥♥♥
If you are interested in
testing the contact person below can answer all your questions. Thank you for
viewing my page ♥
Michael James
Living Donor Coordinator
UNC for
Transplant Care
919-966-3079
[email protected]
https://www.facebook.com/MariaBonpietroNeedsAKidneyDonor/info
www.facebook.com/kidneystories
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Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: KIDNEY FOR CRYSTAL
to donate to me all you would have to do is get tested the phone number is
317-948-4505 that is Dr. Tabers assistant you would just need to tell them that
you were calling to see about donating a kidney to Crystal Branham.(:
Please if anyone is
willing to donate a kidney to me or even just see about it I have all of the
info I am really wanting to be free from dialysis I have been back on it for 7
years and on the transplant list for 6 I'm ready to start living so please if
you know anyone that has. Big heart and is willing to donate to me all you would
have to do is get tested the phone number is 317-948-4505 that is Dr. Tabers
assistant you would just need to tell them that you were calling to see about
donating a kidney to Crystal Branham and then they can tell you what you will
need to do from there please someone help me out I pray that anyone can find it
in them to help me out so that I can live my life finally.
https://www.facebook.com/pages/Kidney-donor-for-Crystal-Branham/293536757414894?id=293536757414894&sk=info
https://www.facebook.com/KidneyStories
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seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
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seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: WHAT DO ALONZO MOURNING AND GEORGE LOPEZ HAVE IN COMMON?
WHAT DO THEY HAVE IN COMMON WITH JIM FROM KIDNEY STORIES?
TAGS: Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
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seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: KIDNEY FOR JEFF
My name is Jeff Pike. I have been waiting for a new kidney and
been on dialysis since June 2010. I am A+ and can receive a kidney from A and
O. I am listed at Norhwestern in Illinois and Madison in WI. I have three sons
and a wife of almost 25 years.
Description
I am
A+. I can receive a kidney from someone with blood type A or O.
I am listed
at Northwestern in Illinois and Madison in Wisconsin.
I have three sons, 17,
13, and 10, and a wife of almost 25 years.
I enjoy playing and watching
sports with my boys. We also enjoy cooking and decorating every year for our
favorite holiday, Christmas.
... A
cardiologist discovered my Creatine level at 15 during a blood test and saved my
life. I have been on dialysis since June 2010.
Here is the contact
information for my hospitals:
Northwestern Memorial Hospital
312-695-0339
University of Wisconsin Hospital Madison 608-263-1384
This is linked to my wife's facebook.
https://www.facebook.com/KidneyStories?filter=3
TAGS: kidney for jeff, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney
Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient,
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kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
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seeking, awareness, National Kidney Foundation, Indiana University, sharing,
kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic
kidney disease, kidney for, diabetic, save my life, living kidney donor, organ
donation, find a kidney for, NCS, share a spare, transplant list, fundraiser,
donate life,
KIDNEY STORIES: UPDATE ON BLAKE
Please read the message from Blake's mother
below:
"Hello Love Transfusion. Can you do us a big favor and share this
for Blake? Blake's story on CNN iReport. Please check it out, comment on it, and
share it. The more comments and shares i...t
has, the better the chances CNN will pick it up and do a national story on him.
Please Help us get his story heard so his match can be found. Thank you all for
you support, prayers, and help.
http://ireport.cnn.com/docs/DOC-920430
"As of today, a match has still not been found. The reason for this is because
his antibodies are very high. It makes it very very hard to match perfectly with
anyone. He had one transplant when he was 2, and it rejected. So now he has his
own antibodies built up and the antibodies from the other person who he got the
kidney from. The 8 year wait is unheard of for a child. You hear of some adults
waiting that long, but never a child. It is very rare. His hospital last told us
that he has waited longer than anyone at their hospital. If a match is not found
for Blake ASAP he will be stuck at the size of a five year old for the rest of
his life. His growth plates are closing rapidly and it has been a few years
since Blake has grown. He has been on dialysis since he was 3 weeks old.
Everyday, for 11 hours. What he has to go through is very hard on his body. I
could not imagine having to do what he does everyday. Blake is a warrior and he
has nothing but 100% of my respect and love. The hospital wants us to let
everyone know that instead of calling, you all can now kick start the matching
process even faster by going to the link I have provided below and filling out
the application to see if you can donate your kidney to him. First do the
questionnaire, if you pass the questionnaire, fill out the application and make
sure you put Blake Loudenber in the box at the bottom of the app. Thank you
everyone for all your thoughts and prayers."
To find out if you are a
match for Blake Loudenber, please fill out the Health Questionnaire and
Application in this link: http://www.uchospitals.edu/specialties/transplant/kidney/donate.html
www.facebook.com/kidneystories
https://www.facebook.com/photo.php?fbid=554630084554829&set=a.222177344466773.62990.107794902571685&&theater
below:
"Hello Love Transfusion. Can you do us a big favor and share this
for Blake? Blake's story on CNN iReport. Please check it out, comment on it, and
share it. The more comments and shares i...t
has, the better the chances CNN will pick it up and do a national story on him.
Please Help us get his story heard so his match can be found. Thank you all for
you support, prayers, and help.
http://ireport.cnn.com/docs/DOC-920430
"As of today, a match has still not been found. The reason for this is because
his antibodies are very high. It makes it very very hard to match perfectly with
anyone. He had one transplant when he was 2, and it rejected. So now he has his
own antibodies built up and the antibodies from the other person who he got the
kidney from. The 8 year wait is unheard of for a child. You hear of some adults
waiting that long, but never a child. It is very rare. His hospital last told us
that he has waited longer than anyone at their hospital. If a match is not found
for Blake ASAP he will be stuck at the size of a five year old for the rest of
his life. His growth plates are closing rapidly and it has been a few years
since Blake has grown. He has been on dialysis since he was 3 weeks old.
Everyday, for 11 hours. What he has to go through is very hard on his body. I
could not imagine having to do what he does everyday. Blake is a warrior and he
has nothing but 100% of my respect and love. The hospital wants us to let
everyone know that instead of calling, you all can now kick start the matching
process even faster by going to the link I have provided below and filling out
the application to see if you can donate your kidney to him. First do the
questionnaire, if you pass the questionnaire, fill out the application and make
sure you put Blake Loudenber in the box at the bottom of the app. Thank you
everyone for all your thoughts and prayers."
To find out if you are a
match for Blake Loudenber, please fill out the Health Questionnaire and
Application in this link: http://www.uchospitals.edu/specialties/transplant/kidney/donate.html
www.facebook.com/kidneystories
https://www.facebook.com/photo.php?fbid=554630084554829&set=a.222177344466773.62990.107794902571685&&theater
TAGS: find a kidney for blake, Ning, Weebly Facebook, Kidney Stories, Jim Myers, kidney,
dialysis, blood, transfusion, donor, recipient, seeking, awareness, National
Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal
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KIDNEY STORIES: FIND A KIDNEY FOR ELMER KNAPP
Dedicated to our Dad, Husband, Papa, friend, Elmer
C. Knapp Jr., the toughest man we know! After
numerous surgeries over 9 years Elmer has had both of his kidneys removed due to
cancer and a portion of his lung removed due to cancer. He is on dialysis 3 days
a week. He also has Type 1 Diabetes
and suffered a serious farm accident injury in 2009. He is a
fighter and anyone that knows him can attest to that! He needs a donor! His
blood type is O+
http://www.caringbridge.org/visit/elmerknapp/mystory
http://www.caringbridge.org/visit/elmerknapp/mystory
https://www.facebook.com/KidneyStories
Elmer's a good looking guy!
KIDNEY STORIES: NEW QUOTE
" Of the 710 families approached in intensive care units last year to
provide consent for donation, 300 refused." While we should rejoice in the 410
who saved many lives (one deceased donor can save up 8 lives and give others a
better quality of life), it is heartbreaking to hear the 300 refused. surely it
is a blend of misconception & fear (hospitals do NOT harvest and will
continue to keep the patient alive at all cost!!) More education is needed on
this subject.
Please Share!
KEY WORDS: turn downs in emergency rooms, Facebook, Kidney Stories, Jim Myers, kidney,
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KIDNEY STORIES: DYING DONOR GIVES THE GIFT OF LIFE
» Wait for life-changing surgery ‘toughest
part’
SAVE A LIFE: At present there are 1.6 million registered donors
in Australia.
ANGUS Taylor presses his face against the sliding glass doors.
His blonde hair is plastered to his wet head, his red t-shirt is soaked through
and muddy streaks run from his knobbly knees to his Spiderman gumboots as he
jumps around impatiently.
"Mum, mum," he calls through a toothy grin, "I'm ready to come in
now, it's raining out here you know."
The promise of morning tea urges him to quickly exchange the wet
clothes for warm, although his enthusiasm is tempered when a cursory glance at
the table shows his path to the chocolate biscuits is blocked by watermelon and
a vegemite sandwich.
He talks animatedly, flitting easily from one topic to another in
that carefree manner of four-year-olds.
Did I want to see his worm collection? Did I know how to build a
Lego car? Was I coming to his birthday party… his best friend Connor was coming
and there was going to be cake - chocolate of course, with lots of icing and
maybe some sprinkles, but not pink.
Every so often Tracey Taylor would put down her coffee cup and
implore her son to slow down, but her smile as she looked at her precious boy
was indulgent.
Just two years ago Angus, who was born with biliary atresia, was
an all too frequent guest of the Royal Children's Hospital in Brisbane.
A string of operations had bought him time but what he needed was
a new liver.
The Taylors' days were a frantic rollercoaster of trips to the
hospital and visits to specialists.
Some days were easier than others, every one of them was a
luxury.
There was some relief when Angus was moved onto the priority
donor list but for nine months they waited with the mobile phone always close
at hand and never straying more than two hours from home.
The call came late one Sunday after the family had already gone
to bed.
"The doctors wasted no time in prepping Angus for surgery,"
Tracey said.
"We were so happy and so scared and also so sad for the family
that was saying goodbye to someone they loved.
"I wondered whether they were in the same hospital and how cruel
and how amazing it was that their sadness could mean an end to ours.
"How do you even begin to thank someone for that?"
There are more than 1600 people on the transplant list in
Australia waiting for that phone to ring, waiting for that second chance.
Such is the high rate of success of transplants in this country
that should a donor eventuate, the recipient is likely to live a long and
fruitful life.
The challenge, however, remains in receiving an organ in the
first place because Australia, despite its skilled medical practitioners and
altruistic identity, continues to lag behind.
For almost 20 years our organ donation rates have been among the
lowest in the developed world and despite recent increases we remain in the
bottom half of the table.
Last year the rate of deceased donation in Australia was 15.6
donors per million population, an increase of 5% on 2011 but still well below
world-leaders Spain at 35.3dpmp and Croatia on 33.6dpmp.
At present there are 1.6 million registered donors in Australia,
336,000 of them in Queensland of whom two-thirds are female.
But very rarely does a willingness to donate your organs actually
come to fruition.
The tricky thing about organs - heart, lungs, liver, kidneys,
pancreas and intestines - is that their cells need a constant flow of blood to
continue functioning.
That's why organ donation is linked with brain death, because it
is the only instance when despite confirmed death, medical staff can keep the
organs functioning until they can, with consent, be recovered within minutes of
the heart stopping.
Tissue donation - corneas, heart valves and vessels, tendons,
skin, bone and pancreatic islets - are slightly different in that they can be
donated up to 24 hours after death.
Some experts say that perhaps one of the reasons for Australia's
low donor rate is because our youthful population, effective road safety
campaigns and high levels of public safety combine to make the deaths that
usually result in organ donation quite rare.
Others say that's hogwash, pointing the finger instead at the
"family consent" clause which gives the family the final say, even if the
patient was a registered donor.
Of the 710 families approached in intensive care units last year
to provide consent for donation, 300 refused.
Those that agreed changed the lives of more than a 1000 sick
people.
Of course a percentage of those refusals were registered donors
which means that the family veto not only deprived some patients of life-saving
surgery but also in a way undermined the autonomy of the registered donor.
That is why it is important says Catherine King, the
Parliamentary Secretary for Health and Ageing, that Australians not only add
their names to the donor register but also take the time to discuss their
wishes with their families.
"Around 40% of families say no to organ donation in part because
they did not know the donation wishes of the deceased," she said.
"I appeal to all Australian families to have the donation
conversation - one organ and tissue donor can transform the lives of 10 or more
people.
"Families that know the wishes of the deceased are much more
likely to uphold their loved one's donation decision in the event they ever find
themselves in that situation."
There are calls in some circles for Australia to adopt the "opt
out" system favoured in top donor countries like Spain, Belgium France, Norway
and Italy where everyone is considered a donor unless they specify otherwise.
The Organ and Tissue Authority which was established in 2009 as
part of the Federal Government's $151m funding boost to improve organ donation
has to also find a way to convince a sceptical Aboriginal and Torres Strait
Islander population to play an active part.
A cluster of chronic illness such as diabetes, stroke,
hypertension, heart and kidney disease leave these communities with a greater
need for transplants, almost eight times as much, but cultural beliefs, a
mistrust of the health system and a general lack of knowledge on the subject
has led to an under representation of donors and recipients.
An aging population and a general increase in diabetes and
chronic disease means our overall need for organ transplants will only
increase.
But hundreds of families like the Taylors will not have a chance
at a better life if Australians fail to put their names down on the donor
register and let their wishes be known.
It is the only way of turning tragedy into hope.
Milestones
Year - Milestone - Location
1905 - Cornea (eye tissue) - New York
USA
1954 - Living related kidney (identical twins) - Brigham
Hospital, USA
1962 - First kidney transplant - Colorado,
USA
1963 - First liver transplant - Colorado,
USA
1966 - First pancreas transplant - Minnesota,
USA
1967 - First heart transplant - Cape Town, South
Africa
1978 - Living related pancreas (mother to child) - Minnesota,
USA
1981 - First heart/lung transplant - California,
USA
1984 - First heart xenotransplant "Baby Fae" - California,
USA
1987 - First segmental liver transplant (for children) -
Brisbane, Australia
1989 - First successful living-related liver transplant (mother
to child) - Brisbane, Australia
1992 - First mono-segmental liver transplant (for babies) -
Brisbane, Australia
1992 - Xenotransplant (Baboon's liver to human) - Pennsylvania,
USA
2002 - Liver transplant for youngest child in Australia (24
days) - Brisbane, Australia
2003 - First heart/lung and liver transplant in Australia -
Brisbane, Australia
Latest Valentine's Day Miracle
http://newsone.com/2192379/best-valentines-day-gifts-for-men/
Wife Gives Husband Best Valentine’s Day Gift Ever:
Her Kidney
Feb 9, 2013
3
By NewsOne
Staff
Share
84
<img
alt="valentines day 2013"
src="http://ionenewsone.files.wordpress.com/2013/02/valentines-day-2013.jpg?w=638&#038;h=405"
width="638" height="405" />
James Jones will receive a kidney from his wife,
Melissa Degesso-Jones, days before Valentine’s Day.
While most women will sit in anticipation of what their husbands and
boyfriends will get them for Valentine’s Day, one woman in Lake Mary, Fla., will
give her husband a gift that cannot be found on any retail store shelf or
“Best Valentine’s Day Gifts” web post: her kidney.
News 13 in Orlando
reports that Melissa Degesso-Jones‘ husband, James
Jones, has been suffering from renal failure for a while. When he was
told that he needed a kidney transplant, his wife immediately volunteered to see
if she was a match.
CLICK HERE FOR
VIDEO
“There wasn’t any reservation, or never did I ever fathom the idea I wouldn’t
be,” said Melissa. “That’s the funny part. I never thought, ‘Oh, what if I don’t
match?’ I just assumed I would.”
Her assumption was right. She was a match.
So this Monday, just days before Valentine’s Day, Melissa will have her
kidney transplanted to James. The couple met on Valentine’s Day, just two years
earlier.
Even the doctor performing the operation is touched by the sacrifice and
symbolism behind Melissa’s kind act.
“Melissa is making the rest of us look bad,” said Dr. Giridhar Vedula, a
multi-organ transplant surgeon at Florida Hospital. “Most of us buy an expensive
box of candy and call it a day, but this girl is just something phenomenal.”
James has been trying to find a Valentine’s Day gift that can come remotely
close to the one Melissa will give him on Monday. So far, no luck.
“It’s one of those things where I’ll continue to reciprocate this for the
rest of my life, because you’ll never be able to give her anything that’s going
to be able to match life,” said James.
As for Melissa, she says her “gift” to James is something they both will
share.
“Giving as much love as I have,” she said. “It’s completely from my heart.
James has said things to me about it being a huge sacrifice, and I said, ‘It’s
not; it’s an investment. This is our life. It’s not just your life that I’m
giving, too. There can’t be an “us” without it.’ So, that’s what it’s
about.”
Wife Gives Husband Best Valentine’s Day Gift Ever:
Her Kidney
Feb 9, 2013
3
By NewsOne
Staff
Share
84
<img
alt="valentines day 2013"
src="http://ionenewsone.files.wordpress.com/2013/02/valentines-day-2013.jpg?w=638&#038;h=405"
width="638" height="405" />
James Jones will receive a kidney from his wife,
Melissa Degesso-Jones, days before Valentine’s Day.
While most women will sit in anticipation of what their husbands and
boyfriends will get them for Valentine’s Day, one woman in Lake Mary, Fla., will
give her husband a gift that cannot be found on any retail store shelf or
“Best Valentine’s Day Gifts” web post: her kidney.
News 13 in Orlando
reports that Melissa Degesso-Jones‘ husband, James
Jones, has been suffering from renal failure for a while. When he was
told that he needed a kidney transplant, his wife immediately volunteered to see
if she was a match.
CLICK HERE FOR
VIDEO
“There wasn’t any reservation, or never did I ever fathom the idea I wouldn’t
be,” said Melissa. “That’s the funny part. I never thought, ‘Oh, what if I don’t
match?’ I just assumed I would.”
Her assumption was right. She was a match.
So this Monday, just days before Valentine’s Day, Melissa will have her
kidney transplanted to James. The couple met on Valentine’s Day, just two years
earlier.
Even the doctor performing the operation is touched by the sacrifice and
symbolism behind Melissa’s kind act.
“Melissa is making the rest of us look bad,” said Dr. Giridhar Vedula, a
multi-organ transplant surgeon at Florida Hospital. “Most of us buy an expensive
box of candy and call it a day, but this girl is just something phenomenal.”
James has been trying to find a Valentine’s Day gift that can come remotely
close to the one Melissa will give him on Monday. So far, no luck.
“It’s one of those things where I’ll continue to reciprocate this for the
rest of my life, because you’ll never be able to give her anything that’s going
to be able to match life,” said James.
As for Melissa, she says her “gift” to James is something they both will
share.
“Giving as much love as I have,” she said. “It’s completely from my heart.
James has said things to me about it being a huge sacrifice, and I said, ‘It’s
not; it’s an investment. This is our life. It’s not just your life that I’m
giving, too. There can’t be an “us” without it.’ So, that’s what it’s
about.”